24-04-2017 11:17 PM
24-04-2017 11:02 PM
Hi Fen Hen,
well done you on completing the treatment, bet that's a good feeling, makes you our second scout to go through....consider yourself badged!
did they take out your PICC line at the same time as your final chemo??
Post gone a bit funny tonight, this maybe already listed,
24-04-2017 10:59 PM
Hi Fen Hen,
could you let me know how many days after your last treatment the PICC line was removed please?
the community nurses are telling me one thing and the chemo nurses another. I am in the middle and whilst I would not have wanted to have done chemo without the line, I would like to get it out asap when I have had the final zap!
24-04-2017 09:41 PM
24-04-2017 06:56 PM
24-04-2017 06:28 PM
If they made a film about this thread no-one would believe it to be true.
Jackie yet another hurdle and goodness knows you have had more than your fair share but as always your seemingly indomitable spirit refuses to be suppressed and you find a message that absolutely fits the occasion. Keep going you must, no other choice, but you do it in such style. Go show that daughter of BOB where she gets off. Just a few more days Jackie and you get to give yourself your very own badge and by God you bloody deserve it....and no I won't apologise for the language !,,
love and know that everyone of us is willing you on xxxxEbimx
24-04-2017 05:09 PM
So pleased you are now home, I was getting worried about you. Yes - I've had the sweaty head too.
Mooney - all kudos to you for enjoying the wedding. And for going in the first place.
Beedot - I had cellulitis on the face a couple of years ago - and yes - you think of cellulite, and it is far from. I hope the antibiotics do the trick for you.
Robin, that's the joy of Tax - it's SEs seem to be cumulative. It's brutal. Hope you feel better soon, and the scans go OK.
Esther c - sorry I don't know about swimming, but I would be worried about the possibility of infection.
ebim - my nails have a white line on them - one for each chemo session. I have heard of others having nail problems, but that's all for me.
So, 5 days from my final chemo, and thinking I'd got away with it - daughter of Boil on the Bum put in a last minute appearance last night.
Just like that!
Off to A & E , where I refused to sit in the full waiting room, amongst who knows what germs, so they saw me straight away.
Lesson learned for next time!
Doctor diagnosed an abscess "brewing", sent me away with antibiotics, and an appointment to see my favourite surgeon tomorrow, to see if it needs draining.
You honestly couldn't make this **bleep** up! (Sorry for the language)
Oh - and my private insurance won't cover the cost of physio for lymphatic drainage.
Somebody tell me this will all be over soon!
24-04-2017 07:58 AM
24-04-2017 07:54 AM
Good Morning Warriors
like Robin I am feeling about as far from a Warrior as is possible, steroid crash is completely how it was Robin, one day on the go, next bam couldn't get out of bed....weak, crying and feeling very sorry for myself.
Does anyone have toe or finger nail probs....maybe just my curse instead of crusty nose.
sheila, welcome - do you know what your treatment is going to be yet?
Mooney great news that you had a good time at the wedding, you so deserved it.
jackie you ok?
chemo brain so can't remember who is our next finalist, Ester think you are up this week. SLowski & Scotty?
good luck to all having treatment this week, commiserations with those lying low and go have fun to those in their "good" week.
love and big hugs Ebimx
24-04-2017 07:54 AM
23-04-2017 07:52 PM
23-04-2017 06:16 PM
23-04-2017 06:03 PM
23-04-2017 05:16 PM
Hi everyone, it's quiet on the forum this weekend, hopefully because everyone is doing something nice.
Mooney, glad to hear you made the wedding and enjoyed it.
welcome Sheilab, I hope you can see from our wibbles that this is all doable and the support from this forum is great.
Ebim, thank you for the Pliazon tip. My heels are actually OK now, they were just numb but nervy last week. I can't remember if it was you that suggested the daily foot balm before but I have been doing it and it works.
Egg, I hope you out of hospital.
Day 14 after Tax 1 and most SE's settled down (no tax trots, I hope I got away with that one) except my hands and face have had swollen, purple patches for the last few days. I have been taking Loratadine which helps a bit. The worst area is the back of my hand on my post surgery side which is where it started. The chemo team warned of cellulitis - sounds low key, like cellulite, until I looked it up - why does every SE associated with this treatment have the potential to become so serious! and of course Lymphodema risk. So anyway, to cut a long story short, I am on antibiotics now just in case.
Good luck to everyone getting zapped this coming week.
23-04-2017 09:02 AM
21-04-2017 08:03 PM
Jackie - Thank you for badge! Will wear it with pride. Hope your lymphoedema really is mild and that the physiotherapist can show you some good exercises to control it.
Egg - sorry you find yourself back in hospital and hope you will be out soon, once they've got you sorted out. I also hope you find the weekly treatments easier to cope with, as WTP has, once you are back on track.
Lighthouse - glad you seem to be doing OK apart from the fatigue and taste changes. Only one more to go before your badge!
Mooney - hope you enjoy the wedding. I'm sure you will be fine with the right make up. If you haven't been able to get on a LGFB course, their website has a lot of information on it, including videos of tutorials. This may help you with the red face etc (the green face paint sounds weird but it does work). Here is a link:
Esther - it is a pain that the PICC isn't going to last the course, but at least you will get rid of it early. Hopefully the arm will have chance to recover once it has gone.
Ebim - hope the hands are better now. The Pliazon cream sounds good. So many people seem to suffer with their hands and feet on Taxotere. This was one SE I didn't have, but I had other SEs that most of you have escaped. The rule seems to be that everyone gets at least two or three horrible ones from Tax, but not everyone gets the same.
All Troops - crying, whingeing and moaning is allowed during chemotherapy. In fact, it is probably essential to maintain your sanity. The pills, potions, needles, poking and prodding won't disappear completely when it's over, but there will hopefully be a lot less of it once your active treatment is finished.
On a more cheerful note we have been watching a squirrel raiding the bird feeders this afternoon. It is a crafty little blighter and is eating us out of seeds and fat pellets. My OH kept getting up and standing in front of the window to shoo it away, it then jumped down and ran off...but it was probably hiding just out of sight and watching us, because after a few minutes it was back again!
21-04-2017 07:47 PM
Welcome to the group. We are a group of bald, moth eaten teddies, who love and support each other along the path of chemo.
It isn't easy, but we are all proof that it CAN be done.
Just shout if you need us, rant away, and remember we were all terrified at the beginning, but we are here to fight another day. xxx