Hi absolutelyannie, docetaxel can vary from person to person, i found it softer on my veins, it finished off my eyebrows and eyelashes and even though I’d painted my fingernails and toe nails with black nail polish, I lost my little toe nails and my big toe nails went a bit strange too but I luckily managed to hold onto them, other ladies have used an oil to rub into their cuticles that has helped them keep their nails, I’m sure someone will be Along with tips. The docetaxel gave me a very squirty botty, so I got plenty of bread at the ready to help stop that, other ladies get bunged up with docetaxel. A lot of ladies used Epsom salt baths to help with aches that docetaxel can give you and udderly smooth with extra urea from Amazon was the only thing that helped with dry skin on hands and feet for me, it was a tip that beautiful tatyana gave us oct17 girls. Sometimes docetaxel can cause a bit of a reaction, I just want to let you know don’t worry if it does, it can be a bit 😳😳😳if it does (it happened to me on my 2nd one) but your team will be on it straight away and will keep you safe. I went back on fec for my 6th Chemo and another lady I know who had it happen after her 1st went on abraxane, your onc will know what to do because all chemo is for each individual. I hope this helps your darling ❤️❤️💕💕✨✨✨Shi xx
I wondered if anyone was on EC. also how did people find Docetaxel. I am presently on Epirubicin and cyclophosphamice but due to change over to Docetaxel. would love to hear anyone else experience
Dear Jayne I have been thinking a lot about you, I don't know what to say. Thank goodness your daughter survived and hopefully you can bring her home soon. Take care!
Hi Jayne, my heart goes out to you at this very difficult time, and I am sending good wishes to you both. Of course the Crisis team will need to talk to your daughter, and she will probably have to have a psych evaluation to ensure she is not a danger to herself again. She is safe and in the right place, so In the meantime I think you need some support for yourself. It's good you can come on here, but I wonder if you are able to access a Macmillan centre, or a Maggies place where you can have some private physical contact? This forum is an open arena. When I was struggling my Onco got me sorted with a psychologist to try to reduce my high levels of anxiety. Stress isn't good for cancer, so could you try that route? You don't say what is the root cause that precipitated your daughters action, and I think until this is discovered you are in limbo. In the mean time, know that we are all here for you. X
Jayne 😘😘sorry to hear about your daughter, I hope she is going to be ok and you get in place support and all the help you need from the professionals . You have us here at bccf for you, we can 👭👭be here for you 💪💪you are not alone ❤️❤️You are a bccf gal and we love and support each other always. Dikat you are beautiful with or without wig, but it’s a blooming brilliant one you got, Jayne please keep us posted but remember this forum is open to the world to read 😘😘💕💕✨✨Shi xx
I'm catching upp, too, and have only read a couple of posts so far. I just had to step in and say something to you because it's awful to see you feel so alone and as if you are not coping.
I thought I was OK (but now I know I was actually angry) when I started Chemo and I had not cried or anything at all since my diagnosis in September 18 and this was December at that point, when I had had surgery and was starting Chemo.
I went to a drop in centre for cancer at my nearest town's 'cottage' hospital (not the hospital where everything is done -which I hated and still do) and saw a helper there and she was brilliant. I broke down and we talked for 1 1/2 hours! After that, it was pretty much all going uphill instead of downhill to rock bottom.
So, try to find a professional group - in your area - it will be so much easier with someone you don't know but who is a professional and knows how to help. Lots of hugs! XX
I’m so sorry to hear this. This would be difficult to deal with at any time, never mind now. The teenage years are so difficult. Sending you, your daughter and all of your family love and strength xxx
At Birmingham children's with my 15 year old. She has taken an overdose but should be fine. Waiting on test results as she doses. Crisis team coming to talk to her in a bit. Trying not to cry. To stay strong. Shouldn't even be here with all the germs. Kids have to come first. Always. Not sure how much more I can deal with.
