Member
Posts: 24
Registered: ‎03-08-2018

Re: August 2018 Chemo starters

Hi Jo
That’s good to hear, just a few more weeks to go then 🤞🏼
Thank you x
Member
Posts: 69
Registered: ‎18-05-2018

Re: August 2018 Chemo starters

Hi Tarnia,

I’m about 4 weeks since last chemo and my eyes are a lot better. They still water occasionally but no where near as bad as before.

 

x

Member
Posts: 24
Registered: ‎03-08-2018

Re: August 2018 Chemo starters

Hi ladies

Has anyone who  has suffered from watery/runny eyes started to see any improvement? I’m just over a week past last chemo and eyes are still bad!! Itts driving me mad. Tried various eye drops but nothing is working 🙄

just wondering how long this will last.

 

thanks

Tarnia

Member
Posts: 69
Registered: ‎18-05-2018

Re: August 2018 Chemo starters

Jude, Not really, they can treat the higher ones just can’t do the ones lower down. I just hope the chemo has done its job and zapped any stray cells!

Difficult decision but I can’t risk damaging my heart, don’t really want to have a heart attack whilst having radiotherapy! Also any damage now can cause major problem in the next few years.

 

I just have to trust the experts x

 

 

Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Jo - that’s good news that you can start rads on Wed, is there anything else they can suggest re your nodes?x     Cat - we’ve got this 👊x

Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Jo - good to hear you’ve got your radiotherapy start date sorted now; hope all goes well on Wednesday

Hi Jude - thanks....we’ve come a long way already! 👍
Member
Posts: 69
Registered: ‎18-05-2018

Re: August 2018 Chemo starters

Hi Jude,

 

I spoke with my oncologist today and I will now start on Weds.

The concern related to the position of my heart and the fact that they will not be able to treat all the nodes located under my sternum as it would damage the heart too much.

Jo x

Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Jo

Sorry to hear your rads have been delayed, fingers crossed it’s only something minor - thinking of you

Jude x
Member
Posts: 69
Registered: ‎18-05-2018

Re: August 2018 Chemo starters

Hi all,

 

Cat- Good to hear you are coming to the end of your chemo.

 

I was due to start radiotherapy today but had a phone call on Friday to say it would be postponed.....

Apparently the radiologist wants to discuss my plan with the oncologist but oncologist was on leave until today so they couldn’t discuss! I just hope it is a minor issue - not really sure what the problem could be.

 

i think you just get slightly paranoid that something else has been found or treatment not worked so far......hopefully they just want to discuss the regime over the Christmas break 😀 or something like that!

Some one I know had radio postponed because the CT scan taken at planning stage showed that the heart/lungs had changed shaped during chemo and it altered all the calculations!

 

I should get a phone call today to let me know when I can start.

 

Best wishes x 

Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Cat
That’s great news that your last chemo is next Friday, it will be lovely to put that behind you - hope you are feeling ok from the last cycle
Good luck with your rads planning meeting as well.
Step by step we are getting though this 👊
Jude x
Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Lovely Ladies,

I had my penultimate chemo session on Friday, last one this coming Friday - bring it on! 😀

Jude - great to hear radiotherapy is going so well for you.

Sue & Jo - good luck starting radiotherapy this week, hope all goes well 👍

I have my radiotherapy planning session on 21st Dec but already been told that I will have 3 weeks plus booster. I was 50 when diagnosed too.

Have a great week everyone!

Take care 😘
Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Sue
Since my op in June I’ve been wearing non wired very soft t shirt bras which are comfy. Although as my scar & hence where the radiotherapy is targeting is only just inside the bra line, I’m just trying to limit any irritation by going bra less for a couple of hours. The bralet style look good though & are quite in vogue at the moment!

Jude x
Member
Posts: 290
Registered: ‎29-07-2018

Re: August 2018 Chemo starters

Hi Jude

Pleased to hear all is going well. I might copy your no bra tip. I've been thinking of opting for one of those bralets (I think that's what they are called in m&s) - they look a bit like tight version a cropped vest top. I'm expecting that they maybe a bit more comfortable although one of the radiographers told me that the post-surgery bras are usually ok too. So I might dig those out when my chemo brain can remember where I stashed them for safe keeping 😂😂 x
Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Sue

 

At the minute I’m finding it a doddle, I’ve had 4 out of 15 sessions & no sign of any skin irritation or soreness. I’ve used the Aveeno moisturiser that they recommended but also I’ve not worn a bra whilst travelling to & from the hospital so less chance of anything rubbing immediately after treatment (one of the few times having small boobs has been an advantage!)

