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August 2018 Chemo starters

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Re: August 2018 Chemo starters

Well done Tarnia!
It’s a great feeling having the last chemo - hope your side effects aren’t too bad & you cope ok.
Good luck with the operation, hope it goes well.

Cat - it’s good that you’re back on track after your little delay - hope all goes well with the remaining cycles & you are not suffering too much with side effects. I’m desperate for my eyelashes to grow back, I look sad without them. Rapid lash could be the answer, once my eyes have stopped feeling sore.

Sue - I’ve not heard of Nioxin but might give it a go once my hair is through this initial fluffy stage. It’s a bit sad but I’ve started taking weekly photos of my hair so I can see the ongoing progress! I’ve come out at 1 on the consultation! Let us know how you get on with it.

I got through the last chemo cycle relatively unscathed - tiredness was the biggest problem!
I start my 15 sessions of radiotherapy on Tuesday
so nearly there

Take care all

Jude x
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Re: August 2018 Chemo starters

Hi Cat

I used this tool to determine which one use.

https://www.nioxin.com/en-GB/consultation-tool

For me it came out at 2.

Let me know how you get on with it!

Sue xx
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Re: August 2018 Chemo starters

Hi ladies
Thank you all for the good wishes. I have another op on 27/12 as one of my margins was close in my lumpectomy but I recovered very quickly before so I’m not too worried about that! That will need to heal before radiotherapy can start but have an appointment on 11th Jan with my oncologist to discuss it!

I will be very interested to hear how you all get on using rapid lash and Nioxin please keep us updated.

Enjoy your weekend ladies, take care.

Tarnia x
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Re: August 2018 Chemo starters

Hi Sue,
Thanks!
I think Amazon have an offer on Rapid Lash at the moment. I plan to start using my serum once my eyelashes start to grow back naturally.
I will definitely try Nioxin too, just had a quick look on line, there seem to be a lot of different products in the range. Which one are you getting? Will be interested to hear how you get on.
Good luck! Cat 😘
Member

Re: August 2018 Chemo starters

Hello Cat

Good to hear things are back on track and that you will be done with chemo before Xmas. I've been looking at reviews for Rapid Lash and they seem mainly positive so I might give that a go but I'm going to leave it for a while to give my body a chance to settle down - maybe add it to my Xmas list.

My hairdresser has suggested Nioxin for encouraging and supporting hair regrowth - again reviews are largely positive so will be giving that a go too once my hair is past its current very delicate baby fluff stage.

Hope everyone is well and managing ok.

Sue xx
Member

Re: August 2018 Chemo starters

Hi Tania

Congrats on your final chemo. Ringing that bell is a fab feeling - I had the biggest grin on my face when I did it last week. I'm sure it won't be too long before your hair starts to come back.

Hope the SE's are over quickly and that you get back to some sort of normal so that you can enjoy Xmas.

Sue xx
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Re: August 2018 Chemo starters

Hi Tarnia,

CONGRATULATIONS on ringing the bell! Fabulous timing, just in time for a nice break over Xmas before Radiotherapy starts in January. Well done you! 

Cat Xxx

Member

Re: August 2018 Chemo starters

Hi ladies

well today I had my last chemo yay 👏🏼👏🏼👏🏼 And what a lovely feeling it is ringing that bell!! 

Just got to get through this week of side effects and wait for the hair and eyelashes to re grow! But for now I’m happy to be at this stage.

 

Hope everyone is doing ok.

 

Tarnia x

Member

Re: August 2018 Chemo starters

Hi Lovely Ladies,

 

Pleased to report that after an unwanted delay I had chemo again today. Just 2 more sessions to go now so fingers crossed my last session should be Friday 14th December - yippeee!

 

Jude - great news that eyelashes and eyebrows are coming back so quickly too! There seem to be a number of serums available to help encourage eyelash growth. I brought 'Revita lash' but another one I heard about more recently is 'Rapid Lash'; I heard about this through one of the nurses at the hospital, she had the most amazing eyelashes I thought they were false but she said it was down to 'Rapid Lash'!  

 

Sue & Sunflower - good luck with radiotherapy!

 

Ktk - congrats on completing radiotherapy - another milestone reached! And thanks for the top tips.

 

Tarnia - glad you got a 'fix' sorted for your runny eyes.

