just wondering what you are doing when away on holiday with regards to your skin that was treated with radiotherapy. Do you plan on keeping covered or wearing a high factor sunscreen? I’ve read to to wear factor 50 for a least a year but I mentioned to the radiologist that I was going away in April and she insisted it needed to be covered 😫
Hi Lovely Ladies,
Glad the cold cap worked well for you Tarnia. Now I know why you have so much more hair than me 😂 It’s looking good.
My hair is still very short too Jo although it’s starting to thicken up a bit now.
Im going on holiday on Sunday too ☀️, I plan to leave the wig at home but won’t be ditching it completely until I’ve dyed it after I get back.
Jude, I seem to be coping quite well with Herceptin, Bisophanates and Tamoxifen so far although not sure the full extent of the SEs from Tamoxifen have kicked in yet. I get joint aches and pains (I think from Herceptin) and my body thermostat doesn’t seem to work anymore (Tamoxifen), I go from hot to cold and vice versa all the time....especially at night time.
I’m also struggling to lose the weight I put on during chemo, but won’t worry about that until after my holiday! 😀 Enjoy Mexico!
Take care everyone, Cat 😘
Thanks for all the nail feedback, I suppose as nails are slower growing the damage takes longer to show, hopefully by the summer we will all have reasonable nails again
My hair is definately thickening, hopefully the length will start to come soon... I've been having mine coloured every 3 weeks as the new hair coming though on the thinner patches is grey - my hair & scalp have been fine with the colour.
I'm going to Mexico on Sunday & am hoping that when I come back I can ditch the wig - if I'm brave enough
Well done on finishing radiotherapy Tarnia, the prickly heat won't last very long. Your hair looks great, I know that you used the cold cap & it looks like it worked really well for you
Hows everyone getting on with the targetted therapies herceptin, tamoxifan, bisphosphonates etc?
Also I'm struggling to lose weight, I've only lost 4lbs since beginning of January, was hoping to have lost about 10lbs pre holiday so have had to buy some new holiday clothes - every cloud...
You did well with the cold cap, I didn’t try that.
I know what you mean about the difficulty in ditching the wig. There are a lot of people at work who don’t know about my diagnosis and that has been the beauty of wearing the wig, but when I brave the “natural look” I am sure it will raise questions.
My wig has been a good buy, felt very confident wearing it and it looks very natural, although it proved challenging today when I went out in all that wind!
As you say Tarnia, at least my hair is growing and it is getting thicker by the day.
Thank you Jo.
Because I used the cold cap I didn’t lose all my hair. I went very thin and at the end of chemo had it cut really short. So now although stil Short it’s a decent length and thickening up nicely. I’m still amazed at how curly it’s growing as I’m normally dead straight and my fringe is almost Afro!! But my hair dresser yesterday was explaining how it always affects the hairline and crown the worst 🤨
it’s very hard to ditch the wigs and hat because people who know me are going to see such a difference and I haven’t really told that many people about me 🤨 but I hate my wig now it’s gone a bit like dolls hair at the ends so it’s kind of forced my hand.
I’m sure you look lovely Jo whatever the length of your hair and the positive thing here is that it’s growing and once it starts it doesn’t take long!!
Looks good Tarnia.
Must be great to ditch the wig.
I can’t believe how long your hair is.....mine is still very much a crew cut. I finished chemo mid November and I’m not brave enough to go wig free just yet!
Looks fantastic!!! I bet you feel fabulous 👍
I can’t believe how long your hair is, I’m 12 weeks post chemo and have no where near as much hair as you. So great that you don’t need your wig or hats anymore, yippee!
Well today couldn’t come quick enough! I’ve dyed my hair and have to say it’s covered really well and I’ve had no problems at all! Was a bit worried as I know they advise to wait 6 months but I really wanted to Ditch my wig! It’s been just over 3 months since I finished chemo. Thought I’d share incase others are thinking about it but may also be a bit worried!
Have a good weekend all.
I kept my nails short during chemo as they were very weak and peeling. Since then they have been improving very slowly. I have booked in for a manicure and pedicure as a treat next week!
