16-01-2019 09:44 AM
15-01-2019 11:16 PM
15-01-2019 11:13 PM
15-01-2019 10:24 PM
Your 3 strands made me laugh! I’ve been looking on Pinterest & YouTube for ladies showing the hair growth after chemo so from what you’ve said you sound similar to the ones I’ve seen. There’s not much length on my hair but it is thickening up well.
Sorry to hear that you have struggled a little emotionally, it can’t have helped having to wait 6 months for ned. Well done with getting the counselling & a massage always helps. I’ve heard some ladies says acupuncture has helped them...
I’m doing ok thx, finished chemo 12/11 & rads 24/12 - the only time I’ve felt emotional was ringing the bell after my last rads, but I’m expecting the enormity of it to hit me at some point
15-01-2019 09:36 AM
15-01-2019 08:53 AM
I had a blood test before I started chemo which showed that I was post menopause......I was 49 when diagnosed and hadn’t had a period for ages but I hadn’t any other symptoms so I was pleasantly surprised. To be honest I assumed it was peri menopause but no, the blood test showed different. As I have been through menopause I am on Letrozole rather than Tamoxifen ( I think for the hormone receptor cancer, letrozole is designed for post menopause and tamoxifen pre) . That is also why I was put on biosulphates.
Unfortunately the hot flushes are a lot worse than I had previously!!
I must admit though i am struggling somewhat somewhat with the fear of recurrence - don’t know why but I can’t believe it is all ok etc- google is not good sometimes.....I think that because I had 7 lymph nodes positive really scared me as the tumour was only 22mm and couldn’t be felt easily, it was only the weird indentation that I spotted. Just frightening how quickly it can spread. I know I’ve had surgery and I got a good clearance, chemo, radio, hormone therapy and biosulphates.....but thank goodness I did spot it when I did. Think I might look at getting some counselling x
14-01-2019 11:37 PM
Hi Jude, that's quite understandable re hair! I used the cold cap for FEC, but it had thinned too much when I started on T. I didn't think I lost all my hair, but my daughter's said that I did! Maybe I was a bit delluded! I think YD felt sorry for me, she said I might have had about 3 strands left!
My hair has grown back really well! I didn't put anything on it to help it's growth and it's so thick I've had to have it thinned at the top twice! I can't say I like it much cause it's got a curl and shorter than I'm used to, but looking at it I don't think anyone would guess that this time last year I didn't have any! (apart from 3 strands! ) Hope your's has started to grow back well.
My eyebrows however seem to have given up half way across!
I'm ok thanks, but have found the emotional side quite hard at times. Probably not helped by the fact that although I finished rads in June, I wasn't told I was NED until just before Christmas. I'd had (still can't get used to saying that!) a few mm's of cancer in my internal mammary chain and both the chemo and rads oncs were confident that the rads would zap it, but I couldn't have a CT too soon afterwards to check, so it's been hanging over me. I've been having some counselling through Macmillan and some massages through a local charity and they're helping. How are you? x
14-01-2019 10:31 PM
14-01-2019 10:10 PM
Hi Jude, Sue, Jo and Cat, I'm from the Oct '17 thread and also on bishosphonates. (Zoldronic Acid) I have a 6 monthly infusion. I'm also post menopause. I had cancer in 3 lymph nodes and TN. I was told by my onc that it helps to stop bc spreading into the bones, but recent studies had also shown that it also helps to prevent a recurrance xx
14-01-2019 10:07 PM
14-01-2019 09:56 PM
14-01-2019 09:04 PM
14-01-2019 07:56 PM
So it’s hormone treatment for you, will that put you into the menopause or have you already had that pleasure? If you have been through it, do you go through it again?
Well done for going with the trial, hopefully you’ll get the product rather than the placebo especially if it’s already had good results with secondary bc
14-01-2019 07:51 PM
Bisphosphanates prevent loss of bone density, I think breast cancer & the treatment of, can cause bone loss. Why some people are put on it & not others I’m not sure - I’m 56 & post menopause so whether that has any relation to it. My cancer was HER2+ & hadn’t spread to my lymph. One of the oncologists has said bisphosphonates can also help mop up any stray cancer cells in the bones but mine hadn’t spread...
To be honest I’ll take anything they suggest if it may help
hope you are ok
13-01-2019 05:38 PM
I’m on Letrozole (hormone tablet) as mine was hormone positive and I’m also on biosulphates but I’m on a 6monthly infusion. I have to go to the chemo unit to have it administered. Interesting how you are on a daily tablet and I’m a 6monthly infusion.
I was told the biosulphate was because the Letrozole can cause osteoporosis and it is to counteract that SE and also strengthen the bones for any future invasion! Also on Calcium tablets to help the formation of calcium in bones. I will also be on biosulphates for 3years.
Ive also just signed up for a trial so I might be on another drug.....or maybe it, but whatever I will get additional monitoring so quite pleased about that. The trial is for primary hormone positive cancers with 4-9 lymph nodes involved.
It’s using a drug that is already been used for advanced cases of bc and can slow down the spread, they are seeing whether it prevents recurrence in primary cases.
13-01-2019 04:09 PM
I have been using the Nioxin products so whether they have helped...but it is thickening up more than length.
I spoke to my hairdresser on Friday & she will use a dye suited to white/grey hair, she is confident it will take ok
It’s been a tough gig so I think we are entitled to feel a bit emotional at the end of radiotherapy - what additional treatment / medication are you on now?
I’ve got 3 weekly herceptin injections until September & have just started a daily bisphosphonate tablet which I need to take for 3 years
Take care all