05-04-2018 05:11 AM
Sorry Kentishhop again just blurted out my anxieties and didn’t even introduce myself! I am a bit of a techno dinosaur and have never been on a forum before!!
i was diagnosed in November and had a lumpectomy in December, unfortunately I did not get a clear margin so had another op in February. I feel I have been waiting ages for chemo but now the date has arrived I am very anxious. First fec-t is on April 11th. Would love to hear tips on surviving chemo. I have decided to shave off my hair after the first treatment ( many of my friends are horrified) as I feel this will allow me a bit of control as I don’t think I could handle it falling out in handfuls, also husband jokingly said he didn’t want to wake up with a beard!
I will also be having a Zometa infusion with first treatment.I would love to hear from others having same treatment.
wishing all you lovely ladies starting your treatment this month all the very best,
05-04-2018 03:32 AM - edited 05-04-2018 04:05 AM
As I lay here in my (probably) dexamethasone induced insomnia I thought I’d give the story so far 36 hours into my first FEC cycle. I’m on pre-adjuvant 3 FEC, 3T started Tuesday 3rd afternoon. The scariness was immeasurable for me on Tuesday morning and I hardly ate anything but once I get started and the pre-chemo steroid kicks in, I got hungry so advise to take some snacks. My anti-emetic is Akynzeo - so far bit of headache. I have metoclopramide as backup if needed. Having read threads here I also had 2L of fuid day before, again on Tuesday and yesterday. Plumps the veins and since it’s daily general health recommendation, I will continue anyway.
Had a meal when I got home and OK night except for insomnia (I’m not a great sleeper anyway so used to it) and hunger in the night. What I found that worked for me on Wednesday was frequent small meals / snacks. I ate every 2-3 hours. Again, probably dexamethasone but as soon as my stomach rumbled I ate, if I don’t eat I get queasy. I even have a bag of crisps on my bedside table in case I need them - other half might not like the crunching but hey .......
Couple of other minor things (so far), eyes a bit sticky when I do sleep so using gel tears night and morning, and using a chapstick lots of times a day to help with dry mouth. I went for a 20 minute walk yesterday but also rested when i needed to - get those standby boxed sets downloaded!
Didn’t do cold cap. My attitude is if it’s a side effect necessary to beat cancer, so be it. That said, when I shave it off in a few weeks I might feel a different emotion. We’ll see.
Later today I start the GCSF injections. Co-codamol was recommended to me if needed for pain relief. We’ll see how it all unfolds over the coming days.
Sorry for the long post but hopefully somebody will find something useful.
04-04-2018 09:15 PM
Hi NoahandWillsMummy, I'm from the Oct thread. I've finished chemo and now waiting to start radiotherapy. I teach in a school, 4-7 year olds and my oncologist wouldn't let me work during treatment (I'm still signed off) because of the risk of infection, so yours will probably say the same and I think you're right about not being at school during SATs anyway!
Hope your appointment goes well next Tuesday x
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