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April 2018 Chemo Starters

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Re: April 2018 Chemo Starters

Oh and i forgot still waiting on the date to even me up. Not heard yet but have done pre op assessment x
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Re: April 2018 Chemo Starters

Hi everyone it's Gigi with a cold! Fancy that! First hol without recovering from anything and I'm sick. All that time in school and caught nada! Ah well. I went up to Guys for herceptin today and they had to keep me in isolation so I didn't give my bugs to anyone in chemo. The nurses are so lovely there. I complained about all this hair coming back & made them laugh. It's growing everywhere!!! Even super long nostril hair that needs a trim but I don't have sideburns. Eye lashes and brows in full swing too. So glad I cold capped as my hair is growing back well. Herceptin seems to just cause me leg ache and stiffness or maybe it's chemo. Tues morning saw oncologist for the last time. He was so sweet. I'm too well to need him. Will see a nurse in Jan. Going to start swimming as soon as I'm over my cold to help my legs. My partner has been away the last 2 weeks so glad he is back I missed him. Looking forward to meeting up with you all. I'm not far from London but can travel if you want. I hope rads are going ok Michelle and that things are getting sorted Christine. How's your hips now Fiona? And Dorabel how's you? Sorry I know I'm missing people out. Just a bit tired from going up town today. Glad we are still together. Hope you are having a good day Gigi x
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Re: April 2018 Chemo Starters

Hi Dorabel, great you want to meet up to. Where in the country are you? If you don’t want to say here send me a message. X
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Re: April 2018 Chemo Starters

Hi everyone 

 

Hope it’s all going well for us.  I love the idea of meeting up.  Whether I can be there depends on the location decided - travel might be tricky.x

 

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Re: April 2018 Chemo Starters

Hello everyone! Made it to half term!!!! Very tired today so will be back tomorrow for a catch up. Just wanted to say would love to meet up. Hope you all had a good day Xxx
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Re: April 2018 Chemo Starters

Sorry to hear you are in limbo Christine regarding your next stage, I hope it gets sorted soon so you know where you are. As far as I know I am starting Tamoxifen after rads but haven’t had a period since January.
Glad you are on board with a meet up, it’s exciting isn’t it after ‘knowing’ each other all this time!
Dorabel and Gygi what do you think? Once we know who’s interested I can set up a what’s app group so we can make plans x
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Re: April 2018 Chemo Starters

At the moment i am a bit in limbo and waiting to find out what happens next. I am due to start Letrozole but my blood test was borderline as to the Zoladex. As i have just got my first period since chemo i assume something will need to be done about the ovary estrogen production but this could be ovary removal. I have appointments at the start of November with the oncologist and the palstic surgeon to see what happens next plus a referral to a gynacologist to see if there are any options to remove the ovaries without messing up the DIEP tummy surgery. I assume it will be zoladex but there are complications with other medicines i am on so I am in a bit of a mess in that respect.

 

Anyway I am free as far as i am aware for a December meet up and would love to see you all. What about you gygi? Do you have any re balance surgery planned yet as i know you were talking about that.

 

xxx   

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Re: April 2018 Chemo Starters

Yes there is a lot of wait and watch isn’t there! I even picked up a ruler to measure how long my hair had grown on top, willing itnto grow quicker!
It’s a lot quieter at home now with both girls away at uni but they seem to have settled well which is what we hope for. My OH and I are enjoying the time together and I think the girls need a break from me and cancer treatment!
Rads start on Thursday. I’m not really nervous just fed up with it all, and being back at the centre is a reminder of everything. I don’t mind meeting up in December but I guess it is a busy month for everyone, I guess it partly depends on where her we meet on a week day or weekend. Let’s see what the others come back with, I’m pretty sure Christine is keen to meet up too.
Are you done with treatment now? Enjoy your celebrations with your parents xx
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Re: April 2018 Chemo Starters

Hi Michelle, yes it's an old injury but not sure why it's flared up again now. My physio is working on it but seemingly I have hyper mobility that's causing more problems. Still, it's not so bad compared to the last few months and it'll pass I'm sure.

I've read of others having the hair too but mixed information on what happens... Like every other stage of this journey, I guess I just have to wait and see what happens!

When do you start your rads? Do you know how many weeks? How are you feeling? We can wait until Jan if suits, just wait and see how you feel.
Hope you and your family are all well

Fiona x
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Re: April 2018 Chemo Starters

Hi Fiona,
I haven’t experienced the downy hairnon the face but have heard of others who have. Apparently it disappears on its own but I’m not sure how long that takes.
Sorry to hear you have a hip problem, is it an old injury? I had a problem with my hip before I was diagnosed, it disappeared during chemo but the first run I did it came back. I tried a new physio a week ago and she has diagnosed as my hip flexor and given me exercises which have really helped. I’m keeping my fingers crossed that it will mend when I have rads.
I know what you mean about fatigue hitting you, some days are better than others.
I’m happy to meet up pre Christmas, I finish rads mid November so would like to wait until December to give me a couple of weeks recovery. What does everyone else think? X
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Re: April 2018 Chemo Starters

Ladies, bit of a strange question but since my hair started to come back, and it's come back really well.. Yay!.. however I seem to be developing quite a set of blonde lamb chop style side sideburns. They're very downy for want of a better word and I wondered, has this happened to any of you?
wondering if I should maybe get them threaded off or perhaps theyll disappear themselves, fingers crossed 🤞.. What i don't want to do is make it worse.

