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August 2018 Chemo starters

Member

Re: August 2018 Chemo starters

I'm from Oct thread and finished chemo at the end of Feb. Just wondered if you'd tried wearing travel sickness bands whilst you're having chemo. (I kept wearing them for a few days after chemo as well) I don't know if they did make any difference and it might have been a coincidence, but I wasn't sick at all x

Member

Re: August 2018 Chemo starters

Hi all,

 

I have just had my first chemo treatment yesterday 6 FEC T - I know I started in July but I am only 2days outside of the August start date!

 

i was very anxious about it all. Already had surgery Lumpectomy and  removal of all nodes -that seemed the easy part.

 

I hate to say it but last night I felt awful, so sick and threw up a number of times. Luckily this morning I took all of the sickness tablets I was prescribed (3different ones) and been better today, just nausea. Going to bed in a moment as I didn’t really sleep much last night!

 

I am sure this journey will be a hard and long haul but it is the only option we have so we need to take each day as it comes....well that is what I say on a positive day!

 

Good luck everyone x

 

 

Member

Re: August 2018 Chemo starters

Hi multitasker
Good luck with your first cycle, I’m struggling with nausea & vomiting but sleeping on & off a lot
It’s a horrible place where we all are but the support on here is great
Jude x

Member

Re: August 2018 Chemo starters

Hi Ianstillme
Thanks for the messsge, felt worse today vomiting this morning & very nauseous
If it continues tomorrow I might see if there are any other anti sickness tablets I can have instead
The fuzziness is strange, I also seem to have face ache! Think it must be in my sinuses
I’ve started doing a blog so will update my se’s in there so I’ve got a record to discuss with the team.
Good luck on your next cycle
Jude x
Member

Re: August 2018 Chemo starters

Insight Timer is a free meditation app that i use now as started with Headspace but decided not to pay for it.x

ktk
Member

Re: August 2018 Chemo starters

Hi Multitasker. Don’t worry about the port fitting. Is it a Picc? It is fine and makes the chemo much easier. They gave me a Limbo for the shower and you can get them on Amazon.

Good luck ladies. It is all doable and a means to an end. If you fancy having a look at us on the June thread some of us have posted our lovely bald heads. Kx
Member

Re: August 2018 Chemo starters

I've found the Headspace 10 days free meditation course really helpful and have returned to it on many occasions. It helped me relax for the radiotherapy sessions on the patient unfriendly couch, and gets me relaxed during the night when I keep waking up in a panic. I also use the breathing exercises (shallow breathing centred on the chest) when people are saying the wrong things with good intentions and I'm conscious of having rather a short fuse!

Member

Re: August 2018 Chemo starters

Morning All

I've been using a meditation app called Headspace - I'm finding the sessions useful - I find the guys voice quite soothing. The first 10 days are free - though I'd did do about 4 days with on the trot - but then you have to start paying for it. If it interested just Google headspace but do let me know if anyone is aware of any free alternatives.

Happy meditation all

Sue x
Member

Re: August 2018 Chemo starters

Morning Ladies, first post. 

 

I start chemo on Friday, 4 cycles of EC and 4 cycles of T to be followed by radiotherapy and endocrine therapy. Ive had a lumpectomey and partial node clearance 3 weeks ago for IDC grade 2.

 

Feeling v anxious, its awful signing consent forms to put such toxic drugs in your body, when otherwise feeling well. But it is a well trodden path and something that has to be got through.

 

Having a port fitted on Thursday and hoping to try the cold cap. Feeling a bit queasy about the port insertion but compared to surgery I guess its no big deal.

 

My husband lives and works in Switzerland. He’s over this weekend for the first chemo session but after that we need to work out when I am feeling worst and need the most support and juggle his visits to fit that. I’ve been following everyones SEs to see how they are finding it.

 

Sleeping really badly which has been quite exhausting. I need to knock this on the heads bc sleep is essential to recovery. Starting meditation and/or mindfullness - anyones tip gratefully received! Can’t quite belive this is happeneing. My life has turned on its head so quickly. So much information to process.

