14-01-2019 10:10 PM
Hi Jude, Sue, Jo and Cat, I'm from the Oct '17 thread and also on bishosphonates. (Zoldronic Acid) I have a 6 monthly infusion. I'm also post menopause. I had cancer in 3 lymph nodes and TN. I was told by my onc that it helps to stop bc spreading into the bones, but recent studies had also shown that it also helps to prevent a recurrance xx
14-01-2019 10:07 PM
14-01-2019 09:56 PM
14-01-2019 09:04 PM
14-01-2019 07:56 PM
So it’s hormone treatment for you, will that put you into the menopause or have you already had that pleasure? If you have been through it, do you go through it again?
Well done for going with the trial, hopefully you’ll get the product rather than the placebo especially if it’s already had good results with secondary bc
14-01-2019 07:51 PM
Bisphosphanates prevent loss of bone density, I think breast cancer & the treatment of, can cause bone loss. Why some people are put on it & not others I’m not sure - I’m 56 & post menopause so whether that has any relation to it. My cancer was HER2+ & hadn’t spread to my lymph. One of the oncologists has said bisphosphonates can also help mop up any stray cancer cells in the bones but mine hadn’t spread...
To be honest I’ll take anything they suggest if it may help
hope you are ok
13-01-2019 05:38 PM
I’m on Letrozole (hormone tablet) as mine was hormone positive and I’m also on biosulphates but I’m on a 6monthly infusion. I have to go to the chemo unit to have it administered. Interesting how you are on a daily tablet and I’m a 6monthly infusion.
I was told the biosulphate was because the Letrozole can cause osteoporosis and it is to counteract that SE and also strengthen the bones for any future invasion! Also on Calcium tablets to help the formation of calcium in bones. I will also be on biosulphates for 3years.
Ive also just signed up for a trial so I might be on another drug.....or maybe it, but whatever I will get additional monitoring so quite pleased about that. The trial is for primary hormone positive cancers with 4-9 lymph nodes involved.
It’s using a drug that is already been used for advanced cases of bc and can slow down the spread, they are seeing whether it prevents recurrence in primary cases.
13-01-2019 04:09 PM
I have been using the Nioxin products so whether they have helped...but it is thickening up more than length.
I spoke to my hairdresser on Friday & she will use a dye suited to white/grey hair, she is confident it will take ok
It’s been a tough gig so I think we are entitled to feel a bit emotional at the end of radiotherapy - what additional treatment / medication are you on now?
I’ve got 3 weekly herceptin injections until September & have just started a daily bisphosphonate tablet which I need to take for 3 years
Take care all
11-01-2019 09:44 PM
Sunflower18, I was really emotional when I finished rads too. I only made it as far as the reception desk before I burst into tears! You're right, we've been on a very big rollercoaster and I'm not keen on them! xx
11-01-2019 09:09 PM
Wow Jude, I can’t believe you are getting your hair coloured in a couple of weeks.....my hair is barely visible, not much at all. It is literally just starting to show and very fine.
I finished chemo on 12th Nov but I think I will be getting value for money with my wig!,
I finished radiotherapy today....I’ve thought I would be so happy to finish but I was really emotional and got very tearful when I got home.
I suppose though this whole journey has been a rollercoaster xx
10-01-2019 11:46 PM
10-01-2019 05:14 PM
10-01-2019 02:39 PM
My last chemo was 6 weeks ago and this week I’ve lost the last few remaining top lashes. 🙁 bottom ones have long gone!! I’m willing them to grow back quickly but no idea how long it will take! I had my eyebrows microbladed before chemo and I’m thankful I did as not much eyebrow hair remains either 🙁.... on a plus note, I last epilated my legs around my 1st chemo (16/8) and haven’t seen a hair since! Now that I don’t mind 😂.
Very interested to hear how everyone is finding radiotherapy. I have an appointment with my oncologist tomorrow to discuss it.
Had an appointment yesterday with surgeon and was told they found nothing, no cancer or DCIS, with my last surgery (27/12) so been signed off by him until my next mammogram which he said will be December (a year after last surgery date)!
Take me care all.
09-01-2019 10:00 PM
09-01-2019 08:41 PM
09-01-2019 08:14 PM