12-08-2018 08:27 AM
11-08-2018 08:56 PM - edited 11-08-2018 08:57 PM
@Dorabel - thank you!
It's so debilitating, this fatigue, and it just makes me feel so lazy as I've lost the oomph to do anything really once it hits.
And congratulations on completing chemo xx
11-08-2018 08:07 PM - edited 11-08-2018 08:08 PM
Don’t know if this helps. I’ve just had my last docetaxel (3rd of 3, 6 chemos in all) and the side effects have intensified. For two days it wasn’t so bad, then I turned into a shuffling wreck. The fatigue is unbelievable. I’ve worked out that, even after the week and a half it takes to get back to some sort of normality, I can do one thing in a day and then I have to go to bed, just as you describe. It’s not the same for everyone and I hope you have a better experience. I’m buoyed up by knowing that the hated chemo is finished.
Waiting for surgery on the 16th must be very hard, Michelle. It doesn’t help when appointments don’t go to plan (I was being given the runaround last time at the hospital and told them Alzheimer’s descends on me the moment I step through the door). It’s a shame there was no acknowledgement that you were having your last chemo. It’s a huge landmark after what we have been through, even if it’s just the daily grind in the ward.
I’m surprised they didn’t take blood from your port, Christine. You made it clear that you had had surgery and staff at a cancer hospital are supposed to know what they are doing. I always had to ask for blood to be taken from my picc but that did happen.
I’ll be thinking of you on the 14th & Michelle on the 16th.
11-08-2018 06:18 PM
I've just popped over from the May '18 starters.
I've had 5 out of 6 sessions so far - 3 x FEC and 2 x Docetaxol, and the final session is on 20th August.
Side effects wise, most seem confined to the first 7 days or so, but in the last month I've just been more and more tired and the last week or so even the smallest things are wiping me out later.
I wash the dishes and - bang - shattered!
I go for an appointment/coffee with friends and - bang - I come back and sleep solidly for two hours!
It happened again today after just a couple of hours out shopping.
So I was just wondering if this amount of fatigue is just a normal part of coming to the end of chemo?
As it's gradually got worse each cycle.
11-08-2018 10:38 AM
Firstly sorry i got my message wrong yesterday as i forgot that Fiona stopped chemo.
Michelle it must be a worry for you too and yes i am trying to keep myself busy and my mind of it all. I plan to do a cleaning blitz on Monday and have advised my husband to keep his distance as he will be shouted at but he knows what i get like when i am worried so he will be ok. Glad the Herceptin went well too and all the best.
11-08-2018 08:12 AM
10-08-2018 03:02 PM
I went for my herceptin injection today and a different nurse gave it and the sting was much less. Not sure if it was just that my body is more used to it or she may have just administered it slightly more slowly. I mentioned the blood tests taken from my arm after i had told them i had had surgery in both arms and was told it shouldn't have been done. One of the hospitals is linked to the one i went to today and it was decided that they needed to report it and some re training would be needed. Apparently they should only use my arm if i give permission and sign a consent form. It was in a cancer hospital so there must have been some one there trained to use my port or failing that it should have taken from my foot, as it has been done twice before.
Hope those who have finished chemo are enjoying it and that Fiona is counting the last few weeks to the end. I think you still have three weeks to go as you said end of August but I may be wrong or things may have changed. My chemo brain still seems to make my memory bad. I need to write down my questions for doctors etc or i forget them.
Yes my op is next tuesday (14th) and I am scared. I have the added stress of my elderly father having a hip replacement a couple of weeks ago and my mother being frail. A new emergency call system when she falls failed on its first need but luckily she found the manual emergency button to call for help. My sister is dealing with it together with her sick dog and a mother in law with early stages of dementia. she is stressed and i can do nothing to help.
All the bset for the 16th Michelle and hope you are feeling better Gygi.
08-08-2018 04:50 PM
07-08-2018 11:12 PM
It’s great that we’re all through chemo now. There was a little cheer for me yesterday when I went out of the ward punching the air. There’s still radiotherapy & hormone therapy to come but this horrible chemical poisoning is done. (Just sore hands & feet, food tasting like it’s been cooked in battery acid, fatigue for a week or two.)
Good news about your pre-op examination, Christine. I hope the nightmares fade & you get more restful nights. It’s a lovely feeling to get rid of the paraphernalia of chemo delivery, even when having it has been helpful. You must be glad your port is going. I was extremely grateful for all the pain I didn’t have to endure because I had a picc line but I like having my arm back.
I hope the UCAS information helps, Michelle. You have enough to be going on with as it is. Good luck to your daughter; I hope all her hard work (and your support) have the best outcome. Most of all, I hope your surgery goes brilliantly on the 16th.
07-08-2018 10:21 PM
07-08-2018 09:15 PM
Great news Dorabel. Time to move on from that time and get your body back to being more normal.
Michelle as far as i remember the UCAS site allows you to access the University acceptance before the results are provided. My daughter did hers a few years ago so it may have changed but all the best anyway. Always a traumatic time and i hope it is good news. That will also give you something to concentrate on other than the surgery.
I had my pre op assessment today and all seems good. Lots of waiting around and I also I had to have a before photo taken on my breast and tummy. I was going to do that for my own records anyway. It does make everything feel very real and I am already having the nightmares and sleepless nights but it is raining so perhaps cold weather help. I have a blood thinner to inject which goes into the fat in the top of my leg. I guess i will only know when i do it how it works but it is not easy to pinch enough fat to inject straight down. I am sure i will sort it. Looking forward to getting rid of the port too.
I thought blood wasn't suppose to be taken from my arms but two hospitals have now insisted on doing this. Anyone else had that?
All the best to everyone.
07-08-2018 11:43 AM
07-08-2018 10:22 AM
Thanks for this kind message, Michelle. I still feel euphoric, even though the expected side effects have started.
What a shame your next appointment is on the 16th. I hope your daughter’s results are good so that she is happy when you get back from the hospital. This treatment makes few concessions to ordinary things, like living.
I’m impressed by the park run. My knees aren’t up to running any more but I do enjoy walking. My hands and feet have started hurting and I’m wondering if I’ll still be wearing sandals in the snow since closed shoes are too painful. Don’t care any more. Picc line gone, gym soon, swimming even.
Hope all goes well on the 16th.
06-08-2018 03:50 PM
06-08-2018 03:37 PM
Yaay!! Last chemo today. Even though I know what’s coming, I still feel euphoric. Picc line gone (I’m grateful for having it but glad it’s out). Am already wondering when my hair will start growing back. It’d be nice to look in the mirror and recognise myself rather than the hairless hobgoblin I see at the moment.
03-08-2018 08:26 PM
03-08-2018 02:58 PM
03-08-2018 12:29 PM
Great news Michelle about the shrinkage in the tumours. You must be so relieved. Surgery does sound soon after the chemo but i am sure you will feel so much better to have the lumps removed that the sooner the better. Hope you have something nice planned for the weekend as a small celebration for how well you have done.
All the best to you all
03-08-2018 11:45 AM
So pleased to hear your good news Michelle x
Thank you for your pm x I will reply to you soon x I'm off to a wedding today and tomorrow a group of us from the Oct thread are meeting up! x