That’s good news that the acupuncture seems to be helping your hot flushes!
I’m going to take up the hairbrush challenge, it’s definitely worth giving it a go, pleased that it’s seems to be working for you
Morning ladies - hope ur all doing ok.
Just wanted to let you know that the Acupuncture sessions I've been having for hot flushes etc seem to have produced positive results - whilst they haven't gone completely they have reduced in frequency and intensity so probably worth a try if you are being affected by them.
And also I've been doing a little solo experiment too! I remember reading yonks ago that brushing your hair encourages it to grow - something to do with stimulating the hair follicles if I remember correctly. So, whilst my hair doesn't by any stretch of the imagination actually need to be brushed I've been religiously brush my hair / scalp twice a day for the last week and I don't know if it's coincidence or if this actually works but I'm convinced I've had a growth spurt since I started. I'm not saying it's definitely worked but I'm going to continue to do it - so again anyone who's frustrated that your hair isn't coming back as fast as you'd hoped maybe reach for that hairbrush. I'm obsessively doing ten stokes front to back in sections all over my head. Fingers crossed.
Enjoy ur weekends and if anyone takes on the hairbrush challenge - post updates on the results.
Tarnia, I do drink more now than I did pre chemo I think it is a good habit to get into, although without scaremongering it can be a sign of diabetes so may be worth seeing a doctor or mentioning it to your oncologist or breast care nurse if you are excessively thirsty.
Sue, good luck on the trial & well done on booking lots of hols! It’s great having things to look forward to during the winter
Don’t rush back to work. I think everyone needs to do it in their own time. I found that now I’m feeling stronger I felt like I needed to get a routine back & luckily I had changed to a 4 day week 18 months ago. This week has gone ok but I’m glad it’s friday tomorrow!
take care all
I'm certainly drinking more water than I did previously but I think that's possibly habit from chemo days. I also wonder if there may be a chance that your body got used to more water during chemo so is asking for it by telling you you're thirsty?
In other news I signed up for the add aspirin trial yesterday so I'm starting the run in period today, will have a check up in 8 weeks or so and if all is ok I'll be on to the 5yr trial. It's a randomised allocation of drugs so neither I nor my doctors will know what I'm getting.
And in yet more news I've been on a holiday booking rampage and in the course of a week booked 3 holidays which are in addition to the ones we've already got planned. One is only for two nights but I'm still counting it 😂😂😂
We'll done on going back to work Jude - I'm not quite ready yet - I'm starting to do more but still getting tired quite easily so not sure it's the right thing for me to go back just yet as I want to make sure that when I am back I'm not spending to much of.my time away from work during my phased return recovering from being at work. I'm also thinking of going back part-time if that's an option but will leave that until I've been back a while - see how things go
Hope everyone is doing ok
I just wanted to ask you all if any of you are thirsty all the time? I finished chemo 10 weeks ago but I find I’m constantly thirsty! Not sure if this is normal or something I should be worried about 🤔
On a positive note my first radiotherapy all went to plan today. 1 done just 22 to go.
Jude - well done on going back to work. A bit of normality back in your life. It’s good to be getting back to normal.
Good luck with the radiotherapy - don’t forget plenty of water & moisturiser & if you do have any issues tell the radiographers as they can help
Well done on booking the holiday, it will come round really fast
I started back at work this week & it’s going better than I expected!
Jo - hope your check up went ok
Take care ladies
I finally start radiotherapy tomorrow! I’m having 4 and a half weeks. Glad to be on the last leg of this journey but have to admit I’m not looking forward to the 25 mile round trip everyday 🤨
Jude today I’ve also booked a holiday to Mexico going in April! It’s always good to have something to look forward to and boy do we all deserve it!
Hope everyone is doing well.
I'm the same trying to eat better & exercise more, although I have had a bar of chocolate today!
My diet was shocking during chemo & I’ve put a good 7-10lbs on - got to lose it as I’m going to Mexico in just over 6 weeks!
That sounds good, you’ll obviously get monitored more which can only be a good thing
Hope you don’t have any tricky side effects
Its the MonarchE trial, phase 3. Basically the drug is already being used for patients with advanced BC (hormone positive) as it reduces growth/spread. The trial is looking at whether the drug will prevent recurrence in people that have had hormone+ve BC. I’ll still have my treatment as planned - hormone therapy and biosulphates but with the added drug.
Just a little update- I’ve signed up to a trial and have been randomised to get the drug!
