Member
Posts: 688
Registered: ‎09-08-2017

Re: August 2018 Chemo starters

Morning ladies. How are you all today?
I'm from the Oct 2017 thread and finished 6x FEC-T in Jan 2018.
If you have any questions feel free to ask or pop over to the Oct thread and leave a message on there.
X
Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Ladies,

 

My first post..

 

I had a lumpectomy in July and my treatment plan consists of FEC and T and Herceptin, among other things. I have my chemo assessment on Monday with a view to first chemo session on 10th August (as long as all tests can be completed in time). 

 

Really helpful to read all your updates....sets the scene for what's ahead! 

 

Loving the cocktail shaker idea...if only! :-)

 

X

Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Or even mouth 👄 ulcers!! x
Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Ladies

Pleased to see you all mainly seem to be coping with the chemo
I’ll be honest I’ve had a shocking week - mega nauseous, vomiting, heartburn, so tired although it is hot & now got s couple of moth ulcers. Fuzzy head starting to clear today though.Also been a bit weepy the last 2 days which is not like me at all.
For the 2nd cycle I’m gong to see if they can change my anti sickness meds, as the drugs don’t work 🎶
Had to cancel my wig appointment as was too ill to travel. Well done to you ladies who have founds wigs that you are happy with. I’ve ordered & received today a couple of scarves from www.hipheadwear.co.uk - quite nice to be fair

Take care
Jude x
Member
Posts: 10
Registered: ‎17-07-2018

Re: August 2018 Chemo starters

Hello ladies.

Yesterday I had my picc fitted, no problems there as apparently I have large veins and then my first EC a couple of hours later and so far so good, slight nausea but barely noticeable it certainly hasn't curbed my appetite, the meds seem to be doing their thing. I am trying not to feel smug though as I'm aware it's only been a day lol. I suspect I could be in for a rubbish weekend but I'll carry on taking it a day at a time and see what happens.

The chemo centre experience was grand, lovely staff and patients, I was only there a few short hours and I think the volunteers came round with a trolley of drinks and snacks at least three times! My nurse said I was very calm and well prepared for a first timer (I didn't know what to expect so hadn't brought anything with me, just my lovely daughter) but from what I could see everyone there appeared to be relaxed; a few slept and there was lots of chatting and laughter among others, altogether it was not an unpleasant experience. Still peeing a bit pink tho!

Lots of hugs and luck to all of you. Keep posting, it's great to hear how you're all doing.

Fran x




Member
Posts: 116
Registered: ‎30-06-2018

Re: August 2018 Chemo starters

Hi ktk, thanks for replying 

 

They want to do a port cath because I have very poor veins in my right hand and they cannot use my left arm because of the removal of all lymph nodes being risk of lymphedema.  

Have another medical condition needing frequent cannula insertions so they are very poor.  It took 3 nurses 3 attempts today.  

Waiting list is 3 weeks but they have only just put me on it.  I asked the oncologist weeks ago and she said to wait to see nurses.   I'm praying for a cancellation or something as I need to heal before next treatment apparently...  multitasker tell me how it goes after your port and chemo close together... best wishes 

Georgie x

ktk
Member
Posts: 558
Registered: ‎02-04-2018

Re: August 2018 Chemo starters

Georgie, if they have problems finding a vein I am surprised they haven’t suggested a Picc line. This is a permanent port that goes in your arm. It is flushed once a week and then bloods taken before chemo and chemo delivered through it. No more needles.

Multitasker the portacath is more invasive than the Picc. Is there a reason they gave you a portacath? Kx
Kip
Member
Posts: 914
Registered: ‎27-04-2018

Re: August 2018 Chemo starters

Hi SB fabulous about the cocktail shaker... Maybe wishful thinking?  You should have taken it along to chemo and got it out ... Would have been funny to see the nurses face!

You all seem to be getting along well, keepnup the drinking they thought maybe not the cocktails!

