Member
Posts: 290
Registered: ‎29-07-2018

Re: August 2018 Chemo starters

Hello Cat

Is your nose dry inside?? I had a problem last winter / early spring with dryness and bleeding and put it down to being indoors lots with heating on. The pharmacist agreed and recommended a water based nasal spray and this worked a treat.

Re hair it does sound as if we will all be different. I've managed to hang onto other hairs (legs, armpits, eyebrows and lashes) though everything has thinned out considerably and it wouldn't surprise me if I lost it all. At the point at which I shaved my head I still had some hairs but not much so I've now got about a centimetre or so of spiky stuff and then what my OH describes as 'patchy bum fluff' over the rest of my head !!!
Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Jude and Jo, glad to hear treatment going well 👍

Hi Sue, I had 3 x FEC and I’ve had 2 of 7 T but no sign of my hair coming back yet. Another lady on similar regime as me said her hair started to grow back a few weeks in to T so sounds like we are all going to be bit different. Good luck! 😀

My eyelashes and eyebrows are just about hanging in there but lost about 60-70% so far...hoping not to lose any more!

Does anyone else have a sore nose? Mine started to get sore over last few days, had a light nose bleed too. Any suggestions?

Take care all 🤗
Xxx
Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Jo

My eyelashes have lost the fight! I can’t even wear mascara anymore - sad days!
Eyebrows have thinned a lot but still hanging in there - at the minute!

Jude x
Member
Posts: 69
Registered: ‎18-05-2018

Re: August 2018 Chemo starters

Sue,

 

Im now on T but I think my hair on my head is starting to grow back a bit....but I don’t want to get my hopes up as my eyebrows and lashes seem to be tumbling out!

 

Jo x

Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Thanks Jo - sounds like you are doing ok on this cycle so far - let’s hope it stays that way!

Sorry Sue - my regime is 3 x EC & 3 x T ( just had 2nd T) but no hair growth fur me ☹️. However a lady on the same treatment & cycle as me said yesterday that her hair was starting to grow although not very evenly. Hope your hair is coming back!

Take care

Jude x
Member
Posts: 290
Registered: ‎29-07-2018

Re: August 2018 Chemo starters

Hello all

Question for you. I'm between my 4th and 5th cycles of EC and over the last week or so I've noticed that the hair on my head appears to be coming back. Has anyone else noticed this? Just wondering if it's a blip or if I can expect it to continue?

Thanks in anticipation

Sue xx
Member
Posts: 69
Registered: ‎18-05-2018

Re: August 2018 Chemo starters

Jude,

 

Thats a good reading for your neuts. I thought mine were good at 2.67 but that has put mine into perspective! My White blood count was ok 4.6 and Hb 116 so doing ok on the full dose.

 

Another round and no sickness ......yeah...as you say just waiting for the bone pain to kick in!

 

im also going to have biosulphates and hormone therapy so will be discussing this with consultant in a couple of weeks. I think it starts after radiotherapy.

 

Good luck with the SE 

 

jo x

 

Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Ladies

Had herceptin & t chemo (st 75% of original dosage) today & all went well - at the moment feeling fine.
Neuts are up to a massive 6.97 but hb at little low at 9.8 - try to increase with diet
So in theory I should cruise this cycle!

Just injections & bone pain to come 😂

Hope you are ok

Jude x
Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Thanks Cat - sleep well x
Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Jude,
My next appt with Oncologist is 31st October so will learn more about the Bisphosphanstes then.
Hope tomorrow goes well!

Take care all

Cat x
Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Cat

Well done, you are doing really well on this latest treatment with no heavy side effects. Long may it continue!
I’ve had my blood tests today & although my Hb is a little low at 9.8? May account for being a little more breathless than normal? I’m ok for herceptin & chemo (reduced dosage) tomorrow
I don’t think I’ll be starting the bisphosphonates until after the chemo - I’ve an appointment with the oncologist 27/11, so may know more then. When do you start yours?

Hope everyone else is doing ok - love to all

Take care

Jude x
Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Lovely Ladies,

 

On Friday I started Herceptin and had my second T (Paclitaxol), so far I haven’t suffered with SEs other than a slightly flushed face, some mild aches and pains and general tiredness…...phew!

 

Georgie – glad you started T, hope you stay on track now.

 

Jude – have you started on bisphosphonates yet? How are you getting on?    

 

Hope everyone is doing well and SEs not causing too many issues  - take care!

 

Cat x  

Member
Posts: 116
Registered: ‎30-06-2018

Re: August 2018 Chemo starters

Thanks Jo, 

Got same advice from hotline so spot on!! 

Georgie xx

Member
Posts: 69
Registered: ‎18-05-2018

Re: August 2018 Chemo starters

Hi Georgie,

I had the flushed face on T, it kept flaring up, esp when I went outside.

It wasn’t itchy though just flushed and hot to the touch and looked a bit swollen around the eyes.

 

I rang up the chemo hotline and they told me it was fairly common and to take piriton and went down a couple of days afterwards.

 

Perhaps ring the chemo hotline and get their advice.

Good luck

jo

Member
Posts: 116
Registered: ‎30-06-2018

Re: August 2018 Chemo starters

Hi everyone

I had my first T yesterday.... yay! I had it at last. Only 75%, with only 50% steroids....

They gave me chlorphenamine, also known as piriton, to take up to 3 times a day. I called to ask them which symptoms it helped with... nurse I spoke to didn't know, but will get back to me.

So so far no achey legs or fatigue as it is only day 2, but my eyes are hurting a bit and I have a flushed face which is getting a bit hot and itchy.....

any clues Ladies?
Thank you so much xxx

Georgie xx

Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Sorry Cat - hope all goes well tomorrow! I’m blaming chemo brain 😂 x
ktk
Member
Posts: 558
Registered: ‎02-04-2018

Re: August 2018 Chemo starters

Happy Birthday Jo. Enjoy the bubbly. You deserve it! 🥂🎂. Kxx
Member
Posts: 69
Registered: ‎18-05-2018

Re: August 2018 Chemo starters

Hi,

 

Thank you for my birthday wishes. Yes I will be celebrating in the New Year once all this treatment is finished.

Luckily my actual birthday falls in my “good” week so a glass of bubbly might be on the cards!

 

jo

Member
Posts: 71
Registered: ‎02-08-2018

Re: August 2018 Chemo starters

Hi Lovely ladies,

Jude, thanks, it’s tomorrow that I have my H and T....but pleased to report that the SEs after my first T last Friday have been minimal 👍. The cumulative effect may change that but for now I will make the most of it!

Jo, Happy Birthday!! 🎂 50 is young! I hit that milestone...decided 50 is the new 40! 😂 I hope you managed to enjoy the day.

Hope everyone doing okay, take care all 🤗
Member
Posts: 256
Registered: ‎23-06-2018

Re: August 2018 Chemo starters

Hi Ladies

Hope you are all hanging in there!

Cat - hope your H & T go ok today - fingers crossed!

Georgie - hope you had your T yesterday & it all went ok & you are not feeling too bad today

Jo - happy 50th birthday! You’ll have to have a big celebration once all this treatment is over - something to look forward to. That’s good that you’ve got the strong pain killers & the mouthwash is a must - I got 3 ulcers & that was whilst I was using it! It does taste quite disgusting though. It’s goid to have your plan for radiotherapy, it feels that you are making progress.

Hope all ok

Jude x