My first post..
I had a lumpectomy in July and my treatment plan consists of FEC and T and Herceptin, among other things. I have my chemo assessment on Monday with a view to first chemo session on 10th August (as long as all tests can be completed in time).
Really helpful to read all your updates....sets the scene for what's ahead!
Loving the cocktail shaker idea...if only! :-)
Hi ktk, thanks for replying
They want to do a port cath because I have very poor veins in my right hand and they cannot use my left arm because of the removal of all lymph nodes being risk of lymphedema.
Have another medical condition needing frequent cannula insertions so they are very poor. It took 3 nurses 3 attempts today.
Waiting list is 3 weeks but they have only just put me on it. I asked the oncologist weeks ago and she said to wait to see nurses. I'm praying for a cancellation or something as I need to heal before next treatment apparently... multitasker tell me how it goes after your port and chemo close together... best wishes
Hi SB fabulous about the cocktail shaker... Maybe wishful thinking? You should have taken it along to chemo and got it out ... Would have been funny to see the nurses face!
You all seem to be getting along well, keepnup the drinking they thought maybe not the cocktails!
yes i have also been to the wig shop in Ware. Really nice and the wigs look pretty good. I’ve reserved one and they are getting me another one form the warehouse as they only had the style in blonde.....which being a brunette looked rather silly on me! Hope fully I can pop back next week to pick it up as I am sure my hair will be falling out soon. First chemo on Monday just gone, feeling ok today but just a bit tired.
Good luck tomorrow
Thanks for your chemo bag ideas. Hopefully I am all set for tomorrow.
Had a great day yesterday. I went to an amazing wig shop in Ware with a lovely consultant called Amanda. The experience could not be more different to the shop I went to in London. Thank goodness I tried again. Thats not to say it might prove too much faff in reality but I’ve now orderd one that I am very happy with - in the other shop I just felt I looked my father in drag!!
Today though I feel like I’ve been hit by a truck. I had a portacath inserted this morning and my chest looks like I’ve been punched by a gorilla. Swollen and huge bruising. I cant believe they said I can have this a day before chemo! I don’t care about the discomfort, I’m more worried that they may delay chemo and want it to heal a bit first. It looks so raw. My husband lives in Switzerland and has flown over for 3 nights. He wont be able to be here next week. I guess I just have to wait until the nurse and doctor look at it tomorrow. Despite reading all the literature I didnt expect to feel and look like this.
Has anyone else got a portacath? Did it look horrible after insertion? Did it take long to heal?
Fingers crossed for tomorrow
Just had my first FEC and so far feel fine...... had been t at 11.30 as it took them half an hour to find a vein.....
is my body playing tricks with me or should I see this as the calm before the storm?.......
Hello August ladies, sorry you find yoursleves here and sorry to see some of you are suffering SEs of chemo. I have had 3 Fec and will be having 3 T staring August 13th. I have already had a mx and will be having nodes removed, rads and hormone tabs after that. I've found the worst effects to be nausea bit like being pregnant in waves but I take the meds and they are bearable after that. I've worn anti sickness bands, nibbled anything I fancied and tried to drink lots, important to flush it all through. If you are taking steroids be prepared for an energy and emotional dip for a day or so after you finish them,, for me day 6\7 but it passes too. Just take things easy listen to your body and you will get through. As for hair loss, mine started shedding on day 12 and by 15 it was falling everywhere so had to brave the shave. I won't lie it was tough but once its gone the relief was immense as the waiting and worrying about when will it go was worse. I still have eyebrows and lashes at moment but e everywhere else is gone. .. everywhere as KTK said some of us have posted our baldies on the June thread.
Take care ladies take one day at a time Kip xxxx
So sorry to hear about your SEs Jude and Sunflower. Sending you loads of hugs.
I am trying to drink loads of water in the run up to chemo. Feel like I’m pregnant getting up in the night for the loo. I’ve downloaded the Headspace app too. Lets see how annoyed I can get by punctualtion and voice 😂
Any top tips for my chemo bag? I’ve been told you can feel quite cold? Even in this heat?
Off to look at wigs today. Already tried one place in London last week, so depressing and demoralising but going to give it another go. I think the consultant may have been shoving too small wigs on my enooorrrmous head. I’m six foot so hardly a small frame. Well thats what i am hoping bc they were so tight and just didnt sit right. Fingers crossed.
I'm from Oct thread and finished chemo at the end of Feb. Just wondered if you'd tried wearing travel sickness bands whilst you're having chemo. (I kept wearing them for a few days after chemo as well) I don't know if they did make any difference and it might have been a coincidence, but I wasn't sick at all x
I have just had my first chemo treatment yesterday 6 FEC T - I know I started in July but I am only 2days outside of the August start date!
i was very anxious about it all. Already had surgery Lumpectomy and removal of all nodes -that seemed the easy part.
I hate to say it but last night I felt awful, so sick and threw up a number of times. Luckily this morning I took all of the sickness tablets I was prescribed (3different ones) and been better today, just nausea. Going to bed in a moment as I didn’t really sleep much last night!
I am sure this journey will be a hard and long haul but it is the only option we have so we need to take each day as it comes....well that is what I say on a positive day!
Good luck everyone x
Insight Timer is a free meditation app that i use now as started with Headspace but decided not to pay for it.x
I've found the Headspace 10 days free meditation course really helpful and have returned to it on many occasions. It helped me relax for the radiotherapy sessions on the patient unfriendly couch, and gets me relaxed during the night when I keep waking up in a panic. I also use the breathing exercises (shallow breathing centred on the chest) when people are saying the wrong things with good intentions and I'm conscious of having rather a short fuse!
Morning Ladies, first post.
I start chemo on Friday, 4 cycles of EC and 4 cycles of T to be followed by radiotherapy and endocrine therapy. Ive had a lumpectomey and partial node clearance 3 weeks ago for IDC grade 2.
Feeling v anxious, its awful signing consent forms to put such toxic drugs in your body, when otherwise feeling well. But it is a well trodden path and something that has to be got through.
Having a port fitted on Thursday and hoping to try the cold cap. Feeling a bit queasy about the port insertion but compared to surgery I guess its no big deal.
My husband lives and works in Switzerland. He’s over this weekend for the first chemo session but after that we need to work out when I am feeling worst and need the most support and juggle his visits to fit that. I’ve been following everyones SEs to see how they are finding it.
Sleeping really badly which has been quite exhausting. I need to knock this on the heads bc sleep is essential to recovery. Starting meditation and/or mindfullness - anyones tip gratefully received! Can’t quite belive this is happeneing. My life has turned on its head so quickly. So much information to process.
wishing you all the best
I am starting chemo on August 2nd, so this is where I will be chatting and chilling out during this roller coaster. It took ages to get this far after surgery in early June. Like many others I am having FEC T plus herceptin for a year and and bone meds for 3 years. No hormone treatment for me as no involvement.
A little bit scared spitless but keen to meet others in the same boat.
Hi ladies , I've started a new thread for those of you who are about to start chemo and those who are mid way to hop over from July Xx