cancel
Showing results for 
Search instead for 
Did you mean: 

Anyone starting Chemo in December 2018?

466 REPLIES
Member

Re: Anyone starting Chemo in December 2018?

Drumnerswidow, pick up the phone tomorrow and organise something nice for yourself. Your cancer nurse or macmillan should be able to point you in the right direction. You are very important and need to be kind to yourself xx
Member

Re: Anyone starting Chemo in December 2018?

Hi Jayne 1966. The PICC line is a godsend, well for me anyway. Glad you have got some therapies organised. That will be lovely. I could do with some. I’m not having a good week. Feeling very tearful and down all the time. The next person who tells me I look well will be sporting a black eye! Hope chemo is okay for you on Monday xx

Member

Re: Anyone starting Chemo in December 2018?

So today I went to the local breast cancer haven, a charity providing support. I'm getting 7 treatments, 4 of which are acupuncture to help alleviate side effects. Could not get in before Monday so will have to manage last FEC but an booked in for the Friday before chemo #4. Not sure what is more scary now, chemo or acupuncture lol. Also having some reflexology. They do yoga classes and mindfulness too which I'm thinking of trying. Keeping busy to make the time pass as quickly as possible. I have to say I can't believe it's chemo #3 on Monday already.
Getting PICC line put in tomorrow at 9:10. Really don't want it but I know it's a necessary evil.
Hope you are all feeling well this evening. Xx
Member

Re: Anyone starting Chemo in December 2018?

Marykamille, I'm sure you could do something in the UK. I'm planning a nice long weekend on the south coast at a 4* hotel out of season. Lovely food, being waited on, nice walks and maybe a spa treatment or two. Plus the company of course. I'm not even going to ask permission!
Member

Re: Anyone starting Chemo in December 2018?

That's wonderful, Jayne and an inspiration! I was trying to get the all clear from the hospital today to fit in a week's holiday at the end of my Chemo sessions and before I start Radiotherapy (I get one month off between them, apparently) but no go - shame, because the nurse who does my Chemo says that people do take short breaks as you need something to look forward to! Maybe I can still sort something out.
Member

Re: Anyone starting Chemo in December 2018?

DiKat, so pleased you finally feel normal. Have some fun now before your next session. Xx
Member

Re: Anyone starting Chemo in December 2018?

Wow Jayne1966 

That's brilliant, well done you. So good for you to do something "normal ".

Day 13 for me today and I finally feel I have turned a corner so let's hope I will have 1 week of feeling ok and being able to interact with the real world. 

Only thing that's concerning me is that I keep getting what feels like peripheral neuropathy in my fingers and toes. It comes and goes. Didn't think the FEC drugs could cause this? Will mention it to Onc next Monday.

Have a good day all xx

Member

Re: Anyone starting Chemo in December 2018?

Jayne 1966

 

well done you! It was a much as I could do to get off the sofa yesterday.  Could do with some of your energy xxx

Member

Re: Anyone starting Chemo in December 2018?

Day 13 after chemo and I played a league mixed doubles badminton match this afternoon. And we won. I have a headache from hell now and I think I will pay for it tomorrow but it was great to do something that I always did before and still be fully able. Is thought I'd share this to say that some days between chemo can be good and I pray that anyone suffering at the moment has good days really soon.
Member

Re: Anyone starting Chemo in December 2018?

So sorry to hear that you are having such a bad time, DiKat. They do say each cycle can be different and I guess this reflux and stomach acid issue is a difficult one to solve and it's mostly to do with the steroids. Are you taking the doses exactly when you should? Some have to be with food/after food etc. I'm sure you know all this. My difficulty for first 4 or 5 days is finding sufficient time spaces between the various pills to accommodate each other!
Member

Re: Anyone starting Chemo in December 2018?

Hi Kitkat & others with b/p worries. I may be a bit late in responding to this one but I have my own cuff monitor and have used that it in the past before I was put on b/p pills for moderately high (not much really). Before that I had a couple of go's with a 24 hour monitor I wore on my arm given to me by the medical practice - anyone familiar with those? 

I found that thing really irritating - going off repeatedly instead of every 20 mins or so, and even then it didn't record properly!

However, my own self-monitoring was done 3 times a day for a week, and I gave the gp a record which she was pleased with, photocopied and put on my file. She had been chasing me for taking 'preventative' measures for about 2 years and that sorted it.

Yes, stress really does make a difference to the readings and who wouldn't be under stress sitting in the Chemo chair? Especially with your history of ectopic beats. Still, don't ignore it, I would say, just try to be a bit more relaxed about it unless, of course, it gets worse or panics you again.

Thanks Kitkat for that info about steroids and 'sunburn glow' - I feel a bit better about looking in the mirror now. Will we get steroid 'moon face' by the end of all this, do you think?

Member

Re: Anyone starting Chemo in December 2018?

Ahh so it does tend to be day 3 or day 5 for us all that are given them.  7 is quite a lot pastamissus but a good thing to keep the dreaded neutropenia at bay. I was meant to do 10 this time because of prev neutropenia.  Stopped after 4 in case they were causing palps. Don't think it was them now as have continued having palps on/off so will take them as told next cycle. Started taking the life mel honey this cycle. Wonder if it's made any difference. Don't suppose I will really know.

Have a good day everyone x

Member

Re: Anyone starting Chemo in December 2018?

I am on FEC and have 7 filgastrim starting on day 3. Got bone pain first cycle, but no problems this time.

