Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Definitely Cat - & for the first time ever we are eating out at a restaurant for Christmas day lunch - so double bubble x
Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Jude,
All done by 24th December....now that’s the best Xmas present! 🎁
Cat x
Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Cat

 

Well done on your recent T, the tiredness is cumulative according to my onc, so take it easy - hopefully you won’t have any other side effects 😁
Blood tests were ok so I’m on for my last T tomorrow - hurrah.

I hadn’t had confirmation of my radiotherapy dates so today I phoned my breast care nurse who has sorted, I’ve my planning appointment this Friday 16th & then 15 days of treatment starting Tuesday 4th Dec to Monday 24th December, so all done for christmas!

Jo - hope final T went well today 🔔 & you don’t suffer too much with side effects. Have you got radiotherapy to follow?

 

Hope all you other lovely ladies are doing ok,

 

take care 

 

Jude x

 

 

Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Lovely Ladies,

One more T ticked off on Friday. I have been so so tired since, more so than I’ve ever been before. Probably just the cumulative effect, it’s been a long road but just 4 more T sessions to go! 😀

Jo, congrats on your final T today! Must be a great feeling 👍

Jude, good luck for your final session tomorrow, you’re neatly there! 😀

Tarnia, good to hear your sessions are progressing well too.

Wishing you all a good week. Take care everyone.

Cat 😘
Member
Posts: 24
Registered: ‎03-08-2018

Re: August 2018 Chemo starters

Hi Jo

Good luck with your final T on Monday. Sounds like you’re doing really well. I’m going for my second T tomorrow and so far been coping quite well ....no fatigue at all just hope it continues.

 

i haven’t heard of the trial you’ve been offered however I’m triple negative and I’ve been offered one talking low dose aspirin. I guess they have trials going on all the time for all the various sub groups. 

 

Good luck to everyone going for another round of chemo! Nearly at the end point 😏

 

Tarnia

Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Ladies

Hope you are all ok

Cat - good news that the infection is responding well!
Jo - good luck with final T, hope all goes well. My oncologist said that the tiredness & side effects are cumulative so dig deep, I’m sure that the thought that it’s the last cycle will help 😀
Sorry I don’t know anything about the monarchE trial as I’m hr- & her2+ - good luck with your decision - and you Sally

This week other than being tired I have felt more normal - whatever normal is nowadays 😂 - so roll on my last T next week

Take care all

Jude x
Member
Posts: 686
Registered: ‎03-04-2018

Re: August 2018 Chemo starters

Hi Sunflower, I'm from June thread. I've also been asked about that trial and am seeing ONC shortly so I'll let you know what they say.
Member
Posts: 69
Registered: ‎18-05-2018

Re: August 2018 Chemo starters

Hi all,

 

Just returned from my onc appt and if bloods are ok, I’m set  for my final T on Monday.  Discussed SE and I’m still on 100% dosage as they didn’t feel it was necessary to reduce it down. Although tiredness this time round is quite hard, really feeling it and I’m sure it will be worse next time round.

 

Finally have got my radio dates and I start 4weeks of radiotherapy on 3rd Dec so hopefully finish the first week of Jan! I will also need Bone strengthening injections but need a dental check up first as it can apparently cause issues with jaw/teeth. Initially I was due to start tamoxifen for my hormone treatment but they are now recommending letrozole as my blood tests show I am post menopausal which I was quite surprised about!

 

I was also asked about taking part in a trial called monarchE - it’s a licensed drug that is being used for advanced BC and they want to see if it has any benefits in preventing recurrence in early BC which is Hormone receptor +ve and HER2 -ve.  Has anyone else been invited to take part?

 

Anyway, hope everyone is doing ok.

jo x

Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Lovely Ladies,

Thanks Jude and Tarnia, I was back at hospital today and infection is clearing up well.

Jude, great news that you’re finishing next week....chemo is a long hard road so I hope you’ll be celebrating getting to the end! 😃

Take care everyone

Cat x
Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Ladies

Hope you are all ok

Tarnia - good luck with your next cycle, hope it all goes ok
Cat - hope your infection clears up quickly with the antibiotics & you are back on track!
My last docetaxel is Tuesday 13th - so nearly there, I can’t wait for it to finish - it’s been the longest few months of my life!

Take care

Jude x
Member
Posts: 24
Registered: ‎03-08-2018

Re: August 2018 Chemo starters

Hi Cat
Thank you. Hope your infection clears up quickly too. Like you not long to go.....that end date is in sight! !
Take care
Tarnia x
Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Tarnia,
Didn’t see your response before I sent mine....best of luck for your second dose of Docetetaxol next week! 👍
Cat x
Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Lovely Ladies,

 

I hope you're all keeping well.

 

I had my 4th session of Paclitaxol on Friday....just 5 more to go! I had developed a reaction/infection around my PICC line so they made a decision to remove it immediately and put me on antibiotics for 7 days. Not to worry, only a few weeks left!

 

Georgie - so pleased to hear that you are safely home. Sounds like it's the right time to take a break and prepare for radiotherapy. You've been through a lot and are doing great!

 

Multitasker - I'm on weekly Paclitaxol and the plan is to reduce the amount of steroids as the weeks progress but so far I haven't noticed any difference. My sleep is disturbed for a few days and my appetite is also increased.

 

Jude - you must be coming close to the end of your chemo journey? 

 

Take care all

 

Cat x

Member
Posts: 24
Registered: ‎03-08-2018

Re: August 2018 Chemo starters

Hi

I too have trouble sleeping whilst taking steroids 🙄 I find myself getting up in the middle of the night to watch tv or read! I don’t feel tired during the day though I just keep going. Sleep returns to normal a couple or so days after I stop taking them. Not sure you can reduce the amount of steroids you take whilst on Docetaxel as you are more likely to have an allergic reaction to this chemo or so my oncologist said!! 