Hi drummers widow, sorry you had that experience at m&s you should feed that back to the store. Perhaps the lady thought she was helping you by being so caught up in her experience through everything she forgot it was you that mattered at that moment in time and I’m sure she would be horrified if she knew how you now feel. Cat lady ❤️❤️Think of yourself as a beautiful butterfly, this is the chrysalis stage and once chemo is through you and flex those new wings and watch them transform week by week as you claim back you day by day 💪🏻💪🏻💪🏻You are all doing amazing 👭👭👭and beautifully looking after each other 😘😘have you all managed to get your look good feel better sessions book through your Macmillan’s? 💕💕✨✨shi xx
Good on you for doing that sounds like it will really help give you something positive to focus on and keep you occupied and at the end some beautiful jewellery and skills ☺️
Hi Catlady, it is not through MacMillan or something like that. The studio is around the corner from where I live and it was always in the back of my mind to do this workshop. Today I decided to walk in there and book a place. I am glad I did! I can focus my mind on a design now because I don't have one yet. I also bought a jewellery making kit from Amazon to do something with the seaglass I have been collecting.
Hi Dikat, no I had any antisickness meds injected iv on the day right before the fec and odansetron to take at home for 2 days...x
Where did you book your jewellery course through was it something like breast friends or macmillian? I could do with something to keep me occupied but wouldn't know where to look x
I booked a 1-day jewelry making workshop for next week. A little treat for myself and something to look forward to.
Yes my chemo is changing next dose. They didn't say anything about taking steroids prior. I do have an appointment with the Oncologist 2 days before next treatment on the same day as I get bloods done so will ask about it then. Have you been taking Aprepitant prior to your other treatments and if so do you still have to take that the day before? X
Hi Drummerswiddow I also had lot of problems with bras post surgery. I had a reconstruction, before surgery I went to M and S the sports bra was measured but it was far too small for me and so uncomfortable I thought I would pass out after surgery. I have now found lovely bras on the Miss Mary of Sweeden web site. They are not cheap but very well made and comfortable. They have wide padded straps and supportive cups. I don't have big boobs only 36c but these bras have given me a lovely shape they support your underarm area as well which is needed following lymph node surgery. I would highly recommend this website to everyone.
I do think this time of year is not helping I would love a good walk but I haven't been out as it's been so cold out lately. I know when spring appears and we have abit of sunshine I will feel better and will lift my mood.
And I probably could phone my old bcn nurse and ask her advice and tell her I haven't been given a new nurse. I was hoping at my appointment with my oncologist I could mention these things but it got postponed. That's good advice I might just do that.
And drummers widow sorry you had a bad experience of your bra fitting its put me off going somewhere like that when my time comes . Sounds horrible I think you deserve to treat yourself to something new to make up for it.
Sending big hugs to everyone on here xxx
I too am getting chemo post surgery.....was told all along I wouldn't need it as they got clear margins and no lymph node involvement....then a call out of blue to say yep.....need it! Seeing oncologist next wed.....what a sucker punch....
Just out of curiosity....was your husband military? I do hope it all goes as well as it can for all of us.....what a rollercoaster.....xxx
It seems that that most of you are having chemo prior to surgery. I had my mastectomy first and lymph node clearance. My tumour was bigger than they thought 6cms instead of 4 and 17 out of 26 nodes affected. I have an invasive tumour.
I went for my pre chemo assessment. I’m starting to have a reaction to the dressings on my PICC line. Got a different one on and that doesn’t feel too good. They’re going to get someone to see me to have a chat about things. The two nurses were lovely.
Went to M&S at Bluewater for a bra fitting. The lady had had breast cancer and is waiting for reconstruction. I’m not sure she’s got a silicone boob by the way she was shoving my prosthesis into the pocket in the bra. I thought she wa going to burst it! I ended up buying two bras which I’m not sure about but I couldn’t wait to escape. Not a good shopping experience 😟. I may try a more specialist fitter.
