19-09-2018 11:19 PM
I will be interested to see how you get on with your T cycle. Glad your side effects are better this time generally. The sooner all of this is over the better. Have you seen my posts on the polybalm cream?
I cant wait for all of this to be over.
19-09-2018 02:19 PM
Well it was a second time for me at A & E yesterday night.
temp climbing all day and eventually went in at 10.30pm (kept hoping it would settle)....... you know what it's like.
Got home at 2.30 after arm full of blood tests, antibiotics and fluids. Neutrophils ok but they did find a wee infection so have giant antibiotics to take.
Exhausted but safe.
18-09-2018 07:17 PM
17-09-2018 10:29 PM
15-09-2018 02:09 PM
Yeah unfortunately you can't have it done during chemotherapy. A lovely lady squeezed me in to her busy schedule when I told her about the time pressure, she had also been treated for breast cancer recently so completely understood.....and she also gives a discount to her clients with cancer.
Let me know how you get on with LGFB, I'm sure you will enjoy it and they will show you how to do your eyebrows :-)
Take care, Cat x
14-09-2018 09:33 PM
14-09-2018 09:14 AM
Great that you have had your final EC and good luck with the SEs - I hope they are kind to you. Thanks for the info on Polybalm, I think I may give it a go too.
I went to a Look Good Feel Better session on Wednesday. The nearest one to me was about 45 mins away but well worth the travel. They go through a step by step process of removing and applying makeup, including eyebrows which I think make a huge difference to framing the face (I cheated and had microblading before I started chemo!). Plus you get a great goody bag of skincare and make up products - what's not to love!
Take care everyone!
13-09-2018 11:04 PM
had my final FEC today - glad it's over! Now for the joys of S E's 😫..........
I asked the nurses about the black nail varnish use with ppolybalm, since the hospital I go to took part in the trial. They said that as long as you start using polybalm straight away on starting T part of chemo, it should work well, applied 3 times a day, without using black varnish. One reason for this is that the varnish removers, which would presumably dry the nail out, would spoil the benefits of buying the polybalm, as over the 9 or 12 weeks on T, you would be bound to need to remove it from time to time?
However, I am also aware of so many people saying about black nail varnish being brilliant..... without a mention of polybalm, possibly because the study and sale of it are quite recent.
I have included a link that I looked at. Hope it helps.... after reading a great deal about the polybalm trial, I am going to give it a go. Even though it is £39 for two tubes (one for feet and one for hands to avoid cross infection), and should last the whole course, I figured that the nail varnish and remover over that period would possibly cost similar for 20 nails for 9 or 12 weeks.....
I am going to post the info about this onto other recent monthly threads, to see whether anyone else has tried either method, especially polybalm, and I will report back. 😊
here's the link.
13-09-2018 11:00 PM
13-09-2018 10:08 AM
Hi Lovely Ladies,
Georgie – so so pleased to hear about your new oncologist – what a difference! Thanks for the advice about polybalm, will be interested to hear about wearing dark nail varnish whilst using it. I shaved my hair very short, it is still patchy but I am sure more will fall out. I have kept some of my eyelashes and eyebrows so wondering when I will lose them…
Jude – I haven’t been asked to go for another heart test ahead of Herceptin/T but I did have a test prior to staring FEC. Seeing my Oncologist on Monday so will add it to my list of questions! Glad your nausea is improving, I hope my 3rd FEC cycle isn’t as bad as the first 2 either!
LaLa – hope you’re starting to feel better very soon.
Multitasker & Jo – sorry to hear you have been feeling low, I hope you start to perk up soon....I think it’s normal to have ups and downs so I think lets go with it and not beat ourselves up! :-)
Take care lovely ladies,
13-09-2018 07:10 AM
12-09-2018 07:36 PM
I just wanted to correct myself when I said about black nail varnish........ I am going to check with the chemo nurses tomorrow that nail varnish can be used alongside Polybalm treatment.
G G xx
12-09-2018 07:01 PM
I have just looked up Polybalm. It is quite expensive at £39.50 for a pack of 2 tubes, but that is deliberate, as they recommend one for your hands and the other for your feet to avoid cross infection.
I am am going to buy some, as I don't think I would be able to cope with nails going funny as well as so much of the rest of me! The black nail varnish is also recommended by my oncologist too.
12-09-2018 06:45 PM
Thanks ladies for advice....
Judy, sorry you're still having the nausea. It's so horrid isn't it 😩.
Thanks for the info on the heart scan. I think I'm having one too now.
I saw my NEW oncologist today, and have to say it was like seeing an actual oncologist for the very first time!!
She listened, asked me about S E's, showed me what nails can get like on T by googling it with me!! And changed some of my drugs for last FEC tomorrow, plus so much more!
Asked me about when the bone protection IV had started, and was shocked that I hadn't had any yet!
Asked about 'when' I was having my ECG for starting T, and again was really surprised I hadn't had one, and filled in a request form for one straight away.
I hadn't signed consent for T or herceptin either, or had info sheets, so again she was very surprised, and we did it all today.
So very very pleased with this oncologist. She also said that there had been a trial on a nail cream called polybalm, and recommended it for T. Said it is available online.
I feel I may have turned a corner now, and that I have expert help from an oncologist who wants to be one!!
So tomorrow's chemo looms, but I feel more secure now.
Lots of hugs everyone
12-09-2018 01:47 PM
11-09-2018 10:56 PM
11-09-2018 04:10 PM
8 day's since cycle 2 feeling pretty much yuk. Bad night with heartburn and now my mouth is sore but no ulcers also a slight sore throat.
love to you all keep your chin's up, tomorrow WILL be a better day