13-10-2018 06:19 PM
Sal glad to hear it went well. I am having the same op on the 22nd but just on one side initially. Had pre op Yesterday and an echo so looks like its going ahead this time as not heard anything today - it was postponed from the 3rd.
12-10-2018 08:43 PM
12-10-2018 07:23 PM
Many thaks for you kind replie.
Blue boob after that dye stuff they inject in. Ive gone one better I now have two new boobs, one lump removed and the other boob resized.
The whole surgery thing was so much easier than I expected. I have bin so lucky, with all my trearment so far . I don't have chemo fuzz. just swiss cheese brains, I keep losing thinggs, words , the inability to spell corectly
So many apoligies for the weired spelling etc. I was just about to type that I was looking forward to the radio, but maybe that isn' t the right thing to say.
Thanks again and good luck to all Sal
09-10-2018 09:37 PM
Hope it all goes well tomorrow, Sal.
Post-surgery, post-chemo, post radiotherapy my biggest problem now is my dreadful nails - only attached from halfway down and I think at least one is going to split across and fall off. Still got neuropathy in fingers & toes. These are tiny problems given what went before. On the plus side, I’m growing eyebrows & eyelashes. Someone told me about it’s the small things like this giving pleasure. Small? It’s huge for me. Means my body is recovering from the vile things done to it. I’m grateful for treatment but it hasn’t been very pleasant.
09-10-2018 06:15 PM
09-10-2018 05:38 PM
Hi just after a little advice, I had my radioactive injection today ready for the surgery tomorrow. They have said I will get the blue dye tomorrow , but what happens next.
I was unconcerned till now. but the wobbles have hit.
09-10-2018 03:38 PM
09-10-2018 03:16 PM
09-10-2018 03:03 PM
Also when i had my lumpectomy back in march I was told i may wake up with blue boob but i had had a nuclear injection and scan the day before which should show the nodes effected but there was no guarantee i wouldn't need the blue dye too. I also had a tomsil biopsy in the same operation and was told the inside of my mouth would be yellow so was expectiong to be multi coloured but it was just the yellow mouth
09-10-2018 03:00 PM
Hi Michelle. I have only had the muscle aches in the days after the herceptin injection followed by the joint aches throughout which means I can't find a comfortable position to sleep in. I did notice on one of the forums that someone talked about taste changes. After surgery for the DIEP i was prescribed a low dose gentel laxative to stop the strain on my tummy. I am still taking them as i am slightly constipated. Not sure which way your toilet troubles are. I agree i am not happy with this going on until April but i have an appointment with the oncologist this afternoon and i will ask what i can do. I am not sure there is a lot they can recommend.
I also need the results of the hormone blood test to decide if the ovaries are still working and if i will need zoladex with the letrozole i am due to start shortly. As the Zoladex is a 4 weekly injection and the herceptin 3 weekly it looks is if i may bee spending a lot of friday mornings at the hospital being stuck with a needle. I just want to feel normal and it just seems to be going on for ever. Having a bit of a down week but that may be due to expecting to have to have zoladex. will find out later.
On the positive side my daughter just messaged to say she had passed her driving test. The sneaky thing hadn't even told us she had had a test booked. Previously she had one booked and cancelled it as she wasn't ready. I very pleasant surprise but now i will worrying about her driving home down the M1 to see us...
Hope everyone else is coping.
09-10-2018 01:44 PM
09-10-2018 01:29 PM
02-10-2018 09:52 AM
30-09-2018 08:05 PM
Hope all goes well with the surgery, Sal. I turned to the radiotherapy board when I started that treatment but returned to this board before long. It’s only my experience but radiotherapy, while it’s no joke, is not as bad as chemo was. Good luck with your treatment (the blue dye fades eventually).
30-09-2018 06:34 PM
Hi I guess this should be my last posting here.
I finished chemo on the 10 sept and have my surgery on 10 October. At the moment I am looking forward to the blue boob, ( named Mama smurf by my daughter).
After the surgery come the radiotheropy, so I am not sure which threads to read and post on. Thank you for all the advice I have read, and good wishes to all on this treadmil.
30-09-2018 03:08 PM
It’s good to read that post-surgery is generally going ok. I love the “anything boob shaped” idea; am so grateful my left boob still looks like a boob. It’s getting sore, though, from the radiotherapy.
No more injections + port gone - must be such a relief Gigii. Not surprised you are tired. Every aspect of treatment swallows great wads of energy. I was told I would be very tired after radiotherapy and, for me, this doesn’t mean I want to sleep. It means I can’t cope with small setbacks because I just don’t have the energy. I muddle through somehow.
It’s back to the chemo ward on Wednesday for a zoledronic infusion (hoped I’d seen the back of that place for good). I imagined it would all be over once radiotherapy ended. Wishful thinking, that.
28-09-2018 07:37 PM
It does seem to take it out of us doesn't it. I went back to the gym a few times between chemo and DIEP but didn't do a lot and now i feel like my leg muscles have gone to sleep. Hoping to get back this week even if it is 20 minutes on an exercise bike.
I have a wound check on monday and hopefully get rid of the additional dressings on the unhealed bits of the wound and then the oncologist on tuesday to talk about letrozol and anything else. Hoping the blood test shows my ovaries have given up and no zoladex is needed but will wait and see.
Must be such a relief gygi to get the port out and stop injecting. I have found the herceptin aches have reduced as i have had more injections so hopefully yours will too. What have they said they are going to do in order to balance you up? Is it liposuction? I have an appointment in 6 weeks to discuss what is next. Scars don't look too scary and i bought some ordinary non wired bras today to keep me going until i know what my final size will be. I seem to have gone from a D cup to a C cup which is fine as i was told i would be slightly smaller and expected to be nearer a B cup. Anything boob shaped is fine by me.
Still not sleeping well but i am getting there. Trying to find a comfy position.
all the best to everyone and hope the energy levels improve. Great on you both for running.
28-09-2018 06:47 PM
27-09-2018 05:12 PM