well I’ll I have survived my first T session. Not major side effects actual infusion, although I needed 4 attempts to find a suitable vein, they all had given up throug( the FEC cycle. Drs considered a PICC line but as I now only have 2 more left they really don’t want to put one in.
ill keep you updated on SEs. Feeling nauseas though at present, but I was really sick with FEC so not surprising I suppose!
Good luck to everyone else starting T this round. X
i had my 3rd FEC last tuesday my 1st T on the 16th, i have such a sore mouth G P has given me some Difflam mouth wash just something else to contend with. At least we are half way there. Good luck with your your 1st T keep in youch chin up.
please let me know how you get on with your first T. I had my 3rd FEC last week and my first T on 18th. I’m hoping the aching bones isn’t quite as bad as I’ve been told. But like you say one more done. Good luck for tomorrow.
just checking in to see how everyone is coping.
i have my first T chemo tomorrow.....feeling slightly anxious but it will be one more done!
Best wishes all
Hi Ladies, I hope you are all doing well. x
Right now the government has extra funding to allocate and we need to make sure breast cancer gets the priority it deserves. I've shared my story, please share yours:
Pleased to report that I am now home, infections cleared up but still in a bit of shock about the blood clot.
Doing my own injections for thinning blood, but I don't know when that will end.
They have put back back herceptin and first T a week, so will start on11th and 12th instead next month.
So so tired.
Love to you all
Georgie Gee xxxxx
Hi Jude - No need to apologise, chemo brain gets to us all! Yes they did say I would have Herceptin then at least a 3 hour wait before chemo so I will prepare myself for a long day. I am having Paclitaxel rather than Docetaxel, for 9 weeks. And yes please, let me know how you get on. Good luck!
Hi Georgie – I hope you are being well looked after and are home in your own comfy bed very soon.
Hi Caroline – good luck with your results.
Take care everyone
A mixed day here at the hospital!
My antibiotics have ceased, as the infection is gone. 😍😍😍
Went for a chest scan today and they found a blood clot on my lungs. 😫
So in a nutshell, they will start blood thinning drugs later this evening, and test blood again tomorrow. If the platelets are ok, I can go home 😃.
All a bit of a whirlwind if I'm honest!!
And chemo has been delayed for a week, which I am very pleased about..... I need to get my breath back!!
Love to all!
Georgie Gee ❤️
Hi Lovely Ladies,
Georgie and Jacq’s – so sorry to hear about your hospital visits, you are not having the best of luck ladies……but I am sure that will change! Sending you lots of hugs and hoping you both feel better very soon.
Jude – I’m still feeling icky after my third FEC on 21st Sept but at least it was the final one, I move to Herceptin and T on 12th Oct. Interestingly I am booked in to have my first Herceptin and T on the same day rather than consecutive days like you.
I’m also feeling the cold especially on my head so sleep hats turned out to be a good buy! And thanks for all the top tips to keep well moisturised.
Take care everyone
Aw Georgie - sounds like you’ve got same rotten luck as me. I was admitted to hospital on sat evening after initiallly been sent home on Friday. Turns out it wasn’t neutropenia. I had blood clots on my lungs & pleurisy. Lots of antibiotics, blood thinning injections for next 6 months & a shedload of painkillers. The suspected infection in my central line may not be as serious though but will know for sure on Friday when blood cultures come back.
Love & hugs from one unhappy bunny to another.
Thank you all for your get well wishes xx
I am so sorry to hear your new's not having much luck at all Thing's can only get better keep your chin up.
lot's of love and hug's
i have found that over the last few day's i have felt the chill and like you it is in the evening. i sat with a water bottle last night bought a little comfort. Make's me wonder what we will be like in the winter. I had my 3rd cycle oe fec today so looking forward to a couple of sleepless night's.
The doctors came to my bedside with aprons on yesterday and told me that the mystery blood causing the query, has tested positive for MRSA.
This is of course means that for the moment at least, I need to settle in and call my isolation room home.
I was really tearful yesterday but coming coming to terms with it today. The antibiotics for the sepsis were not covering the MRSA, hence the extra one, which is pumped in IV by the nurses once a day, like some of the chemo drugs are. They think it may be in my mouth / throat / downwards.... may have some tests.
Georgie Gee is not a happy bunny 😷
Georgie and Jacqs -sorry to hear you are not so good at the moment. Sending you best wishes. x
Is anyone currently suffering from feeling the cold, especially in the evening?
i just can’t seem to get warm. My temperature is good and I feel ok, just cold!
My thoughts are the same.... I certainly don't think I will be starting it on 5th of October, or herceptin on 4th. I need a break before I start anything else.
Hello from hospital, night 3 😐
And thank you all for kind words and wishes.
I'm in a quiet ward, which is a nice little extra, but no nearer to the exit route.
Still having IV antibiotics for sepsis, but today was hunted down by the blood labs, as I have something 'unusual' 🙄 (trust me!!) growing in my blood from Friday night.
So had another load of bloods taken today, and I'm sure the junior doctor was young enough to be still wearing his school trousers..... he asked ME what I thought my swollen mouth and tongue would benefit from. I actually cannot open my mouth wide enough to say the obligatory 'aaaah'. I said, 'well hopefully something to soothe the swelling and pain'. He actually suggested Vaseline 😳. I mean 😳😳😳!!
My neutrophils have risen, but they have added another IV antibiotic to the mix now, and are saying this may need to be given for another 10 - 12 days, depending on the result of the wierd blood tests. So it's mouthwash, earplugs, sleep hat drawn downward to shut out the hospital lights (good tip, that one.....😜) and hopefully some answers in the morning.
Night night, and don't forget to put your Vaseline on your sore mouths......😬
Georgie Gee x
Hi Georgie. I was admitted last night & am being treated for neutropenia sepsis & pleurisy. Can I ask how long it takes for symptoms to ease. Like you it isn’t best place to be - it’s chaotic & so noisy even in middle of the night. I’m from September thread - hope you don’t mind the questions & hope you’re starting to feel little better. Jacqs xx
I'm back in casa NHS.
Neutropenic sepsis has returned. Neutrophils score is 0.3. Just posted more on June thread..... so sick of this and am on a ward of 6 old ladies who shout.....
not appy 😢
Hi Lovely Ladies,
Georgie – sorry to hear you’re having a rough time – hang in there!
Purplebarb – welcome to the August monthly thread – it is !definitely a great place for sharing and caring!
I’m having my third (and final) FEC cycle tomorrow so if my last two cycles are anything to go by I am in for a grim week….I will expect the worse and hope for the best!
Take care everyone
I will be interested to see how you get on with your T cycle. Glad your side effects are better this time generally. The sooner all of this is over the better. Have you seen my posts on the polybalm cream?
I cant wait for all of this to be over.