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April 2019 Chemo Starters ๐Ÿ’–

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Re: April 2019 Chemo Starters ๐Ÿ’–

Hi Christine18

sorry for late reply. Hope your first chemo went ok & hope you didnโ€™t suffer any nausea/sickness? Itโ€™s. Itโ€™s nice to know someone else is on the same regime as me. Looking back the first week hit me harder than just the single dose of Paclitaxel, so if you do feel really tired you wonโ€™t feel as tired in weeks 2 & 3. I had long brown hair down to my bra strap but got it cut to a bob just before my chemo started. Iโ€™m 11 days in & still have all my hair, havenโ€™t used a cold cap but donโ€™t wash my hair as much, hairdryer on really low & no straighteners. Iโ€™m collecting my wig on Saturday & Iโ€™ve also ordered a couple of headscarves/hats from hipheadwear.  Iโ€™m 46, you are so young but we will fight this horrible thing & we will get through it. Our journeys are just beginning but the support/advice on here is great. You will have good days & I hope these all fall on the days of your weddings you need to attend, you will look gorgeous Iโ€™m sure. I donโ€™t know if you are but Iโ€™m writing a daily journal of how Iโ€™m feeling each day, that way I can look back on previous weeks if Iโ€™m having a rough day. Good Luck Christine18 ๐Ÿ˜Š

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hiya Debi

I had never self injected before and to be honest, didnโ€™t think I could as I hate needles, but they are so thin, it went it really easily and with no pain. I just pinch some tummy fat and jab it in quick. I sat there the first time just hovering over my skin, but my sister was there encouraging me. I counted down from 5 and did it. I was so proud of myself !

I was meant to have a PICC line put in, but bottled out last minute. The thought of it was probably worse than what it will be. I am now considering going to get it done before my next chemo. At least it will only be once as opposed to each time I go.

good luck with your treatment.

Ive felt great the last 2 days, pretty much normal, but just easily tired if I do too much. Im listening to my body and resting when I need to x

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

ALSO! Cold capping ladies- I also thought I would mention that I am 10 days post chemo, and I have had minimal hair loss after cold capping. I have washed my hair maybe 3 times since chemo day, with baby shampoo, Luke warm water and Aussie Stop The Break leave in conditioner, and as I say... minimal hair loss. I hope this continues! X

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

The steroids were bloody awful for me!!

Was glad to see the back of them for the first cycle.

Yes, this was my first chemo round, and Iโ€™m on day 10, and I really do feel great.

The District nurses wonโ€™t think you are wasting their time though. Thatโ€™s their job. They are here to help people in need- and unfortunately at the minute, thatโ€™s all of us on here! (But it wonโ€™t be forever) x

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi Hannahlizzy21

 

Unfortunatley my OH doesn't do needles and neither does my son!, they are both quite squeamish.  Lovely to here you are feeling ok on day 10, is this after your first chemo session?  I hope you have a great time in Wales. Just had some porridge and my steriod tablet and now to jump in the shower.  Everything seems to be slow motion today.  

 

 

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Self injecting isnโ€™t that bad once you get past the first needle.

Either that, or do you have a family member who could maybe do it for you? My OH was going to do it for me, but in the end I was just like โ€˜bamโ€™ Iโ€™m gonna be brave and do it ๐Ÿ˜‚- to his shock! 

Iโ€™m on day 10 now, and I feel really good after chemo. Iโ€™m going to see my sister in Wales for Easter weekend, before it all starts all over again on bank holiday Monday. 

Oh well, when itโ€™s in our system, although it makes us feel lousy, as least we know the little buggers are being killed! X

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi Kelly73 and Sue

My treatment is also the same as yours, i am now on day 3.  Straight after chemo i felt fine but then later in day felt very sick and lethargic. Day 2 only a little nausea and tiredness so just sat in garden for some fresh air, today i feel ok but just not my whole self!  I think the steriods are making me a little light aheaded too, hopefully this will go once i have finished them. 

