Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Georgie

Hope you get home tomorrow & enjoy celebrating your daughters birthday + good luck for your meeting with the oncologist!
There’s no place like home!

Take care all

Jude x
Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Georgie,
Naughtyphils is right! Glad to hear you’re starting to get better and will be going home tomorrow to enjoy your daughters birthday......bet you can’t wait after such a long stint in hospital! Good luck with the Oncologist, hope you get your treatment back on track.
Take care all
Cat 😘
Member
Posts: 116
Registered: ‎30-06-2018

Re: August 2018 Chemo starters

Hi Ladies, 

 

I have been here in hospital since last Tuesday evening.  I've been on the June thread a little, but not updated on this one.  

 

The neutrophils count this time started very very low but has come up since, however they have kept me in for a full week of IV antibiotics to make sure the sepsis is gone.  I've decided to call neutrophils "naughtyphils". We are clearly not playing nicely together with the chemo.  I have been told I can go home after Wednesday's antibiotics. 

 

I had a meeting with my oncologist planned, just so happens to be Wednesday.  My daughter has her birthday the same day, and we had planned a nice day together.  Now we will be spending the morning here and are aiming for lunch at home. How lovely that will be🏠! 

 

Its good to to be able to come on here and June thread too, where everyone's support has been great.

 

Thank you ! 

 

Georgie Gee 😘

Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Lovely Ladies,

I hope you’re all keeping well!

Cdc - welcome to the August forum! I’m also on weekly Paclitaxol, I had my 3rd of 9 sessions on Friday. So far feeling okay. Main SEs for me are; flushed face for 1 day, sore nose/mild bleeding, mouth ulcers, heartburn, constipation, a few aches and pains and some tiredness, but nothing too bad. Not had numb toes as yet.

Jude, Jo, Tarnia & Ktk - hope your SEs are being kind and not getting you down. Jo I haven’t experienced a dry cough.

Take care everyone!

Cat
🤗😘🤗
Member
Posts: 69
Registered: ‎18-05-2018

Re: August 2018 Chemo starters

Hi all,

 

Hope everyone is doing ok.

 

A quick question- has anyone experience an annoying dry cough, esp at night and in the morning?

It started a couple of days after T and disappears during the day.

 

Temp is ok.

 

Thanks

jo

 

 

Member
Posts: 69
Registered: ‎18-05-2018

Re: August 2018 Chemo starters

Hi Cdc,

I had my second T cycle last Monday and have been extremely tired. I also had quite bad facial flushing on the first round, which lasted several days and caused some swelling around eyes. I was advised to take Piriton as it was a “common reaction” to T.

 

Still on the full dosage as most of my SEs only lasted the first week - onc felt I could take the full dose again!

Final round(hopefully) on 12 Nov.

 

jo x

 

Member
Posts: 692
Registered: ‎25-03-2018

Re: August 2018 Chemo starters

Thanks for your reply Jude, You’ve reminded me that my oncologist warned me that even on weekly Paclitaxel I would still get side effects and they would be accumulative, I think because I had a week’s break I temporarily felt better and forgot how lousy the chemo can make me feel! Oh well roll on December. I had an extremely sore mouth on AC and was recommended something called Daktarin gel. (Not the stuff you put on your feet I hasten to add!). It worked for me but I think the salt water mouth washes were the most effective in reducing sore mouth issues. I would gargle with some salt in warm water after each meal. I’m glad you’ve found the Diflam works for you,
Do hope that the runs clear up soon! I was shocked when I had them today as I usually have the other! Hoping it was a one off.

Hope you can have a restful evening.

Hugs xx
Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Cdc
Sorry to hear of your treatment delays, it’s a pain when you have a finish line to aim for at the start.
I’ve had some tingling in my fingers but not too problematic & my toes have been ok. I’ve only had 75% of T this cycle as I had a bad reaction last time.
I had a little bit of facial flushing for the first 24 hours but being ok since
Sounds like you’ve had a tough time already re ops, hope your mx goes well in the New Year
Take care

Jude x
Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Tarnia
I had T last Tuesday & my taste buds have gone today! The inside of my mouth is also a tad swollen so I’m expecting some ulcers where I keep catching areas. I have got some good mouthwash - diflam - so will start using that today
Take care
Jude x
Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Jo & K

I have to say the tiredness is quite overwhelming - my oncologist says it’s cumulative so the last cycle could be heavy! I’m still suffering with the runs but hopefully it will start to ease soon