I can’t imagine being very efficient at work yet! You’re doing great Jude. Current plan is to return to work in April / May….will see how I go. Like you Sue, hope to be firing on a few more cylinders by then!
Great news that you only have 3 radiotherapy sessions left Tarnia! I had a prickly heat rash too, I took antihistamine tablets which seemed to help.
Your toe sounds painful Jo – ouch! Hope it gets better soon.
I’ve decided to wait until April (after holiday) before dyeing my hair for the first time, hopefully I will have a bit more by then!
Take care everyone
I have to admit that my nails have been shocking, my fingernails gave up towards the end of chemo but with a bit of TLC they seem to be coming round. They were so brittle and the top layer could be peeled off.
My toe nails are really bad at the moment. Treated myself to a trip to the chiropodist the other day as the toe nail on my big toe has split right near the nail bed ....eek...however they can’t take it off just yet as the underneath is not ready to be exposed!
Hair is getting thicker but not getting any longer....
Still feeling tired and muscle aches but slowly getting stronger 😀
Hope everyone is doing ok.
My nails have gone all weird - the white tips are expanding down my nail (if you can visualize that) so I've put that down to the chemo in that what I'm seeing now at the tips is what would have grown at the start of my treatment - toe nails seem ok at the moment though! . I've never had the strongest nails - they always peeled and flaked at the drop of a hat. Bizarrely they were quite good through chemo but I put that down to me having the time to look after them and I did treat myself to a manicure just before each chemo cycle.
Not back at work yet - I'm going back early April - I'm hoping by then I'll be firing on all cylinders 😂🤔😂
I’ve had no issues with my finger nails but I’ve had a toe nail go black just a couple of weeks ago 😕
unfortunately I think the side effects of chemo are going to be with us for a while yet 🙄
I’m still having problems with my joints /muscles after resting. It’s driving me mad 😠
I have 3 radiotherapy sessions left and I’m suffering with a prickly heat rash which is also driving me mad, but just keep thinking I’m almost at the finish line.
Having my hair coloured on Saturday which l’m really looking forward to and will hopefully be able to ditch the wig and hat 😊 If all goes well I will try and post a picture.
Hope everyone is doing well.
Take care all,
Hope you are all ok
jyst wondered if anyone has had issues with their finger nails in recent weeks? For the last week or so my nails are very brittle & are breaking very easily - yet during chemo I had no issues?
I’ve been back at work now for a month & it’s all gone ok but I have noticed that I’m not as precise as I used to be - I’m having to check & double check my work!!
Thanks! I’ve dyed my hair (blonde) for many years too. My natural hair colour pre chemo was light brown with a sprinkling of grey, it’s growing back darker with a lot more grey! 😳 Although based on what I’ve read the texture/colour of our hair will likely change during first 12 months of growth.
I’ve coloured my hair forever as I started going grey at 18 👀
So prior to chemo it was coloured a mid brown with a few lighter & a few warmer highlights & my wig is a similar colour.
The first colour I had at 10 weeks post chemo was a light brown with a little bit of added warmth but I wasn’t mad keen as it had a gingery tinge to it.
I then had it coloured again 3 weeks after the first time & my hairdresser calls it an ashy blonde but to me it’s a light brown & I much prefer it. Because it’s very short & I’ve not got an even coverage I think you do need to colour it more often - i will have it coloured every 3 weeks until it has some length
When I can work out how to post photos I will put some photos on here!
Thanks, that’s helpful to know. Did you go lighter or darker?
I think the 6 months guidance is more precautionary, no way I can wait that long! 🤦♀️
it was 10 weeks after chemo when I had mine coloured. My salon use Wella colours & mine was a permanent. They did a patch test the week before & all was fine, my head hasn’t itched or had any reaction at all. As my new hair was grey/white they use a special product designed to help white hair ‘take’ the colour.
I’ll have a look at Accessorize, a stripey one sounds fun for the hols
I’m the same Jude, plan to go wigless when I’m on holiday, although feel like I need more thickness/length before I’m brave enough to ditch it at home!