Do you take your temperature every day? 

Kelly had you ever self injected before? I don't know wheter i can do it, i have been changed on to injections from tablets for my blood thinners - from previous DVT - and i have to have the district nurse out to do it for me. I would much rather do it myself so i don't take up their time but can't get over the barrier of sticking it in๐Ÿ˜ณ

Sue, try not to worry - i know its easier said then done, i even had a cry when i was ther before they started! The nurses are lovely and are always there.  My sideffects are like a bad hangover without the headache just the sicky feeling and tiredness.  Just come on here to talk, all the ladies are going through the same thing and they are so lovely.

We will get through this. 

Take care ladies

Debi๐Ÿ’–

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Ps... the steroids made me feel completely spaced out, but was only on them for 3 days x

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hiya Sue

sorry to hear you are on this journey too, but we are all here to help each other 

Actually having the chemo was no problem at all. I was sick later that day, then spent the next few days just feeling nauseas on and off. My energy levels were very low too, as was my mood and I spent most of my time either in bed or on the sofa. Think I was just getting frustrated with not being able to do anything. Iโ€™m on day 8 now and had a great day today, out and about pretty much all day. I had 1 spell of dizziness, but it went after I ate. I managed to get out also, the last 2 days, just for a bit of fresh air, but was then wiped out. Iโ€™ve also had to self inject since day 3, which is boosting my white blood cells. I really didnโ€™t fancy this at all, but itโ€™s been fine. Just hoping the next 2 weeks are good, before I do it all again.

Hope all goes well for you

Kelly x

Member

Re: April 2019 Chemo Starters ๐Ÿ’–



@Kelly73 wrote:

Hiya All

I start my chemo on 3/4. Having 3 sessions of EC then 3 sessions of Docataxel, followed by 3 weeks of Radiotherapy.

goid luck to everyone having treatment x

 


@Kelly73 wrote:

Hiya All

I start my chemo on 3/4. Having 3 sessions of EC then 3 sessions of Docataxel, followed by 3 weeks of Radiotherapy.

goid luck to everyone having treatment x

 



Hi kelly73

I start my chemo on 16th april and im having the same as u - EC for 3 sessions then docataxel then radiotherapy.  Can i ask how are u coping so far? What side effects have u had?

Sue xx

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi kelly73

I start my chemo on 16th april and im having the same as u - EC for 3 sessions then docataxel then radiotherapy.  Can i ask how are u coping so far? What side effects have u had?

Sue xx

ktk
Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi Sharon, you will start to feel better in a day or two. If you are on a three weekly cycle you will be able to make plans as normal for the latter half. Donโ€™t suffer the nausea, especially if you are being sick. Give your helpline a ring and get them to tweet your meds. Kx

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi Llangal,

 

How are you coping with your particular concoction? I'm only on day 3 but feeling lousy today... :-( Please tell me the nausea dissipates!!?

Sharon

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Debi2 and Nik nak I was exactly the same befotr mu chemo started a nervous wreck and so worried about the process i also didnteven want to start it. However Im on day 9 now and feel so much better now some of its out the way and you can start to see how you will cope with it. I just hope it works! 

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi,

I had my first chemo today, wasnโ€™t too bad at all once it all started. Had a 4 hour wait to begin with and still donโ€™t know why. Was in from 8am till 5pm then a drive back to my parents house so only got in at 7.30. Other than being tired, so far so good! 

The chlorophenamine made me feel so tired straight away, felt like I was going to fall to sleep instantly. She got a bit worried but it passed. 

Cold capping - first 10 mins was painful but bareable. Then it was absolutely fine! I played cards with my sister and mum so that passed he time and distracted me from my cold head! Hopefully itโ€™ll work but if not, itโ€™s not the end of the world. 

Good luck to those waiting for their chemo. All the nurses were lovely. I went in so prepared for everything - ginger tablets, travel sickness bands, blanket etc. And hardly used them. 

