Hi Michelle. You must be counting it down to the end now. My experience was nearly 20 years ago now and i was only 34 so coped with radiotherapy pretty well. I am sure technology has changed over the years and the process improved. I had skin care advice at the hospital before i started and was reviewed during treatment. The advise i had was to apply Aloe Vera but it had to be the 100% pure variety. I used it all the way through and was lucky not to have any skin problems at all. From what i have seen on here that appears to be unusual in the present day. May be it was a lower dose then as i had 30 treatments and now it has been reduced significantly. I worked while going through treatment and had appointments around 4.30 in the afternoon so i could then get back to pick my then 4 year old up from nursery, so I don't think the tiredness was that significant or I have forgotten that bit. Anyway that was a long time ago so things must have changed now.
All the best and I hope your skin doesn't get too uncomfortable.
I had my last radiotherapy towards the end of September and was quite tired for a couple of weeks afterwards but, compared with the tiredness of chemo, this was nowhere near as bad. I think, though, that there is a lot of individual variation. The area treated is still visibly affected and, for about three weeks my nipple was sore. This soreness has gone now.
I hope it all goes well for you when your radiotherapy starts.
I was 8/8 oestrogen & advised to be on exemestane for at least 10 years, which encourages me to think that maybe I’m expected to survive for quite a while.
My neuropathy has been in my feet rather than my hands and each time i have a herceptin injection it becomes more noticable. it does fade over the three weeks between but comes back. The oncologist denies this is a side effect.
My hands are effected by the joint pains from herceptin as well as my shoulders and hips. I was adviced to keep moving but have not given any other advise. I also had my first Zoladex injection for 17 years so i am not sure what side effects i will get from that. Yesterday i bought a suppliment of glucosamine, omega 3 and a few vitamins just to see if they help. Willing to try anything to get some proper pain free sleeps. I am trying to get back to the gym but i can't do alot yet. I have an appointment with the plastic surgeon today and have a few questions on movement and gym work after the reconstruction. I haven't gone back to using weights yet at all and am very wary of my arms/chest muscles. I do like doing a few squats and do a good stretch routine at the end.
I haven't worn much mascara over the last year but i have got back to using it a few times recently and the lashes are definitely improving. Although i didn't lose all of my hair on my head as i scalp cooled, it is still coming out and is thinner than i would like. Keep trying different shampoos and conditioners to give a bit of volume. Any recommendations would be appreciated. I have tried a non permanent hair colour too which has brightened it up a bit.
Well i need to check what tubes are running and if i need to walk the last bit. As long as the rain stays off at that point i don't mind the 25 minute walk from Earls Court. Just need to go the right way.
Have a good day.
It’s already a long day, then, Gigi. I hope the painkillers have worked on your achy legs. Things I was told by oncology medics, like “pins and needles” and achy joints”, sound so innocuous but the reality is very hard to bear. The effort involved in simply getting about is exhausting. I hope your day goes well.
Thick eyelashes (not yet very long) are a consolation. They’ve never been this good. Hair on top is still only babyfuzz but at least it’s there and growing. Got to find something to enjoy.
I’m grateful for all the posts about neuropathy. It sounds as though everyone who had the same chemo is still having pins and needles, so I need to be a bit more patient. I get furious with myself when I keep dropping things.
I’ve just had an NHS survey to fill in. It asks if the long-term effects of treatment were explained to me. Probably they were but in the horrible fog of hospital visits and treatment regimes most of what was said to me is a blank.
Maybe I’ll get an eyelash curler. x