 

Good luck to everyone going through traetment.

 

Take care, Cat Xxx   

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Re: August 2018 Chemo starters

Hi Jo

Good luck with the radiotherapy & the holding your breath malarkey - hope you manage ok
K - good to hear your radiotherapy went well, hopefully with plenty of hydration & creams we should all sail through it - always an optimist!

Well ladies I said I had a bit of grey fluff on my head & now my top eyelashes are coming back & I can see some growth on my eyebrows as well!!

Take care all

Jude x
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Re: August 2018 Chemo starters

Thanks ktk, that is good to hear.

 

best wishes 

jo x

ktk
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Re: August 2018 Chemo starters

I had my last of 18 rads yesterday. A walk in the park after chemo. I was told to expect fatigue but I am fine! The only SE is an itchy boob!! Using plenty of moisturiser and taking Piriton for the itch. Good luck with those starting rads. Kx
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Re: August 2018 Chemo starters

Hi all,

 

I had my radio pre assessment meeting the other day, which consisting of a CT scan, lots of measurements and breathing exercises. My cancer was in the left breast and obviously concerns re location of heart. Apparently by breathing in pushes the heart and lungs out of the zone....well I hope! 

 

I know start on the 10th Dec as they want 3clear weeks from last chemo before I start. Initially due to start on 3rd.

4 weeks of radio so due to finish first week in Jan, but as others have said at least the traffic won’t be so bad over the Xmas period! 

 

I also start my hormone therapy next week, just tablets so hoping the se won’t be too bad. Bone strengthening infusion as well so back to the chemo unit for that and that take place every 6 weeks. The hormone treatment can cause oestioperosis (if that the correct spelling).

 

Nearly there everyone xx

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Re: August 2018 Chemo starters

Hi ladies

Cat sorry to hear you been in hospital, hopefully you will be back on track very soon!
Good luck to everyone starting radiotherapy keep us posted how you all get on.
I saw my oncologist yesterday and she’s given me some eye drops to sort out my runny eyes 🤞🏼They work!!
Jude that is fantastic news about your hair, I hope mine grows back as quick!
Have a good weekend ladies.
Take care, Tarnia
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Re: August 2018 Chemo starters

Hi Jude,
Thanks, will be taking it easy over the next few days and hope I can get back on track soon.
Fantastic news that your hair has started to grow back already. I’ve heard that it’s normal for hair to grow back like that initially and then to start growing back stronger afterwards.
Good luck with the radiotherapy.
Take care, Cat 😘
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Re: August 2018 Chemo starters

Hi Jude

Me too but I've been warned that the fatigue is usually worse than most people experience on chemo.

Still at least winter is the right time of year for daytime hibernationon the sofa 😁😴😴😴😴
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Re: August 2018 Chemo starters

Hi Sue

Fingers crossed you get finished for the end of the year - I’ll keep you posted how I get on, I’m hoping it will be a doddle 😂

Jude x
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Re: August 2018 Chemo starters

Hi Jude

Finishing by Xmas sounds just perfect. I'd really been hoping I'd be done by the end of the year just so I could start 2019 fresh but I think it will drag over by a few days. I've got my set up appointment on the 4th Dec but won't start treatment then but will be given my schedule. I'm going to push to see if being done by 31st will be possible but I'm not holding our much hope.

Let me know how you go with your sessions

Sue xxx
Member

Re: August 2018 Chemo starters

Hi Cat

Sorry to hear you were hospitalised, hope you are starting to feel better now. I know it’s a bummer being delayed a week but at least it will give you time to recover
I had my last chemo in the 13th & the hair on my head is starting to come back!! It’s only grey fluff but it’s there, hopefully eyebrows & eyelashes will start sprouting soon

Take care

Jude x
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Re: August 2018 Chemo starters

Hi Sue

Well done on your final chemo, it’s a lovely feeling isn’t it! Hope the side effects are minimal, I’ve tiredness to have been the biggest issue thus last cycle.
The holiday in Austria sounds idyllic, the winter walking sounds fabulous
Good luck with the radiotherapy, it sounds like you are all equipped for it - I start mine on the 4th but luckily should be finished on the 24th

Hope everyone else is ok

Jude x
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Re: August 2018 Chemo starters

Hi Sue,
Thanks and yes I’m sure it’s best to build up my strength for the final 3 sessions. Won’t be long before I’m ringing the bell too!
Take care, Cat 🤗
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Re: August 2018 Chemo starters

Sorry to hear about your hosp stay Cat - not what any of us want. I'm sure you'll bounce back quickly and be ok to go ahead next week. I ended up having a weeks delay at round 4 as my liver was rebelling but the weeks delay allowed things to recover.

