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August 2018 Chemo starters

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Re: August 2018 Chemo starters

Hi Cat

 

We are going to Mexico mid March for 11 days & we are using Good to go insurance - £260.

I’m on herceptin & bisphosponates & my husband had a brain haemorrhage 12 years ago & is on medication for epilepsy & high blood pressure; so I didn’t think that was too bad

 

I'm not brave enough to go without headwear or a wig yet, mainly because the growth & thickness is patchy in parts. Although I do sit around the house & answer the door bareheaded 😂

I've got 7 weeks until we go to Mexico so I’m hoping it loooks ok by then

 

Sorry I was ERnegative so don’t need tamoxifen - hope some of the other ladies can assist, good luck with it 

 

I also just wanted to say how useful this chemo thread has been for me, I think it’s really helped with the physical aspects of cancer/chemo & also the emotional side of going through it with ladies who understand - thanks to all of you 👍

 

Big love

 

Jude x 

Member

Re: August 2018 Chemo starters

Hi Jo, don’t be too hard on yourself, your doing really well with the exercise. I can’t even imagine running but I am walking most days.....my goal is to do an average of 10,000 steps every day and looks like this week I will do it for the first time! 👍 I wish my hair was blonde too but given I dyed it that colour for years that is very unlikely! 😂

Hi Sue, We’re hoping to go away for a bit of sun in March (not booked it yet) so just starting to look at travel insurance, but I’m not on a trial so haven’t come across that problem. It might be a case of ringing a few different insurers. Difficult decision to make about going ahead with the trial or not.

Hi Jude, good to hear the colour took well, never really know what it’s going to look like until you give it a go and at least we can experiment with different colours for a while 😄 Are you going without wig/hat now?

I’ve recently started taking tamoxifen and one (of the many potential side effects) is hair thinning so I am praying that I’m not one of the unlucky ones who gets that s/e! Anybody else on Tamoxifen? How are you getting on?

Take care ladies
Cat 😘
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Re: August 2018 Chemo starters

Sorry Sue - meant to say

I’d got to the end of week 3 on couch to 5k & was struggling with my knees hurting so I started taking high strength glucosamine & chondrites tablets (that I used to take pre cancer) & within 3 days the pain has gone - you may want to check with your onc before taking, although I haven’t 😁

Jude x
Member

Re: August 2018 Chemo starters

Hi Sue

Yes I had my hair coloured yesterday!

My hair has took the colour well, the only issue is that where the hair is thinner you now notice the fact that there is less hair.

I went for a light brown but would probably have been better going for a dark blonde as it may have been less obvious on the thinner areas.

I can’t decide whether it looks better or worse! Presumably this is why they say wait 6 months before colouring!

I’m going back to the hairdressers in 3-4 weeks so if it keeps thickening up it will then look better after the next lot of colour. The only decision will be whether to stick with this colour or not

Jude x
Member

Re: August 2018 Chemo starters

Hi Jo

Try not to overdo it, I think we all want to feel more normal & to try & do what we can to improve our health by exercise etc but we do need to be careful
I saw my oncologist early jan (all ok) & am due to see again early March. I’ve got an appointment with the surgeon this Monday - I think he will advise timescale for first mammogram since diagnosis/ treatment

Jude x
Member

Re: August 2018 Chemo starters

Hello All

Jo - I'm seeing my onc at the end of Feb for follow up (don't need to see the surgeon again) but I also have an appointment to discuss the Add Asprin trial early Feb. I was really up for doing this but I'm starting to waiver a bit - I've been looking into holiday insurance and it seems that a lot of insurers exclude trials - given that Asprin can cause some issues with your stomach I'm a bit reluctant not to be fully covered?

Has anyone else come up against this type of exclusion and have you found a solution?

Sue xx
Member

Re: August 2018 Chemo starters

Hello All
Grrrrr - best laid plans and all that - I successfully did my 1st run on the couch to 5k on Thurs and was really pleased with myself that I persevered and didn't give up to have woken a hobbling achey mess on Fri. I was fully intending to do run 2 today and even set the alarm for 8am so I'd have plenty of time before meeting a friend for brunch at 10:30 but when I woke at 7 and could still feel my achey hip whilst still lying in bed after being horizontal all night (and it's joint ache rather than muscular) I abandoned the run in favour of lower impact cross trainer. So still exercise but not what I wanted - hoping the aches recede and that I can recommence and do run 2 over next few days. Any tips on what to do for an achey hip joint??