When you dyed your hair what type of colour did you use? Permanent? Semi-Permanent? Bleach? My local hair salon spoke to Wella directly who said I should ask my ‘cancer specialist’ for the okay before colouring hair and went on to say most people are okay after 6 months, definitely not 3, with a skin test. I was hoping to dye my hair in a couple of weeks time which will be 3 months post chemo. Just wondering how long you left it and what products you all used?
I love the baker boy style hats, I’ve got a few that are suitable for the colder weather and more recently brought one from Accesorize which I think is new in for spring/summer (Navy/White stripe) and ordered a stone coloured one from Amazon. They will be great for holidays!
I’ll be gutted if my eyelashes start to drop out again - I’m not at mascara stage yet but hopefully in a couple of weeks...
My plan is to ditch the wig when I go on holiday & then stop wearing it at work when I come back - hopefully I’ll feel braver with a tan!
I have bought a great baker boy style cap online from Anna Bandana which is great as fits lower at the back & comes over your ears, as I’d also got fed up with the woolly caps with the sunny weather
Gosh, I hadn't heard that about eyelshes, it would be awful to lose them again after waiting so long for them to grow back! Mine have grown back quite well so far, enough to be using mascara, so hopefully you won't have too long to wait. I've been using an eyelash serum every day so that may have helped.
I'm looking forward to ditching my wig too, I'm not quite ready yet though!
Have a great week everyone....enjoy the sunsine while it lasts!
I had 2 toe nails fall off during chemo but have since grown back but then last week out of the blue another one turned black so I’m guessing that will fall off too! I’ve also read that sometimes your eyelashes fall out again after they’ve grown back and can do that several times over a couple of years 🤨 I’m hoping mine don’t i hate not having eyelashes - mine are growing back but not enough to wear mascara yet!
Im planing to ditch my wig and hats once I’ve dyed my hair - booked in for 9/3....I can’t wait! Really fed up with my wig atm and this last week has been a bit too mild for a woolly hat 🙄
Enjoy your weekend ladies 🕶☀️
Yep it’s great that chemo and radiotherapy is behind us now, we’ve all come so far! And very surreal looking back on it all...
Think you’re right about hair colour, will prob get it coloured before hols even if it’s a semi permanent colour to start with. Going public with our ‘new’ hair will be another great milestone ticked off ✅
Good result re your toe nail! I was lucky, didn’t lose any.
Happy Sunday everyone, enjoy the sunshine ☀️
Forgot to say I had one dodgy chemo toe nail which came off today with a perfectly formed new nail underneath - result! x
It’s great saying post chemo isn’t it Cat, it’s just like looking back on a bad dream to me now
your hair will look defo better to you with a bit of colour, I nearly went out for a jog today with no hat on but bottled it 😂
have a good weekend ladies
Thanks, I’m 10 weeks post chemo today so fingers crossed mine starts to thicken/lengthen up a bit more now. I think dyeing it will make a difference too.
Great news about being signed off from radiotherapy 👍, not so great needs about cystitis 😟, it’s not a nice thing to have so hope it clears up very soon!
Take care everyone
It probably took 10 weeks before it started to thicken up, looking on Pinterest & YouTube it’s seems that around 15-20 weeks it really starts to thicken up / lengthen.
On other matters, I saw my radiotherapy consultant yesterday who was pleased with my skin since radiotherapy & she has signed me off - so I was pleased with that.
I’ve had a nasty bout of cystitis this week which I never really suffered with before but have got antibiotics so hopefully will pick up soon
Take care all
Hi Sue, Thanks. Yes it feels great to finish!
The joint pains are annoying aren’t they, interested to hear how the yoga helps and any other suggestions anybody else has.
My hair is quite patchy/thin at the moment so I’m hoping it thickens up soon.
Hi Jude, how many weeks after chemo did your hair start to thicken up?
Take care ladies
Good to hear your hair is thickening up and looking better. Im thinking I might have mine coloured late March - I still feel it's a bit patchy and it's completely uncontrollable so I think it needs a bit more length before I can do anything with it.
Cat - congrats on finishing your radiotherapy. It's a good feeling isn't it.
