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April 2018 Chemo Starters

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Re: April 2018 Chemo Starters

Hey everyone, port is coming out Monday!!!! Less than a week of injecting blood thinners left. So happy!
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Re: April 2018 Chemo Starters

Hi Michelle I think that's hard thinking you have an "end" date for treatment and then it goes on. I felt that way about chemo and I keep asking them to make sure I'm informed and no surprises. But I also think they adjust our treatment as they get to know our particular cancer more maybe and there is no plan to ambush us with new drugs just we are constantly reassessed. Maybe? First herceptin in my leg went ok. I've been having a lot of pain in my legs and am referred to physio but that's not till mid October. Working seems to be helping, as I couldn't sleep before and I'm so tired now I sleep much better. My legs are full of bruises as I'm still injecting the blood thinners. As soon as the port comes out that stops. Will ring today as day off work I have different days off depending on the week! Doc says it is aftermath of chemo. I hope it goes away. Feeling like my energy levels are on the up. Hope you are all ok take care Gigi x
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Re: April 2018 Chemo Starters

Hello everyone!
It sounds like you are doing well Christine although it is a slow recovery which is unsurprising for such a big op. I’m really interested in the website for 10 survival rates for each treatment that your onc showed you do you have the address? My onc has suggested I go on Tamoxifen after I finish rads. I was upset initially as this was unexpected, my oestrogen score was 5/8 so weak apparently. I’m sldo having herceptin until May and in my head had thought it was all over then!
Dorabel how have you found rads? Just one week to go now? Have you found it very tiring? Will that be you done?
Gygi, good to hear all is going well with you. I expect you are enjoying being back at work. How are the herceptin in the leg going? The first one I had gave me a dead leg for a couple of days but the rest have been fine! Good luck for your pre op assessment.
I am recovering well from my op. My boobs are a similar size just slightly smaller on the operated side and an indent on it. If it stays like this I probably won’t have any evening up however I have been told that rads might effect it more so I’ll see. Chemo seems like a distant memory now doesn’t it? Has anyone heard form Fiona?
Glad everyone is feeling well and getting through this. Love to all x
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Re: April 2018 Chemo Starters

Hi Christine hi Dorabel and everyone, hope you all had as lovely a weekend as I did.
Regarding belly button Christine they moved mine too and it looks like my belly button. Don't know how they did it! No scars it was just very red at the start and I had to keep cleaning it. Do you have a nurse you could ring to ask about it? That's what I did after my op. Also sounds like they are listening to you re the medication I'm on herceptin (leg injection now and blood thinners too.) Will stop the thinners as soon as my port comes out but waiting to hear when that is. I have different days off depending on the week and I'm off tomorrow so will try to ring and ask. Pre op assessment on Friday and my op (for equality of distribution lol) will be in the next few months. Not joining any other thread I like it here with you guys x
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Re: April 2018 Chemo Starters

Hi Christine

 

Good to know how things are going for you.  I feel the same about this board.  Didnt feel quite the same about the September radiotherapy forum even though I’m now 2/3 of the way through radiotherapy..

 

Hope all goes well after your surgery.  Still early days.

Member

Re: April 2018 Chemo Starters

Hi everyone. Thought i would put a quick update on here as i am now post surgery but feel more ofa connection to the ladies on the chemo thread.

 

Had an appointment with the oncologist this week and asked about the benefits of letrozole and she went through an nhs website and showed me 10 year survival rates for all the treatments. It put everything in perspective and i now know in my situation that i have an addtional survival rate of 9% by taking it. I was surprised at this but realise i need to take it and i am happier now about it. I dod need the infurisons to reduce the chance of bone thinning but they have agreed it can done through my foot as neither arm can be used. It has helped me worry less. Blood test taken to check hormone levels to see if i need ovarian suppression or not but as i had some spotting last week i am predicting estrogen will still be being produced by my ovaries. Additonal hospital visits will be annoying but not much i can do. Herceptin is every 3 weeks and suppression every 4.

 

Anyway i am recovering from surgery but i am writting a list of questions for the surgeon next week. One is that i don't understand what he did to my belly button. I was expectiong a scar around it as it was repositioned after the DIEP but i don't have one. The belly button is a strange V shape and nothing like my old one even though i thought it was still my old one but moved. What did they do to yours Gygi?

 

Getting out when i can but still severely restricted as i am not allowed to do much for the first 6 weeks. Only a week and a bit to go to reach that so am hoping i can do some gentel gym work soon.

 

Hope you are all moving on and feeling recovered from chemo.

 

xxx 

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Re: April 2018 Chemo Starters

Hi everyone hope all is going well for you. Michelle hope your appointment goes well today. I'm back at work and enjoying it although not up to much else! Seen the oncologist and that went well and had my herceptin in my leg for the first time. Tomorrow is my day off and I have a heart scan. Very achy legs but working through the pain. Just finished a book so will pop into the library to find a new one tomorrow. That's all from me. Take care Gigi x
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Re: April 2018 Chemo Starters

I was trying to edit out a typo so the problem is probably my doing.  Sorry to have rattled the system. 😔

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Re: April 2018 Chemo Starters

Yes I had an email saying Dorabel had posted but I couldn’t access it!
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Re: April 2018 Chemo Starters

Anyone else having problems with this website and access to this thread? I had an email saying Dorabel had posted but link says page not found. when i access the thread via the monthly forums there are no new posts. mabe if i post the other entry will return.  