Cat - my hair is very salt and pepper too - it seems to change on almost daily basis so I'm wishfully hoping it will magically turn back to blond again!!

Jude - was it Friday you were having your hair coloured? How did it turn out?

Sue xx
Member

Re: August 2018 Chemo starters

Hi Jo,
Sounds like we are both slow starters but now the hair is growing maybe it will get a spurt on over the next few weeks! 🤞
Lucky you that your hair is coming through dark so far. Mine has a salt and pepper look to it, with more salt than pepper! 😂😳
Cat 😘
Member

Re: August 2018 Chemo starters

Hi all,

Sounds like everyone is doing well with exercising. My work colleagues are doing the McMillian mighty “Thames path” walk in July, it’s a 26mile walk. I was really tempted to take part as well but unfortunately (!!) I will be away on holiday, so I can’t!

I try and go out for a walk every other day - 2 miles and then a 5 mile walk at weekend, so slowly getting my fitness back. I want to try and get back to the gym but I need some advice on what exercises would be good, especially as I had full node clearance and I need to be careful of lymphodema.

Im back to hospital on Monday to sign up for a trial and then back on the Weds to see whether I get given the drug or not.

When are you all seeing your surgeon/oncologist again? I’m due to see surgeon beginning if Feb and onc end of Feb.

 

Take care

jo x

 

Member

Re: August 2018 Chemo starters

Hi Cat

The radiotherapy consultant gave me some cooling dressings which you lay/stick on to your chest area. When they warm up you remove & they cool down again so you can re-use, they did help the need to scratch. Mention it to the radiographers as they might have something similar you can use. It’s a month since my last session & my tanned area has nearly faded.
With regard to the dye my hairdresser did a patch test & I didn’t have any reaction, she is going to use a dye specially to colour grey/white hair - wish me luck!

Take care

Jude x
Member

Re: August 2018 Chemo starters

Cat,

I am relieved that I am not the only one without much hair! I finished chemo mid Nov and I have just about got a very fine coverage of hair. On a positive it does have a very dark look to it, which is great as I was brunette before, so here’s hoping it stays the same....perhaps without any grey.....wishful thinking 😀

jo x

Member

Re: August 2018 Chemo starters

Tarnia, I’m using a cream called Biafine, saw it recommended on a forum and thought I’d give it a go. I’ve also heard Aveeno and E45 are good. I think the trick is to moisturise regularly, whatever you use.

Jude, what did you use for the prickly heat rash? I’m on Day 9 and the area is just starting to get very very slightly prickly.

Tarnia/Jude/Sue, sounds like your hair is growing quicker than mine. I’m 6 weeks post chemo and only have a little hair, but at least it’s growing! 😀 It’s too short to know if it will be curly yet! I was also advised to wait for 6 months before dying hair but I think it depends on the type of dye used. I was pleased to see my eyelashes have started to grow back this week, hooray! 👍

Sue, good luck with the training for the race for life. So far I’ve just managed some walking each day so will see how I go!

Take care ladies 😘
Member

Re: August 2018 Chemo starters

Will do Tarnia, fingers crossed it takes ok x

Member

Re: August 2018 Chemo starters

Hi Sue

I am a bit nervous about the colouring as everything I’ve read says to wait 6 months, but I can’t bear this white hair any longer - I’ve got odd dark hairs as well which look a bit weird. I started going grey at 18 so I’ve dyed it ever since - I’m 56, so now I’m white haired without eyebrows & eyelashes, this is not where I thought I’d be a year ago 😂

I’m not a runner but I started couch to 5k first week in jan & today I did my first run on week 4, surprisingly I’m enjoying it even though it’s been cold & icy some days. I’m not intending doing a 5k race but I’d love to be able to run for 5k

i don’t mind the change - my eyesight must be going as I find it easier to read! 

 

Take care

 

jude x

 

Member

Re: August 2018 Chemo starters

Hi Jude

please let me know how the hair colouring goes, I’m almost 8 weeks post chemo and I’m desperate to colour mine too! 

Thank you ladies for tips on what creams worked for you during radiotherapy i will get me a supply ready.

Sue, well done you for signing up to Race for Life in June, you will do great I’m sure. I’m thinking of joining one of fund raising activities just haven’t decided which one yet. I’m already a frequent runner so fancy doing something different.