H Dikat, no I just get 4 T (just!🤦🏼♀️), yes it is still dexamethasone but unfortunately it is double what I have had for fec which is why I refused to take them until the results are in. However it may be different if you are having H & P too. Is your chemo changing for the next dose or the one after, as I was given the dex in with my last fec drugs bag so I was primed to take them the day before T? X
Thanks for your reply. Yes, I guess it is a positive that we are getting the chemo out of the way first. Are you having H&P with your T and how many? Sorry if you've said before...chemo brain definitely kicking in. I agree with you about not taking the steroids before knowing your bloods are ok. What dose do you have to take the day before and is it still dexamethasone? Xx
Morning girls, looks like we are all struggling emotionally to some extent, which is only to be expected with everything we are dealing with. We all know that mental health is affected by our physical health so both are taking a battering at the moment. I also think that this time of the year doesn’t help with short, dark, cold days - sunshine and warmth makes everything seem better or is that just me?
Catlady, can an you talk to your original bcn and ask her advice (different hospital but same nhs) re getting a new bcn and support.
Dikat, I understand your worries and really wanted surgery first but as my lymph glands are also affected am now grateful to get things mopped up but also to get chemo out of the way. I assume you did have some response to your first chemo which is good news. I was told not to worry if it didn’t appear to reduce too much as it can be dying inside but still leaving the shell. If you are moving onto THP next dose it will work in a different way and hopefully give the response that you are looking for. I presume you are examined each cycle and the your onc would have changed things up if they were worried.
i have also been told that if your body doesn’t cope well with fec that you often do better on T so here’s hoping! I should have had my first T yesterday but my bloods on Tuesday weren’t good enough, they wanted to retest on Wednesday and carry on but as you have to start steroids the day before T and I don’t like the steroid effects I refused to take them until I know my bloods are good enough so now been postponed til next Wednesday. Interestingly, the palpitations that I was having all week immediately reduced so I guess they were caused by the T anxiety😳
My eyes leak occasionally but I haven’t really let go either, but I think as women we tend to just keep putting one foot in front of the other until the worst is over and then the reaction kicks in. Reading earlier forums this seems to be quite common. I keep being told how good I look and how well I am coping but while I appreciate the compliments (and their surprise😂) I always think that’s because you don’t see me first thing in the morning (before the hair, eyebrows and makeup go on) or when I am feeling really rough!
Its February today so Spring and warmer days are coming and until told otherwise I am treating this 🤬 as just another season to get through.
Sending love, hugs and sunshine to all xx
To all the lovely ladies on here, firstly you have all helped me....I know you may not realise it but you have. You have all taught me that what I am feeling is normal. Yesterday was just a horrible day.....so many doubts.....too much time on dr google......too many thoughts spinning around my head. At times I thought I might go mad, I have had the mother of all headaches since I was told I need the chemo route....
I don't want to keep burdening my family on how I feel, so I try and down play it all....they all think I am being very brave but I just want to shout back...if only you knew!!!
This forum helps me get it all out, and I know you all get it....I think we all qualify on here to just splurge it out...safe in the knowledge that we won't offend or upset anyone as we all totally get it.....
so...come on my little swans....let's keep paddling......I love you all....xxxxx
I have depression, had it 27 years. Been good past 7 years on meds. Surprisingly perhaps, being diagnosed with breast cancer and all the treatment hasn't affected my mood at all so far. I've been fortunate in terms of chemo side-effects so far, but being depressed was much much worse than all the cancer crap.
I haven't cried since diagnosis (except at work when my line manager said 'it has been a busy week for all of us' when I asked for time off to compenaste for overtime, I did not get it). I have not been sad, depressed or in a panic either. Maybe I am in denial but I do not worry about this because I have plenty else to worry about and stress does not help recovery. Everyone is different.
Thanks for replying Diktat
It's good to know what I'm feeling is quite normal I'm glad I shared my feelings on here it's definitely helped.
I feel exactly the same way as you at the moment my lump hasn't shrank from my second chemo so that's worrying me as my lump is large and I wonder if the chemo is working and like you it's in my lymph nodes too so constantly worrying if it's spreading. Every little ache I'm getting in my chest worrys me and before my diagnosis I was not a worrier! I too will be having a mx after chemo.