Otherwise, things are going quite well though I'm often surprised when fatigue hits me out of nowhere, like today. I had physio and that's about all I've managed! My hip seems to be playing up really badly now as though it had just taken a back seat while I had all the other treatment and now feels like it it's turn again... Very annoying. Some days I can walk a really brisk 5k and feel good though I've yet to manage running longer than about 2mins..though I've been told a 1m walk 1min run for 15mins and build up from there is the way it get back into it.

My parents arrive on Thursday to celebrate my Mums 80th birthday which were all looking forward to... Any excuse for a party I think so I must be improving.

Hope you're all well and thinking if we might try agree a date to meet up before Christmas as Michelle suggested?

Fiona xx
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Re: April 2018 Chemo Starters

Sal glad to hear it went well. I am having the same op on the 22nd but just on one side initially. Had pre op Yesterday and an echo so looks like its going ahead this time as not heard anything today - it was postponed from the 3rd. 

ktk
Member

Re: April 2018 Chemo Starters

Great to hear from you Sal. Glad everything went well. I had similar to you, therapeutic mammoplasty and reduction on he ‘good’ side. Very happy with the outcome. Do you have drains? I had one each side but they came out after three days. Kxx
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Re: April 2018 Chemo Starters

Many  thaks for you kind replie.

Blue boob after that dye stuff they inject  in. Ive gone one better I now have two new boobs, one lump removed and the other boob resized. 

The whole surgery thing was so much easier than I expected. I have bin so lucky, with all my trearment so far . I don't have chemo fuzz. just swiss cheese brains, I keep losing thinggs,  words , the  inability to spell corectly

So many apoligies for the weired  spelling etc.  I was just about to type that I was looking forward to the radio, but maybe that isn' t the right thing to say.

Thanks again and good luck to  all  Sal

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Re: April 2018 Chemo Starters

Hope it all goes well tomorrow, Sal.

 

Post-surgery, post-chemo, post radiotherapy my biggest problem now is my dreadful nails - only attached from halfway down and I think at least one is going to split across and fall off.  Still got neuropathy in fingers & toes.  These are tiny problems given what went before.  On the plus side, I’m growing eyebrows & eyelashes.  Someone told me about it’s the small things like this giving pleasure.  Small?  It’s huge for me.  Means my body is recovering from the vile things done to it.  I’m grateful for treatment but it hasn’t been very pleasant.

ktk
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Re: April 2018 Chemo Starters

If it is anything like mine, you go into hospital first thing and get settled. There were 4 of us on the ward, all intended day cases (less chance of infection at home and more relaxing in your own environment). The surgeon came and drew all over my boobs. I’ve got some great pics. Very funny!! I then went for blue boob injection and into surgery. Woke up in recovery. Went back to ward for a couple of hours then went home. All nice and easy and a nice relaxed atmosphere. You will be well looked after. Kx
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Re: April 2018 Chemo Starters

Hi just after a little advice, I had my radioactive injection today ready for the surgery tomorrow. They have said I will get the blue dye tomorrow , but what happens next.

I was unconcerned till now. but the wobbles have hit.

 

Sal x

ktk
Member

Re: April 2018 Chemo Starters

Afternoon ladies. Re toilet issues. The antiemetics and steroids can cause constipation. I take Macrogol/Laxido for the first few days to keep me regular. Lactulose has a similar effect. It is very gentle and just prevents a backlog 🤣. I found that Docitaxol caused diarrhoea after the first few days. The first cycle was the worst. Since then it has been limited to one or two urgent sessions a day!! TBH I find the diarrhoea easier to deal with than the constipation!! Kx
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Re: April 2018 Chemo Starters

Thanks Christine, I have the opposite toilet trouble to you, I can and do sometimes take Imodium which stops it but I don’t want to keep taking that until May. Some days I am ok but some days I am a regular visitor to the toilet! I’m sure I just have to put up with the bad taste, it’s not stopping me eating but very little does! Zoladex and herceptin does equal a lot of injections. How long will you have the zoladex for?
Congratulations to your daughter on passing her test. My youngest took hers last month but failed. I have to say a small part of me was pleased as it means she won’t be on the road!
Hello to everyone else, hope you are all doing well. X
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Re: April 2018 Chemo Starters

Also when i had my lumpectomy back in march I was told i may wake up with blue boob but i had had a nuclear injection and scan the day before which should show the nodes effected but there was no guarantee i wouldn't need the blue dye too. I also had a tomsil biopsy in the same operation and was told the inside of my mouth would be yellow so was expectiong to be multi coloured but it was just the yellow mouth Smiley Happy