Rest up and fingers crossed for next week

Sue
Member

Re: August 2018 Chemo starters

Hi Lovely Ladies,

 

I haven't posted for a while either.

I'm not long home from a 4 day stay in hospital. Temp spiked, low BP and Nuets etc. Feeling okay now but chemo has been delayed this week (I was due in today). Hey ho, fingers crossed I can get back on track next week.

 

Sue and Amanda,

Congratulations! You've got to the end of the very long chemo road, it must feel great. Happy celebrations! 

 

Sue - the winter walking in Austria sounds like fabulous fun.

 

Tarnia - I have a constant sore and runny nose but haven't suffered so much with runny eyes despite having lost 95% of my lashes. Sounds like it's one more of the many SEs we have to put up with. Thank goodness they are temporary eh!

 

Good luck to everyone elso who is still going through treatment.

 

Take care all

 

Cat Xxx

 

 

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Re: August 2018 Chemo starters

Hello All

Hope you are all doing ok. I haven't posted for a while as I've just been keeping my head down as I plow through this. However I'm really happy to say that I had my final chemo yesterday and had a huge grin on my face as I rang that bell. It was such a good feeling to know that part of treatment (apart from resulting side effects) is now behind me.

I've got my radiotherapy appt early Dec and after attending an open evening session last week to look around the department and meet staff I'm expecting to start radiotherapy mid Dec which means I'll be going over the Christmas period (boo) but at least traffic will be light (hurrah) my partner will be able to take me to those appointments (double hurrah) and I should be finished with it all early in January (AFA). We've booked a holiday to our favourite part of Austria for early March - a bit later in the year than we usually go but we are hoping the snow will still be there. We do this thing called 'winter walking' - you walk on compacted snowy paths through forests and along side lakes. It's amazing - fresh air, amazing scenery and plenty of mountain huts for hot chocolate, cheesy spätzle and kaiserscharrem stops. I'm not sure I'll be able to do the usual 10 mile days we rack up but I'll do my best.

Interestingly I've been told by a few sources at the hospital that accupuncture can be good at helping with hot flushes and other menopausal symptoms so I'm going to give it a go. I'm also experimenting with the Ladycare magnet - I'm still a bit sceptical about this but it has around 70% postive reviews so I'm giving it ago - fed up of restless nights and waking up soggy and damp.

So good look to those of you still having chemo - hopefully you won't have to endure this for too much longer - the end is insight. And I guess at some point we'll be switching from comparing chemo SE stories and tips for coping to radiotherapy stories - I've been told to get plenty of moisturising cream and to start using it now as well as switching to a deodorant that doesn't have aluminium in it. I'm using E45 lotion all over with a double dose on the affected boob and some soft & gentle deodorant!

Happy Friday everyone 😘🤗😘

Sue xx
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Re: August 2018 Chemo starters

Hi Tarnia,

 

Yes runny eyes for me, as well and a runny nose! As like you worse when I go out. My nose just constantly runs- spoke to Onc about it and he didn’t really come up with anything.....just another SE! 

 

Good luck

 

jo

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Re: August 2018 Chemo starters

Hi Jude

 

It’s driving me mad! But eh ho just another annoying side effect🙄 Can’t wait to finish now think iv3 had enough of thi# chemo malarkey now!

 

Take care.

Tarnia

Member

Re: August 2018 Chemo starters

Hi Tarnia

Yes I’ve had runny eyes after docetaxol - the only thing I’ve found helps is wearing sunglasses when I go outside. The lack of eyelashes also contributes to the problem
Sorry can’t suggest anything else which may help

Take care

Jude x
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Re: August 2018 Chemo starters

Hello Ladies
Hope everyone is doing well. I’m just wondering if anyone else has suffered from extremely runny eyes on Docetaxel? I’ve had 2 rounds so far and this time round my eyes are streaming especially when I go outside! Anyone else suffered from this or have any tips?

thanks
Tarnia
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Re: August 2018 Chemo starters

Hello Ladies

Hope everyone is doing well. I’m just wondering if anyone else has suffered from extremely runny eyes on Docetaxel? I’ve had 2 rounds so far and this time round my eyes are streaming especially when I go outside! Anyone else suffered from this or have any tips?

