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April 2019 Chemo Starters πŸ’–

Member

Re: April 2019 Chemo Starters πŸ’–


@Mominette wrote:

Hello

I am due to start chemo on 25th April although I have swollen glands/cough at the moment. I have grade II invasive DC. I had surgery on 1st March but didn't get clear margins so had re-excision on 19th March. No clear margin again so a 3rd surgery on 8th April. I am getting the results of the 3rd surgery this morning. I am nervous. I had the oncotype test which came back with a recurrence score of 29, hence recommendation for chemo. I am dreading chemo and asking myself should I have it?? I would appreciate any feedback about this, people in a similar situation  or who have had chemo. I am due to have FEC

 


Hi I was in a similar quandary as chemo only alters my odds by 6 per cent however my biggest fear is recurrences and chemo is belt and braces . I was also stage 2 . Nearly had last FEC then Taxol am cold capping still have most of my hair it is nowhere as bad as I thought and could save your life . My advice would be. Grit your teeth and go for it

Member

Re: April 2019 Chemo Starters πŸ’–

Hello

I am due to start chemo on 25th April although I have swollen glands/cough at the moment. I have grade II invasive DC. I had surgery on 1st March but didn't get clear margins so had re-excision on 19th March. No clear margin again so a 3rd surgery on 8th April. I am getting the results of the 3rd surgery this morning. I am nervous. I had the oncotype test which came back with a recurrence score of 29, hence recommendation for chemo. I am dreading chemo and asking myself should I have it?? I would appreciate any feedback about this, people in a similar situation  or who have had chemo. I am due to have FEC

 

Member

Re: April 2019 Chemo Starters πŸ’–

I'm at the same stage as you and I'm going to shave mine as struggle with going for a shower and it coming out in my hands. I believe it would all be out roughly week 2of cycle 2 but depends on individuals hair xx

Member

Re: April 2019 Chemo Starters πŸ’–

Hiya Runningsue42

 

I also had EC and was sick the same day....not much though. I did however feel nauseas and rough for a few days, even though I was taking my antisickness tablets religiously...plus the top up ones. I do suffer with menieres though, so the treatment may have just made my dizzy/nauseas symptoms worse. Once that passed, I have waves of weakness/tiredness/dizziness for a few days, but have also felt really good for about a week.

Im on day 15 and my hair loss has started today πŸ˜”. Thought I’d prepared myself for it, but have to admit, it has upset me.

Hopefully I’ll feel good for the rest of the week, before my next treatment on Tuesday

x

Member

Re: April 2019 Chemo Starters πŸ’–

Hiya All

Im after some advice please.

Im on day 15 after EC and my hair has started falling out. Does anyone know how long it takes for it all to go?

I already have fine hair and wondering whether it is worth going to get it cut short, so the loss is less noticeable, or will it all be gone in a few days?

thank you x

Member

Re: April 2019 Chemo Starters πŸ’–

Hello

I am due to start chemo on 25th April although I have swollen glands/cough at the moment. I have grade II invasive DC. I had surgery on 1st March but didn't get clear margins so had 3rd excision on 19th March. No clear margin again so a 3rd surgery on 8th April. I am getting the results of the 3rd surgery this morning. I am nervous. I had the oncotype test which came back with a recurrence score of 29, hence recommendation for chemo. I am dreading chemo and asking myself should I have it?? I would appreciate any feedback about this, people in a similar situation  or who have had chemo. I am due to have FEC

 

Member

Re: April 2019 Chemo Starters πŸ’–

Hello

I am due to start chemo on 25th April although I have swollen gkan2ds/cough at the moment. I have grade II invasive DC. I had surgery on 1st March but didn't get clear margins so had 3rd excision on 19th March. No clear margin again so a 3rd surgery on 8th April. I am getting the results of the 3rd surgery this morning. I am nervous. I had the oncotype test which came back with a recurrence score of 29, hence recommendation for chemo. I am dreading chemo and asking myself should I have It?? I would appreciate any feedback about this, people in a similar situation  or who have had chemo. I am due to ha e DEC

 

Member

Re: April 2019 Chemo Starters πŸ’–

Morning,

 

sorry to hear you're not not feeling great. I had my first EC a week ago today. Although it wasn’t as bad as I was expecting I also felt very nauseous all night, I didn’t sleep at all that first night although I wasn’t actually sick. I found that ginger tea helped, I can’t say I liked it (although I have got used to it now) I just sipped that and took the anti-sickness pills.