Take care ladies.

 

Tarnia x

Member

Re: August 2018 Chemo starters

Good luck on the hair colouring Jude. I'm too much of a chicken to have mine done yet but I must admit I'm still wearing a wig whenever I leave the house as I really don't like the short hair - either colour or style. I was blond but it came back white but is turning increasingly silver / grey with dark brown in it!!!! I've never been brunette - always blond so it's gonna look really odd against my blond eyebrows 🤣.

In other news I've been encouraged / cajoled / bullied by friends into doing the Race for Life in June 😬. I'm looking to start doing the Couch to 5k challenge to get ready for it - any other aspiring runners out there fancy joining in? We can move from shared stories of chemo SE to shared stories of wheezing, hobbling and pulled ligaments. Whilst I used to be quite sporty at school I always used to avoid running if at all possible - I even used to offer to coach younger years for netball during PE rather than do a cross country run so this is kind of a first for me - not really sure how I'll take to it - give me a cross-trainer or yoga class any day.

Hope everyone is ok - stay warm ladies - if you believe the papers Armageddon in the form of a bit of snow is on its way ❄️🌨️🏂☃️

Sue xx

PS what do you think to the new look website? The June chemo ladies sound as if they are going to stage a rebellion 😂😂
Member

Re: August 2018 Chemo starters

Hi Tarnia
Hope the radiotherapy goes ok, I used Aveeno body lotion twice a day & it was fine. I also drank loads of water! I did get a prickly heat rash but it only lasted about 2 weeks.

I didn’t cold cap so I lost all my hair but it’s coming back quite well, unfortunately it’s white/grey! I’m using Nioxin which seems to be working as it is thickening up rather than a lot of length. I can’t wait until it is long enough to put a parting in!
I’m having mine coloured this Friday (it’s 10 weeks since my last chemo) so I’ll let you know how I get on

Take care - hope everyone else is ok 😁

Jude x
Member

Re: August 2018 Chemo starters

Hello Tania
I used E45 lotion throughout my radiotherapy - started before treatment using it daily and then 3-4 times each day during treatment - i took some with me and applied it after being zapped before I got dressed again. I finished radiotherapy last week and still use the cream 2-3 times day - so far no problems.

Good luck
Sue x
Member

Re: August 2018 Chemo starters

Hi Jo

I worry about a recurrence all the time 🙁 the thought is never far from my mind ( my cancer was 7mm with no nodes). I have booked a holiday for August this week but continually worry I’m tempting fait 😕 I’m hoping with time that worry will fade!

 

I’ve recently been for my first radiotherapy talk and been tattooed ready. Think I will start around 6th Feb. I’ve been given some AQS emollient to use when I start has anyone else used this? And what do you all recommend? 

 

Now a hair question...because I cold capped I have quite a bit of hair already but very very grey! Does anyone know if I’d be ok to dye it now? Or should I wait a few more months. It’s also very dry and never seems to need washing I honestly think I have no oils left in my body at all! Oh yes and all my new hair is curly where as my existing hair is still straight 🤨 hope it will all sort itself out soon. Anyone else have curly hair coming through?

 

take care all.

Tarnia

 

Member

Re: August 2018 Chemo starters

Hi Jude, interesting....I had a sore nose/nose bleeds during chemo but I’m 5 weeks post chemo now and nose feels a lot better and no more nose bleeds...up to now anyway! Thanks, I’m hoping the SEs from Tamoxifen aren’t too bad, time will tell 😀

Take care all 😘
Member

Re: August 2018 Chemo starters

Hi Cat
I have had a few nosebleeds though, I had one this morning which made me think as I’ve only had them since I started herceptin - not that it’s down as a side effect
Good luck with the tamoxifen, hope u cope ok with it
Jude x
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Re: August 2018 Chemo starters

Hi Jo, sounds like you have a perfect return to work plan...good to ease yourself back in gently. Agree about hospitals having their own policies, I think it also depends on your Oncologist. Generally I’ve been positive about the future but I also worry about a recurrence, I think that most of us do.