 

wishing you all the best

Member

Re: August 2018 Chemo starters

Hi Jude,
I hope you feel better tomorrow. Maybe mention it to your chemo team as they may be able to change your anti-sickness meds.
My head felt like a Mexican wave was going on in my brain and I felt a little dizzy after my 1st EC. The chemo nurses said it was the C so maybe the fuzziness you're feeling could be the same kind of thing?
I keep a record of any SEs in a pocket diary just in case I need to report them to my chemo team (hence my in-depth and long-winded last post).
Member

Re: August 2018 Chemo starters

Hello Sue & Georgie and welcome to the club no-one wants to join. My 2nd chemo is on Friday 3rd and so far the SEs have been minimal.
I have tnbc stage 3 with node involvement and I'm having neoadjuvant EC-T and my SEs to date are:
Days 6-10 mild headaches but no temp - took paracetamol to ease pain & keep temp down.
Days 8-13 taste buds went awol - eat anything but my fav foods little but often although my appetite was pretty much nonexistent.
Days 11-13 mouth ulcers (2) - used medijel (savers own brand similar to Iglu gel which was recommended by bcn) also gargled salt water so not sure which helped more.
Days 11-16 mild sore throat but no temp. Also had today briefly. Paracetamol eases a little.
Days 15, 16 & 18 mild diarrhoea but no temp - took Imodium which helped a lot (fingers crossed).
Rash at PICC line site noticed at dressing change on day 13 - chemo team thinks it may just be heat rash but put on an allergy-free dressing to see if that helps. Taking Clarityn which eases itching although it looks worse.
Hair loss approx 50% thinner but my hair is thick and I had a lot of it so people haven't noticed. Started appearing on pillow around day 14 and has got steadily worse. Saturday (day 16) it was shedding all day and now I can't move without being covered. It's like I'm competing with my friend's cats!
I can't quite bring myself to shave it off as it feels like I'll be admitting defeat. I know some people find it empowering or that they're taking some control back but I don't feel that. Maybe my feelings will change when it goes patchy. The worse thing is how sore my scalp is, it kinda feels like I'm being scalped (or how I'd imagine that feels like as obviously I've never actually been scalped!).
Anyway, good luck with your first chemo on Thursday and I hope your treatments are kind to you both.
Sam xx
Member

Re: August 2018 Chemo starters

Hi Sue & Georgie

Not the best place to be but good to have some company!
I’m having 3 cycles of EC, then 3 cycles of T along herceptin (which lasts a year) & bone meds for 3 years. No hormone treatment as ER-
Had my first EC today at 1pm. Felt ok during it but a bit fuzzy round the edges. Been feeling sick for the last couple of hours - had anti sickness tablet, got the sea bands on, had a bit of bread, ginger tea & took the steroids
Not sure whether I’ll feel better or worse in the morning!

Take care x
Member

Re: August 2018 Chemo starters

Hello Georgie

I'm also starting chemo on the 2nd - 6 rounds of EC so whilst not in exactly the same boat I'm in the flotilla with you (sorry thats the last of my boating metaphors).

I'm also a little bit scared so hoping to find support and help support others as we embark on our journeys. My first surgery was early May followed by a cavity shave early June to make sure they had got all of the little blighters so I feel I've been hanging around a while too.

Sending you good luck and positive thoughts for Thursday.

Sue x
Community Champion

Re: August 2018 Chemo starters

Good luck with your first chemo Georgie - I'm sure other ladies will be along soon to join you .
Member

Re: August 2018 Chemo starters

Hello, 

I am starting chemo on August 2nd, so this is where I will be chatting and chilling out during this roller coaster.  It took ages to get this far after surgery in early June.  Like many others I am having FEC T plus herceptin for a year and and bone meds for 3 years.  No hormone treatment for me as no involvement. 

A little bit scared spitless but keen to meet others in the same boat.  

Georgie x

Community Champion

August 2018 Chemo starters

Hi ladies , I've started a new thread for those of you who are about to start chemo and those who are mid way to hop over from July Xx