Yay on ringing the bell!
Congratulations on being finished this part of your journey Michelle.
2 easy quick additions for your 10 a day
1 glass of fresh juice (150ml)
2 tablespoons of raisins (add to breakfast ceral/porridge or desert)
Some other inspriation that may work for you (depends on your taste)
Hope there may be something new in this to inspire you,
Sorry that was so ridiculous bad. I was in a hurry, no glasses on and using my phone.
Should have read... The diet info came from the World Cancer Research Fund.
I am trying to see what i can and can't eat to make my diet more healthy. Not allowed vegetable oil or sunflower oil so i have invested in an olive oil spray and a coconut oil spray to see how that does. Not allowed margarine but i am allowed butter but not great big chunks. Need lots of fruit and veg. I was told 9 portions a day which should be 3 fruit and 6 veg and a total of 30 different ones in a week. Now that is a challenge...
Thank you for your kind thoughts will let you know how I get on.
Had a little look at May thread JaqB has particpated in the ROSCO Trial which is why the chemo was split into two sessions. I beleive the purpose of the trail is to try and find out if they can find any links between tumor types and response to the two types of chemo in case they only need to treat with one.
However noticed that another lady had TNBC and she received a different Chemo regime altogether from me. I beleive I may have been a little unlucky in timing as I beleive the NICE guidelines may have updated at some point through this year and I may be one of the last sets of patients with TNBC to receive FEC-T rather than a regime that includes the Capecitabine in the first place. It is one of the things I will be asking my lovely oncologist about tomorrow.
Yay for last Radiotherpy treatement *rings the bell* time to celebrate I think!
(WARNING LONG POST - Must have needed to my journey out there into the ethos).
Good to know what the options may be If I need them, beleive I already have hydrocortisoe cream for another skin condition...lol
I have not yet finished my treatement, I have an appointment with Oncologist wed who will check my radiotherpy reaction and also discuss next steps with me.
So I was diagnosed with TNBC in March which is grade 3, no staging was offered by my medical team, The Tumor was around 4 - 4.5 cm and I had no node involvement. My treatement plans was 6 cycles of FEC-T, followed by lumptomy follwed my radiotherpy.
I found the FEC and Docetaxel affected me qute differently.
Major symptoms of FEC
Yeast infection Oral
I would have one bad week and noticably recover over that week to an almost normal state within 7 days. It was not pleasent and although I felt quite clearly ill as a result of the treatment it also felt managable in some ways.
Major syptoms of Docetaxel
Bone & Joint Pain
Hand/Foot Syndrom (blistering of soles of feet)
Yeast Infection Oral
Nail damage (in the end lost 2 of my big nails - not sure if they grow back again?)
I would have a delayed response to the Doxcetal where it would really not start to impact me until 2 days and I found that it would take at least 10 days before the SE started to ease and was only getting back to normal in time for the next cycle to start. I felt quite clearly ill as a result of the treatment and not so managable in many ways. I would describe the experience as turning into a cat, sleeping, waking and eating and then sleeping, waking and eating. TIme seems to travel on by quite quickly.
My Feelings on the total ecperience to date
I felt an immediate response in my tumor to the FEC treatement but "felt" that there was little response to the Docetaxel treatements. Over time I started to get breast pain and "felt" as if the tumor was getting larger again, this could all easily be inflamation and also anxiety etc. I found the first Docetaxel to be quite impactful, the 2nd to be less so but still severe and the third one was the worst and I almost feel like I have not recovered from that one (19th of August 2018)
Current most noticable SE
I am still in significant pain within my joints and muscles,
Still struggle with getting up and down, moving around or standing for long perods at a time (though it is improving generally but slowly).
I have neuropathy,
Chemo brain and low attention span
Low mood or lack of motivation on occasion.
I feel my SE are probably quite typicl of most people but outlined them as I was finding it reassuring to here see the journeys of others and it helped me to normalise what I was experiencing.
My lumpectomy has came and went, removed 31mm tumor with clear margins and without many complications so far and I feel as if it is not too invasive a procedure for me luckily - (probably due to no Lypmh node involvement). Ironically I do however feel like my lump is still with me as the void was filled by fluid that will be abosrbed by the body as it heals over time.
As TNBC there are no homonal therpies or treatments. I unfortunately did not have a complete pathologcal response to the FEC-T and as the onccologist put it "Did not respond as well as hoped" to the Chemotherpy so have been advised I have to a further 8 cycles of oral chemo drug Capecitabine.....which kind of knocked the stuffing from me as a further 6 months of chemo does not fill me with joyful anticipation.
Overall I remain positive and just trying to relax and practice self care taking it all one step at a time. Been advised that it can take up to 12 months for the SE to diminish from Chemo so just keeping on kepping on . I have yet to meet or come across another indivdual in a similar situation as me or who has taken the Adjuvant Capecitabine for TNBC after receiving Neo Adjuvant course first. Sometimes I think that might be the hardest part.
I really should start getting my questions ready for meeting on Wednesday.....this is inspiring me! Thank you for asking about my journey I really do feel sometimes I need prompting in some ways!
Hope everyone is having a good week and coping with their SE and sending you all some love and luck, xxx
I wanted to say I am also an April 2018 Chemo started and although I did not sign up to the forum till recently just reading what everyone was sharing helped me with my journey a great deal.
In re to Michelle I am only recenlty finished my Radiotherpy on the 05/11/2018 and had 19 treatements. I have found that the fatigue did not increase much at all however my skin reaction is still developing over time. I had noticed almost no skin reaction until about session 14, it is worse in my armpit of all places and also under my breast, bascially in all of the flextures where the skin tends to be a bit thinner.
The medical team focus on if the skin is broken or not and was advised I can drop in any time and just ask to see a nurse in relation to my skin and they will check it over and dress it is need be.
It’s good not to have to know. I’m having zoledronic acid at 6-month intervals to discourage osteoporosis & bone cancer (hope I don’t get that!). Just have to accept what the medics tell me is needed. Know exactly what you mean by those tubes. Only 2 more rads - way to go! Hope you have the most minimal side effects possible.
That sounds really grim for you, Linda. I was wondering if the effects of the anaesthetic are part of your sickness, even this long after surgery.
Do hope you are able to enjoy Christmas, Michelle, after daily radiotherapy - you’re right about this bringing home the enormity of what has happened. My moment of this came when I was having a zoledronic acid infusion post-chemo but in the chemo ward. Hated going back there and felt so sorry for the woman next to me because I recognised the chemo she was having and knew she was almost certainly about to have a bad time.