Christine xx

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi Everyone   I'm so pleased i found this forum,this is my first post. although i've been reading for a while,   Pre-chemo clinic was today then start first cycle on Thursday.  HER2+  and one node involved, plus  CT showed up a nodule on my lung.  Was to be EC -T for four cyples but now getting targeted therapies first. Docetaxel (taxotere). Herceptin and pertuzumab.  lung nodule may or may not be spread from breast, if chemo shrinks it then its a met, if stays same its benign -   anyone else dealing with this situation?   Would very much like to share how it goes

Wishing everyone luck.  when i learn how to I'll send hearts adn hugs     xxx     

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi

Back from my first chemo session.  It was fine, stings a little going in but a nurse was there all the time to reassure.  Cold cap was better than what i thought too.  First 5 mins it feels the coldest then head must get used to it because i didn't really notice it - i did ask the nurse if it had turned off at one point.  Try not to worry if you still have your first session to do, nurses are great and its not as bad as you are thinking its going to be.

My son made me a little bed up on sofa in case i didn't feel well but i am just going to peg out a load of washing then get our dinner and then i may have a little lie down - well, it would be rude not to wouldn't it!

Good luck everyone for upcoming chemo sessions๐Ÿ’–๐Ÿ’–

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Good luck to everyone having their chemo today and tomorrow ๐Ÿ’•

Christine, I too have a phobia of vomiting! But the anti sickness tablets they give you are a god send. 

I had my chemo a week ago today, and I think I had delayed nausea/ vomiting on Sunday night. However, I took the anti sickness tablets they gave me, and they worked wonders x

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Morning, 

 

Good luck for today, I hope everything goes as well as it can do. Just keep those weddings in mind and Iโ€™m sure that will help. Good luck with the cold cap too, my first chemo is tomorrow and Iโ€™m going to try the cold cap but I think Iโ€™m more nervous of that than the chemo. 

 

Take care, Mandy xx

 

 

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Good Morning Debi,

 

Good luck for today, I can understand your nerves, my first chemo is tomorrow and Iโ€™m already feeling it. Good luck with the cold cap too. A few more hours and this first one will be under your belt, Iโ€™m sure that will be such a good feeling as it will be one nearer to the end of treatment. 

 

Take care, Mandy xx

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Good morning everyone.

My first chemo is today, very nervous to say the least!  I will let you know how the cold cap goes and whether i stick it out.  I chose my wig yesterday just in case.  

Christine 18 best of luck  for today, i will be thinking of you. 

Catch up with you all later๐Ÿ’–

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi NikNak5 (and everyone else)

I start Chemo tomorrow, very nervous! Feel like I've been waiting for this day for ages and couldn't wait to get started but now reality has set in and I'm a little scared. 

I'm on the same regime as you NikNak5: 12 weeks of paclitaxel combined with carboplatin every third week. Then I'll be having FEC for 3 cycles. 

I have a fear of vomiting so this is what I'm most scared of but hopefully the concoction of anti-emetics will sort me out.  I'm going to be trying cold capping and hoping it will work, I had long blonde hair but I recently got it cut short so the tangles will be a bit more manageable. If it doesn't work then I have a wig on standby. I'm only 28 and have three weddings to go to in the next three month, one is on my birthday and one I'm a bridesmaid for so I'm very anxious that I either will be too unwell to go or look a bit of a state. 

Good luck to you all, 

Christine ๐Ÿ’•

Member

Re: Morning all! I am starting chemo next Monday. My picc lin...

Hi Sharon,

 

thank you. I hope today went well for you and youโ€™re feeling ok. Iโ€™m not surprised you donโ€™t do cold growing up in Africa, I have difficulty with it and Iโ€™ve lived in the North all my life. I wouldnโ€™t be surprised if I wimp out of the cold cap too although Iโ€™m going to try my best not to. I picked my wig up today, it felt strange but Iโ€™m sure Iโ€™ll get used to it. 

 

We have got this, I hope you feel ok.