Like a number of others I'm suffering from joint pain and pins and needles too (I'm also not on any other drugs as I'm TN). For me it started between Christmas and New Year. I thought it was my menopause symptoms returning as about 18 months previous I'd been experiencing pins / needles and stiff fingers / painful Achilles etc. After a load of tests to rule out other things my GP concluded it was as a result of falling levels of estrogen due to menopause. So on to HRT I went. Some of the problems started to lessen straight away and then everything completely disappeared after about 5 months. But I had to come off HRT for chemo and the symptoms suddenly returned with a vengeance late December (about 5 months after stopping HRT). I'd just come to the conclusion it was just because the chemo had reduced my estrogen levels even further. I mentioned it to my onc last week and asked if I could go back on HRT but that's a no. I'm seeing my GP in March as he mentioned there were alternatives to HRT so I'm hoping he can pull something out of the bag for me as like others I'm hobbling when I get out of bed or if I've been sat for a while. I'm also trying yoga as a colleague told me this helped them but I'm only a week or so in for this so it's too early to tell.
So if anyone finds something that works for them - please share.
I started to get SEs about 3 weeks in but nothing that bothered me too much. I had similar symptoms to prickly heat so took anti histamine tablets for the itchiness.
I wish the hair on my head would grow quicker too! I guess we have to be patient….sigh.
I also feel like a 90 year old some days, but I’m thinking that exercise should help. So far I haven’t done anything more than walking.
Thanks! That was exactly what happened to me, I posted the messages and then they disappeared! Very strange isn’t it.
I’m not sure how long I will remain on Tamoxifen for, I think I might be moved to Letrozole, or something else, after a couple of years. No idea how they decide who has what when.
I hope you get the pain in your feet sorted, sounds painful.
Take care everyone
Cat, Congrats on finishing radiotherapy.
I have also had problems with sending messages. I keep writing them and then posting and then they disappear! This is my third attempt today...
In response to your question - I’m on Letrozole not Tamoxifen, although I think SEs are similar!
Tarnia, I am also struggling with muscle/joint problems and I’m fine for a while, then when I stop or sit down and really struggle to get up and start moving again. I also feel like a women of 90, especially when I get up in the morning!
My my feet are also really bad- pins and needles and then if I walk for a while, they start to hurt and throb......oh well I’m seeing Oncologist next week, so I will see what they say.
Glad to hear you’ve finished radiotherapy with very few side effects. I’ve had 9 of my 23 so far so getting there and up to now no side effects 🤞🏼 Using cream 3 times a day.
My leg hair has returned in fact everything seems to be slowly returning to normal ( although wish the hair on my head would grow quicker)!
Im getting really bad joint pain currently and im not on any other medication so i’m assuming it’s a late side effect of chemotherapy. I’m ok if I keep moving but after I rest then move again I’m like an old woman of 90 which is really annoying. Up to now I’ve continued with my running but I think it’s time I stopped for a while to let my joints heel which again is annoying as it’s the one thing I love to do and it’s kept things “normal” through treatment so far ☹️
Take care ladies
The reason I have been quiet on the forum for the last few weeks is because I tried to send responses but for some reason my posts are not appearing, so I’m trying again on a different device in the hope that it works this time!
I finished radiotherapy last week – hooray! I had a round trip of over 60 miles each day but didn’t suffer too much with SE’s other than a bit of tiredness and the usual soreness/redness. For a couple of days my nipple was sore and weeping but that was short lived thankfully.
My hair is growing back, but very slowly, only have a few centimetres so far (not sure if it will be curly yet, but probably as my hair was naturally curly before!). Nothing under my arms or legs yet which is fine by me!
Hi Jude, good to hear you’re getting on well at work, not long now until your holiday! Sounds like we’re all booking holidays which we definitely deserve. I’m off to Tenerife with my OH mid March but haven’t managed to lose the weight I put on during chemo yet! I’m also on Herceptin and recently started taking Tamoxifen too. I still get tired if I try to do too much but not sure if it’s after effects of treatment, Herceptin or Tamoxifen or most likely a mix of all of them! I’m not getting nose bleeds any more.
