Member
Posts: 588
Registered: ‎30-03-2018

Re: April 2018 Chemo Starters

Hi mustardandgrey

I didn’t suffer with fatigue but did get more tired towards the end. I had 2x FEC and 4x T. I don’t want to sound preachy as I know there is a lot of luck involved but I walked 3+ miles almost everyday of chemo and I have read that this helps with fatigue. I was very lucky with my SE’s and likecto believe the walking helped. Good luck with the remainder of your chemo x
Member
Posts: 107
Registered: ‎15-02-2018

Re: April 2018 Chemo Starters

[ Edited ]

@Dorabel - thank you!

 

It's so debilitating, this fatigue, and it just makes me feel so lazy as I've lost the oomph to do anything really once it hits.

And congratulations on completing chemo xx

 

Member
Posts: 127
Registered: ‎16-01-2018

Re: April 2018 Chemo Starters

[ Edited ]

Hello Mustardandgrey 

 

Don’t know if this helps.  I’ve just  had my last docetaxel (3rd of 3, 6 chemos in all) and the side effects have intensified.  For two days it wasn’t so bad, then I turned into a shuffling wreck.  The fatigue is unbelievable. I’ve worked out that, even after the week and a half it takes to get back to some sort of normality, I can do one thing in a day and then I have to go to bed, just as you describe.  It’s not the same for everyone and I hope you have a better experience.  I’m buoyed up by knowing that the hated chemo is finished.

 

Waiting for surgery on the 16th must be very hard, Michelle.  It doesn’t help when appointments don’t go to plan (I was being given the runaround last time at the hospital and told them Alzheimer’s descends on me the moment I step through the door).  It’s a shame there was no acknowledgement that you were having your last chemo.  It’s a huge landmark after what we have been through, even if it’s just the daily grind in the ward.

 

I’m surprised they didn’t take blood from your port, Christine.  You made it clear that you had had surgery and staff at a cancer hospital are supposed to know what they are doing.  I always had to ask for blood to be taken from my picc but that did happen.

 

I’ll be thinking of you on the 14th & Michelle on the 16th.  

 

Member
Posts: 107
Registered: ‎15-02-2018

Re: April 2018 Chemo Starters

Hello, Ladies!

 

I've just popped over from the May '18 starters.

I've had 5 out of 6 sessions so far - 3 x FEC and 2 x Docetaxol, and the final session is on 20th August.

 

Side effects wise, most seem confined to the first 7 days or so, but in the last month I've just been more and more tired and the last week or so even the smallest things are wiping me out later.

I wash the dishes and - bang - shattered!

I go for an appointment/coffee with friends and - bang - I come back and sleep solidly for two hours!

It happened again today after just a couple of hours out shopping.

 

So I was just wondering if this amount of fatigue is just a normal part of coming to the end of chemo?

As it's gradually got worse each cycle.

 

Sarah xx

 

Member
Posts: 149
Registered: ‎19-04-2018

Re: April 2018 Chemo Starters

Firstly sorry i got my message wrong yesterday as i forgot that Fiona stopped chemo. 

 

Michelle it must be a worry for you too and yes i am trying to keep myself busy and my mind of it all. I plan to do a cleaning blitz on Monday and have advised my husband to keep his distance as he will be shouted at but he knows what i get like when i am worried so he will be ok. Glad the Herceptin went well too and all the best.

 

Member
Posts: 588
Registered: ‎30-03-2018

Re: April 2018 Chemo Starters

Hi Christine, I had my first herceptin injection yesterday. She administered it very slowly and it wasn’t stingy at all thankfully. However last night and still this morning my leg feels bruised and stiff in the area of the injection, There aren’t any marks or bruises on my leg. Have you had this? If so how long does it last?
Sorry to hear you have so much on your plate with family worries. I’m sure it doesn’t help with the nerves. I’m feeling pretty scared myself especially as it is my first op so I’m not sure I can offer you much comfort. For now I’m trying not to think too much about it. X
Member
Posts: 149
Registered: ‎19-04-2018

Re: April 2018 Chemo Starters

I went for my herceptin injection today and a different nurse gave it and the sting was much less. Not sure if it was just that my body is more used to it or she may have just administered it slightly more slowly. I mentioned the blood tests taken from my arm after i had told them i had had surgery in both arms and was told it shouldn't have been done. One of the hospitals is linked to the one i went to today and it was decided that they needed to report it and some re training would be needed. Apparently they should only use my arm if i give permission and sign a consent form. It was in a cancer hospital so there must have been some one there trained to use my port or failing that it should have taken from my foot, as it has been done twice before.