I didn't lose hair until 2nd chemo. Now I'm shaved, I wish I'd done it as soon as I started moulting. It's much easier to deal with than clumps of hair everywhere! And showering is so fast!!!!

 

Member

Re: Anyone starting Chemo in December 2018?

I had my chemo 17th Jan and on my box of filg injections says to start 19th jan, so had first injection this morning.   Still not feeling tooo nauseous compared to after my 1st chemo. But dont have much appetite and only fancy carby type foods, when I do eat.  

Member

Re: Anyone starting Chemo in December 2018?

Hi Angelblue; I don’t think our oncs really understand what level of stress we are under. Mine is very good at dishing out extra meds for SEs but I feel I am just another problem to be solved. It’s bad enough having the diagnosis but the waiting between that and treatment starting is so far the worst bit. It took them a month to decide what to do with me with extra tests while the lump got bigger and harder. Then there is the fear of chemo and what it is going to do to us. It’s not surprising we suffer with anxiety and palps. I am beginning to think they should all be given a dose during training to see how they like it, maybe we’d get a bit more understanding!

Dikat I am so sorry you are having such a rough time, it feels relentless doesn’t it. But this too will end and we will get through it, sending you hugs.

As regards braving the shave, the worrying about it was definitely worse than the doing of it. I thought I would cry buckets but was so fed up of hair everywhere that I took the clippers to it and never shed a tear - it was such a relief to have it done and my scalp immediately felt better too. X

Member

Re: Anyone starting Chemo in December 2018?

Hi Angelblue 

Glad you're energy is returning. 

If all went to plan, my last chemo would be 3rd April so I was having Easter as a goal. In my head I've kind of allowed a couple of weeks extra for delays, especially with all my difficulties. Thanks for your info re surgery. That will be my second stage of the triathlon! I've still not thought about it in great detail but my boobs are so small, I did wonder how it would work if I chose lumpectomy. There would be very little left!

It seems it is more common to start Filgrastim on day 5 but like Drummerswidow pointed out, maybe it is tailored to the individual. Think I will ask Oncologist out of curiosity next time. I feel that starting on day 3 when still on steroids and anti sickness meds is too much for me!

Xxx

Member

Re: Anyone starting Chemo in December 2018?

hi dikat - you must have posted as I was writing! Thats so crap for you. One thing just seems to lead to another sometimes with this process. Re heartburn ...I have previously been prescribed lansoprazole pre chemo for really bad heartburn. I started taking them again this week as I felt it come back and theyve worked well. I checked with GP yesteray and she said I was ok to keep taking them ...so I don't know if they are any different to what you've tried?? Really hope you get some good days beofre next chemo xx

Member

Re: Anyone starting Chemo in December 2018?

Hi all

 

I finally feel like I have some energy returning today woohoo!! If I get away with only fatigue this time I count myself very lucky after reading what some of you are going through.

 

Dikat - sounds like you're having a really tough time. I hope you're starting to feel better. I know after my first chemo I felt like I didn't have a break from side effects and you really need at least a few days of feeling normal..ish! I start my Filgrastim on day 5 for 5 days. Due to my cowardly nature re needles I have district nurse round to do them. It would have been a pain waiting in but as I was just on sofa sleeping during those days it was ok. 

 

kitkat18 - that must have been so scary to be told to call 999. There does seem to be quite a few of us having problems with palpitations etc. Its strange that this doesn't seem to be acknowledged as a side effect. It seems a lot of us have various  issues that aren't achnowledged as side effects yet have only happened since starting chemo!!

 

catlady37 - although I still have hair I wouldn't go out without a hat as it looks terrible. Last night I cut my hair into a wonky bob....I might trademark it ..a 'wonky bob' could be the look of 2019!! Like you I'm thinking about when to brave the shave as although I'm only losing strands I'm losing lots of them and the house and me seem to be covered. Plus I keep ending up with hair in my food...gross!!! From reading all the posts about it I think the build up to the shave makes it worse. Let us know how you go if you decide to do it tomorrow x

 

fluffysunshinepants - sorry it was uncomfortable when you had your first flush, like you say it should hopefully be better when you're not so sore. It does make it sound worth having when you say how quick blood test was...and no doubt how easy it will be for next chemo. My GP prescribed some Emla (I think its called) cream yesterday to numb my hand for next time. So I may give it one more try with canulla. Although I know I'll end up a blubbering wreck again! 

 

Hope everyone's doing well on this dreary Saturday. If I have no more delays my last chemo should be 1st April so I just keep focusing on the fact that by Easter this part of the journey should be behind me...but sometimes Easter does still seem a very long way away!!! xxx

Member

Re: Anyone starting Chemo in December 2018?

So...day 11 today. Woke up and thought today was about to be my turning point but my body has decided different. Having really bad acid reflux and excess stomach acid. I had been on long term Omeprazole due to ongoing issues from the past. Due to taking Fluconazole a week ago and my issues with palpitations,  a known contraindication, I was swapped to ranitidine 5 days ago. Looks like the ranitidine ain't cutting it. I'm going to revert back to my Omeprazole for second dose today as fluconazole has finished. One problem causes another! Feeling pretty fed up...propped up in bed and feeling really tired again. Trying to grab some sleep inbetween pain 😣 Seriously doubting if I'm going to get any good days this cycle 

Member

Re: Anyone starting Chemo in December 2018?

Drummerswidow, that's a relief! It was like having numerous bee/wasp stings 😂