Hi Jude, that’s good that you haven’t had any SEs from Herceptin. Because I have recently finished chemo, continuing to have Herceptin, started Radiotherapy and about to start Tamoxifen it may be difficult to decipher which SE is from which treatment 😂 I get some body aches and some tiredness but sleeping less during day now too. Glad to hear your keeping your brain active seeing how many questions you can get right on The Chase! 😀

Take care everyone 😘
Member

Re: August 2018 Chemo starters

Hi Cat
Up to press I don’t appear to have had any side effects to herceptin. I generally feel a bit tired around 5pm but then pick up after I’ve watched The Chase! I’ve not had a nap during the day since late November & I do have a broken sleep during the night. Hopefully when I’m back at work & have a consistent routine my sleep will improve.

Jo - I do think we all have a little worry about recurrence, I know I do & it wasn’t even in my lymph. Maybe that improves as the years go on...

Take care all

Jude x
Member

Re: August 2018 Chemo starters

Hi all,

 

I should mention that although I am back at work, it’s not exactly full on......I get in for about 10.30and leave at 2, I like to think of it as acclimatising to the world of work! I will also be off for all of the school half term and most of the Easter break......slowly does it! 

 

I had Weds off this week as well.....

 

At the end of day you have to do what is right for you and your body. I found sitting home made me contemplate and dwell on the negative things around cancer and the treatment. I was constantly looking on the internet for things that I don’t really want to know.....but for some reason it helps me deal with everything. If I’m at work it takes my mind off things and helps me move on and upwards! 

 

However, I am am really worried about it returning, I think because I had it in 7 nodes and yet the tumour was only 22mm it has freaked me out a bit as to how such a small thing can cause such havoc.

I know I’ve had surgery with good clearance, chemo, radio, hormone therapy, biosulphates and my body no longer feels like my own but I still think there may be stray cells lurking ready to re-emerge. Is it just me or does anyone else have these thoughts?

I suppose I need to look at it that we have been lucky, we found it when we did and we have had treatment to hopefully enable us to enjoy life again and that some people don’t get that chance.  What will be, will be......Positive thought number 1 of the day xx

 

Cat, I will also ask about Tamoxifen/Letrozole - sometimes though I wonder if it just the policy of the hospital you are under as to what you get given. Some people seem to start on Tam and then move to Letrozole after 2years- who knows!

 

Take Care all and enjoy your weekend. 

Jo x 

Member

Re: August 2018 Chemo starters

Hi Jude,
Sounds like you got your energy levels back very quickly which is great! Do you find the Herceptin makes you tired?
I agree that going back to work is a very individual thing and depends on lots of different factors. I think it’s natural to feel nervous, I’m not planning to go back for a while and already feel a bit anxious when I think about it.
I looked on YouTube at some of the hair growth videos you mentioned, I have to accept that hair growth is going to be slower than I’d originally anticipated. Although in the last few days I’ve sprouted a few ‘normal’ hairs which is progress! 😀

Take care ladies 😘
Member

Re: August 2018 Chemo starters

Hi Sue

Well done on finishing your rads, it is an emotional moment, I think because it’s the end of active hospital based treatment although in some form or another we will all be having injections or medication for a good few years!
My last rads were Christmas Eve & I was still tired over Christmas & new year but am now feeling tons better & more like myself!
My plan is to go back to work 4th feb but I only work 4 days mon to thurs, I am expecting to be knackered & I feel a bit nervous as to how I’ll cope but am gong to give it a go. Saying that I think you’ve got to listen to your body & see how you feel. Don’t push yourself too hard
Take care

Jude x
Member

Re: August 2018 Chemo starters

Hello Cat and Jo

Well done on going back Jo - I'm not sure I could even consider going back so soon so I admire you for doing so. I really don't think I'd be ready either physically or emotionally.

I think I'm thinking a bit more along the lines of you Cat and having a few months between finishing radiotherapy and going back. At the moment I'm feeling reasonably ok but I keep having to remind myself that's on the basis of getting up, having a potter getting breakfast then having a sit down before getting a shower and then another sit down before going out to Tesco or wherever and then coming back and having a snooze before getting tea ready for my partner coming home. I'm really not sure I could be up before 7 and ready to leave the house by 8 to head off to work! I had an early radiotherapy this week which meant I did leave the house before 8 and I was so tired that afternoon I slept through two missed calls (I was actually holding the phone in my hand at the time - I nodded off reading the BBC website) and only woke up when he was stood in front of me asking if I was ok! I hadn't really thought about it but what your GP says does make sense esp as they brought someone in on a temp contract to cover my role.

