Sounds like everyone is doing well with exercising. My work colleagues are doing the McMillian mighty “Thames path” walk in July, it’s a 26mile walk. I was really tempted to take part as well but unfortunately (!!) I will be away on holiday, so I can’t!
I try and go out for a walk every other day - 2 miles and then a 5 mile walk at weekend, so slowly getting my fitness back. I want to try and get back to the gym but I need some advice on what exercises would be good, especially as I had full node clearance and I need to be careful of lymphodema.
Im back to hospital on Monday to sign up for a trial and then back on the Weds to see whether I get given the drug or not.
When are you all seeing your surgeon/oncologist again? I’m due to see surgeon beginning if Feb and onc end of Feb.
I am relieved that I am not the only one without much hair! I finished chemo mid Nov and I have just about got a very fine coverage of hair. On a positive it does have a very dark look to it, which is great as I was brunette before, so here’s hoping it stays the same....perhaps without any grey.....wishful thinking 😀
I am a bit nervous about the colouring as everything I’ve read says to wait 6 months, but I can’t bear this white hair any longer - I’ve got odd dark hairs as well which look a bit weird. I started going grey at 18 so I’ve dyed it ever since - I’m 56, so now I’m white haired without eyebrows & eyelashes, this is not where I thought I’d be a year ago 😂
I’m not a runner but I started couch to 5k first week in jan & today I did my first run on week 4, surprisingly I’m enjoying it even though it’s been cold & icy some days. I’m not intending doing a 5k race but I’d love to be able to run for 5k
i don’t mind the change - my eyesight must be going as I find it easier to read!
please let me know how the hair colouring goes, I’m almost 8 weeks post chemo and I’m desperate to colour mine too!
Thank you ladies for tips on what creams worked for you during radiotherapy i will get me a supply ready.
Sue, well done you for signing up to Race for Life in June, you will do great I’m sure. I’m thinking of joining one of fund raising activities just haven’t decided which one yet. I’m already a frequent runner so fancy doing something different.
Take care ladies.
I worry about a recurrence all the time 🙁 the thought is never far from my mind ( my cancer was 7mm with no nodes). I have booked a holiday for August this week but continually worry I’m tempting fait 😕 I’m hoping with time that worry will fade!
I’ve recently been for my first radiotherapy talk and been tattooed ready. Think I will start around 6th Feb. I’ve been given some AQS emollient to use when I start has anyone else used this? And what do you all recommend?
Now a hair question...because I cold capped I have quite a bit of hair already but very very grey! Does anyone know if I’d be ok to dye it now? Or should I wait a few more months. It’s also very dry and never seems to need washing I honestly think I have no oils left in my body at all! Oh yes and all my new hair is curly where as my existing hair is still straight 🤨 hope it will all sort itself out soon. Anyone else have curly hair coming through?
take care all.
I should mention that although I am back at work, it’s not exactly full on......I get in for about 10.30and leave at 2, I like to think of it as acclimatising to the world of work! I will also be off for all of the school half term and most of the Easter break......slowly does it!
I had Weds off this week as well.....
At the end of day you have to do what is right for you and your body. I found sitting home made me contemplate and dwell on the negative things around cancer and the treatment. I was constantly looking on the internet for things that I don’t really want to know.....but for some reason it helps me deal with everything. If I’m at work it takes my mind off things and helps me move on and upwards!
However, I am am really worried about it returning, I think because I had it in 7 nodes and yet the tumour was only 22mm it has freaked me out a bit as to how such a small thing can cause such havoc.
I know I’ve had surgery with good clearance, chemo, radio, hormone therapy, biosulphates and my body no longer feels like my own but I still think there may be stray cells lurking ready to re-emerge. Is it just me or does anyone else have these thoughts?
I suppose I need to look at it that we have been lucky, we found it when we did and we have had treatment to hopefully enable us to enjoy life again and that some people don’t get that chance. What will be, will be......Positive thought number 1 of the day xx
Cat, I will also ask about Tamoxifen/Letrozole - sometimes though I wonder if it just the policy of the hospital you are under as to what you get given. Some people seem to start on Tam and then move to Letrozole after 2years- who knows!
Take Care all and enjoy your weekend.
Well done on finishing your treatment. I was emotional as well and just about made it outside the hospital before I shed my tears. I had to sit in the car for a while before I could drive home. I wasn’t as jubilant as I thought I would be, I think as you have said, I don’t want to jinx it!
i finished radio last week and I must admit I also feel “in limbo”. -it is a weird feeling having had so many hospital appts and now nothing until I see my Oncologist at the end of Feb. Our security blanket has been taken away......
In respect of work, my organisation have been fab with my time off and I have been back in for a few hours this week. I’m basically on a phased return, returning to full time over a 4 week period but I also have loads of annual leave to take before the end of March, so I don’t think I will in work much.
Enjoy your our night out and your days without hospital appointments
Your 3 strands made me laugh! I’ve been looking on Pinterest & YouTube for ladies showing the hair growth after chemo so from what you’ve said you sound similar to the ones I’ve seen. There’s not much length on my hair but it is thickening up well.
Sorry to hear that you have struggled a little emotionally, it can’t have helped having to wait 6 months for ned. Well done with getting the counselling & a massage always helps. I’ve heard some ladies says acupuncture has helped them...