Hopefully it will get better for you in the next few days,

Take care,

Mandy xx

Member

Re: April 2019 Chemo Starters πŸ’–

Hi ladies

I had my first chemo session yesterday of EC and i feel rotten 😒😒 i had nausea all night and i was sick this morning.  I thought it would be a few days before the side effects started.  My temperature was normal.  I rang the centre and they told me to take the anti sickness tablets for the nausea but can anyone recommend anything for the nausea?? Xx

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Cora, 

i had an introductory visit, a nurse talked me through each of the drugs I was having and what the side effects of each were and what I should do if I experienced any. She also went through diet with me, telling me which foods to avoid. Finally she told me about the different support groups in the area. I haven’t got a pic line so can’t advise on that. I know what you mean about holidays, I had two booked for this year and have had to cancel both of them cos of treatment. I’m gutted but trying to look at it as a temporary blip. 

Good luck with your treatment. 

 

Mandy xx

Member

Re: April 2019 Chemo Starters πŸ’–


@Cora wrote:

Hiya I have HER-2 positive ductal grade 2 ... only just getting up to speed with all the jargon so not sure that answers your question. Oncologist says the weekly dose means they can give less strong content so you don’t have the highs and lows of more spread out treatment... will see on that... Berlin is a wonderful city... 


I have one more FEC then nine weekly Paclitaxel not looking forward to that but at least no injections after . July 5 last chemo currently living off digestives tinned soup and yogurt after steroid crash 

Member

Re: April 2019 Chemo Starters πŸ’–

Hiya I have HER-2 positive ductal grade 2 ... only just getting up to speed with all the jargon so not sure that answers your question. Oncologist says the weekly dose means they can give less strong content so you don’t have the highs and lows of more spread out treatment... will see on that... Berlin is a wonderful city... 

Shi Community Champion
Community Champion

Re: April 2019 Chemo Starters πŸ’–

Interesting times 😘😘how are you? Hope you rang your unit to check with them ❀️❀️ You units would always rather you ring about anything, they will be pleased you are keeping close eye on yourself, it helps them help you on the chemo journey πŸ’•πŸ’•βœ¨βœ¨Shi xx

Member

Re: April 2019 Chemo Starters πŸ’–

12 weekly doses wow?! 

I didn’t have an introductory visit to my unit, just thrown straight in πŸ˜‚ but then again, I also didn’t have a PICC line.

Can I ask what type of breast cancer you have?

And I also feel the same about the summer holiday thing! I’m going to still try and go on my mini break in May to Berlin, but I’m coming prepared with my surgical masks for the flights!

 

Member

Re: April 2019 Chemo Starters πŸ’–

Hello all

i have a introductory visit to chemo unit on Monday - Happy Easter! - wondering what to expect at this session? Will they fit the picc line then? And does anyone know if I’ll have to buy a cover for the picc line - if so any suggestions on where to find one? I have to have 12 weekly doses of taxol alongside Herceptin so it’s going to be a strange summer...don’t know how others feel but I’ve been pretty positive all the way so far but was floored when I went into a store this week and saw all the holiday stuff and it hit me that we won’t be going anywhere this year... self pitying I know and I’m ok now ... back to being positive πŸ˜€ x

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Debi2

 

You're definitely not a wuss! Its horrid! πŸŽ€πŸ’– Your body is being battered! (I was in hospital 5 times and the HOT clinic at least 3, maybe 4 times...😫)

There's so much info to take in...I actually said to my hubby that it was a couple of months before it started dawning on me exactly what the oncologist/doctors meant...I got to the point where I would ask them to repeat the info or you would spend days wondering what the heck they meant!

