21-05-2017 06:52 AM
Thanks Snail, my first thought was to use a sanitary towel but as it was for the blisters I thought it may be best to use a sterile dressing. However not using anything and appears to be okay overnight. Did you have to have any fluid siringed off? My BCN told me that this maybe a possibility when I see them Tuesday if there has been fluid build up.
BTW. my hair has started to grow a lot over the last few days, I was thrilled to see all the lovely white/grey hairs appearing on my head! 😊To think this time last year I'd have been mortified by grey hair appearing on my head. The issue is it has also started to appear in areas I don't want it, namely my chin 😡
20-05-2017 11:47 PM
20-05-2017 07:06 PM
Hi, Thanks for all the good wishes and asking about me. Got home this afternoon, so had a 2 night stay. ALl went well and fel better than I anticipated. Obviously uncomfortable etc, keeping with the painkillers and started the excecises😯.
OH had a bit of a 'lymphodemia' panic this afternoon because I have had issues with dressings. I now appear to be allergic to any dressing. They sprayed me with a clear dressing, which seems fine, but for some reason put some steri strip across & low and behold I have blisters under the steri strips. Strangeley enough 2 weeks ago the steri strips were fine when port removed! One has now leaked so OH rung and has been out to buy dry pads but can't hold them on with anything & a bra or crop elastic top are both a no no. Just have to se how I go, I am back on Tuesday for them to take a look at the wound.
BTW... no drain, my surgeon doesn't use them!
The numbness is quite bizarre I have to admit.
My rads, fingers crossed are pencilled in to begin 13th June, so I will be joining those of you starting in June on that thread. I also would certainly like to keep in touch as this forum has helped with my sanity through all of this and by the forum I clearly mean you lot. So thanks & that's another hurdle over with. 😘
I will look over the thread and catch up with what's going on in more detail over the next few days.
20-05-2017 06:51 PM
20-05-2017 06:42 PM
Ha I am going to milk the chemo brain for a few months yet - a good excuse for forgetting stuff.
It is very easy to set up a private group on the BCC forum or am happy to do via WhatsApp - just let me know and I can sort out quite quickly.
Just having a moment as a friend of my parents has just emailed me some lovely photos of my Mum from about 5 years ago when they were on holiday in France. I can't believe how well she looked - good memories but has still made me cry.
19-05-2017 07:12 PM
19-05-2017 12:25 PM
ps - just thinking about our group and personally I think whatsapp might be easiest to set up and to use for this sort of chat. I don't use FB much and tend to miss notifications. People might also be happier giving out a mobile number rather than full FB access. Just my thoughts but happy to go with the flow. xx
19-05-2017 11:16 AM
Cookie - thanks for that tip, I seem to think I had heard that somewhere and it makes sense. As you know I have been frustrated by the amount of conflicting info out there. I forgot to speak to my Doc yesterday about such practical advice but I'm seeing an expert nurse on Monday so I'll pass on any more tips when I have seen her. One thing my Doc said is that I won't need deodorant under my bad armpit for a few months - something to do with stuff being cut means I won't sweat there for a while. Hope that's right or that my family/friends will tell me!!
Sorry you feel crap today, tiredness makes everything so much worse. Hope you have a good film/show to curl up on the sofa and watch - but keep the said cat away! No idea when chemo brain will go.........
I'm happy to send you contact details via private message so we can set up a closed group - if you are happy to set up the group, I'm sorry I'm fairly hopeless with setting stuff up so can't advise how to do that.
19-05-2017 10:31 AM
Evie - thanks for updating and good news for you so really pleased. I have just remembered another tip re the prevention of lymphodema - don't use a razor to shave under your arm. Best to use a cream or an electric razor as a slight nick with a "manual" razor can cause a problem.
Agarside - I'm very jealous; friends went a week or so ago and said that they put on a really good show so I hope you feel up to going.
Snail - not liking the sound of the black armpit! Will this go back to normal over time?
I'm feeling a bit crap today - not sure whether it is the side effect of the Herceptin injection I had yesterday. I can't remember if I had a reaction last time but I felt very tired and achey after I had it and then had a rubbish night, being too hot to sleep. Everytime I put my leg out from under the duvet to cool off the cat pounced on my toes. I woke up with a horrible headache.