 

Mandy xx

 

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Evening โค๏ธ Iโ€™ve been trying to remind myself that every day is one more closer to the end of treatment. Today has been tough though, I kept on remembering how different my life was just a few weeks ago, pre-diagnosis. I get a massive headache with these injections and that hasnโ€™t helped my melancholy mood. But enough of my pity party! Iโ€™ve spent the afternoon trying to teach the little one how to ride her bike, Iโ€™ve given myself a mini facial and picked myself up. Weird question, does anyone know if we can eat sauerkraut?? I mean technically itโ€™s got live cultures in it ๐Ÿค”๐Ÿค”๐Ÿค”๐Ÿค”

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi Debi,

 

Thanks, fingers crossed you keep your hair,I hope the cold cap works for you. Xx

Member

Re: Morning all! I am starting chemo next Monday. My picc lin...

Hi Mandyr44,

 

Good luck for Wednesday. I had my first treatment today. Different concoction of course but still... I had originally planned to coldcap but I wimped out at the last minute. I don't do cold of any sort (grew up in Africa and lived there again for the last 12 years). I have thin hair and I believe some falls out so I would need a cap or wig anyway. I'm not precious and have no upcoming functions! Let us know how it goes?

Good luck to everyone this week. We got this!

sharon 

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

I had the perjeta on the Monday, and then the herceptin on the Tuesday, as I had to be monitored for 6 hours after having herceptin for the first time.

Iโ€™m sure you will be having them with your chemo, as without the chemo, Iโ€™ve been told they donโ€™t work (or as well) x

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi 

Good morning everyone!

 

Mandyr44 all the best for this week, i will let you know how i get on with the cold cap. Hopefully i will keep my hair, i have a wedding to go to on 27th April.

Hannahlizzy did you start with Herceptin and perjeta at the first chemo session?  I am going to speak to my chemo nurse because she didn't mentioned it to me even though my consultant said i would be having that and perjeta.

๐Ÿ’–

Member

Re: Morning all! I am starting chemo next Monday. My picc lin...

Hi Debi,

I am starting chemo on Wednesday, I have a pre chemo session on Tuesday so hopefully I will find out more then. I have no idea what to expect but I am worried about it. I was diagnosed with Triple Negative breast cancer six weeks ago after finding a lump. Everything has happened so fast since then, there have been so many CT and MRI scans as they found other things in various places but luckily nothing else confirmed, they will just rescan me after chemo. 

 

I am also going to try the cold cap, I wasnโ€™t going to as I read a lot of negative things about it but I know if I donโ€™t give it a try I will regret it. Good luck with yours, 

Shi Community Champion
Community Champion

Re: April 2019 Chemo Starters ๐Ÿ’–

Hannahlizzy, everyoneโ€™s chemo is tailored specifically for each individual, itโ€™s not a one size fits all and dosage will also be tailored specifically for each individual ๐Ÿ‘๐Ÿ‘your teams are experts and will take good care of you, you just keep safe and ring that rapid response like Batmanโ€™s bat phone, your teams would rather you ring and discuss any concerns so they can do all they can for you. Donโ€™t ever thing oh, iโ€™ll Leave that a bit, always please ring to keep safe. Get a meet up planned for when you are all through โค๏ธโค๏ธWe had a weekend in London meet up and hired a room at the arch and had afternoon tea, it was first class and wonderful (the ritz didnโ€™t want to accommodate us) so donโ€™t bother trying with them. ๐Ÿ’•๐Ÿ’•โœจโœจShi xx

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hello ladies!

I hope everyone is coping well with their chemo. 

Quick update from me- I had my herceptin, perjeta, docetaxel and Carboplatin over Monday and Tuesday. It hit me hard like a ton of bricks!!

Today I feel the most normal than I have done for days. I had to ring my hospital hotline as I had a rash all over/ flu symptoms and nausea. They said to monitor it.

My temp was high yesterday, but not really a big cause for concern.