Thanks both xx

Member

Re: August 2018 Chemo starters

Hi Sue,
Congrats on finishing radiotherapy! 🛎 I hope you’re enjoying your well deserved night out. I felt emotional just reading your post!
After radiotherapy finishes I will still be at the hospital for my Herceptin injections every 3 weeks so will still have that connection which may help...time will tell.
Work have been great with me too. I also have a full on job so not making any final decisions about when to return as want to ensure I’m ready.....and this is coming from someone who before this had 5 days off sick in 20 years! My current thoughts are to have a couple more months once radiotherapy finishes.
My GP said something that made sense to me....she said that employer will ultimately not remember whether you took 8, 9, 10 etc months off but if you go back too early and end up going off again because you weren’t ready then that will be worse for everyone.

Hi Jo,
I will ask about the Tamoxifen versus Letrozole in more detail next time I see my Onc. And yes also on on Bishosphonates (Zoldronic Acid).

Take care all 😘
Member

Re: August 2018 Chemo starters

Sue,

 

Well done on finishing your treatment. I was emotional as well and just about made it outside the hospital before I shed my tears. I had to sit in the car for a while before I could drive home. I wasn’t as jubilant as I thought I would be, I think as you have said, I don’t want to jinx it!

 

i finished radio last week and I must admit I also feel “in limbo”. -it is a weird feeling having had so many hospital appts and now nothing until I see my Oncologist at the end of Feb.  Our security blanket has been taken away......

 

In respect of work, my organisation have been fab with my time off and I have been back in for a few hours this week. I’m basically on a phased return, returning to full time over a 4 week period but I also have loads of annual leave to take before the end of March, so I don’t think I will in work much. 

 

Enjoy your our night out and your days without hospital appointments 

jo x

Member

Re: August 2018 Chemo starters

Hello All

Finished my radiotherapy today 👏👏. My partner came with me for this last session and he took a few photos as I rang that bell. There were quite a few people around as I did it and they all clapped which was a nice sentiment but I must admit it was enough to push an already emotional me over the edge and I ended up shedding a few tears.

I've got my follow up in approx 6 weeks and I must admit I'm already feeling a bit in limbo land at the moment - it's a bit like 'well - what am I supposed to do now' ??? I've been so used to scheduled appointments and knowing exactly what's gonna happen and when that this gap and being left to my own devices just all feels a bit odd.

Anyone else feeling like this??

I'm still experiencing fatigue - though not sure if this is latent from the chemo or from radiotherapy or a bit of both plus factoring in I've been away from work since May so well outside of my usual 'chasing my tail routine'. I'm not intending to rush back to work (I think) - the company I work for has been brilliant in supporting me through this so there's no pressure there but I don't want to take the mickey. Equally I want to make sure I'm back to full fitness as I'm quite sure when I do go back I'll probably end up putting myself under pressure to pick up where I left off which was pretty much full on. For those of you that have also been able to step back fully from work have you been given any guidance on what's a reasonable time frame before going back? I'm intending to go back on a phased return but don't know yet what that might look like. And again this is typical me. I had my last radiotherapy 5 hours ago and I'm already trying to suss out when i should be back at work 😬😬

Out tonight with my lovely partner and parents to celebrate that this bit is over (I've also found myself consciously defining what's over as I'm reluctant to infer it's totally over just incase that's a jinx and it comes back / hasn't completely gone. And I'm signing off now before I completely go over to the dark side 🤣. I am usually a 'glass half full' type of person - honest.

Happy evening everyone

From the lady who's gone slightly bonkers xx
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Re: August 2018 Chemo starters

Cat, Yes the is it Tamoxifen/Letrozole does seem strange. I was just told that as I was post menopausal that I would be on Letrozole. Reading up Tamoxifen is also used for post menopausal so probably just the decision of the hospital as to which one they give! Are you on biosulphates as well?
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Re: August 2018 Chemo starters

Sue, glad you enjoyed the LGFB course, well worth doing isn’t it. Good advice about bringing moisturiser to radiotherapy appts and Jude also drinking plenty of fluids.

Jo, interesting that although I am now post menopausal I am on Tamoxifen and not Letrozole. I believe the idea is that I will be on Tamixifen for the first few years and will move after that.

Jude, I think many of us are focussed on our hair! I don’t think a day passes where I don’t look in the magnifying mirror to see if if any new hairs have sprouted 😂 Unfortunately I don’t have much at all yet but I will try and be patient!