Initially pleased about this but pick up drugs tomorrow so starting to get apprehensive 😬
Jo - yes it was good to be know how it will work going forward & I do like a plan
Good luck with your appointment x
That all sounds positive and some reassurance to know you will be having mammograms regularly for ten years.
Im seeing my surgeon on Friday and like you I had surgery in June. Hopefully I’ll get a follow up plan as well.
Sue, I got offered the Asprin trial but I didn’t like the placebo part as I’ve read before how well Asprin works against cancer! So I spoke to my oncologist about it and she’s happy for me to take a low dose Asprin every day 75mg which you can buy of the counter. You could do this yourself too and then you wouldn’t be part of a trial so wouldn’t get problems with insurance 🤔 ....just a thought x
Jude, I’m so glad your hair was a success. Don’t worry about it still being thin in places it won’t take long to thicken up, will be getting thicker everyday x
Cat, I’m triple negative so after radiotherapy I’m on my own 🤨 there is no targeted therapy for tripple negative but hopefully your hair will be just fine on Tamoxifen X
lots of love all
We are going to Mexico mid March for 11 days & we are using Good to go insurance - £260.
I’m on herceptin & bisphosponates & my husband had a brain haemorrhage 12 years ago & is on medication for epilepsy & high blood pressure; so I didn’t think that was too bad
I'm not brave enough to go without headwear or a wig yet, mainly because the growth & thickness is patchy in parts. Although I do sit around the house & answer the door bareheaded 😂
I've got 7 weeks until we go to Mexico so I’m hoping it loooks ok by then
Sorry I was ERnegative so don’t need tamoxifen - hope some of the other ladies can assist, good luck with it
I also just wanted to say how useful this chemo thread has been for me, I think it’s really helped with the physical aspects of cancer/chemo & also the emotional side of going through it with ladies who understand - thanks to all of you 👍
Sounds like everyone is doing well with exercising. My work colleagues are doing the McMillian mighty “Thames path” walk in July, it’s a 26mile walk. I was really tempted to take part as well but unfortunately (!!) I will be away on holiday, so I can’t!
I try and go out for a walk every other day - 2 miles and then a 5 mile walk at weekend, so slowly getting my fitness back. I want to try and get back to the gym but I need some advice on what exercises would be good, especially as I had full node clearance and I need to be careful of lymphodema.
Im back to hospital on Monday to sign up for a trial and then back on the Weds to see whether I get given the drug or not.
When are you all seeing your surgeon/oncologist again? I’m due to see surgeon beginning if Feb and onc end of Feb.
I am relieved that I am not the only one without much hair! I finished chemo mid Nov and I have just about got a very fine coverage of hair. On a positive it does have a very dark look to it, which is great as I was brunette before, so here’s hoping it stays the same....perhaps without any grey.....wishful thinking 😀
I am a bit nervous about the colouring as everything I’ve read says to wait 6 months, but I can’t bear this white hair any longer - I’ve got odd dark hairs as well which look a bit weird. I started going grey at 18 so I’ve dyed it ever since - I’m 56, so now I’m white haired without eyebrows & eyelashes, this is not where I thought I’d be a year ago 😂
I’m not a runner but I started couch to 5k first week in jan & today I did my first run on week 4, surprisingly I’m enjoying it even though it’s been cold & icy some days. I’m not intending doing a 5k race but I’d love to be able to run for 5k
i don’t mind the change - my eyesight must be going as I find it easier to read!
please let me know how the hair colouring goes, I’m almost 8 weeks post chemo and I’m desperate to colour mine too!
Thank you ladies for tips on what creams worked for you during radiotherapy i will get me a supply ready.
Sue, well done you for signing up to Race for Life in June, you will do great I’m sure. I’m thinking of joining one of fund raising activities just haven’t decided which one yet. I’m already a frequent runner so fancy doing something different.
Take care ladies.
I worry about a recurrence all the time 🙁 the thought is never far from my mind ( my cancer was 7mm with no nodes). I have booked a holiday for August this week but continually worry I’m tempting fait 😕 I’m hoping with time that worry will fade!
I’ve recently been for my first radiotherapy talk and been tattooed ready. Think I will start around 6th Feb. I’ve been given some AQS emollient to use when I start has anyone else used this? And what do you all recommend?
Now a hair question...because I cold capped I have quite a bit of hair already but very very grey! Does anyone know if I’d be ok to dye it now? Or should I wait a few more months. It’s also very dry and never seems to need washing I honestly think I have no oils left in my body at all! Oh yes and all my new hair is curly where as my existing hair is still straight 🤨 hope it will all sort itself out soon. Anyone else have curly hair coming through?
take care all.