Im due to have my second dose of Docetaxel on Friday....wish me luck 😫

Hope everyone else is doing well x

Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Multitasker

I have the same problem with the steroids - I barely sleep for the 3 days that I take them but don’t have much extra energy in the daytime. However once I stop taking them I am then totally exhausted & could sleep at any time of day!
Sorry I can’t offer any advice about reducing them other than to discuss with your breast care nurse initially, who may be able to advise/liaise with your oncologist
Hope you can get a resolution

Jude x
Member
Posts: 20
Registered: ‎14-07-2018

Re: August 2018 Chemo starters

Hi folks

 

Havent been on for a while. Just trying to keep my s**t together, this treatment is so brutal physically and emotionally.


I had my first dose of Docetaxel 8 days ago. Previously 4 cycles of EC which I hated due to intense nausea for 24/36 hours and feeling broken for the week after. Amazing how different the chemo drugs are.

 

Thanks for the great tips for SEs, immediately got bad oral thrush and using nystatin and your pearls of wisdom.

My question regards the steroids given before and during treatment. I find they really disturb my sleep at a time when I crave and need it so desperately. I take the second does around lunchtime as recommended but I am still so wired I only sleep for a few hours. I do not get any extra energy or appetite other people mention. The effects seem to take days to leave my system or maybe my body clock gets into a bad pattern.

Has anyone successfully reduced the level of steroids they take and did this help lessen imsomnia?

Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Georgie
Pleased you finally got home!
You’ve had such a bad reaction to the chemo each time, which to my mind means that the chemo that you’ve had has been working & doing its job. So while you may not have had the agreed quota it’s not worth putting your body through anymore.
Like you say the radiotherapy is now important just to catch any stray cells in the immediate area
Time for you to rest up & build your strength up again!
Take care

Jude x
Member
Posts: 116
Registered: ‎30-06-2018

Re: August 2018 Chemo starters

Sorry my post appeared twice!  

I copied and pasted it but it didn't paste, or so I thought, last night. 

 

G G xx

Member
Posts: 116
Registered: ‎30-06-2018

Re: August 2018 Chemo starters

Good evening everyone,

 

Im sorry that it has taken me a day to get back to you all and report on my meeting with my oncologist.

I am just getting my head around it all, and have been catching up with rest today at home.

 

When i I left the ward yesterday morning, I was surprised when the nurses said that they were not 100% sure that I was being discharged, but all seemed ok so I did go home after my onc appointment with my lovely daughter. We ordered pizza as requested, and enjoyed our afternoon.

 

As soon as we entered the consultation room, my oncologist waited for us to settle, and then said that she had made the decision to stop my chemotherapy altogether. I was shocked, and then actually very relieved, as I was thinking that I would have to negotiate my options going forward. She actually said that she felt that chemotherapy was actually more life threatening to me than the cancer, given my body's reaction. I have had 3 bouts of sepsis after 3 FEC and 1 x 75% T. I do not know whether my views will change further down the line, depending on what could happen in terms of recurrence or secondary ca.


I will still have herceptin for a year, bone protection for 3 years and 3 weeks of radiotherapy.

I had previously been quite worried about radiotherapy, but after the consultant explained more about the accuracy of the treatment, and measures taken to avoid heart damage (I had left sided BC), I am a bit more reassured. With an incomplete chemo course, I am also more of the opinion that I need to have RT. I have no hormone involvement either, so that means there is not anything like tamoxifen that they can throw at the cancer.

 

I would be be interested to hear what other ladies think about this; to be honest, I feel that I have got away lightly compared to many of you. My surgery has been completed, and I do not have to consider reconstruction or anything.

 

It is so good to be home now, and I thank you all very much for your support and humour whilst I was in hospital.

Bye for now

Georgie Gee xxx

 

Member
Posts: 116
Registered: ‎30-06-2018

Re: August 2018 Chemo starters

Good evening everyone,

Im sorry that it has taken me a day to get back to you all and report on my meeting with my oncologist.

 

I am just getting my head around it all, and have been catching up with rest today at home.

 

When i I left the ward yesterday morning, I was surprised when the nurses said that they were not 100% sure that I was being discharged, but all seemed ok so I did go home after my onc appointment with my lovely daughter. We ordered pizza as requested, and enjoyed our afternoon.

 

As soon as we entered the consultation room, my oncologist waited for us to settle, and then said that she had made the decision to stop my chemotherapy altogether. I was shocked, and then actually very relieved, as I was thinking that I would have to negotiate my options going forward. She actually said that she felt that chemotherapy was actually more life threatening to me than the cancer, given my body's reaction. I have had 3 bouts of sepsis after 3 FEC and 1 x 75% T. I do not know whether my views will change further down the line, depending on what could happen in terms of recurrence or secondary ca.


I will still have herceptin for a year, bone protection for 3 years and 3 weeks of radiotherapy.

I had previously been quite worried about radiotherapy, but after the consultant explained more about the accuracy of the treatment, and measures taken to avoid heart damage (I had left sided BC), I am a bit more reassured. With an incomplete chemo course, I am also more of the opinion that I need to have RT. I have no hormone involvement either, so that means there is not anything like tamoxifen that they can throw at the cancer.

 

I would be be interested to hear what other ladies think about this; to be honest, I feel that I have got away lightly compared to many of you. My surgery has been completed, and I do not have to consider reconstruction or anything.

 

It is so good to be home now, and I thank you all very much for your support and humour whilst I was in hospital.

Bye for now

Georgie Gee xxx