I’m doing ok thx, finished chemo 12/11 & rads 24/12 - the only time I’ve felt emotional was ringing the bell after my last rads, but I’m expecting the enormity of it to hit me at some point
I had a blood test before I started chemo which showed that I was post menopause......I was 49 when diagnosed and hadn’t had a period for ages but I hadn’t any other symptoms so I was pleasantly surprised. To be honest I assumed it was peri menopause but no, the blood test showed different. As I have been through menopause I am on Letrozole rather than Tamoxifen ( I think for the hormone receptor cancer, letrozole is designed for post menopause and tamoxifen pre) . That is also why I was put on biosulphates.
Unfortunately the hot flushes are a lot worse than I had previously!!
I must admit though i am struggling somewhat somewhat with the fear of recurrence - don’t know why but I can’t believe it is all ok etc- google is not good sometimes.....I think that because I had 7 lymph nodes positive really scared me as the tumour was only 22mm and couldn’t be felt easily, it was only the weird indentation that I spotted. Just frightening how quickly it can spread. I know I’ve had surgery and I got a good clearance, chemo, radio, hormone therapy and biosulphates.....but thank goodness I did spot it when I did. Think I might look at getting some counselling x
Hi Jude, that's quite understandable re hair! I used the cold cap for FEC, but it had thinned too much when I started on T. I didn't think I lost all my hair, but my daughter's said that I did! Maybe I was a bit delluded! I think YD felt sorry for me, she said I might have had about 3 strands left!
My hair has grown back really well! I didn't put anything on it to help it's growth and it's so thick I've had to have it thinned at the top twice! I can't say I like it much cause it's got a curl and shorter than I'm used to, but looking at it I don't think anyone would guess that this time last year I didn't have any! (apart from 3 strands! ) Hope your's has started to grow back well.
My eyebrows however seem to have given up half way across!
I'm ok thanks, but have found the emotional side quite hard at times. Probably not helped by the fact that although I finished rads in June, I wasn't told I was NED until just before Christmas. I'd had (still can't get used to saying that!) a few mm's of cancer in my internal mammary chain and both the chemo and rads oncs were confident that the rads would zap it, but I couldn't have a CT too soon afterwards to check, so it's been hanging over me. I've been having some counselling through Macmillan and some massages through a local charity and they're helping. How are you? x
Hi Jude, Sue, Jo and Cat, I'm from the Oct '17 thread and also on bishosphonates. (Zoldronic Acid) I have a 6 monthly infusion. I'm also post menopause. I had cancer in 3 lymph nodes and TN. I was told by my onc that it helps to stop bc spreading into the bones, but recent studies had also shown that it also helps to prevent a recurrance xx
So it’s hormone treatment for you, will that put you into the menopause or have you already had that pleasure? If you have been through it, do you go through it again?
Well done for going with the trial, hopefully you’ll get the product rather than the placebo especially if it’s already had good results with secondary bc
Bisphosphanates prevent loss of bone density, I think breast cancer & the treatment of, can cause bone loss. Why some people are put on it & not others I’m not sure - I’m 56 & post menopause so whether that has any relation to it. My cancer was HER2+ & hadn’t spread to my lymph. One of the oncologists has said bisphosphonates can also help mop up any stray cancer cells in the bones but mine hadn’t spread...
To be honest I’ll take anything they suggest if it may help
hope you are ok
I’m on Letrozole (hormone tablet) as mine was hormone positive and I’m also on biosulphates but I’m on a 6monthly infusion. I have to go to the chemo unit to have it administered. Interesting how you are on a daily tablet and I’m a 6monthly infusion.
I was told the biosulphate was because the Letrozole can cause osteoporosis and it is to counteract that SE and also strengthen the bones for any future invasion! Also on Calcium tablets to help the formation of calcium in bones. I will also be on biosulphates for 3years.
Ive also just signed up for a trial so I might be on another drug.....or maybe it, but whatever I will get additional monitoring so quite pleased about that. The trial is for primary hormone positive cancers with 4-9 lymph nodes involved.
It’s using a drug that is already been used for advanced cases of bc and can slow down the spread, they are seeing whether it prevents recurrence in primary cases.
I have been using the Nioxin products so whether they have helped...but it is thickening up more than length.
I spoke to my hairdresser on Friday & she will use a dye suited to white/grey hair, she is confident it will take ok
It’s been a tough gig so I think we are entitled to feel a bit emotional at the end of radiotherapy - what additional treatment / medication are you on now?
I’ve got 3 weekly herceptin injections until September & have just started a daily bisphosphonate tablet which I need to take for 3 years
Take care all
Sunflower18, I was really emotional when I finished rads too. I only made it as far as the reception desk before I burst into tears! You're right, we've been on a very big rollercoaster and I'm not keen on them! xx
Wow Jude, I can’t believe you are getting your hair coloured in a couple of weeks.....my hair is barely visible, not much at all. It is literally just starting to show and very fine.
I finished chemo on 12th Nov but I think I will be getting value for money with my wig!,
I finished radiotherapy today....I’ve thought I would be so happy to finish but I was really emotional and got very tearful when I got home.
I suppose though this whole journey has been a rollercoaster xx
My last chemo was 6 weeks ago and this week I’ve lost the last few remaining top lashes. 🙁 bottom ones have long gone!! I’m willing them to grow back quickly but no idea how long it will take! I had my eyebrows microbladed before chemo and I’m thankful I did as not much eyebrow hair remains either 🙁.... on a plus note, I last epilated my legs around my 1st chemo (16/8) and haven’t seen a hair since! Now that I don’t mind 😂.
Very interested to hear how everyone is finding radiotherapy. I have an appointment with my oncologist tomorrow to discuss it.
Had an appointment yesterday with surgeon and was told they found nothing, no cancer or DCIS, with my last surgery (27/12) so been signed off by him until my next mammogram which he said will be December (a year after last surgery date)!
Take me care all.