I am tired but I was tired before the radiotherapy started so no change there!

Have to say all the staff are lovely as well

 

Good luck with your radiotherapy, hope it all goes well

 

Hope all you other ladies are doing ok

 

Jude x

 

Member
Posts: 290
Registered: ‎29-07-2018

Re: August 2018 Chemo starters

Hello Jude.

How are you finding the radiotherapy now you've had a few? Any soreness developing yet or any other SEs. I start mine on Thurs.

Hope everyone else is ok

Sue xx
Member
Posts: 69
Registered: ‎18-05-2018

Re: August 2018 Chemo starters

Hi all,

 

Jude- glad your radio session went well.

 

Sue- I’m also having 3 weeks plus a booster week as I was 49 when diagnosed and as you say, it hopefully gives us added protection. They will also be targeting my collar bone as my cancer managed to get into 7 nodes so I think it is again an extra protection to that area. I start on the 10th Dec. So glad they advised me to have 3 full weeks off after chemo...I’ve needed it!

 

i had my first bone strengthening infusion yesterday back in the chemo unit.....luckily mine was really quick and easy and I only need it every 6months for the next 3 years. I also start my hormone therapy drugs next week - Letrozole.

 

Nearly there.....

 

Hope everyone is ok.

 

jo x

 

 

Member
Posts: 69
Registered: ‎18-05-2018

Re: August 2018 Chemo starters

Hi all,

 

Jude- glad your radio session went well.

 

Sue- I’m also having 3 weeks plus a booster week as I was 49 when diagnosed and as you say, it hopefully gives us added protection. They will also be targeting my collar bone as my cancer managed to get into 7 nodes so I think it is again an extra protection to that area. I start on the 10th Dec. So glad they advised me to have 3 full weeks off after chemo...I’ve needed it!

 

i had my first bone strengthening infusion yesterday back in the chemo unit.....luckily mine was really quick and easy and I only need it every 6months for the next 3 years. I also start my hormone therapy drugs next week - Letrozole.

 

Nearly there.....

 

Hope everyone is ok.

 

jo x

 

 

Member
Posts: 290
Registered: ‎29-07-2018

Re: August 2018 Chemo starters

Hello All

I've had my radiotherapy setup appointment today so I'm now sporting three tiny blue freckle dots 😁. The process was really very quick and unlike my chemo appointments it was all on time and I was in and out of the hosp in under an hour inclduing an explanation session, the session to line everything up and then a session with the doctor. The tattoos can't be too obvious as it took my partner ages to find them.

I start my treatment on the 13th and was a bit surprised to learn they have decided to give me the standard 15 plus 8 booster sessions that will focus on where the lump was. So 23 sessions in total rather than the 15 that I'd previously been told to expect. I've been told booster sessions are generally given for the under 50s (which I'm not but I was 50 at diagnosis so not too far off that mark). Still if it gives greater protection against it coming back I'm all for it so bring it on.

I've been told to use E45 cream but I think it's very similar to Aveeno and I've already got some in the house so I'll see how I go with that and then maybe switch if it's not doing the job.

Hope everyone is doing ok and looking forward to Christmas 🎄🎅🛷🎁⛄🌲🍾🥂🍸🍹

Sue xxx
Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hiya ladies

Had first radiotherapy today, was all very straightforward. They recommend drinking plenty of water & using Aveeno moisturising lotion, other hospitals may suggest other products but I’ve bought Aveeno 😂
Also had my 4th herceptin injection today but the first one that I’ve had at home - took a couple of hours with all the paperwork but the next one should be quicker. They only have to wait with you for 30 mins after the injection to check you don’t have a major reaction so that’s good.
My photos have the potential to look like mug shots but I’m loving seeing the subtle changes in my hair each week!

Hope you are all doing ok

Jude x
Member
Posts: 24
Registered: ‎03-08-2018

Re: August 2018 Chemo starters

Hi Jude
Good luck with the radiotherapy on Tuesday, hopefully it will be a walk in the Park compared to chemo!
I’ve decided to take monthly pictures of hair - took the first lot yesterday although because I’ve cold capped I still do have hair it’s just very very thin and grey 🙄
Keep us posted with how you get on with radiotherapy along with any tips you pick up along the way!

Take care
Tarnia