Keep smiling ladies 😘
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Re: August 2018 Chemo starters

Hi Jude

The LGFB course was great and the lovely goody bag was very much appreciated. I picked up a few makeup tips and I'm now a convert to applying foundation with a damp sponge and have a better idea on how to manage my invisible eyebrows (they've always been very blond so not just invisible since chemo).

Any ladies out there who haven't been on one of these courses - get yourself booked on!

Sue xx
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Re: August 2018 Chemo starters

Hi Sue
Good luck with the add-aspirin trial, it must be good to feel that you are giving something back as well as having a chance to improve your own health situation.
Hope you enjoyed your LGFB course & have took home a lovely goody bag

Jude x
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Re: August 2018 Chemo starters

Hi Jo
Thanks for confirming the requirements for bisphosphonates, I thought that might be the case. Hope you are coping with your hot flushes!
I think fear of recurrence hits us once you are through the main treatments, I have to admit to thinking about it occasionally.
I’m sure counselling can help, if only to talk to someone who’s not emotionally attached to you. It’s hard sometimes thinking about other people’s feelings more than your own.
Good luck

Jude x
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Re: August 2018 Chemo starters

Hi Jencat

Your 3 strands made me laugh! I’ve been looking on Pinterest & YouTube for ladies showing the hair growth after chemo so from what you’ve said you sound similar to the ones I’ve seen. There’s not much length on my hair but it is thickening up well.

Sorry to hear that you have struggled a little emotionally, it can’t have helped having to wait 6 months for ned. Well done with getting the counselling & a massage always helps. I’ve heard some ladies says acupuncture has helped them...

I’m doing ok thx, finished chemo 12/11 & rads 24/12 - the only time I’ve felt emotional was ringing the bell after my last rads, but I’m expecting the enormity of it to hit me at some point 

take care

jude x

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Re: August 2018 Chemo starters

Hello all

I've seen a doctor today as part of my radiotherapy review and asked about the bishosphonates. Apparently as I was peri-menopausal pre treatment this will be of no benefit to me so they won't put me on it. I'm also triple negative so other than joining the Add-on Asprin trial there will be no other drugs for me. Not sure if I'm pleased about that or not as I kinda feel I'm not able to do anything proactive to prevent recurrence.

Sunflower - I've just started a course of accupuncture for hot flushes - I had my 2nd weekly session yesterday. I think there had been a slight improvement but as mine weren't hideous to start with and were always quite random in occurrence and intensity it's not so easy to tell. However they are free sessions with the cancer charity attached to my hospital (Weston Park in Sheffield) so I'm going to continue with them in the hope that a few more will increase the effectiveness.

Off to my Feel Good Look Better session shortly so I'm expecting to be all beautified when I meet a friend for lunch 😁.

Happy Tuesday all - have a great day 🤗😘 xx
Member

Re: August 2018 Chemo starters

Hi,

 

I had a blood test before I started chemo which showed that I was post menopause......I was 49 when diagnosed and hadn’t had a period for ages but I hadn’t any other symptoms so I was pleasantly surprised. To be honest I assumed it was peri menopause but no, the blood test showed different. As I have been through menopause I am on Letrozole rather than Tamoxifen ( I think for the hormone receptor cancer, letrozole is designed for post menopause and tamoxifen pre) . That is also why I was put on biosulphates.

 

Unfortunately the hot flushes are a lot worse than I had previously!! 

 

I must admit though i am struggling somewhat somewhat with the fear of recurrence - don’t know why but I can’t believe it is all ok etc- google is not good sometimes.....I think that because I had 7 lymph nodes positive really scared me as the tumour was only 22mm and couldn’t be felt easily, it was only the weird indentation that I spotted. Just frightening how quickly it can spread. I know I’ve had surgery and I got a good clearance, chemo, radio, hormone therapy and biosulphates.....but thank goodness I did spot it when I did. Think I might look at getting some counselling x

Member

Re: August 2018 Chemo starters

Hi Jude, that's quite understandable re hair! I used the cold cap for FEC, but it had thinned too much when I started on T. I didn't think I lost all my hair, but my daughter's said that I did! Maybe I was a bit delluded! I think YD felt sorry for me, she said I might have had about 3 strands left!

My hair has grown back really well! I didn't put anything on it to help it's growth and it's so thick I've had to have it thinned at the top twice! I can't say I like it much cause it's got a curl and shorter than I'm used to, but looking at it I don't think anyone would guess that this time last year I didn't have any! (apart from 3 strands! Smiley Happy) Hope your's has started to grow back well.

