Good to know how things are going for you. I feel the same about this board. Didnt feel quite the same about the September radiotherapy forum even though I’m now 2/3 of the way through radiotherapy..
Hope all goes well after your surgery. Still early days.
Hi everyone. Thought i would put a quick update on here as i am now post surgery but feel more ofa connection to the ladies on the chemo thread.
Had an appointment with the oncologist this week and asked about the benefits of letrozole and she went through an nhs website and showed me 10 year survival rates for all the treatments. It put everything in perspective and i now know in my situation that i have an addtional survival rate of 9% by taking it. I was surprised at this but realise i need to take it and i am happier now about it. I dod need the infurisons to reduce the chance of bone thinning but they have agreed it can done through my foot as neither arm can be used. It has helped me worry less. Blood test taken to check hormone levels to see if i need ovarian suppression or not but as i had some spotting last week i am predicting estrogen will still be being produced by my ovaries. Additonal hospital visits will be annoying but not much i can do. Herceptin is every 3 weeks and suppression every 4.
Anyway i am recovering from surgery but i am writting a list of questions for the surgeon next week. One is that i don't understand what he did to my belly button. I was expectiong a scar around it as it was repositioned after the DIEP but i don't have one. The belly button is a strange V shape and nothing like my old one even though i thought it was still my old one but moved. What did they do to yours Gygi?
Getting out when i can but still severely restricted as i am not allowed to do much for the first 6 weeks. Only a week and a bit to go to reach that so am hoping i can do some gentel gym work soon.
Hope you are all moving on and feeling recovered from chemo.
Anyone else having problems with this website and access to this thread? I had an email saying Dorabel had posted but link says page not found. when i access the thread via the monthly forums there are no new posts. mabe if i post the other entry will return.
Thanks for this, Christine. Really appreciate having this information, especially as you are rcovering from surgery. I hope the last drain is gone or, at least, not oozing any more.
Letrazole is something I’ll be having to strip out the last oestrogen. Feel my menopause is on an endless loop: first time when I had a total hysterectomy; then when I tried to stop hrt; then when I stopped again after cancer diagnosis and now to be helped along by pills. 😖
Chemo has made me frightened of any new treatment, so I think I’m fussing about radiotherapy for no good reason. It’s helps to be reassured that even the tiredness is probably nothing much after chemo fatigue. I’ve been feeling miffed at the whole cancer treatment and how long it has taken and this cheers me up since it’s only happened when I’m far enough away from the last chemo session to have the energy to feel this way. While I was going through it, just getting on with it was as much as I could do. Thanks for the tip about Aveeno cream, Michelle. I use it as a moisturiser anyway and I’m glad it will be fine after rads.
I hope everyone on this thread is moving on after months of chemo. I won’t miss it!
I know techniques and equipment have changed over the years since i had 6 weeks of radiotherapy but i would say i found the tiredness not to be of any significance. once you have been through the tiredness of chemo the rads are nothing. I was advised to use pure aloe vera only on my skin at that point but that was before current creams were on the market. I am sure they will give you advise on that. I didn't have any major skin problems with it but I know some people do.
I had a plan going forward of letrozole tablets but i don't have the start date yet but this was on the assumption that i would be post menopause as i had all the signs that i was very close to the menopause pre chemo but my body wont give up and i think my periods are starting again. At 54 i am amazed my ovaries wont give up. Worried now that my ovaries may need to be removed as I have heart risks from zoladex as i am on another drug that has similar side effects of heart problems. I will wait and see what the oncologist says on the 11th and ask for reasons as to what the benefits are. In my head, if i have had mastectomies on both sides and so have less than 1 % breast tissue remaining, why do i need drugs to stop more breast cancer? Surely any risk is minimal but i am sure she will have a reason why i need it. Anyone else been in this position? Really not keen on more surgery as well as the planned blancing on the reconstruction either.
This is wonderful news, Michelle. Must be such a relief! Horrible chemo worth it. Just.
Like you, Gygi, I have neuropathy in my fingertips (& toes). I’ll be so glad to wake up one morning without feeling as though my hands are holding nettles. I’m sure swimming will be helpful to you in your recovery. I swam a bit on holiday and felt better for it, even though I got tired very quickly.
Glad you are feeling a bit better, day by day, Christine. Surgery is a huge assault on the body but it sounds as though you are healing well.
Last chemo is a big landmark, Sally. I hope it all goes to plan & the side effects aren’t too bad.
Came home from holiday today & was exhausted. Thought that if I’m this tired & the main effect of radiotherapy is tiredness I’ll be comatose after the first treatment on Monday. Still, it beats turning up for chemo.
Well the end of part one is here......ish. I have my last chemo on the 10 September. ( FecT 8)
And a date for the surgery. 10 October.
I met my surgeon today, so please as she seems really nice. I think I may have many questions but at the moment don't want any answers, .