Member
Posts: 69
Registered: ‎18-05-2018

Re: August 2018 Chemo starters

Hi Multitasker,

 

yes i have also been to the wig shop in Ware. Really nice and the wigs look pretty good. I’ve reserved one and they are getting me another one form the warehouse as they only had the style in blonde.....which being a brunette looked rather silly on me! Hope fully I can pop back next week to pick it up as I am sure my hair will be falling out soon. First chemo on Monday just gone, feeling ok today but just a bit tired.

 

Good luck tomorrow

x

 

Member
Posts: 290
Registered: ‎29-07-2018

Re: August 2018 Chemo starters

Georgie gee - that's good to hear.

I had my first EC this morning. Attempted the cold cap but gave up after about 30 mins - it was cold, heavy and tight and it was starting to make me feel nauseous. Couldn't bear the thought of wearing it for another 2-3 hours for there only to be a possibility it might work and then have to go through the same the next 5 times. Hats off to the ladies that do cope with this - the nurse told me everyone has a different experience so please don't let my account put you off if you are considering it - my advice would be to try it and see.

SE wise - we got home about 2pm and I started to eat anything that wasn't nailed down, had a bit of a fuzzy head, started to feel a bit nasueous around 4:30 so laid on the sofa with eyes shut feeling sorry for myself. However I've hauled myself upstairs to brush teeth and wash face and I'm feeling better so not sure if the nausea was imagined.
I've been monitoring my drink intake since getting home - one large coffee and I'm on my 4th pint of water - just don't seem to be peeing enough out though I am peeing!! Oh what things I share with peeps I do know - it's quite cathartic though.

Keep smiling I guess xx
Member
Posts: 20
Registered: ‎14-07-2018

Re: August 2018 Chemo starters

Thanks for your chemo bag ideas. Hopefully I am all set for tomorrow.

 

Had a great day yesterday. I went to an amazing wig shop in Ware with a lovely consultant called Amanda. The experience could not be more different to the shop I went to in London. Thank goodness I tried again. Thats not to say it might prove too much faff in reality but I’ve now orderd one that I am very happy with - in the other shop I just felt I looked my father in drag!!

 

Today though I feel like I’ve been hit by a truck. I had a portacath inserted this morning and my chest looks like I’ve been punched by a gorilla. Swollen and huge bruising. I cant believe they said I can have this a day before chemo! I don’t care about the discomfort, I’m more worried that they may delay chemo and want it to heal a bit first. It looks so raw. My husband lives in Switzerland and has flown over for 3 nights. He wont be able to be here next week. I guess I just have to wait until the nurse and doctor look at it tomorrow. Despite reading all the literature I didnt expect to feel and look like this. 

 

Has anyone else got a portacath? Did it look horrible after insertion? Did it take long to heal?

 

Fingers crossed for tomorrow

 

 

 

Member
Posts: 116
Registered: ‎30-06-2018

Re: August 2018 Chemo starters

Just had my first FEC and so far feel fine...... had been t at 11.30 as it took them half an hour to find a vein..... 

is my body playing tricks with me or should I see this as the calm before the storm?....... 

thanks 

Member
Posts: 266
Registered: ‎22-05-2018

Re: August 2018 Chemo starters

Cocktails and chemo! Fab idea! 🍸 should be available on prescription 😊
Member
Posts: 290
Registered: ‎29-07-2018

Re: August 2018 Chemo starters

So I have my first chemo session this morning and as I'm going to give the cold cap a try I was getting a few things together last night to keep me comfortable. So a warm wrap, some ridiculously fluffy slippers socks, a few snacks, some puzzle books and the flask to make some hot chocolate. My partner washed the flask through as we haven't used it for a while. I've just come to make said hot chocolate and was looking at the flask thinking something wasn't quite right but wasn't sure what - I then realised it just had a pop on lid not a screw lid. Well that's a bit rubbish I thought - it could leak in the bag. How have we managed before with it in the rucksack?? I then realised it was the cocktail shaker.......