I think if I could tell my lump was shrinking and was further along maybe I would feel more confident but as my other half said it's still only early days and I have only had 2 chemos.
It's hard not to worry I did check out last night my hospital does have a macmillan 3 times a week so I will book an appointment and speak to them.
I like what you said about the Swan analogy I definitely try to look calm and as if I'm in control to the outside world but I'm padding like crazy understand. I think alot of us are.
I haven't cried much since my diagnosis I try and just get on with it but it builds up and I just end up crying and I can't help it!
I worry you haven't cried yet as it's a natural release and as much as I hate crying especially in front of people it does help at the time. You do need to let it out too.
Hopefully your next round of chemo will be better and hopefully not as many side effects I did read that if one lot wasn't very kind on your body the other type should be better you usually take to one better then the other not sure if that's true but hopefully you won't be as bad on THP
Hope you have a good day today and sending you hugs and best wishes x
Keep smiling ☺ xxxx
Firstly, thank you so much for your kind comments about my wig.
I'm sorry to hear you are struggling and echo what Shi and Drummerswidow are saying. It must be so disappointing to have your chemo delayed due to an administrative error. It's bad enough when it's due to bloods being low, but at least you can get your head around that it's for health reasons. Just try and hold onto the fact that many of us do suffer delays and although it's a pain, it's not detrimental overall. I got told by Macmillan nurse it would be good to see a counsellor because they think my palpitations could be down to stress. Imagine that, who wouldn't be stressed in this situation! She said it would be quite a wait to see a psychologist at my local hospital so recommended I go to Castle Hill at Hull where you can just drop in. Unfortunately I haven't made it yet as only had about 5/6 days of feeling normal after last chemo. It's about a 50 min/1hr motorway drive from me and because I have dizzy spells with low BP didn't fancy driving myself and unfortunately nobody was available to take me in that slot. Hopefully will try and get this month.
Please speak to someone at your local hospital, they must have something in place for you. Don't ever feel you are letting your family down with all your fears, it's totally natural to feel the way you do.
Like so many on here, I'm struggling too. I thought I would be happy to be half way through the chemo but feel so anxious about moving onto THP even though FEC hasn't been kind! I'm also thinking I have made a mistake having chemo first because leaning towards mx rather than lumpectomy. Because it's in my lymph nodes I'm convincing myself it's spreading everywhere and because there doesn't appear to be any shrinkage in my lump after chemo 2 that it's not working. What's also worrying me is that I haven't really cried since diagnosis in November. I've filled up a few times when a friend has given me a hug but not had a good cry.
When I had my chemo Wednesday I think the nurse had a good analogy. She said I must be a swan because I appear calm but must be paddling like mad underneath. I do use this forum a lot as I feel that getting my feelings on here is perhaps my substitute for having a good cry and you ladies are such a supportive bunch. I have some great family/friends who try their best to support. A friend messaged me last night and said lose myself in a Netflix series whilst feeling rubbish. It was well meant but don't know about everyone else but struggle to concentrate on anything.
So, sorry to rant Catlady37 but totally understand how you feel. We are all here for you but please seek out some additional support.
Sending hugs xx
Thanks for replying drummers widow
I'm sorry to hear your struggling too it's so hard everything that we have to deal with
I think that's what I need someone to talk things through and to listen how I'm feeling as some things I don't want to way my family down with all my fears. And as much as they try they really don't understand what I'm going through. I do find this forum a great help I do feel like I need more it's taking that first step of getting help I suppose knowing what to say....
I would recommend a good cry if you can it does help for a short while!
Sending you big hugs too xxxx
I agree with everything Shi says. I am struggling too. I got onto these guys and I have a lady from Someone like you phone me occasionally. It’s good to talk to someone who has been through the same thing. They try and match you with someone who is the same age and the same diagnosis/treatment. I feel I need something more so am going to talk to my MacMillan nurse. I’m up at the hospital for my pre chemo check and they have a chaplain in the chemo unit. I’m not religious but he’s a good listener. I like you have just gotten on with it. I think I should have had a good cry.