 

Hope those who have finished chemo are enjoying it and that Fiona is counting the last few weeks to the end. I think you still have three weeks to go as you said end of August but I may be wrong or things may have changed. My chemo brain still seems to make my memory bad. I need to write down my questions for doctors etc or i forget them.

 

Yes my op is next tuesday (14th) and I am scared. I have the added stress of my elderly father having a hip replacement a couple of weeks ago and my mother being frail. A new emergency call system when she falls failed on its first need but luckily she found the manual emergency button to call for help. My sister is dealing with it together with her sick dog and a mother in law with early stages of dementia. she is stressed and i can do nothing to help.  

 

All the bset for the 16th Michelle and hope you are feeling better Gygi.

xxx

Member
Posts: 588
Registered: ‎30-03-2018

Re: April 2018 Chemo Starters

I love the battery acid description Dorabel! I’ve still got that going on but unfortunately it’s not slowing down my eating! I glad your unit gave you a little cheer, no when said a word to me in mine, not even to wish me luck which was a little disappointing. Never mind I was just glad it was done. I have radiotherapy too, in about 6 weeks time.

I have had my pre op assessment today, apart from a lot of waiting around in the wrong place for an hour as the trainee Dr had gotnit wrong, it went well. I feel more prepared for 16th.

Am I right in thinking your surgery is on 14th Christine? Good luck with it and let us know how it goes.

Hope everyone feeling fitter x
Member
Posts: 127
Registered: ‎16-01-2018

Re: April 2018 Chemo Starters

It’s great that we’re all through chemo now.  There was a little cheer for me yesterday when I went out of the ward punching the air.  There’s still radiotherapy & hormone therapy to come but this horrible chemical poisoning is done.  (Just sore hands & feet, food tasting like it’s been cooked in battery acid, fatigue for a week or two.)

 

Good news about your pre-op examination, Christine.  I hope the nightmares fade & you get more restful nights.  It’s a lovely feeling to get rid of the paraphernalia of chemo delivery, even when having it has been helpful.  You must be glad your port is going.  I was extremely grateful for all the pain I didn’t have to endure because I had a picc line but I like having my arm back.

 

I hope the UCAS information helps, Michelle.  You have enough to be going on with as it is.  Good luck to your daughter; I hope all her hard work (and your support) have the best outcome.  Most of all, I hope your surgery goes brilliantly on the 16th.

Member
Posts: 588
Registered: ‎30-03-2018

Re: April 2018 Chemo Starters

Good that your pre op assessment is done Christine and that it all went well. I hope you get to grips with the injection. I have my pre op tomorrow, I feel a bit nervous, I don’t know why, probably because I still don’t feel comfortable in hospitals despite the amount of time I’ve spent there in the last few months!
You are right Christine UCAS do release the university acceptance early, usually by 8am. That will be great as long as she gets a good result. I just have to face there is nothing I can do about it now.

We have all had our last chemo’s now and are coming out the other side. Three great big cheers for us! HIP HIP HOORAY!! X
Member
Posts: 149
Registered: ‎19-04-2018

Re: April 2018 Chemo Starters

Great news Dorabel. Time to move on from that time and get your body back to being more normal.

 

Michelle as far as i remember the UCAS site allows you to access the University acceptance before the results are provided. My daughter did hers a few years ago so it may have changed but all the best anyway. Always a traumatic time and i hope it is good news. That will also give you something to concentrate on other than the surgery.

 

I had my pre op assessment today and all seems good. Lots of waiting around and I also I had to have a before photo taken on my breast and tummy. I was going to do that for my own records anyway. It does make everything feel very real and I am already having the nightmares and sleepless nights but it is raining so perhaps cold weather help.   I have a blood thinner to inject which goes into the fat in the top of my leg. I guess i will only know when i do it how it works but it is not easy to pinch enough fat to inject straight down. I am sure i will sort it. Looking forward to getting rid of the port too.