I had the seroma drained too yesterday - 265ml taken out! Such a relief afterwards although I can see it has started to fill up again and the nurse said it can take 4-6 drains before it gets to a point where the fluid build up is minimal and is left to be reabsorbed. I'm back to see the surgeon on Tuesday so they will recheck it then.
Finally, it was great to read that you would all like some sort of forum so that we can keep up to date with each other. What is everyone's preference? I am happy to set up a Whats App group if everyone sends me their contact details (presumably you can do this by messaging me privately via this forum).
I have no idea how to set up a closed Facebook group but can certainly Google it or maybe Fiddlercrab can give some instruction having mentioned it.
My preference would be FB or WA as I find them easy to access and reply to on my phone. However, I will have a look at setting up a closed thread on the BCC site if people prefer.
If we aim to set something up for the beginning of June that gives sufficient time to check out the best option as we have this thread to communicate on in the meantime.
How long does chemo brain last - I did my online shopping at the weekend with the aim of doing a home-made chicken, goats cheese and leek pie made with filo pastry but forgot to order the blooming filo pastry (and although I like baking, filo pastry is way too faffy for my liking),
19-05-2017 09:30 AM
Agarside - no you didn't mention that! How fab. You will find the energy and this will help you no end, it's just great to do something "normal" - although I guess I can't really call a Take That concert a normal everyday activity. Hope the last T treats you as kindly as possible, and that the fluid goes. Now make sure you come back on tomorrow and make us all jealous about your eve out!
19-05-2017 09:21 AM
Hi All !
Did I mention I am going to see Take That tonight in Manchester!! My sis and friends got me the ticket in the hope chemo would be ok and I could go. So looking forward to it, but have now had to contact the venue as the restrictions to what you can take in, if there is a medic on site and lastly accessibility - there are masses of steps, queueing and more steps!! I am plagued with fatigue and just walking around the hospital yesterday was hard work!
Yesterday was ok, found the last cycle very painful, stinging! Nurse said all was sited ok, but hell it did not make it enjoyable! A heated pad seemed to help, I wished everyone well and to not be offended if I never see the place again!! They were very understanding and said they hoped they wouldn't see me!! Lol!
I am so full of fluid, puffed up and uncomfortable - put on 4kgs in last 2 weeks - unbelievable! Hubby keeps reassuring that it will all reduce once this awful T is out of my system, roll on tomorrow when the SE's kick in.
Have a lovely weekend all
19-05-2017 08:47 AM
Good news :-)
I think we are in too much of a rush to get better especially with the arm exercises which frankly seem utterly ridiculous, yet are totally necessary. I guess if we move too fast we could cause some damage which would get in the way of healing up. So it's a bit of a balance!
50ml this morning. Going to give it over the weekend and cross my fingers than on Monday they can come out. Or maybe Tuesday, because my chauffeur is busy on Monday so I can't get to the hospital. Which I guess means they might decide to leave it until Thursday when I have the appointment anyway.
Snail - they say rads is the least bad part, but a black armpit sounds awful. Sending healing vibes, although not sure what use that will be!
19-05-2017 08:22 AM
Thank you all so very much for all those wonderful messages - which really did give me strength to get myself through the door. I kept hearing your words as I went in. You are all so lovely.
I was of course fearing the worst but am relieved to tell you that the Doc was very pleased with the job the chemo had done and has downgraded the original tumour. They found 3 positive nodes but very much smaller than when originally found. So next comes radiotherapy and Tamoxifen, I see my oncologist next week to find out more about those. Even though I write down questions to ask, I still manage to forget to ask half of them. Most of all I want to know when my brain will come back!
Fiddlercrab - he did confirm what you said yesterday, that I mustn't try to lift my arm too high or that could cause fluid to come from wherever and have to be drained. So glad you alerted me to that.
Snail - your armpit sounds painful, I can't offer any advice but hope GP or someone can give you something to help with it.
WMJ - hoping your op went well yesterday, sending hugs. How long will you be in for?
Hugs to all of you and thank you for helping me yesterday, that meant so much to me.
19-05-2017 12:07 AM