Hi Tarnia, I hope the radiotherapy is going well, I think you’re half way there now. I found the last couple of weeks went by quickly. Keep up the moisturising, I’m sure it helps a lot. I’m trying to decide when to dye my hair for first time, at the moment I don’t feel I have enough of it!
Hi Sue, good luck with your trial. And good to hear acupuncture is making a difference, I have thought about having acupuncture too if needed. Congrats on going public with your own hair, I’m going to a Spa in a few weeks time too and a few days later I go to Tenerife so will go public with my own hair then…eek!
Hi Jo, I’m getting aches and pains in my joints too but think it might be a SE from Herceptin, not really sure. Are you on Tamoxifen? I don’t know if I’ve been on it long enough for all the SEs to kick in yet….time will tell.
Take care ladies…..I really hope this post gets to you!
No beard for me at the moment 😂
I’ve had my hair coloured again but a slightly cooler shade & it looks a lot better now it’s thickening up & the coverage is more even!
take care ladies
Jude - sorry to hear you're not liking your chemo curls - I have read previously that they don't last for ever so hopefully your hair will soon return to its pre chemo state 🤞. I'm looking more and more tufty every day and as my hair gets longer ie about 2cms now - I'm finding that my wig is sometimes slipping which is becoming a real pain.
On another note has anyone else turned into a bearded lady?? I've noticed over the last week or so the fine downy hair on my face seems to be getting longer. However I'm not sure if it's just returning to its pre chemo state and that I'm noticing it more cos theres no other hair around my face to mask it or if this is a genuine post chemo gift 😬. Luckily its very fair and fine at the moment but if it goes the way of the hair on my head I'll have a grey beard in time for my hols 😂😂.
Have a fun weekend all
Im pleased to report that my hair is now growing well. Eyebrows and eyelashes actually resemble eyebrows and lashes! I had to shave my legs the other day.
I went away with friends at the weekend and survived......thought I would get tired but managed ok although this week I have been shattered!
Sleeping really well but definitely still tired overall.
I’m not on herceptin so can’t comment on SEs but I know the hormone tablets are causing me achy joints and tired muscles, sometimes I get up in the morning and can’t actually walk as everything has seized up. Also if I have been sitting down for a while my legs just seize up, oncologists said I need to get back to proper exercise not just walking as that will help muscle issues.
Take Care all.
To be honest they are very unattractive curls mainly around my ears and my hair is still very short, I’m really not liking it 🙁 I’ve also got a tufty area on the crown!
I am pleased with how my eyebrows & eyelashes are growing now though & like you Tarnia the hair down there is making an appearance although I didn’t lose it totally
Re tiredness how are you all feeling? I’ve been back at work for 2 weeks & although I feel ok I am tired but not sleeping particularly well. I’ve read that the side effects of herceptin include tiredness & insomnia so it could be that. I’m also continuing to have a few nosebleeds within a week of each herceptin injection - anyone else? It’s not down as a side effect so who knows!
Take care all x
I didn’t lose all my hair because of cold capping but all of it has started growing really curly which for me is really strange as I’ve always had dead straight hair! Not quite sure what to do with it but I’m just thankful it’s hair and growing 😂 I finish radiotherapy on 8/3 so I’m going to book myself in to get it dyed on 9/3 something to look forward to!
My eyebrows are growing back too and top eyelashes on one eye but no signs on the other eye just yet...oh and my lady garden is growing well too 😂😂 not that I’ve missed that!!
sue glad your nasal hair is growing, no more runny noses for you 👍🏽
Take care all
Curly hair Jude - how exciting! Mine is still at the spikey stage - i look like I'm a leading character in the Tufty club 🤣🤣. I went public with my own hair yesterday - Im at a spa for a few days so not able to wear my wig in the steam rooms and saunas etc
Giud news re the nasal hair!
My is coming back as well & it’s great not to have a permanent runny nose!
my eyebrows & eyelashes are filling out as well which is good, but quite mascara ready but getting there
My hair is starting to go curly...
I might be over sharing but this will mean nothing to the others in my life - but I was so excited to see just now that my nose hair is back 😂😂👏👏👏.