 

I thought blood wasn't suppose to be taken from my arms but two hospitals have now insisted on doing this. Anyone else had that?

 

All the best to everyone. 

Member
Posts: 588
Registered: ‎30-03-2018

Re: April 2018 Chemo Starters

Winter is a long way off Dorabel, get through the next 3 weeks and then everyday you will feel a little bit better and a bit more like you again. You will be wearing boots for winter! Is chemo the end of treatment for you? X
Member
Posts: 127
Registered: ‎16-01-2018

Re: April 2018 Chemo Starters

Thanks for this kind message, Michelle.  I still feel euphoric, even though the expected side effects have started.  

 

What a shame your next appointment is on the 16th.  I hope your daughter’s results are good so that she is happy when you get back from the hospital.  This treatment makes few concessions to ordinary things, like living.

 

I’m impressed by the park run.  My knees aren’t up to running any more but I do enjoy walking.  My hands and feet have started hurting and I’m wondering if I’ll still be wearing sandals in the snow since closed shoes are too painful.  Don’t care any more.  Picc line gone, gym soon, swimming even.

 

Hope all goes well on the 16th.

Member
Posts: 588
Registered: ‎30-03-2018

Re: April 2018 Chemo Starters

Great news Dorabel, it’s a lovely feeling starting to get yourself back isn’t it? I hope today runs smoothly and the next couple of weeks too.

I have been given 16th August as my date for surgery. This is the worst date for me as my youngest daughter will get her A Level results then. She’s already had to go through revision and exams with me going through all of this.
Ive managed to delay being admitted from 7.30am to 9am so if she gets into her chosen uni at least I’ll know beforehand but if not I will be leaving my husband to sort it all out, and my daughter will be upset. I will just have to keep my fingers crossed tightly.

Other than that feeling good, I even went for a run on Saturday. I did a local parkrun. I couldn’t run the whole 5k but didn’t do too badly. I will try and run a few more times before 16th. Even though I managed to run I have noticed I’m a lot more tired this cycle but hopefully that will get better.

I hope every else is doing well xx
Highlighted
Member
Posts: 127
Registered: ‎16-01-2018

Re: April 2018 Chemo Starters

Yaay!!  Last chemo today.  Even though I know what’s coming, I still feel euphoric.  Picc line gone (I’m grateful for having it but glad it’s out).  Am already wondering when my hair will start growing back.  It’d be nice to look in the mirror and recognise myself rather than the hairless hobgoblin I see at the moment.

Member
Posts: 588
Registered: ‎30-03-2018

Re: April 2018 Chemo Starters

Thanks everyone! Enjoy the wedding Jencat and meeting up with the Oct ladies.
Christine to celebrate we are planning to go to the Cotswolds on Sunday for a peruse around the shops and lunch x
Member
Posts: 69
Registered: ‎17-03-2018

Re: April 2018 Chemo Starters

Michelle that is the best news... Really wonderful to hear that.
Thanks all for your kind support with this pain and Christine, that's really helpful on the endocrine experience, thanks. As the nurse said yesterday, it's your chemo and it's preventative for belts and braces but if it's impacting the healthy me then I should go with the onco and stop as I've had a lot already. So, that's what I'm going to do.
Next stop radiotherapy then endocrine.

Hope the sickness has subsided Gigi and enjoy the wedding jencat.. It's a lovely day for it

Have good day all and thanks as ever for being such a great group x
Member
Posts: 149
Registered: ‎19-04-2018

Re: April 2018 Chemo Starters

Great news Michelle about the shrinkage in the tumours. You must be so relieved. Surgery does sound soon after the chemo but i am sure you will feel so much better to have the lumps removed that the sooner the better. Hope you have something nice planned for the weekend as a small celebration for how well you have done.

 

All the best to you all 

Member
Posts: 1,750
Registered: ‎21-06-2017

Re: April 2018 Chemo Starters

So pleased to hear your good news Michelle Smiley Happy x

Thank you for your pm x I will reply to you soon x I'm off to a wedding today and tomorrow a group of us from the Oct thread are meeting up! Smiley Happy x

Member
Posts: 127
Registered: ‎16-01-2018

Re: April 2018 Chemo Starters

That’s great news, Michelle.  Horrible chemo worth it!