Sorry your chemo is being delayed. That’s a real bummer! Especially as it’s an administrative problem! I hardly see my Oncologist as they are based at another hospital. We are all struggling down a very rocky road. Everything you’re feeling is normal. Sending you a big hug xxxx
Thank you Shi for replying to me
I thought I was strong every one thinks I am but I feel like I'm crumbling inside because I feel I'm in limbo at the moment I've got all the fear and anxiety of all the what if's and is my chemo treatment working so far!
I don't currently have a BC nurse when I was fast tracked they put me onto a near by hospital with a really nice BC nurse then just before my chemo I got transferred to a nearer hospital as it closer to where I live and I haven't been given a new BC nurse since I've started chemo.
My hospital haven't really given me any advice or offered me anyone to talk to I'm not sure if there is a Macmillan at my hospital as I haven't seen anything apart from the leaflets they send you home with.
I like the sound of therapy with horses I love animals that's an idea I could look into. I'm based in staffordshire.
I do feel slightly better for having a good cry and letting it out. My other half thinks I need to speak to someone. I also feel better for just writing it down and getting it off my chest instead of bottling it all up. Thank you for your kind words and support they really help xx
Hi cat lady 😘😘my beautiful lady all that you are feeling is very understandable on this journey, your hurtling round in a hurricane and not feeling in control of anything. 👭👭you are in control though it’s just hard to see that you are on some days more than others, I’m sure we’ve all been there, even the 🥊🥊🥊💪🏻💪🏻💪🏻Ones, there is the someone like me option on here that could enable you to speak to someone who will understand and be able to listen and help you. Also your local McMillan, do you have a McMillan office at you.r hospital, pop in they are always so very kind and supportive, speak to your bc nurse, they are there to support you along this journey with care and love and can help if you feel you want some counselling. If you are in Derbyshire you can get 4 free sessions through McMillan at the EAAC spirit and soul which does therapy with horses, if you would rather be in the open air and not in a room environment. I found having a cry when I needed too very helpful because it got some of whatever it was that needed crying out, out of me. I hope this helps you a little 👭👭💕💕✨✨✨shi xx
Hi everyone and welcome Marilyn to group
I haven't been on lately but have tried to catch up on everyones post
Dikat you look so lovely in your wig you really would never know it wasn't your own hair. You also look great without which is inspiring ☺️
I just wanted to ask when do you normally get offered some kind of counciling? Or do you have to find it for yourself I feel like I'm struggling mentally with alot of emotions and I think it's because I've bottled alot of it up and just tried to get on with this journey and I'm only at the start and I'm struggling emotionally. I have thought of ringing up Macmillan but I don't know what to say or where to begin!
Also I was supposed to start my third chemo on Monday 4th but the hospital rang me yesterday to say my chemo has been delayed by a week because they had to change my appointment with the oncologist and they won't let me have chemo till I've been seen first.
I feel so disappointed and angry that it's been delayed by a week just because they couldn't fit me in on time! One week feels like a life time when you're waiting for chemo. I think my chemo being delayed has not helped my emotions and I came on my period yesterday so everything rolled together and today I saw a work colleague we chatted about work as I'm currently on sick leave she was filling me in on what's happening and when she asked how I was feeling I just broke down in tears on her! I thought I was coping but I realise I'm not.
