I'm the same trying to eat better & exercise more, although I have had a bar of chocolate today!
My diet was shocking during chemo & I’ve put a good 7-10lbs on - got to lose it as I’m going to Mexico in just over 6 weeks!
That sounds good, you’ll obviously get monitored more which can only be a good thing
Hope you don’t have any tricky side effects
Its the MonarchE trial, phase 3. Basically the drug is already being used for patients with advanced BC (hormone positive) as it reduces growth/spread. The trial is looking at whether the drug will prevent recurrence in people that have had hormone+ve BC. I’ll still have my treatment as planned - hormone therapy and biosulphates but with the added drug.
Just a little update- I’ve signed up to a trial and have been randomised to get the drug!
Initially pleased about this but pick up drugs tomorrow so starting to get apprehensive 😬
Jo - yes it was good to be know how it will work going forward & I do like a plan
Good luck with your appointment x
That all sounds positive and some reassurance to know you will be having mammograms regularly for ten years.
Im seeing my surgeon on Friday and like you I had surgery in June. Hopefully I’ll get a follow up plan as well.
Sue, I got offered the Asprin trial but I didn’t like the placebo part as I’ve read before how well Asprin works against cancer! So I spoke to my oncologist about it and she’s happy for me to take a low dose Asprin every day 75mg which you can buy of the counter. You could do this yourself too and then you wouldn’t be part of a trial so wouldn’t get problems with insurance 🤔 ....just a thought x
Jude, I’m so glad your hair was a success. Don’t worry about it still being thin in places it won’t take long to thicken up, will be getting thicker everyday x
Cat, I’m triple negative so after radiotherapy I’m on my own 🤨 there is no targeted therapy for tripple negative but hopefully your hair will be just fine on Tamoxifen X
lots of love all
We are going to Mexico mid March for 11 days & we are using Good to go insurance - £260.
I’m on herceptin & bisphosponates & my husband had a brain haemorrhage 12 years ago & is on medication for epilepsy & high blood pressure; so I didn’t think that was too bad
I'm not brave enough to go without headwear or a wig yet, mainly because the growth & thickness is patchy in parts. Although I do sit around the house & answer the door bareheaded 😂
I've got 7 weeks until we go to Mexico so I’m hoping it loooks ok by then
Sorry I was ERnegative so don’t need tamoxifen - hope some of the other ladies can assist, good luck with it
I also just wanted to say how useful this chemo thread has been for me, I think it’s really helped with the physical aspects of cancer/chemo & also the emotional side of going through it with ladies who understand - thanks to all of you 👍
Sounds like everyone is doing well with exercising. My work colleagues are doing the McMillian mighty “Thames path” walk in July, it’s a 26mile walk. I was really tempted to take part as well but unfortunately (!!) I will be away on holiday, so I can’t!
I try and go out for a walk every other day - 2 miles and then a 5 mile walk at weekend, so slowly getting my fitness back. I want to try and get back to the gym but I need some advice on what exercises would be good, especially as I had full node clearance and I need to be careful of lymphodema.
Im back to hospital on Monday to sign up for a trial and then back on the Weds to see whether I get given the drug or not.
When are you all seeing your surgeon/oncologist again? I’m due to see surgeon beginning if Feb and onc end of Feb.
I am relieved that I am not the only one without much hair! I finished chemo mid Nov and I have just about got a very fine coverage of hair. On a positive it does have a very dark look to it, which is great as I was brunette before, so here’s hoping it stays the same....perhaps without any grey.....wishful thinking 😀
I am a bit nervous about the colouring as everything I’ve read says to wait 6 months, but I can’t bear this white hair any longer - I’ve got odd dark hairs as well which look a bit weird. I started going grey at 18 so I’ve dyed it ever since - I’m 56, so now I’m white haired without eyebrows & eyelashes, this is not where I thought I’d be a year ago 😂
I’m not a runner but I started couch to 5k first week in jan & today I did my first run on week 4, surprisingly I’m enjoying it even though it’s been cold & icy some days. I’m not intending doing a 5k race but I’d love to be able to run for 5k
i don’t mind the change - my eyesight must be going as I find it easier to read!
please let me know how the hair colouring goes, I’m almost 8 weeks post chemo and I’m desperate to colour mine too!
Thank you ladies for tips on what creams worked for you during radiotherapy i will get me a supply ready.
Sue, well done you for signing up to Race for Life in June, you will do great I’m sure. I’m thinking of joining one of fund raising activities just haven’t decided which one yet. I’m already a frequent runner so fancy doing something different.
Take care ladies.
I worry about a recurrence all the time 🙁 the thought is never far from my mind ( my cancer was 7mm with no nodes). I have booked a holiday for August this week but continually worry I’m tempting fait 😕 I’m hoping with time that worry will fade!
I’ve recently been for my first radiotherapy talk and been tattooed ready. Think I will start around 6th Feb. I’ve been given some AQS emollient to use when I start has anyone else used this? And what do you all recommend?
Now a hair question...because I cold capped I have quite a bit of hair already but very very grey! Does anyone know if I’d be ok to dye it now? Or should I wait a few more months. It’s also very dry and never seems to need washing I honestly think I have no oils left in my body at all! Oh yes and all my new hair is curly where as my existing hair is still straight 🤨 hope it will all sort itself out soon. Anyone else have curly hair coming through?
take care all.
I should mention that although I am back at work, it’s not exactly full on......I get in for about 10.30and leave at 2, I like to think of it as acclimatising to the world of work! I will also be off for all of the school half term and most of the Easter break......slowly does it!
I had Weds off this week as well.....
At the end of day you have to do what is right for you and your body. I found sitting home made me contemplate and dwell on the negative things around cancer and the treatment. I was constantly looking on the internet for things that I don’t really want to know.....but for some reason it helps me deal with everything. If I’m at work it takes my mind off things and helps me move on and upwards!
However, I am am really worried about it returning, I think because I had it in 7 nodes and yet the tumour was only 22mm it has freaked me out a bit as to how such a small thing can cause such havoc.
I know I’ve had surgery with good clearance, chemo, radio, hormone therapy, biosulphates and my body no longer feels like my own but I still think there may be stray cells lurking ready to re-emerge. Is it just me or does anyone else have these thoughts?
I suppose I need to look at it that we have been lucky, we found it when we did and we have had treatment to hopefully enable us to enjoy life again and that some people don’t get that chance. What will be, will be......Positive thought number 1 of the day xx
Cat, I will also ask about Tamoxifen/Letrozole - sometimes though I wonder if it just the policy of the hospital you are under as to what you get given. Some people seem to start on Tam and then move to Letrozole after 2years- who knows!
Take Care all and enjoy your weekend.
Well done on finishing your treatment. I was emotional as well and just about made it outside the hospital before I shed my tears. I had to sit in the car for a while before I could drive home. I wasn’t as jubilant as I thought I would be, I think as you have said, I don’t want to jinx it!
i finished radio last week and I must admit I also feel “in limbo”. -it is a weird feeling having had so many hospital appts and now nothing until I see my Oncologist at the end of Feb. Our security blanket has been taken away......
In respect of work, my organisation have been fab with my time off and I have been back in for a few hours this week. I’m basically on a phased return, returning to full time over a 4 week period but I also have loads of annual leave to take before the end of March, so I don’t think I will in work much.
Enjoy your our night out and your days without hospital appointments