I hope thatโ€™s it for feeling crappy now, and the next 2 weeks before my next cycle are fine ๐Ÿคž๐Ÿป.

I have also come out in lots of spots from the steroids, which is rubbish! But I think it must be working as my body is feeling the effects?

Does anyone know how the onc team decide which chemo to give you? 

Thanks so much,

Hannah x

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi ladies,

 

I'm on 6 cycles of FEC-T and had my first on Friday.

 

I can honestly say that apart from being a little more tired I have been ok so far. 

I used the cold cap, which wasn't as cold as I imagined it would be.

 

The community nurses are coming in to do my injections, so if you don't get on with doing it yourself ask for a referral.

 

I'm sure every cycle will be different but I'm just taking it one at a time. Much as i want to be at work, as this is normsl life, I'm not allowed to work as I'm in healthcare and the infection risk is too high, so the benefit is I get to have the Easter holidays with my family instead.

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi Jo. My second chemo is tomorrow. Itโ€™s been a funny week. Tuesday I was ok, Wednesday totally wiped out in bed, Thursday 4 hours at work, Friday pjs & sofa, yesterday I managed to go grocery shopping then had to come home & lay down. Iโ€™ve not been sick but the steroids have made be spaced out, blurry vision & feeling faint so no looking forward to those again this coming week. I never knew Iโ€™d have to self inject for 5 days after chemo! I hate needles. Picc line was the best thing I ever did. My Chemo is over 12 weeks - week 1 Paclitaxel & carboolatin, week 2 & 3 just Paclitaxel then the double again for 4 cycles then 4 lots of FEC three weekly. Iโ€™m hoping next week Iโ€™ll feel slightly better. The frustration of not having the energy is really the thing that gets me the most. Sorry for long post but I wish each and every one of you all the best & stay strong, have wobbles like me & we will do this. Let me know how you get on as itโ€™s good to hear others experienced โค๏ธ

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi jo,

i had similar experience with first chemo and ended up in a&e twice. This time Iโ€™ve been much better. Still some nausea but better. I donโ€™t seem to be as strong as some ladies here as 4 days after chemo Iโ€™m still spending a lot of time just lying in bed with the dogs even though some people are back at work! Last time I started to feel loads better after the injections stopped so hopefully same this time. I try to remember that every chemo is one closer to the end โค๏ธโค๏ธ

Shi Community Champion
Community Champion

Re: Morning all! I am starting chemo next Monday. My picc lin...

Sending everyone ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช๐Ÿ‘ญ๐Ÿ‘ญ๐Ÿ‘ญdrink plenty of fluids, get thermometers and watch your temperatures, any thrush mouth se from chemo get fluconzole from your team and difflam mouth wash, any burning pee but no temp phone rapid response itโ€™ll be a uti (donโ€™t treat yourself with cranberry) chemo is doable (a right juggling act) but doable, youโ€™ll be juggling senokot, baby bum wipes, anosol ๐Ÿคช๐Ÿคชhang on ladies itโ€™s a crazeeee ride ๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป๐Ÿ•บ๐Ÿ•บ๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐ŸปGet yourselves signed up for your Macmillan look good feel better courses, get your wig vouchers from your trusts and have a look in your Macmillan centres they have pre loved wigs, also luvyababes have an amazing selection now (I was happier in a 14.99 one of theirs than the very expensive real hair one my hubby got me). I am from the crazy gang oct17 chemo starters and ๐Ÿ‘ญ๐Ÿ‘ญ๐Ÿ‘ญtogether on our chemo train we ๐Ÿ˜‚๐Ÿคฃ๐Ÿ˜‚๐Ÿคฃ๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป๐Ÿ•บ๐Ÿ•บ๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป๐Ÿ’ƒ๐Ÿป๐Ÿ˜ณ๐Ÿ˜ณ๐Ÿ˜ณ๐Ÿ˜ณ๐Ÿคช๐Ÿคช๐Ÿคช๐Ÿ˜ขour way down the chemo line and hung our bums out the window in celebration when we all got into the station at the end of chemo and rang the heck out of the bells in our units. Keep focused, have wobbles and ๐Ÿ˜ข๐Ÿ˜ขif you need to. โค๏ธโค๏ธYou are all beautiful and amazing always remember that ๐Ÿ’•๐Ÿ’•โœจโœจShi xx

Member

Re: Morning all! I am starting chemo next Monday. My picc lin...

