PS to website people - could there be an avatar with a short fuzz of hair? Glory be, my hair has grown enough for me to go public with it. I look weird but less so than before. Have taken to wearing mascara for the first time in years, just because I now have eyelashes again.
So sorry that you are having problems with taste, Michelle & Linda. Docetaxel is evil stuff. I had three courses of it and for quite a while, everything tasted awful. Trying my favourite foods made no difference; it all tasted dreadful, even water. The taste distortion did wear off, though, and I’m hoping this will be the case for you. I’m not on herceptin, so I don’t know about its side effects.
My query is this. How long is it before I have to accept that the neuropathy in my hands and feet is permanent? Last docetaxel was at the beginning of August and while the pain is gone, the tingling remains.
Hope everyone is managing to avoid the colds that have sprung from nowhere in the last few weeks.
@Michelle21 The founder, Ryan Riley, tends to announce events on a rolling basis, so although the next two are in London (6 Nov) and Walton upon Trent, Derbyshire (15 Nov), there will probably be more scheduled soonish. I believe he's working on a book but it wouldn't be published til 2019 or 2020 at the earliest, given typical publishing schedules. You might try contacting him via Twitter (https://twitter.com/ryanrileyy) to ask if they might consider setting up a workshop nearer to you.
The session I went to didn't have the apple crumble, which sounds blissful, especially as I have found baked apples with a strong focus on cinnamon have been a really nice, pleasing, and easy dessert option. (There are some recipes online for garam masala apple crumble that I might try out.)
We did 3 mains instead: 1) pineapple prawn tacos (using a thin slice of pineapple as the taco "shell") and garnishing the cooked prawn with fresh sliced chilli (can be deseeded), coriander leaves, slivered spring onion, and lime juice; 2) salmon fillet coated with harissa paste and baked, with a side of fennel cut into matchsticks and made into a slaw using a bit of plain yoghurt and the juice and zest of a lime, all of it sprinkled with nigella seeds for a pop of visual satisfaction once it's on the plate; and 3) an umami-rich dish of puy lentils coaked with bay leaf and garlic, to which are added sauteed onions, spinach, butter, and toasted buckwheat, served with a drizzle of yoghurt mixed with miso paste. I make the salmon pretty regularly (I use store bought harissa and it's super fast), and I have done several twists on the lentils -- not yet with the buckwheat/miso, mostly because our pantry is packed at the moment. I can type up and share the recipes if any of them are of interest.
The general principles involve using umami, particularly by combining two umami-loaded ingredients (e.g., mushrooms and ripe tomatoes; miso and spinach) to help combat sensitivity to salts and metals, or by incorporating pineapple, which triggers the trigeminal nerve rather than relying on taste buds and olfactory bulbs, so can get around the issue that way. Ginger is similar, and I've found myself adding the fresh root to my cooking on a more regular basis as I've been noticing more salt/metal dominance on my palate. (I've not had any nausea during chemo.)
Hi Gigi and thank you for your words. I am usually a strong person which is why this period of time has hit me so hard when i have been so upset. Doesn't make me feel like the normal me but i am taking steps in the right direction. My oncologist has also suggested i contact Haven and i have found there is one near Fulham Broadway tube station which should be easy to get to. They have welcome days and i am going to book into one and see what they offer. Looks like therapy aswell as yoga and complimentary therapy.
Time gets to be important and i am glad you got to London Zoo. I haven't been for a few years but my husband goes as he like to take to photos. He prefers animals in the wild but he has taken some lovely ones there in the past. I am more of a fan of the Elephants but Penguins are cute too. My daughter has plans to go to Chester Zoo on her birthday on Saturday when her plans fell flat. I am sure that will be good too.
Have a happy birthday and hope you enjoy the rest of your half term.
Its been a busy week and my I wrote down all my concerns and questions for the oncologist on tuesday evening. Luckily she didn't seem too busy and I was the last appointment so i wasn't rushed. We started with the fact the previous plan had to be changed due to my ovaries not giving up as they should. I decided the removal of my ovaries was not going to be a good idea for me. My surgery is healing well and more surgery down there would not be a good idea mentally as well physically. This means i will need zoladex 4 weekly for 2 years but she will be doing ECGs before the first and another 3 weeks later due to the risks as i am on other medication that can effect the heart in the same way. Then i have to start Letrozole a month later which again has risks but i can't take tamoxifen due to interaction with my other medication (and it didn't work for me last time as i had a reoccurence less than 2 year after the first diagnoses all those years ago). I am concerned about the risks and side effects but I have in my head that i will stop if it becomes too much and takes the risks of the cancer return instead.
I am having problems dealing with the constant reminders of cancer with the tablets/injections and frequent hospital appointments so i have asked for a referral to a counsellor. Part of it may be the hormones kicking in due to the period i had but she said down times can get worse on Letrozole so she agreed it was a good idea. I was brought up to keep emotions inside and asking for help was weak but i can't do that anymore. My daughter is of the other opinion and has asked for help in the past so her encouragement helps.
Sorry this is going on a bit...
On the subject of hair, I am still suffering with thinning of hair and it is very dry. I have tried all sorts of conditioners and treatements but it still looks a mess. Also i braved going for a bikini wax for the first time since the DIEP surgery and she said the hair came out really easily. 3 weeks later there is very little regrowth which at least saves money on waxes but does seem a bit odd.
Hope every one is doing well and hope to meet you all.