 

My first 6 Herceptins were done as infusions with chemo... the 3 injections I've had so far have been fine! No side effects! The chemo nurse comes to my house to do them...the drug is delivered to my house too! πŸ’–πŸ’ͺ🏼

 

Keep your chin up... πŸŽ€ x

 

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Aneeebel

 

Thanks for the info.  I am going to check what they said when i go for my marker fitted on Wed.  There is so much to take in all at once i have probably got mixed up.  How are the Herceptin injections? are there any sickness or side effects? i think i will be starting the herceptin with my 4th cycle which is when i start Doxetal (not sure spelling right).  Everyone on the forums are strong ladies, sometimes i feel i am being a bit of a wuss when i am tired all the time.πŸ’–

Member

Re: April 2019 Chemo Starters πŸ’–

Hi llangal 

Thank you for your lovely post 

It really made me laugh. (too much too soon bit) 

And a laugh is a great to have

Scatch on

 

Community Champion

Re: April 2019 Chemo Starters πŸ’–

I’m from the May 2017 starters and for anyone still looking for coping tips of any sort here’s my blog: http://lifeafterlola.com/

the Chemo thread on it has lots of suggestions which we all shared and we all got through it and have an annual meet-up now.  I hope you’ll do the same. Best wishes. 

Nikki. X

Member

Re: April 2019 Chemo Starters πŸ’–


@Kelly73 wrote:
Re: April 2019 Chemo Starters πŸ’–

Why no district nurse service ? I live on my own and no way could I have injected myself ... well done though ! 

 

Hiya

I was told a district nurse could come out, if I was unable to do it, but opted to give it a go myself. The thought of it was much worse than actually doing it x


You are braver than me then ! X 

Member

Re: April 2019 Chemo Starters πŸ’–

Hi interesting times

Just popped in from the Feb group. Have you taken any paracetamol for your headache. So long as you take your temp, and it's normal 1st, then you're ok to take some. You just need to take your temp as paracetamol can reduce it. Hope this helps. Good luck xx  

Member

Re: April 2019 Chemo Starters πŸ’–

Re: April 2019 Chemo Starters πŸ’–

Why no district nurse service ? I live on my own and no way could I have injected myself ... well done though ! 

 

Hiya

I was told a district nurse could come out, if I was unable to do it, but opted to give it a go myself. The thought of it was much worse than actually doing it x

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Debi2

 

I'm from the October 18 thread... hope you don't mind me commenting πŸŽ€

I'm on Herceptin injections - you have 18 in total on a 3 weekly cycle...if you had Herceptin included in your chemo regime then these are counted towards the 18! 

I had Herceptin with 6 cycles of chemo so only need 12 injections

I will be taking Letrozole tablets for 10 years as I'm post menopausal 

 

Hope your treatment is going well...

Good luck to all you Ladies x πŸ’•πŸŽ€πŸŒΈ

 

 

Member

Re: April 2019 Chemo Starters πŸ’–

Sharon , ring them. They are there to advise and reassure.  You won't sound like a pathetic wimp so don't ever think that!  If you are unsure about anything be it treatment or side effects its always best to phone in.  Don't sit at home and worry as that won't do you any good either. 

 

Member

Re: April 2019 Chemo Starters πŸ’–

hi Ladies,

 

I need some input. I have had a headache for two days now. Yesterday was quite strong. This morning it was mild but it's building again. I don't have a temp but don't feel great (day 7 of cycle1). Do I need to call the hotline?... Am kinda freaked out by the possibility of neutropenia but also don't want to sound like a pathetic wimp! 
Thanks for the input in advance!

Sharon

Member

Re: April 2019 Chemo Starters πŸ’–

I’ve had a sore throat since chemo/ herceptin and perjeta.

Has anyone else had this? It’s annoying and painful!!