Take care all

Jude x
Member
Posts: 692
Registered: ‎25-03-2018

Re: August 2018 Chemo starters

Hi everyone I’m usually on the June thread but I was originally on 4AC then 4T so finishing later than some of those having 3FEC-3T. I’ve also had some delays which means I have a similar amount of treatments left as some on this thread I believe.. After my first docetaxol I had hand/foot syndrome and had to wait for it to clear up before being put on to weekly Paclitaxel instead. After my 2nd Paclitaxel I had some peripheral neuropathy in my toes and the balls of my feet so had another weeks delay. Thankfully the feeling returned somewhat and I was allowed to have my 3rd chemo at an 80% dose on Friday. Has anyone else had issues with numb toes? My fingers are feeling slightly tingly today too. I’ve now been given a chemo end date mid-December as long as I have no more problems with skin or nerve damage. It’s all feeling like a bit of a slog. I’ve been told I am very sensitive to the ‘taxane’ part of treatment and may have to come off it altogether. I hope you won’t mind me joining you on here from time to time to share experiences/support. . I have also had facial flushing but this goes down around 24 hours after each dose, I am feeling very tired today so think the fatigue maybe setting in, I thought having only 80% of the dose might minimise it but I’ve been forced to retire to my bed today. I often had constipation on the AC and T drugs but have had diarrhoea today which was a total surprise. Just wondering if it’s the Paclitaxel? I’ve been very lucky in other respects as my bloods have been ‘within an acceptable range’ each cycle so far so hope that will continue. ’
I’m Er+ 8/8 but HER- I have bilateral BC and had a therapeutic mammoplasty in May then a further re-excision on the right which unfortunately found more cancer cells. My chemo is neo-adjuvant and I will have a mastectomy in the New Year.

I hope everyone is faring ok. Georgie Gee Sorry you’re back in hospital. I do so hope your medical team have found something to help your swallowing problems and you are feeling better.

Take care everyone x






Member
Posts: 24
Registered: ‎03-08-2018

Re: August 2018 Chemo starters

Hi Jude

 

I had my first T last week (18/10) and haven’t found it too bad apart from my mouth which is like sandpaper and my taste buds are non existent!! Are you experiencing this too? I’m hoping it starts recovering soon but not sure it will 😏

 

Tarnia

Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Lovely Ladies,

I had my 3rd weekly T (Paclitaxol) on Friday and feeling okay so far....just 6 more to go!

Jude, Jo, Ktk, Whilst we’re all sharing 😂 I have been suffering with constipation too 😞...not had the other end of spectrum yet.

Also just to let you know I asked nurse about my sore nose and she suggested using cotton bud to apply Vaseline.

Georgie, hope you’re feeling better now.

Take care everyone,

Cat xxx
ktk
Member
Posts: 558
Registered: ‎02-04-2018

Re: August 2018 Chemo starters

Hi Jude, I also had the runs on each T cycle. Constipation for the first week the boom!!! Imodium helped, and Macrogol with the other. T also left me very fatigued. Good for very little, so take it easy and conserve your energy!! Kx
Member
Posts: 69
Registered: ‎18-05-2018

Re: August 2018 Chemo starters

Hi Jude,

 

Sorry to hear about the diarrhoea - I’ve had the other extreme - terrible constipation! How strange is that.

But like you, not really any bone pain this time, just a sore back which inelieve is from the injections. Injections  now finished which is good news.

I also have been sooooo tired. Spent all day Friday in bed and most of Thursday and yesterday just lounging around and then cannot sleep at night !

 

oh well hopefully the next couple of weeks it willl get easier before being knocked back down again......fingers crossed for the last time!

 

Hope everyone is doing ok.

 

jo x

Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Ladies

Hope you are ok all - Georgie, hope you are home!

Quick update on my latest T cycle - was doing really well up to yesterday when I started with the runs (sorry too much info!) & this continued into this morning, had to resort to Imodium. Just starting to feel ok now but dreadfully tired. Good news is not too much bone pain this time - just a bit of backache.

Take care

Jude x
Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters


Good news on your platelet count Cat - I just remembered that one of the nurses had said as you lose your nasal hair as well, it does make your nose dry, sore & runny!
My eyes have started running a little as well in the last day or so, presumably because of the lack of eyelashes! What joy! x
Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Jude & Sue,
Thanks for the advice. My nose is very dry inside and runny at same time! I was at the hospital today for my blood test and nurse said my platelet counts were fine which is good.

Hi Georgie,
Oh no! So sorry to hear that, you are really going through the mill! Maybe reducing to 50% will do the trick. Either way I hope you get it sorted and you get home very soon.

Take care all 🤗

Cat
Xxx
Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Cat

I had a very runny nose last cycle & had 4 quite heavy nosebleeds - 3 of them when I was in hospital for the 2 days. No-one seemed that concerned as my platelets were ok - do you know your platelet count?

Georgie - you poor thing - it’s no fun but you are in the best place - presumably you’ll be pumped full if antibiotics. It’s a shame that this latest problem has occurred on the reduced dosage, you might have to drop to 50% next time - on the plus side I suppose you know it is working! Hope you start to feel better soon

Take care all

Jude x
Member
Posts: 116
Registered: ‎30-06-2018

Re: August 2018 Chemo starters

Hi Ladies,


So here I sit again in Acute Assessment Unit of hospital.


Was admitted yesterday after raging sore throat accompanying oral thrush. Temp was up to 38.2 so couldn't keep grinnng and bearing it.... joint pain terrible still.

 

I am wondering what to do about my future chemo. 75% of the dose I needed has still impacted with the sepsis again, and next was supposed to be 50% if this happened.

 

Have a chat with my oncologist coming up next week. She has said that it's a case of weighing up which course of action is less life threatening.

 

So so many thoughts whizzing around.

All the the best to everyone.

 

Georgie xx