Hi Michelle. I have only had the muscle aches in the days after the herceptin injection followed by the joint aches throughout which means I can't find a comfortable position to sleep in. I did notice on one of the forums that someone talked about taste changes. After surgery for the DIEP i was prescribed a low dose gentel laxative to stop the strain on my tummy. I am still taking them as i am slightly constipated. Not sure which way your toilet troubles are. I agree i am not happy with this going on until April but i have an appointment with the oncologist this afternoon and i will ask what i can do. I am not sure there is a lot they can recommend.
I also need the results of the hormone blood test to decide if the ovaries are still working and if i will need zoladex with the letrozole i am due to start shortly. As the Zoladex is a 4 weekly injection and the herceptin 3 weekly it looks is if i may bee spending a lot of friday mornings at the hospital being stuck with a needle. I just want to feel normal and it just seems to be going on for ever. Having a bit of a down week but that may be due to expecting to have to have zoladex. will find out later.
On the positive side my daughter just messaged to say she had passed her driving test. The sneaky thing hadn't even told us she had had a test booked. Previously she had one booked and cancelled it as she wasn't ready. I very pleasant surprise but now i will worrying about her driving home down the M1 to see us...
Hope everyone else is coping.
Hope all goes well with the surgery, Sal. I turned to the radiotherapy board when I started that treatment but returned to this board before long. It’s only my experience but radiotherapy, while it’s no joke, is not as bad as chemo was. Good luck with your treatment (the blue dye fades eventually).
Hi I guess this should be my last posting here.
I finished chemo on the 10 sept and have my surgery on 10 October. At the moment I am looking forward to the blue boob, ( named Mama smurf by my daughter).
After the surgery come the radiotheropy, so I am not sure which threads to read and post on. Thank you for all the advice I have read, and good wishes to all on this treadmil.
It’s good to read that post-surgery is generally going ok. I love the “anything boob shaped” idea; am so grateful my left boob still looks like a boob. It’s getting sore, though, from the radiotherapy.
No more injections + port gone - must be such a relief Gigii. Not surprised you are tired. Every aspect of treatment swallows great wads of energy. I was told I would be very tired after radiotherapy and, for me, this doesn’t mean I want to sleep. It means I can’t cope with small setbacks because I just don’t have the energy. I muddle through somehow.
It’s back to the chemo ward on Wednesday for a zoledronic infusion (hoped I’d seen the back of that place for good). I imagined it would all be over once radiotherapy ended. Wishful thinking, that.
It does seem to take it out of us doesn't it. I went back to the gym a few times between chemo and DIEP but didn't do a lot and now i feel like my leg muscles have gone to sleep. Hoping to get back this week even if it is 20 minutes on an exercise bike.
I have a wound check on monday and hopefully get rid of the additional dressings on the unhealed bits of the wound and then the oncologist on tuesday to talk about letrozol and anything else. Hoping the blood test shows my ovaries have given up and no zoladex is needed but will wait and see.
Must be such a relief gygi to get the port out and stop injecting. I have found the herceptin aches have reduced as i have had more injections so hopefully yours will too. What have they said they are going to do in order to balance you up? Is it liposuction? I have an appointment in 6 weeks to discuss what is next. Scars don't look too scary and i bought some ordinary non wired bras today to keep me going until i know what my final size will be. I seem to have gone from a D cup to a C cup which is fine as i was told i would be slightly smaller and expected to be nearer a B cup. Anything boob shaped is fine by me.
Still not sleeping well but i am getting there. Trying to find a comfy position.
all the best to everyone and hope the energy levels improve. Great on you both for running.
So glad to read your posts after a quiet patch on the board. Thanks for all the good wishes regarding my radiotherapy. Last zapping tomorrow - can’t believe I’m coming out on the other side of treatment. Radio has been much easier to bear than chemo. Still got neuropathy & hideous nails but convince myself the pain is fading. Very tired, though.
Re. survival rates, I tell myself that the tables for this are a model not an exact account for the individual. Each small percentage adds a bit more hope. It’s enough for now just to have got through the months of horrible treatment.
Completely agree Michelle that as a person you can be that one even if it shows a 99% survival and i wasn't even looking to know the total percentage. Actually i wish i hadn't seen the overall figure. I was just wanted to know what the benefit was from the added drugs i was being offered as i needed to get my head around the extension of the treatment and side effects. In my case it proved a point but i am not sure as a matter of practice i would have wanted to have know the total figure. I have to believe i will survive 10 years and will continue to believe that unless i am told otherwise. I will still plan for retirement and keep myself fit. Reality is we don't know what will happen to us in the future.
Hope you have a bit more energy now.
I think it would be fun to meet up. I wonder if we will look like we imagine each other to look?
I am sure that will be a relief to get the port out. I felt so much better to have mine gone and even better news that you will be able to stop the blood thinners. I only had two weeks of that and my legs were covered in bruises so i have a small idea of what you went through.
The website for the 10 years survival i think was a one available to doctors only and i didn't see the name of it. she did say it was nhs i was surprised at the figures she gave me after entering my specific details. the majority of the survivial in my case was the surgery which amounted to over 60% and then a further 10% for chemo and 10% for letrozole. My tumour was alos very eostrogen positive but i have no figures. There was a few other things too and it took into account death through other unrelated issues. I would think most oncologists could give you figures that relate to you.
I had problems with the first injected herceptin but the following ones seem to have been less so. I do have aches in joints and muscles for the first 48 hours post injestion but these eased off. I still have neuropathy on my feet which also gets worse a few days after each injection then lessens until the next one.
Would love to get away at some point but i am not allowed to fly for a few months post surgery and not really up to it yet. would like to plan something at some point though to forget about this summer.
All the best for your last week of radiotherapy Fiona and Dorabel. We all just need to listen to out bodies at not push things too far too soon.