Happy Monday all
Sue xx 😘😘
Glad the acupuncture is working for you. I’ve also heard that massaging the scalp helps the hair to grow. I’ve also heard that black Jamaican castor oil is also very good for hair growth so I’ve been massaging that into my scalp and leaving it overnight to see if it speeds things up! Only time will tell!
Have a good weekend all
That’s good news that the acupuncture seems to be helping your hot flushes!
I’m going to take up the hairbrush challenge, it’s definitely worth giving it a go, pleased that it’s seems to be working for you
Morning ladies - hope ur all doing ok.
Just wanted to let you know that the Acupuncture sessions I've been having for hot flushes etc seem to have produced positive results - whilst they haven't gone completely they have reduced in frequency and intensity so probably worth a try if you are being affected by them.
And also I've been doing a little solo experiment too! I remember reading yonks ago that brushing your hair encourages it to grow - something to do with stimulating the hair follicles if I remember correctly. So, whilst my hair doesn't by any stretch of the imagination actually need to be brushed I've been religiously brush my hair / scalp twice a day for the last week and I don't know if it's coincidence or if this actually works but I'm convinced I've had a growth spurt since I started. I'm not saying it's definitely worked but I'm going to continue to do it - so again anyone who's frustrated that your hair isn't coming back as fast as you'd hoped maybe reach for that hairbrush. I'm obsessively doing ten stokes front to back in sections all over my head. Fingers crossed.
Enjoy ur weekends and if anyone takes on the hairbrush challenge - post updates on the results.
Tarnia, I do drink more now than I did pre chemo I think it is a good habit to get into, although without scaremongering it can be a sign of diabetes so may be worth seeing a doctor or mentioning it to your oncologist or breast care nurse if you are excessively thirsty.
Sue, good luck on the trial & well done on booking lots of hols! It’s great having things to look forward to during the winter
Don’t rush back to work. I think everyone needs to do it in their own time. I found that now I’m feeling stronger I felt like I needed to get a routine back & luckily I had changed to a 4 day week 18 months ago. This week has gone ok but I’m glad it’s friday tomorrow!
take care all
I'm certainly drinking more water than I did previously but I think that's possibly habit from chemo days. I also wonder if there may be a chance that your body got used to more water during chemo so is asking for it by telling you you're thirsty?
In other news I signed up for the add aspirin trial yesterday so I'm starting the run in period today, will have a check up in 8 weeks or so and if all is ok I'll be on to the 5yr trial. It's a randomised allocation of drugs so neither I nor my doctors will know what I'm getting.
And in yet more news I've been on a holiday booking rampage and in the course of a week booked 3 holidays which are in addition to the ones we've already got planned. One is only for two nights but I'm still counting it 😂😂😂
We'll done on going back to work Jude - I'm not quite ready yet - I'm starting to do more but still getting tired quite easily so not sure it's the right thing for me to go back just yet as I want to make sure that when I am back I'm not spending to much of.my time away from work during my phased return recovering from being at work. I'm also thinking of going back part-time if that's an option but will leave that until I've been back a while - see how things go
Hope everyone is doing ok
I just wanted to ask you all if any of you are thirsty all the time? I finished chemo 10 weeks ago but I find I’m constantly thirsty! Not sure if this is normal or something I should be worried about 🤔
On a positive note my first radiotherapy all went to plan today. 1 done just 22 to go.
Jude - well done on going back to work. A bit of normality back in your life. It’s good to be getting back to normal.
Good luck with the radiotherapy - don’t forget plenty of water & moisturiser & if you do have any issues tell the radiographers as they can help
Well done on booking the holiday, it will come round really fast
I started back at work this week & it’s going better than I expected!
Jo - hope your check up went ok
Take care ladies
I finally start radiotherapy tomorrow! I’m having 4 and a half weeks. Glad to be on the last leg of this journey but have to admit I’m not looking forward to the 25 mile round trip everyday 🤨
Jude today I’ve also booked a holiday to Mexico going in April! It’s always good to have something to look forward to and boy do we all deserve it!
Hope everyone is doing well.