Not bad at all!! But maybe gin would be better? Lol......how you been doing? Starting chemo myself soon....making myself go cross eyed reading all the posts xxxx
I've been thinking about your problems with your mouth and gums. Are you sucking on ice chips or ice lollys when you are having your infusions. There is info online and on YouTube about this. If I remember correctly it's something to do with the coldness stopping the chemo getting to your mouth while being infused. A bit like the recommendation to wear ice gloves and socks with tax to help prevent peripheral neuropathy. Not sure if its coincidence but my mouth was pretty bad first cycle but much better 2nd cycle after having ice lollys. I used crushed ice chips yesterday during cycle 3. The inside of my bottom lip does feel a bit sore today though so we shall see! X
Hello, I am new to all this. I have been reading these threads and came across yours. I was told exactly the same....clear margins...no node involvement.....rads and hormone inhibitors....now I had a phone call the other day to say I need chemo.....shock isn't the word..I am in a complete tailspin....I was wondering how your finding it all? Xx
Got appointment at gp for tomorrow, as soon as I mentioned chemo it wasn't a problem! Chemo certainly opens doors! Xx
Yes I had flu jab before chemo. Would get it done ASAP because think it takes a couple of weeks to get in your system. If you can’t get in at your GP practice, would go along to one of the supermarket pharmacists where they can often do it there and then x
Hi Mary,what a lovely reply. I have been reading this forum since I was told I needed chemo and joined yesterday. It's already helping me no end. Just to be in touch with ladies who are in the same position....never ever thought in my wildest dreams I would be going through this ( non of us on here did) sometimes it feels like an out of body experience...so surreal...especially when I am talking about bald heads and no eyebrows! Eek!! Xx
Well, it looks fab. I am already cutting mine in stages, the back is very short with curls on sides and top. I was debating shaving it all off when I get my wig...just get it done with.....
I have been advised to get the flu jab before chemo starts, did you get it? I had a flu jab a couple of years ago and fainted!! God knows what chemo will do to me....yikes! Xx
Welcome to the forum. There's lots of advice here and we share our woes! Chemo is scary at first but we all come to terms with it and you will get lots of encouragement here. Even if you don't post, you can read all the messages and soon make friends - because that's what we do really! I have found it so good to be part of this and I'm sure you will, too.
Yes it’s a synthetic wig. I had it cut into at the back to make it slightly inverted and had the wispy fringe cut in. It did feel too thick to start with but was told it would flatten and drop after a couple of weeks, which it has. I’ve always had long hair so went for a short cut about a week before first chemo to do it in stages. My hair started coming out in handfuls about day 15 after first Fec which was timed perfectly with my wig fitting so got it shaved then. Can’t remember if it was a no. 2 or 1.5. As it started to get patchy over the next week or so, my hubby shaved it off with his clippers. Getting used to my wig although it does make me hot x
Sorry to hear you had to go to hospital....crikey what a rollercoaster! Wish 2019 had a fast forward button.....xx
Nice to hear from you kc72 and thank you for the lovely comment about my wig.
Sorry to hear you have endured a hospital stay but pleased they have got you sorted and you’re having your 3rd treatment today.
Fingers crossed you escape with minimal side effects again.
Good luck x
Not posted for ages but read recent posts. There’s been downs for some of us but then we pick ourselves up and carry on. You’re all amazing.
Dikat you’re wig is fab. So natural and suits you, you’d never know. You look beautiful.
Marlyn. My nails have been fine on EC. Think its the T where dark nail polish helps protect the nails from damage and hides unsightliness.
I’ve been keeping quiet as been lucky with minimal side effects for EC 1 & 2. Then, last week admitted to hospital with a temp spike that turned out to be flu and a chest infection, so in for 6 nights and EC 3 delayed a week.
But better now and off to EC 3 today.
Sending virtual hugs to each and everyone. Stay warm and strong 😊
Another good heads up....need all the tips and tricks you got! I read somewhere dark nail polish helps?? Xx
Forgot to say to all of you ladies. My nails have survived Fec but with moving onto T thought I better take some action! I found this info on a previous post so thought you might like to check it out. Website is polybalm.com can’t say if it works yet as haven’t started using it. It is expensive and only has a 2-3 month shelf life with being natural but will hopefully see me through T x
Hi, thanks for replying..
my pre chemo appointment is for next wed....thanks for all the tips....so much to take on board....bricking it xxxx