Member

Re: April 2019 Chemo Starters πŸ’–


@Hannahlizzy21 wrote:

ALSO! Cold capping ladies- I also thought I would mention that I am 10 days post chemo, and I have had minimal hair loss after cold capping. I have washed my hair maybe 3 times since chemo day, with baby shampoo, Luke warm water and Aussie Stop The Break leave in conditioner, and as I say... minimal hair loss. I hope this continues! X


Day 23 and still hardly any hair loss switching from FEC to Paclitaxel soon so hopeful ... only washing hair once a week and water spraying cold in between using cold option on dryer .. 

Member

Re: April 2019 Chemo Starters πŸ’–

Why no district nurse service ? I live on my own and no way could I have injected myself ... well done though ! 

Member

Re: April 2019 Chemo Starters πŸ’–

I just had my second FEC and not been physically sick just the odd queasy feeling just took a tablet and sorted it . One more then on to Paclitaxel which I believe less toxic ? 

Member

Swelling around shoulders

Morning everyone,

 

I am on day four of my first chemo treatment, although it hasn’t been as bad as I was expecting I have suffered with nausea, lack of energy and severe constipation. Today I have noticed a swelling between my neck and shoulder, I haven’t heard anything about this before, has anyone else experienced something similar? I am self injecting to increase my white blood cells and was told my bones would ache as the bone marrow would be more active so I don’t know if it is something to do with that.

 

any advice would be appreciated.

 

Mandy xx

Member

Re: April 2019 Chemo Starters πŸ’–

I’m having chemo before my surgery and im seeing my surgeon on Wednesday. I’ve had 2 rounds of EC so far and with so many to go before my mastectomy I too am worried that the cancer could just be growing if the chemo isn’t working. I’m hoping I’ll get a scan or something on Wednesday to check it is shrinking. I’m finding chemo quite rough. I feel awful for 2 of the 3 weeks and having the Easter hols this past 2 weeks has been tough. Hopefully the herceptin, pertuz and docetax won’t be too bad. But at least we can all get through this one day at a time and soon enough we’ll be out the other side.  I’m trying to think of this a bit like a pregnancy. I feel awful but every day I’m closer to the end. I don’t get the joy of a baby at the end but I’ll be well and stronger for the rest of my life. 😍

Member

Re: April 2019 Chemo Starters πŸ’–

Thank you all for your kind replies. I'm feeling well but then I suppose it might all change on Thursday. The closer it gets the more anxious I am.

 

I have a 8.15am appointment so they shouldn't be running too late.

 

Hugs to you all xx

Member

Re: April 2019 Chemo Starters πŸ’–

I felt rubbish the first week tbh. I feel good now though thank god. I hope that this is how my next 5 cycles will go. Rubbish one week and then fine for 2.

Yeah just double check, as it should only be for 1 year. X

Member

Re: April 2019 Chemo Starters πŸ’–

Hi 

I will check about the Herceptin next time i go. The Breastcare nurse told me on the phone so i could have heard her wrong - I thought it was a long time! I think the same as you about it shrinking but i am sure they have us on the breast treatmet plan for us, but it is a worry.  What day are you on now, did you feel not yourself the first few days? 

Member

Re: April 2019 Chemo Starters πŸ’–

Herceptin injections for 10 years? It should only be for 12 months. You may need to double check that hun, as on NHS website it also says for 1 year. 

I’m having a bit of a strange one today- I keep thinking β€˜what if the chemo doesn’t shrink the tumour?’ (As I am yet to have my op, which will be after my chemo). I just hope that it does.

It’s such a scary time. It really is.

Member

Re: April 2019 Chemo Starters πŸ’–

Day 4 for me today, feeling ok although still a bit lightheaded.  Not ventured out far just into the garden, quite cold out there despite the sun. My HER2 results came back yesterday - unfortunately they are positive (which i did expect because they were borderline) this means i will start Herceptin and Perjeta along with Dox... on the 4th chemo cycle.  Then after surgery and radiotherapy - which i knew about - it will be Herceptin injections for 10 years.