 

thanks

Tarnia

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Re: August 2018 Chemo starters

So good to hear you’ve finished Chemo Amanda! I can’t wait for 30/11 which will be my last FEC-T woohoo cant wait. I too think it’s gone so fast. For me I have more Surgery on 27/12 as one of my margins was Close so for me radiotherapy won’t start til the new year, but the end is creeping ever closer for us all! Hopefully a happier 2019 lies in store for us all.

Big hugs to everyone
Tarnia x
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Re: August 2018 Chemo starters

Hi Amanda

Well done on completing your chemo - it’s a lovely feeling to think that you don’t have to go again! Good luck with the radiotherapy, I hope it’s not too tiring for you with all the travel.
I have to say that to me the chemo has dragged - it’s been the longest few months of my life!

Take care

Jude x
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Re: August 2018 Chemo starters

Hello ladies-not written on here for a while but have been keeping up with all your progress you brave ladies and some of you have certainly been through the mill!!!

I rang the bell in chemo unit yesterday after X6 FEC-T. Not been the easiest few months have to say and at the beginning of August that last date seemed way off...... It goes remarkably quickly doesn't it?  Been in a bit of a chemo blur all the way through which could probably be partly to do with it, as well as in built coping mechanisms!

Have 20 radiotherapy appointments starting 12th December (80 mile round trip) but small problem in the grand scheme of things.

wishing you all a speedy recovery- the end of treatment is in sight and we will be glad to see the new year!!

Best wishes

love Amanda X

 

 

 

 

 

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Re: August 2018 Chemo starters

😂 Thanks Jude! Cat x
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Re: August 2018 Chemo starters

*step of the way 😂
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Re: August 2018 Chemo starters

Cheers Cat - we are with you every set of the way - big love - jude x

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Re: August 2018 Chemo starters

Hi Jo and Jude,
Fantastic that you’ve both reached the end of the chemotherapy road! Well done....it’s a tough road and you’ve done it! 👍
Good luck to everyone else still going through treatment....it will be our trun to celebrate soon 😀
Take care all
Cat x
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Re: August 2018 Chemo starters

Hi Jo

 

Well done, it’s a tough gig this chemo malarkey, after the first cycle it’s hard to think how you are going to get through it! I hope you rung the 🔔. Good news on your radiotherapy dates, I know it’s creeping over Christmas but you’ll be fine

i had my last T today, just got the pesky side effects to get through! We don’t have a 🔔 on our chemo ward so the nurses ring a bell on their iPhone! Bless them, lots of hugs & well wishes all round.

 

Hope all you other ladies are doing ok

 

jude x

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Re: August 2018 Chemo starters

Hi Ladies,

 

Thank you for your good wishes with my last Chemo treatment- all now completed YEAH...I can’t believe i have got through it all. I remember my first FEC treatment and spending the first night being sick every couple of hours and saying that I couldn’t get through it all....but here I am! 

 

I have aplanning meeting for radiotherapy therapy on Tuesday 20th and then I start treatment on the 3rd Dec. I have been told that I will have 4weeks worth. 3 weeks plus an extra week to give me an extra zap! I also have a bone strengthening infusion planed for the 4th Dec. Unfortunately the radio will be going on over Christmas but luckily they don’t have appointments on Christmas or Boxing Day, so that is a nice relief!

 

Hope everyone gets on ok with the rest of your treatment

Jo xx

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Re: August 2018 Chemo starters

Definitely Cat - & for the first time ever we are eating out at a restaurant for Christmas day lunch - so double bubble x
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Re: August 2018 Chemo starters

Hi Jude,
All done by 24th December....now that’s the best Xmas present! 🎁
Cat x
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Re: August 2018 Chemo starters

Hi Cat

 

Well done on your recent T, the tiredness is cumulative according to my onc, so take it easy - hopefully you won’t have any other side effects 😁
Blood tests were ok so I’m on for my last T tomorrow - hurrah.