My eyebrows however seem to have given up half way across!

I'm ok thanks, but have found the emotional side quite hard at times. Probably not helped by the fact that although I finished rads in June, I wasn't told I was NED until just before Christmas. I'd had (still can't get used to saying that!) a few mm's of cancer in my internal mammary chain and both the chemo and rads oncs were confident that the rads would zap it, but I couldn't have a CT too soon afterwards to check, so it's been hanging over me. I've been having some counselling through Macmillan and some massages through a local charity and they're helping. How are you? x

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Re: August 2018 Chemo starters

That’s good news Jencat - anything that’s helps to prevent recurrence is worth doing.
Hope you are doing well, as you are 10 months in front of us - did you lose your hair & if so how’s it come back? Sorry I’m a bit obsessed with the hair malarkey
Jude x
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Re: August 2018 Chemo starters

Nearly there Sue, I found it was a relief to finish rads more so than the chemo x
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Re: August 2018 Chemo starters

Good luck with the radiotherapy Cat, drink plenty of water & keep moisturised!
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Re: August 2018 Chemo starters

Hi Jude, Sue, Jo and Cat, I'm from the Oct '17 thread and also on bishosphonates. (Zoldronic Acid) I have a 6 monthly infusion. I'm also post menopause. I had cancer in 3 lymph nodes and TN. I was told by my onc that it helps to stop bc spreading into the bones, but recent studies had also shown that it also helps to prevent a recurrance xx

Member

Re: August 2018 Chemo starters

Good luck with the radiotherapy Cat - I've found it so much easier than chemo.

Remember to moisturise lots - I take some with me to apply after treatment before I get dressed again and then reapply at least twice more during the day.

Sue x
Member

Re: August 2018 Chemo starters

Thanks for the info Jude.

I'm due to have a follow up appointment with the oncologist once my radiotherapy is over so I guess they'll talk to me about further drugs then if necessary.

I finish rads on Thursday and am so looking forward to this stage being over.

Sue xx
Member

Re: August 2018 Chemo starters

And Jo good luck with the trial! 👍
Member

Re: August 2018 Chemo starters

Hi Lovely Ladies,

I started radiotherapy today...1 session down, 19 to go! 😀

Jude/Sue/Jo - I’m also on bisphosphonates, 6 monthly injections for (I think!) 2 years. Similar to Jude I’m 51, post menopause, Her2+ with no spread to lymph nodes. I’m also just starting Tamoxifen.

Keep smiling ladies 😘
Member

Re: August 2018 Chemo starters

Hi Jo

 

So it’s hormone treatment for you, will that put you into the menopause or have you already had that pleasure? If you have been through it, do you go through it again?

Well done for going with the trial, hopefully you’ll get the product rather than the placebo especially if it’s already had good results with secondary bc

 

Take care

 

jude x

Member

Re: August 2018 Chemo starters

Hi Sue

Bisphosphanates prevent loss of bone density, I think breast cancer & the treatment of, can cause bone loss. Why some people are put on it & not others I’m not sure - I’m 56 & post menopause so whether that has any relation to it. My cancer was HER2+ & hadn’t spread to my lymph. One of the oncologists has said bisphosphonates can also help mop up any stray cancer cells in the bones but mine hadn’t spread...

To be honest  I’ll take anything they suggest if it may help

 

hope you are ok

 

jude x

Member

Re: August 2018 Chemo starters

Hi Jude,

I’m on Letrozole (hormone tablet) as mine was hormone positive and I’m also on biosulphates but I’m on a 6monthly infusion. I have to go to the chemo unit to have it administered. Interesting how you are on a daily tablet and I’m a 6monthly infusion. 

I was told the biosulphate was because the Letrozole can cause osteoporosis and it is to counteract that SE and also strengthen the bones for any future invasion! Also on Calcium tablets to help the formation of calcium in bones. I will also be on biosulphates for 3years.

 

Ive also just signed up for a trial so I might be on another drug.....or maybe  it, but whatever I will get additional monitoring so quite pleased about that. The trial is for primary hormone positive cancers with 4-9 lymph nodes involved. 

It’s using a drug that is already been used for advanced cases of bc and can slow down the spread, they are seeing whether it prevents recurrence in primary cases. 

 

Jo