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Re: April 2018 Chemo Starters

Thanks for this, Christine.  Really appreciate having this information, especially as you are rcovering from surgery.  I hope the last drain is gone or, at least, not oozing any more.

 

Letrazole is something I’ll be having to strip out the last oestrogen.  Feel my menopause is on an endless loop: first time when I had a total hysterectomy; then when I tried to stop hrt; then when I stopped again after cancer diagnosis and now to be helped along by pills. 😖

 

Chemo has made me frightened of any new treatment, so I think I’m fussing about radiotherapy for no good reason.  It’s helps to be reassured that even the tiredness is probably nothing much after chemo fatigue.  I’ve been feeling miffed at the whole cancer treatment and how long it has taken and this cheers me up since it’s only happened when I’m far enough away from the last chemo session to have the energy to feel this way.  While I was going through it, just getting on with it was as much as I could do.  Thanks for the tip about Aveeno cream, Michelle.  I use it as a moisturiser anyway and I’m glad it will be fine after rads.

 

I hope everyone on this thread is moving on after months of chemo.  I won’t miss it!

 

 

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Re: April 2018 Chemo Starters

I know techniques and equipment have changed over the years since i had 6 weeks of radiotherapy but i would say i found the tiredness not to be of any significance. once you have been through the tiredness of chemo the rads are nothing. I was advised to use pure aloe vera only on my skin at that point but that was before current creams were on the market. I am sure they will give you advise on that. I didn't have any major skin problems with it but I know some people do.

 

I had a plan going forward of letrozole tablets but i don't have the start date yet but this was on the assumption that i would be post menopause as i had all the signs that i was very close to the menopause pre chemo but my body wont give up and i think my periods are starting again. At 54 i am amazed my ovaries wont give up. Worried now that my ovaries may need to be removed as I have heart risks from zoladex as i am on another drug that has similar side effects of heart problems. I will wait and see what the oncologist says on the 11th and ask for reasons as to what the benefits are. In my head, if i have had mastectomies on both sides and so have less than 1 % breast tissue remaining, why do i need drugs to stop more breast cancer? Surely any risk is minimal but i am sure she will have a reason why i need it. Anyone else been in this position? Really not keen on more surgery as well as the planned blancing on the reconstruction either.

 

   

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Re: April 2018 Chemo Starters

Thanks everyone for your congrats on my results.

Sally it must be good to see the end in sight, you must be mighty relieved! You’ve been given a date for surgery too which must be nice. I found out about a week before mine! I know what you mean about not wanting questions answered now though, you are still in chemo mode. I find it useful to write down questions in my cancer book as and when I think of them because sometimes things just pop into my head and I forget when I see whichever specialist it concerns. Hope the final chemo goes well and is uneventful for you.
Dorabel I’m so pleased to hear you have squeezed a holiday in, although you are exhausted I bet it did you the world of good. I also have neuropathy in my toes, I only really notice it when I am in bed. Hopefully it will fade. Good luck with your radiotherapy next week. I’ve heard Aveeno cream is good to rub on afterwards to stop it from becoming sore. I’m interested to know how you find it
Dorabel, I start it in October ish, I don’t have an exact date yet. I hope it doesn’t tire you out completely. Xx
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Re: April 2018 Chemo Starters

Look forward to reading you on the new thread.

Thanks

 

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Re: April 2018 Chemo Starters

This is wonderful news, Michelle.  Must be such a relief!  Horrible chemo worth it.  Just.

 

Like you, Gygi, I have neuropathy in my fingertips (& toes).  I’ll be so glad to wake up one morning without feeling as though my hands are holding nettles.  I’m  sure swimming will be helpful to you in your recovery.  I swam a bit on holiday and felt better for it, even though I got tired very quickly.

 

Glad you are feeling a bit better, day by day, Christine.  Surgery is a huge assault on the body but it sounds as though you are healing well.

 

Last chemo is a big landmark, Sally.  I hope it all goes to plan & the side effects aren’t too bad.

 

Came home from holiday today & was exhausted.  Thought that if I’m this tired & the main effect of radiotherapy is tiredness I’ll be comatose after the first treatment on Monday.  Still, it beats turning up for chemo.

 

 

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Re: April 2018 Chemo Starters

Sally65 I guess you will be on the oct surgery thread with me. I finish chemo on the 5th and am on the May chemo thread mostly.x
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Re: April 2018 Chemo Starters

Well the end of part one is here......ish. I have my last chemo on the 10 September. ( FecT 8)

And a date for the surgery. 10 October.

I met my surgeon  today, so please as she seems really nice.  I think I may have many questions but at the moment don't want any answers, .

SallyWoman Embarassed

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Re: April 2018 Chemo Starters

Great news Michelle. We all wonder if everything was necessary when we get results like yours. It did cross my mind that maybe my mastectomy was not necessary but mentally i think i needed it to stop the possibility of a 4th breast cancer. I couldnt cope with yet another diagnosis.

Actualy made it to the local hospital on the bus this morning for herceptin injection. It was quiet due to school holidays so made it there and back with few problems. It was nice to get a bit of independence back. Sun was shining and world felt like a good place. Hopefully progress will continue for us all.

Hope work goes well next week gygi. After the first day i imagine things will return to normal and the summer can be forgotten.
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Re: April 2018 Chemo Starters

Yeah Michelle whoop whoop! How cool is that! So pleased to hear that. Xxx
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Re: April 2018 Chemo Starters

Thanks Jencat, appreciate that. Hope you are keeping well. Good luck with work next week xx