Sorry to hear you was at A&E last night I know it's scary being there. How are you feeling now? I had a really bad migraine on my first chemo when I spoke to my oncologist she said it was not related to any of the medication and I think it was stressed related so your oncologist is probably right stress can really effect us more then we realise but it goes hand in hand with breast cancer unfortunately.
I feel the same as you with everything that's to come as I'm only at the start of my journey I know I will have A double mastectomy but the only way I can deal with it is take each treatment at a time once the first chemo is over look to the next and take it day by day and remember we are a day closer to being healthy again ☺️
Sending you virtual hugs you can do this 💪
Hi Jayne1966, catlady37 and pastamissus ,Drummerswidow and anyone else around. Jayne I'm sorry to hear your news re your other breast being affected. I'm pleased you got to talk to a good nurse and think you are doing great despite everything being thrown at you. As is everyone else in our club. I think you're all such an amazing bunch. It's so hard when not only do we have our own thoughts and fears to contend with but those of our children and loved ones as well. I'm feeling shocking today. Spent last night in a&E. Heart started going crazy, pains down my arms, numb hands etc. Was awful!!!! Heart and bloods checked out ok, eventually. Nurse spoke to Oncologist today and he said to stop Filgrastim for a couple of days even though I was ok with it last time. Onc actually things it's all stress and wants me to see someone. I feel so out of control and so scared. I know we're all waning at times so good to know others have come through the other side. I'm also thinking of double mastectomy after chemo and can't even get my head round reconstruction at this stage. I know I need to get a grip as I'm currently living live in fear xx
Jayne - I got it in both breasts too, have had 2 mastectomies and am living flat. In some ways it's actually easier with no boobs at all than just one. All the best for treatment
Hi Catlady. I asked the nurse. She only gave me the last ones so next time i’m going to get all of them.
Jayne I'm so sorry to hear that I bet that came as a real blow today ☹️ there really is no pattern to breast cancer its all a mind field!
But looking at the positives it's stage 1 so they have found it nice and early and can tweak your chemo treatment to blast that too all at the same time keep positive you sound a strong lady so I know you can do this. I will be having a double mastectomy but I will cross that bridge when I come to that stage.
Sounds like you have a really good nurse and that's great she's gone through treatment plans and info on complementary therapies.
I feel for you with your kids and commend you that they are your main concern I can't give advice in that department as I have none but you sound like your doing a super job as for screaming and crying sometimes you just need to let it out and lean on friends and family tomorrow is a new day and you will see through the woods. Sending you a virtual hug xxx
Hi Catlady, Nurse visit was mixed. I had biopsy results from a second test done following MRi scan. I have cancer in keft breast as well. So HER2+ and oestrogen+ on right Grade 2, and HER2- and oestrogen+ on left Grade 1. Feel so gutted to have even more of it even if it is a lower grade. Feel like i just want 2 full mastectomies and to get rid asap.
On the positive side I have been given some info on complementary therapies and things to help the family too, and the nurse spent almost an hour talking through the different treatments and prognosis and the whys and wherefores of it all which has helped.
The kids are still my main area of concern and 2 out of 3 are not dealing with it well, although they both suffer from anxiety anyway which we were already struggling to deal with. Can't see the wood for the trees at the moment and not sure how I feel. Half of me wants to scream and cry whilst the other half wants to try so hard to stay positive and put on a brave face.
Drummerswidow hope all goes well after your 3rd EC. Another one down. I do the same with bloods. I suppose it gives me the feeling of slight control in an otherwise uncontrollable situation!
Jayne1966 Hope all went well at today's appointment and hope you got some answers to your questions.
Take care everyone x
Hi All. Let’s hope we all have a better week this week! Wishing everyone feels better emotionally and mentally. It’s tough isn’t it?
I’ve had my 3rd EC today. Not been in long due to a delay. The chemo the pharmacy sent down expired yesterday! 🙄🙄🙄. So I had to wait for some more to come down from pharmacy. Red faces all round. Nurses weren’t happy because they were really busy.
I’ve buddied up with another breast cancer lady. So it’s nice to compare side effects lol. I’ve started asking for a copy of my blood results so I can keep tabs on what’s happening. Feeling tired this afternoon so I’m joining the dogs for a quick 💤💤💤💤💤. Let’s hope that we don’t get to many problems following chemo today
Thank you for your reply I've just had my second chemo today and back home and feeling more positive today I think I just needed a good cry and to try get my head around my hair going still think there will be more tears to come maybe I would be better of just shaving it then it's done and move forward.
I have a really nice wig but still haven't had the courage to go outside in public with it yet and I don't think the headscarfs suit me they can look so lovely on lots of women but I don't think I have the face for one but will wear one at home. That made me laugh what your husband said as my other half said something very similar 😁
Hope you're having a positive day too sending you big hugs x
Hi Jayne how did you get on today seeing the nurse? Hope you got all your questions answered
I like the way you had a mohekan for the day it did make me smile picturing it in my head i wish I was that brave 😁
Feeling more positive today after my good cry sometimes you just have to let it all out sending love and positive vibes to everyone x
Pleased to hear you're not suffering ill effects of 2nd FEC. Good luck with the head shave. I've still got a bit of stubble hanging on at the back but pretty much bald sides and top x
Fed up of shedding hair, so off to get it shaved tomorrow. Day 5 of FEC2, no brain but apart from that minimal side effects. Just bored!