 

Member

Re: April 2019 Chemo Starters πŸ’–

Lovely sunny morning here. Day 5 for me and feeling pretty good, back to walking the dog etc. No sign of hair loss but probably got that to come, I'm keeping everything trimmed!! I've had 3 surgeries and rads since 2014, my last one was for a recurrence in the nodes from 2014. I've been very lucky there is no sign of spread but this time its chemo, to hopefully have a good mop up of any lurking beasties. Keep plugging away everyone, crossing off the days now and we'll get there!  xx

Member

Re: April 2019 Chemo Starters πŸ’–

Am on day 11 of TC and the hair is definitely starting to go! Feels a little weird not sure at what point to just brave the shave as the moulting is gonna get out of hand I reckon. Ive been laughing wondering if the same thing happens with pubes and whether I should tidy them up similarly, or it might look like a tarantula had landed! (Too much? Too soon?) 

 

I had a crazy bonkers itchy head on about day 5-6, so that must have been the hair follicles protesting. My kids said I made them  feel itchy I was scratching so much!  looking forward however to no grooming requirements (e.g legs and armpits) - silver linings and all that.  

 

Otherwise similar effects to others. My vein had complained and come up quite sore, have been icing it and a bit of hydrocortisone. 

 

I have had on and off a sore mouth and throat, found the best thing is salty water with a bit of bicarb in it, better than all the mouthwashes they have given me. Just rinse with it often. 

 

Good luck people, we’re surviving! 

Member

Re: April 2019 Chemo Starters πŸ’–

I wasn't too nauseous tbh and the couple if times I felt a bit queasy I just popped one of the antisickness meds they gave me, seemed to work. But have heard the sickness is worse on the fec regimes. How you doing? X 

Member

Re: April 2019 Chemo Starters πŸ’–

Very wise to raise it with the doctors, I probably did not stress it enough. The one that seems to be helping me most is Metroclopramide, but we're all different of course.It only lasted about 24 hours for me and I've felt better really quickly xx

Member

Re: April 2019 Chemo Starters πŸ’–

Thank you for your reply. I too get sick easily. I was extremely sick during pregnancy having to take three different anti sickness to survive. I've already mentioned it to the doctors so hoping I can have the works as i still need to function as a mum first and foremost. 

 

Xx

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Zoe,

I've just started FEC T after surgery and not cold capping, I get migraines too! I might get a wig but also stocked up with bandanas etc. I'm on day 4 now and have to say I was very sick on day 2 and overnight, but my hospital have been great and have sorted out loads of extra anti sickness meds and I'm fine today. I get sick easily (just a feeble tum I think!) and its clear lots of people don't, but if you do - help is there. I'm sorry you are going through this at such a young age (I'm 64). Your girls sound lovely. Good luck Mo xx  

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Sharon

 

ive not had the nausea but I have felt like my body was shaky & i put it down to the horrible steroids. It’s funny you should mention a prickly scalp, I woke up this morning & my hair near my crown hurts. I was told at chemo on Monday that I wouldn’t have any hair by next Monday but at present none has fell out but as your post says perhaps it’s now about to start. I’m collecting my wig tomorrow but seem to already have a collection of scarves/bandannas etc but I’ve no idea how to tie them so they look funky! My mouth is also getting worse, the taste is really weird but on the whole I’m doing ok. Stay strong everyone, we are gonna kick ass on cancer πŸ’•

Member

Re: April 2019 Chemo Starters πŸ’–

Hi all. 

 

New to this forum so thought I would drop in to say Hi.

 

Is anyone starting FEC-T.

 

I'm 38 and a mum of 7 year old twins girlies. I've had my surgery and my first of three rounds of FEC is on 18th April then followed by three round of T then to Radiotherepy. 

 

Feeling ok about it, which people seem to think is rather strange. Had my long hair cut off to shoulder length in preparation as I've decided not to cold cap as I suffed migraines and im not keen on having a cold head. Fully prepared for the hair loss.  Although the oncologist say that my hair might not fall out on the FEC, I have a colleague who lost hers on the first treatment. At least were coming into the summer months not the winter. 

