30-10-2018 10:12 PM
30-10-2018 10:13 AM
29-10-2018 09:12 PM
I have been here in hospital since last Tuesday evening. I've been on the June thread a little, but not updated on this one.
The neutrophils count this time started very very low but has come up since, however they have kept me in for a full week of IV antibiotics to make sure the sepsis is gone. I've decided to call neutrophils "naughtyphils". We are clearly not playing nicely together with the chemo. I have been told I can go home after Wednesday's antibiotics.
I had a meeting with my oncologist planned, just so happens to be Wednesday. My daughter has her birthday the same day, and we had planned a nice day together. Now we will be spending the morning here and are aiming for lunch at home. How lovely that will be🏠!
Its good to to be able to come on here and June thread too, where everyone's support has been great.
Thank you !
Georgie Gee 😘
29-10-2018 07:00 PM
29-10-2018 07:22 AM
Hope everyone is doing ok.
A quick question- has anyone experience an annoying dry cough, esp at night and in the morning?
It started a couple of days after T and disappears during the day.
Temp is ok.
29-10-2018 07:17 AM
I had my second T cycle last Monday and have been extremely tired. I also had quite bad facial flushing on the first round, which lasted several days and caused some swelling around eyes. I was advised to take Piriton as it was a “common reaction” to T.
Still on the full dosage as most of my SEs only lasted the first week - onc felt I could take the full dose again!
Final round(hopefully) on 12 Nov.
28-10-2018 08:03 PM
28-10-2018 07:42 PM
28-10-2018 07:35 PM
28-10-2018 06:48 PM
28-10-2018 06:32 PM
28-10-2018 05:48 PM
I had my first T last week (18/10) and haven’t found it too bad apart from my mouth which is like sandpaper and my taste buds are non existent!! Are you experiencing this too? I’m hoping it starts recovering soon but not sure it will 😏
28-10-2018 04:11 PM
28-10-2018 09:47 AM
28-10-2018 08:51 AM
Sorry to hear about the diarrhoea - I’ve had the other extreme - terrible constipation! How strange is that.
But like you, not really any bone pain this time, just a sore back which inelieve is from the injections. Injections now finished which is good news.
I also have been sooooo tired. Spent all day Friday in bed and most of Thursday and yesterday just lounging around and then cannot sleep at night !
oh well hopefully the next couple of weeks it willl get easier before being knocked back down again......fingers crossed for the last time!
Hope everyone is doing ok.
27-10-2018 07:41 PM
24-10-2018 09:31 PM
24-10-2018 08:26 PM
24-10-2018 07:14 PM
24-10-2018 04:10 PM
So here I sit again in Acute Assessment Unit of hospital.
Was admitted yesterday after raging sore throat accompanying oral thrush. Temp was up to 38.2 so couldn't keep grinnng and bearing it.... joint pain terrible still.
I am wondering what to do about my future chemo. 75% of the dose I needed has still impacted with the sepsis again, and next was supposed to be 50% if this happened.
Have a chat with my oncologist coming up next week. She has said that it's a case of weighing up which course of action is less life threatening.
So so many thoughts whizzing around.
All the the best to everyone.