Oh no Fluffysunsinepants. This is all certainly a test. Pleased to hear your clear and hope you feel less drained in the next day or two. Take care x
Thanks Jayne1966. It does feel good to share with others who understand. So are you moving onto THP after 2 Fec? Good luck for your appointment tomorrow and let us know how you get on. Hugs to you too xxx
Sorry you're feeling like this catlady, I'm the same having chemo before surgery so guess still getting our head round it. Have a good cry and let it out. I'm feeling angry today as feel like I'm having such a negative effect on my family with my difficulties with chemo. It's good we have this place to vent. Sending virtual hugs, and hopefully tomorrow will be a better day for both of us xx
You have a good old cry! It’s an up and down rollercoaster. It’s perfectly normal for you to feel like this. This whole cancer thing is horrible and you are going to have days like this. Wish I could give you a big hug xxxx
I haven't posted lately but have been reading other people's posts.
I'm having a really down day today where I can't seem to stop crying, and feel this is the only place where people will understand how I'm feeling right now.
I have my second chemo tomorrow and even though I knew my hair would start to fall out, yesterday and today I've had a whole lap full of hair and I'm surprised I still have any left. (my hair was very thick)
I'm having chemo first before surgery so I have been trying to carry on as normal as can be but I think losing my hair has finally hit home that I have cancer and this journey is very real! 😭😢
Yes, remember your previous post about burning sensation. So good to get advice from others who have been through this. Just not worth taking any chances with anything. Thank you xxx
I had been drinking loads of water, started day prior to chemo and ever since, around 2 to 3 litres a day so feel I am hydrating well. I can tell that one of the drugs irritates my bladder though as feel almost urine incontinent for first 2 to 3 days. Think I just have to roll with these se's and carry on being vigilant with temp etc. Just talk about knock you when feeling down! Fingers crossed for you with T. Will look forward to hearing how you get on x
Hi Dikat, sorry you are having such a rough time. I also have had cystitis symptoms 3 times, had it checked with no sign of infection. Now I know to down a couple of pints when it starts and it quickly resolves. So for me I think it is dehydration, which can also give me headaches. One of the fec is also known to cause bladder irritation so I also have a glass of cranberry juice in the first few days after chemo. Also had to be treated for thrush downstairs - the SEs seem never ending don’t they?! However just had final fec so onto the dreaded t x
So, yesterday was day 4 after second fec (reduced dose this time) spent most of evening in gp unit! Started feeling a burning sensation down below but tested urine and no obvs sign of infection. Couple of hours later, started with intense burning in my chest again and didn't have much of a voice. This was how I started when I ended up neutropenic prev month so as you can imagine, a little anxious, even though it was pretty early in cycle. I've taken much better care of my mouth this time and although no visible thrush/sores in throat thought I better ring helpline to nip it in the bud if possible. Was advised to go to gp unit to see if they would prescribe fluconazole in case thrush was in gullet. Gp initially a little reluctant at first because partly they don't seem to understand effects of chemo drugs and secondly don't like to prescribe without justification if they can't see anything visible. Agreed to give me a weeks course after further discussion and that it was based on advice from ward and my prev experience. Decided to do bloods which again due to lack of experience with chemo drugs through up some results that made him want to check with the on call registrar. As the GP unit is located at the hospital where the oncology department is, I asked if I could talk through the results with the nurses on the ward whilst he was waiting for the registrar. He agreed to this. My white cell count and neutrophils were in the 30s way above normal. The nurses said this could be as a result of steroids and filgrastim which can cause increase and wouldn't have started declining yet as only day 4. They did say my infection markers needed checking though to be on the safe side. This was done and they came back in the normal range so, so far so good. They've asked me to call tomorrow and may do repeat bloods. Went back to see GP and he was happy with feedback and had also spoken to registrar. I know it's not possible that GPs fully understand all this so do feel grateful that the out of hours go unit is located at the hospital. I did feel as though I had to try and help put the pieces together to gain the reassurance I needed. Lucky my hubby takes it all in .
I'm not feeling any better or worse at the moment but have only just taken second fluconazole. I know I've got to stay strong and keep positive but am beginning to struggle. Doesn't help with lack of sleep, feeling dizzy and having migraine type symptoms. Only one more fec to go but then 3 THP so I'm dreading what that will bring.
Sorry for the downer but needed a rant. Hope everyone else is doing ok xx
Normally you take steroids as early as possible in the day, I am on 4mg dex at breakfast and 4mg at lunch for 3 days. Making me so hungry, I put on 4lb in the 3 weeks since I started chemo. Gutting as I spent most of last year on a serious diet and lost 4 stone! Hair now shedding, so am feeling happier that chemo is working! (was starting to worry as very few side effects except tiredness).
Just looked at the predict site and it says not suitable for people having chemotherapy before breast surgery so that's probably why it's not been mentioned. I will get more information from oncologist and breast cancer surgeon, just need to deal with this awful chemo and side effects first. Thanks for your help xx
No predict wasn't mentioned. Its grade 3 IDC, Er0, Pr0, HER2+ multiple lymph node involvement in axilla. This is from the letter I received from Oncology consultant. Scares me to death reading that stuff but know I need to face up to it.