 

My gorgeous girls are my rocks. They are fully aware of what is happening to Mummy and they will be the ones to shave my head when the time comes. 

 

We are all amazing going through this blip in our lives and it's a fight we must never give into. 

 

Zoe xx

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Christine18

 

when I have double dose chemo I have emend antisickness one hour before my Chemo and for 2 mornings after, also Ondansetron 8mg anti sickness which I took one tablet at 8pm the same night of Chemo & 8am & 8pm the next day. I also had steroids dexamethasone which I had to take 2 tablets twice a day for 3 days starting after chemo, I also came home with metoclopramide anti sickness tabs to take as & when needed but I’ve not taken any of them, I’ve only had one time when I felt sick but this passed. Remember to drink lots of fluids to flush everything out of your system. When we just have the Paclitaxel you don’t get the anti sickness tab to take beforehand & you don’t come home with any meds. But it’s not made me feel sick at all. I have found ginger nut biscuits do help & eat small amounts & often. I’ve been In at work today for 5 hours. Trying to hi in when I can. You sound quite positive Christine & sickness should pass after 3 days. Fingers crossed for your next Chemo. Good luck to everyone else reading πŸ‘πŸ»

Member

Re: April 2019 Chemo Starters πŸ’–

Hi everyone

My infection has cleared and have got new date of 18th April for my first chemo, have had bra and prosthesis fitting this week, my fitter is trying to find me some more feminine bra’s, just because I have had a mastectomy doesn’t mean I don’t want β€˜nice’ looking bra’s rather than what my grandma used to wear. Don’t get me started on the underwear to match. Has anyone else decided not to wear a wig, I am just going for lots of hats and scarves.

 

Hope everyone is feeling good today

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Christine (and everyone else),

 

I can relate on the nausea! Day 3 and 4 were the worst; today's day 5 and not great but better than I was! So glad to hear from people further along that it gets better! 
Has anyone felt shaky? Not sure that it's steroids related as I had it again today. Trying not to eat more since my appetite is up the pole with nausea!

My scalp is starting to feel prickly, which I am told is the precursor to hair loss.

Thankfully, my taste hasn't changed at all so I guess in the grand scheme of things, I am getting off lightly!

Good luck ladies and be strong. We got this!

Sharon xxx

 

Member

Re: April 2019 Chemo Starters πŸ’–

Hi NikNak5

I’ve really suffered from nausea the last two days. I just constantly feel sick. I just have to think of food and it makes me feel bleurgh. I’ve not been sick just feeling it. I’ve got domperidone but that’s it, what have you been given? I think I need to ask for something else as it doesn’t seem to be working. 

Otherwise, I’ve been pretty lucky I think. I’ve been tired but managing to get out and do some long walks. It’s just this sickness feeling, if I didn’t have that I’d be ok, it’s stopping me in my tracks from doing more. 

I’m glad the weekly Paclitaxel has been ok, does it make you feel sick at all?

The only other side effect I have had is hip pain, I’m hoping it’s from the injection and my bone marrow responding to it! 

Good luck for your next chemo session! And good luck to everyone else out there

Christine πŸ’•

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Ladies

 

My mouth tastes really tinny, i am still lightheaded with the steriods although last one today so hopefully this will stop over weekend.  Appetite a little sluggish, but again i don't know if i am feeling sorry for myself and making it worse.  Hope everyone is coping with the side-effects i am sure they pass.  I keep popping onto the Feb starters and they are all doing great which is really inspiring for me.  

Take CareπŸ’–

Member

Re: April 2019 Chemo Starters πŸ’–

Hi Hannahlizzy21

 

i too find it hard to tolerate the steroids! I’m so glad I dont have them each time I have my chemo. They made me spaced out, dizzy, faint, blurred vision. I met with my doctor today & we are going to see if things ease or whether I need to take a lower dose as they knocked me for six. How’s everyones mouths? My taste is yucky x