Hiya Debi2

I had my first EC on Wednesday. It was actually ok. The worry of it was much worse. I was sick the same day, then nauseas the following 2 days and also weak. I was given steroids, which I knew nothing about beforehand. Think they have spaced me out, but took last ones today ๐Ÿ‘ Was also given injections to take home, that I have to do myself into my tummy. Not tried it yes, as my sister has been able to do it for me. Thatโ€™s to boost my white blood cells....didnโ€™t know about this either ! If Im unable to do it in the future, a district nurse can do it for me. 

I managed to go on a little walk today, taking in a bit of fresh air. Felt like a right achievement. Hopefully tomorrow will be even better

good luck with your treatment x

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi everyone,

 Iโ€™m jo 47. I actually started chemo at the end of March but as there are HER2 positive ladies on here I thought our schedules might be similar. Actually Iโ€™m surprised how different everyoneโ€™s treatment is. I have a grade 3 invasive ductal cancer, 20 mm diameter with extensive DCIS. The tumour is ER neg, HER2 pos. Iโ€™m have EC x 4 , herceptin, pertuz and docetaxil x 4 then mastectomy. I had my second cycle 2 days ago. In both cycles Iโ€™ve struggled with nausea and constipation. Tbh I had no real idea what to expect with chemo. Iโ€™ve felt ill for the first 10 days or so then picked up. I donโ€™t know if thatโ€™s the norm. I finally managed to find the words to tell my 7 year old yesterday that mummy has cancer and itโ€™s a real weight off. I hope all you other ladies are bearing up. Xxxx

Member

Re: Morning all! I am starting chemo next Monday. My picc lin...

Hi all

Anyone starting chemo this week?  I had my pretreatment visit on Friday and i think it as made me more nervous.  They told me all the worst things that can happen!  I am having 3 cycles of EC then 3 of Doxetexal.  Steriods haven't been mentioned so i am not sure whether i am having them.  I am going to try the cold cap but have already picked out a wig just in case i can't stand it.  Is anyone else using or are using the cold cap?

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hiya Anneebel

 

Im seriously thinking about asking to have the picc line put in, before my 2nc chemo. Will have a good think about it. I guess just having that done once is much better than numerous blood tests and cannula

 

thankyou x

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

I did feel a little bit out of it on the steroids too, bit spacey x

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi I had my first round of TC on 2nd April. Had a mastectomy in 18th Feb. Was treated for invasive ductal late 2017, but found a lumpy lymph node xmas 2018 which had turned out to be lobular. In all 19 lymph nodes removed and had spread to collar bone (not removed). Im really hoping the chemo  works and itโ€™s confusing all the different options and who is on what combinations. So far I feel ok, a little bit icky but the anti sickness seem to help. Injected myself yesterday (did  t know about taking it out the fridge!) went to theatre last night even though was a bit nervous about that. Trying not to get paranoid about germs! Had very ling hair, now a short bib and dinated the lengths. Im a single mum of two teenagers, 51, no family close but good friends and neighbours. 

Member

Re: Morning all! I am starting chemo next Monday. My picc lin...

Hi all

How is everyone? Anyone start chemo next week?

Its my pretreatment visit today and i start chemo on Tuesday next week.  I am quite nervous to start treatment but hopefully today will calm me down a bit.  I think it is the unknown and wondering what side effects i will get.  In my head i have got a vision of me in bed reallly poorly and not been able to do anything - i hope this won't be the case.

Member

Re: Morning all! I am starting chemo next Monday. My picc lin...