I hadn’t had confirmation of my radiotherapy dates so today I phoned my breast care nurse who has sorted, I’ve my planning appointment this Friday 16th & then 15 days of treatment starting Tuesday 4th Dec to Monday 24th December, so all done for christmas!

Jo - hope final T went well today 🔔 & you don’t suffer too much with side effects. Have you got radiotherapy to follow?

 

Hope all you other lovely ladies are doing ok,

 

take care 

 

Jude x

 

 

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Re: August 2018 Chemo starters

Hi Lovely Ladies,

One more T ticked off on Friday. I have been so so tired since, more so than I’ve ever been before. Probably just the cumulative effect, it’s been a long road but just 4 more T sessions to go! 😀

Jo, congrats on your final T today! Must be a great feeling 👍

Jude, good luck for your final session tomorrow, you’re neatly there! 😀

Tarnia, good to hear your sessions are progressing well too.

Wishing you all a good week. Take care everyone.

Cat 😘
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Re: August 2018 Chemo starters

Hi Jo

Good luck with your final T on Monday. Sounds like you’re doing really well. I’m going for my second T tomorrow and so far been coping quite well ....no fatigue at all just hope it continues.

 

i haven’t heard of the trial you’ve been offered however I’m triple negative and I’ve been offered one talking low dose aspirin. I guess they have trials going on all the time for all the various sub groups. 

 

Good luck to everyone going for another round of chemo! Nearly at the end point 😏

 

Tarnia

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Re: August 2018 Chemo starters

Hi Ladies

Hope you are all ok

Cat - good news that the infection is responding well!
Jo - good luck with final T, hope all goes well. My oncologist said that the tiredness & side effects are cumulative so dig deep, I’m sure that the thought that it’s the last cycle will help 😀
Sorry I don’t know anything about the monarchE trial as I’m hr- & her2+ - good luck with your decision - and you Sally

This week other than being tired I have felt more normal - whatever normal is nowadays 😂 - so roll on my last T next week

Take care all

Jude x
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Re: August 2018 Chemo starters

Hi Sunflower, I'm from June thread. I've also been asked about that trial and am seeing ONC shortly so I'll let you know what they say.
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Re: August 2018 Chemo starters

Hi all,

 

Just returned from my onc appt and if bloods are ok, I’m set  for my final T on Monday.  Discussed SE and I’m still on 100% dosage as they didn’t feel it was necessary to reduce it down. Although tiredness this time round is quite hard, really feeling it and I’m sure it will be worse next time round.

 

Finally have got my radio dates and I start 4weeks of radiotherapy on 3rd Dec so hopefully finish the first week of Jan! I will also need Bone strengthening injections but need a dental check up first as it can apparently cause issues with jaw/teeth. Initially I was due to start tamoxifen for my hormone treatment but they are now recommending letrozole as my blood tests show I am post menopausal which I was quite surprised about!

 

I was also asked about taking part in a trial called monarchE - it’s a licensed drug that is being used for advanced BC and they want to see if it has any benefits in preventing recurrence in early BC which is Hormone receptor +ve and HER2 -ve.  Has anyone else been invited to take part?

 

Anyway, hope everyone is doing ok.

jo x

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Re: August 2018 Chemo starters

Hi Lovely Ladies,

Thanks Jude and Tarnia, I was back at hospital today and infection is clearing up well.

Jude, great news that you’re finishing next week....chemo is a long hard road so I hope you’ll be celebrating getting to the end! 😃

Take care everyone

Cat x
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Re: August 2018 Chemo starters

Hi Ladies

Hope you are all ok

Tarnia - good luck with your next cycle, hope it all goes ok
Cat - hope your infection clears up quickly with the antibiotics & you are back on track!
My last docetaxel is Tuesday 13th - so nearly there, I can’t wait for it to finish - it’s been the longest few months of my life!

Take care

Jude x
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Re: August 2018 Chemo starters

Hi Cat
Thank you. Hope your infection clears up quickly too. Like you not long to go.....that end date is in sight! !
Take care
Tarnia x
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Re: August 2018 Chemo starters

Hi Tarnia,
Didn’t see your response before I sent mine....best of luck for your second dose of Docetetaxol next week! 👍
Cat x