Happy days ladies - hope this made you smile xx
Kip
Member
Posts: 914
Registered: ‎27-04-2018

Re: August 2018 Chemo starters

Hello August ladies, sorry you find yoursleves here and sorry to see some of you are suffering SEs of chemo.  I have had 3 Fec and will be having 3 T staring August 13th.  I have already had a mx and will be having nodes removed, rads and hormone tabs after that.  I've found the worst effects to be nausea bit like being pregnant in waves but I take the meds and they are bearable after that.  I've worn anti sickness bands, nibbled anything I fancied and tried to drink lots, important to flush it all through.  If you are taking steroids be prepared for an energy and emotional dip for a day or so after you finish them,, for me day 6\7 but it passes too.  Just take things easy listen to your body and you will get through.  As for hair loss, mine started shedding on day 12 and by 15 it was falling everywhere so had to brave the shave.  I won't lie it was tough but once its gone the relief was immense as the waiting and worrying about when will it go was worse.  I still have eyebrows and lashes at moment but e everywhere else is gone. .. everywhereSmiley Wink as KTK said some of us have posted our baldies on the June thread.  

Take care ladies take one day at a time Kip xxxx

Member
Posts: 266
Registered: ‎22-05-2018

Re: August 2018 Chemo starters

@Multitasker
I bought a beautiful wig by Noriko after watching a demo on YouTube, the lady tried it on in five different colours. It really is lovely. When it arrived I panicked as it felt too small and was sort of riding up my head. But I was trying it with my own hair. Once I was bald it fit like a dream and is adjustable. According to google 94% if women take a standard wig cap. People who don’t know I’m sick just think I’ve got a new hairdo.
Hope you find a fab wig or, as others have done, embrace the bald!
Jacq xx
ktk
Member
Posts: 558
Registered: ‎02-04-2018

Re: August 2018 Chemo starters

Re chemo bag, I take some snacks (ginger biscuits) and mags/book and music. I find mags better as I can’t concentrate on a book! My chemo ward let’s you make tea and has a wide variety. I also take someone to make me tea!!! Take a big bag as you will leave with a shed load of drugs! I think you will only be cold if you are cold capping.

Multitasker I am just short of 6’ myself. I knew that I would not wear a wig so didn’t bother to look. I do have some scarves but have embraced the baldness and find it very liberating. If you go to the June thread you can have a look! Kx

Member
Posts: 20
Registered: ‎14-07-2018

Re: August 2018 Chemo starters

Morning girls

 

So sorry to hear about your SEs Jude and Sunflower. Sending you loads of hugs.

 

I am trying to drink loads of water in the run up to chemo. Feel like I’m pregnant getting up in the night for the loo. I’ve downloaded the Headspace app too. Lets see how annoyed I can get by punctualtion and voice 😂

 

Any top tips for my chemo bag? I’ve been told you can feel quite cold? Even in this heat?

 

Off to look at wigs today. Already tried one place in London last week, so depressing and demoralising but going to give it another go. I think the consultant  may have been shoving too small wigs on my enooorrrmous head. I’m six foot so hardly a small frame. Well thats what i am hoping bc they were so tight and just didnt sit right. Fingers crossed.

 

💆‍♀️

 

 

Member
Posts: 266
Registered: ‎22-05-2018

Re: August 2018 Chemo starters

Good morning ladies
I started chemo at the very end of May and just wanted to pop over and wish you all the very best for your treatments. It is very doable with more good days than bad. You’ve got this! 🥊🥊🥊
All best wishes
Jacq 😊
Member
Posts: 42
Registered: ‎24-06-2018

Re: August 2018 Chemo starters

A counsellor friend recommended the Headspace app so I downloaded it. Although it's set out well and I wouldn't have minded paying the small annual fee, I found the guy's punctuation really annoying and his voice grated on me. Needless to say, I wasn't relaxed at all. I wonder if there's a way of changing it. Or maybe I'll just try Insight Timer instead.
Sam xx