Hello,  I'm starting chemo next week and I had my picc line put in this morning. I was nervous about it but it was fine. I asked them not to give me any more details than necessary and didn't look! It did not hurt and now only feels a little bit bruised. The staff were just brilliant, really kind and understanding. I'm so glad to be getting started, feels like its been a long wait. Good luck with your treatment. Mo x 

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi Sharon 

good luck for next Monday, I will be thinking of you.  I will be having my second dose of chemo then. Iโ€™ll be having FEC for my last 4 doses, Iโ€™ve heard its quite harsh but we can handle it. Iโ€™ve been to work again today just for 4 hours but itโ€™s totally wiped me out so now resting. Let me know how you get on next week, will be thinking of you x

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi 19Joanne86

Glad to here you are doing ok after your first lot of chemo & a trip to a&e re your sickness. 

i had my first chemo Monday, all went well, no sickness, went to work for 7 hours on Tuesday, overdone it & spent the day relaxing yesterday. Had to ring hospital as my temp was 35.5, but they didnโ€™t seem bothered by this. Been to work for 4 hours today & had to come home to bed. Iโ€™m having real issues with the steroids, thank god itโ€™s the last day today, they make me feel wired, blurry vision, dizzy, generally Ill for about an hour  - anyone else feel the same on Dexamethosone? 

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

First chemo cycle was on Tuesday 2nd, chemo itself was fine and felt OK immediately after I was very sick that night from about 7pm onwards ended up in A&E for more anti sickness and anti biotics as they felt something was starting on me with a high temp.

Day 2 I was great but just spent the day relaxing took dogs out for some fresh air. I'm on day 3 today and managed to get out for a couple of hours shopping. Feeling a little more tired today for sure but keeping on top of my anti sickness which is helping xxx

I hope all you lovely ladies are doing as well as can be expected. We can all do this! Xxx

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Re: April 2019 Chemo Starters ๐Ÿ’–

Hi Kelly73

I'm from October 18 starters... 

I had a Picc line put in prior to starting chemo! You can't feel it going in as you have a local anaesthetic and you then have an x-ray to check it's in the right place and that's that...If you don't like needles then I would certainly go for a Picc line if you have the option! You do have to have the line flushed and the dressing changed once a week but it's far easier than needles and canulla for bloods and chemo...plus if you ever needs antibiotics you can have them in your Picc line too! ๐Ÿ’ช๐Ÿผ๐ŸŽ€๐ŸŒธ

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

Hi Kelly73

I'm from the Feb group and had a PICC line put in before chemo. When I first read about them in amongst all the literature I stopped reading  thinking I'm doing that thank you. In the end I didn't have any choice as that was my onc's preferred choice. I can honestly say now the pros outway the cons. Yes, it's going to be on show, especially with the warmer weather coming, but you can get some pretty covers to wear over the line. The other thing is you'll need a waterproof cover for showering which the hospital should prescribe for you. Oh and you shouldn't stretch your arm up too high, and you'll need weekly PICC line care. On the plus side bloods can be taken and chemo given completely pain free. No more injections required๐Ÿ’‰โ˜บ. Hope this helps. If you want any more help or reassurance just pop into our group and ask.

 

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Re: April 2019 Chemo Starters ๐Ÿ’–

Hi NikNak,

 

I'm so glad to hear you are also trying to work through! I'm due for my first dose next Monday, although I will be on the FEC I believe. They have lost so many forms of mine that I will 'believe it when I see it' kinda thing!

Be strong! Hopoing you are feeling better tomorrow.

xxx

sharon 

Member

Re: April 2019 Chemo Starters ๐Ÿ’–

I had my first chemo on Monday - Paclitaxel & carboplatin. Yesterday I felt fine and managed to go to work, come home cook the tea etc, today I woke up really spaced out on the steroids, low temperature, dizzy. Iโ€™ve spent the whole day in bed as really donโ€™t have much energy although I am eating small portions & drinking lots of fluids. Anyone else felt like this?