Hi everyone. Glad to see life is getting more back to normal for everyone as the chemo effects recede.
gygi, i hated the injections and got quite down towards the end, dreading do it. so glad to have finished those and do feel for you. we do what we have to do but don't have to like it. Hope you can stop soon. i have so many bruises on my thighs i am wondering if a clear area will be found for herceptin jab on friday.
I had to change the tape dressings over my scars this morning and hated the idea but luckily it all went well. i was told to take the tape of in the shower and give the area a wash with perfume free soap before reapplying. i took ages easing the tape off but all looked ok except for the area where the last drain was which is still oozing slightly. New tape put on is a bit more patchwork but does what it needs to do. Belly button still not healing but i have no feeling so at least no pain. plan a short walk alone this morning. progressing each day but very slowly.
Michelle all the best for the 13th. Hope that will be the end of the major treatment.
So glad you are recovering well from surgery, Michelle. The exercises will help with straightening your arm, it just takes a while.
Docetaxel seems to be cumulative in its side effects, which could be why the awful taste in my mouth is gone while yours is still there. I had only 3 doses. My nails are in a bad state & my fingers still hurt. However, I’ve been on holiday & that was the best thing I could have done. I’m wearing a wig most of the time as my hair is still only a faint fuzz about 1cm long. The ends are frazzled, probably because the first growth was so damaged by the chemo. Just the fact that it is growing at all cheers me up.
I hope you get good news on the 13th. Fingers crossed for then. xx
Sounds as though there’s still confusion at the hospital, Christine. It’s good that you got some reassurance about the pain. If it’s any help, I had nerve pain down my arm after lymph nodes were removed. That was at the beginning of February. The pain, along with the tingling and numbness has gradually faded and is almost gone now. It has taken ages but I’m very glad it’s happened.
The appointment that was booked should have been a follow up with the consultant but not sure what happened as when we got there it was a dressing change appointment (I already had one booked the following day which i had to cancel). the nurse was very reassuring and said it all looked healthy and was probably nerve and muscle pain. It does still hurt quite a lot and yesterday i sneezed and actually screamed with the pain that shot through my breast. Hopefully it will all die down soon.
I am using a blood thinner (tinzaparin) that makes me very itchy so I am not really sleeping that well. Using one a day allergy tablets i bought over the counter but i am needing to take a second one in the middle of the night or i will scratch my skin off. Anyone else had to do this or had this problem? Only 2 more doses to inject so hoepfully all will clear up after that.
Received a call from the hospital today as a follow up to my complaint and she was very appologetic. I do feel they have taken it to heart and agree i was failed on monday and left alone when suport should have been available.
Now the drain is out it is a lot easier to do things so i am moving around more. i did move strangely last night to get out of a chair when a sharp pain went through my right breast. Seemed to be when i put weight on one hand/arm. it happened again tryint to get out of bed this morning so phoned the hotline to make sure it was ok. They don't think there is a problem as there is no sign of blood or swelling. I have an appointment anyway tomorrow so will check this is ok. Feels a bit tender on the top part of the breast. Can't find anything online that mentions this and it is so difficult to know what is ok and what needs attention. i feel like i panic about everything. Assume i will relax a bit once i get used to what is what.
Oh this is good news, Christine. I hope the inflammation goes now that the drain is gone. After the awful time you had, this must be a relief. It’s not right that you had such a runaround, and at a time of such acute vulnerability. Now that the surgery is done, things will, I hope, get better.
well drain out as apparently the body can start producing additional fluid because the drain is there so the fact it went up is an indicator is had to come out now. The site is inflamed but not infected so all good. So glad it is gone.
Finally got to chat to some one who contacted the consultant and the drain is coming out this afternoon. I think there are concerns about it. Volume last night double the night before and seems the liquid is very red. Need to get to the hospital (one that does have parking thank god) by 2 and will see what happens after that.
also the problem in researching online is that there are so many different sorts of drains. Mine is a small plastic sphere (under vacuum i assume) that is connected to a bag. Once a day i reverse the clips top and bottom so the contents can be squeezed out and into the bag to measure before putting the clips back in palce and replacing the bag with a new clean one. I don't have a big bottle
Thanks everyone. Feeling a bit more up beat today and determined to get answers. I will check out that download Gygi. Guys seem to have better info than the Marsden on there website. When i had my chemo port fitted Guys had really good info that i couldn't find elsewhere.
I did call the hotline again this morning just wanting the answer to the basic question how do i get new bags. The girl seemed to be the sort to get things moving and asked a number of questions no one seemed bothered with yesterday. It feels like she will get me answers but time will tell. The problem with living in a town with a satellite chemo unit of a major hospital is that the main parts of the hospital are some distance away and not easy to travel to with DIEP surgery. My husband is working from home this week but has needed to do so much for me I don't like to have to ask him to transport me to unnecessary places.