Member
Posts: 314
Registered: ‎02-07-2014

Re: Anyone due to start their chemo July 2014

Hi Gill, Cath, Clare and Sylvia

Thank you all for your supportive comments and advice. I will email my consultant, Gill, why did I not think of that!!
Sylvia, I think I am probably the only person who doesn’t want to come off Letrozole or similar, I have been lucky to not really have any side effects and was told by my previous onc he would keep me on it for life if he could. Seems like I’m lucky to still have onc appointments though.

Thanks again, reading your comments has made me feel better
Hugs
Karen
Member
Posts: 170
Registered: ‎04-08-2014

Re: Anyone due to start their chemo July 2014

Hi Karen, I’ve just read your comments about letrozole. Funny enough I’ve been looking at another forum about stopping anastrozole early. I’m due to stop next year but would love to stop sooner. I believe the two drugs have the same purpose. There has been a recent post in that thread about the percentages involved depending on how long it’s taken. I have to admit I haven’t read it yet, it’s a long post.

Most women on that thread seem to want to stop taking the medication but are worried what will happen when they do. I know I’m in that camp. My biggest worry is that my body will start ramping up hormones again with the potential threat that can bring. I think it’s a great idea to email your onc. Down here they sign you off after 3 years so I don’t get to see one routinely any more, I’m sure I could get an appointment though if I asked. I hope you find the answers you’re looking for soon, if it works for you and it eases your mind it’s definitely worth pursuing.
Member
Posts: 466
Registered: ‎22-05-2014

Re: Anyone due to start their chemo July 2014

Karen sorry your appt was disappointing. Personally I was never happy with my oncologist and I always came away from them feeling low so I asked to be referred back to my GP. I only see the breast surgeon and the plastic surgeon.

Gill is right about emailing your consultant for clarification. Hope your next appt is more positive.
Love
Clare
Member
Posts: 155
Registered: ‎06-10-2014

Re: Anyone due to start their chemo July 2014

Karen. It sounds like you are left with unanswered questions.Contact the consultant by email and ask .explain how you feel. Phone hospital ask to speak to his secretary for his email.People do this all the time.

It is always after appointment that I think why didn't I ask this.?

 

Hugs Gill xx

Member
Posts: 692
Registered: ‎11-06-2014

Re: Anyone due to start their chemo July 2014

Karen, I'm so sorry you had such a disappointing visit this time. I do understand how you feel like Letrozole is your crutch, so it must be a blow to know you won't be on it for as long as you hoped.

 

Here's hoping you get a nicer consultant next time.

 

Hugs

 

Cath

Member
Posts: 314
Registered: ‎02-07-2014

Re: Anyone due to start their chemo July 2014

I can’t believe it will be our 5 year anniversary next year, that time has gone so quickly!
I had latest oncologist visit in the week, unfortunately my consultant has changed and I will now only be on Letrozole for a total of 5 years whereas my previous consultant who I loved had told me it would be at least 10 years. I know not everyone gets on with Letrozole but it has been my crutch and I don’t feel ready to lose it anytime soon.
The oncologist also told me I’m at ‘moderate risk’ I was still trying to take in what he told me previously that I didn’t ask what of ...recurrence? spread?. I suppose nothing has really changed but I’m used to coming away feeling reassured. Fingers crossed I will have a different consultant next time!!
Member
Posts: 692
Registered: ‎11-06-2014

Re: Anyone due to start their chemo July 2014


@sugar8 wrote:
BTW the Carnival went well. If you Google it you might see me on the truck. The W.I with twists curls

Clare

Clare - I googled the carnival, and although I'm not sure I saw your truck, the pics are amazing! What a crowd. Looks like a fun event.

 

Hugs

 

Cath

Member
Posts: 466
Registered: ‎22-05-2014

Re: Anyone due to start their chemo July 2014

BTW the Carnival went well. If you Google it you might see me on the truck. The W.I with twists curls

Clare
Member
Posts: 466
Registered: ‎22-05-2014

Re: Anyone due to start their chemo July 2014

Great to see that positive friendships was made from such a negative disease. You all look so happy lovewine.
Yes Gill can't wait to meet. the July 14 ladies.
Cath. Sometimes it takes time for news to sink in. Both good and bad.
Love to all x x
Clare
Member
Posts: 692
Registered: ‎11-06-2014

Re: Anyone due to start their chemo July 2014


@lilac55 wrote:

 That will be US next year ladies. Xx


Whoo hoo! Getting close now. :-)

 

 

Hugs to all the July ladies

 

Cath

Member
Posts: 155
Registered: ‎06-10-2014

Re: Anyone due to start their chemo July 2014

 That will be US next year ladies. Xx

Member
Posts: 692
Registered: ‎11-06-2014

Re: Anyone due to start their chemo July 2014

Don't you all look so happy!

 

So nice to put a face to the name, lovewine (and what a great name. lol)

Community Champion
Posts: 3,306
Registered: ‎07-03-2014

Re: Anyone due to start their chemo July 2014

Cath, this is us April 2014 ladies , we met up again in Oxford this year, first year was London, then Bristol, last year Oxford too, it is lovely to meet up once a year, we have  become friends . ( I am the second lady on the left!)  Have a nice weekend 😊.

Highlighted
Community Champion
Posts: 3,306
Registered: ‎07-03-2014

Re: Anyone due to start their chemo July 2014

6AFD7A6E-A03A-4900-9F08-B134A4BF39D5.jpeg

Member
Posts: 692
Registered: ‎11-06-2014

Re: Anyone due to start their chemo July 2014

Lovewine - how amazing that you've all met up. We have talked about it, hopefully arranging it for our 5-year mark. It would be nice to put faces to names after all this time. :-)

 

Thanks again for the good wishes.

 

Hugs

 

Cath

Member
Posts: 692
Registered: ‎11-06-2014

Re: Anyone due to start their chemo July 2014

Clare - playing steelpan in a Carnival sounds amazing! Good luck and let us know how you get on.

 

Sylvie, Julie & Karen - I definitely had a big glass of something last night accompanied by lots of chocolate. lol Strangely, though, the relief is only really setting in today. I was so geared up for bad news that the good news has taken me by surprise. :-)

 

Gill - you're so right, life is fragile and it's meant to be enjoyed. I intend to enjoy every sec. :-)

 

Hugs to all the July ladies.

 

Cath

Member
Posts: 155
Registered: ‎06-10-2014

Re: Anyone due to start their chemo July 2014

Morning Cath. What brilliant news.xxx Now you can get on living  your life to the full..it seems s fragile at times..

Hugs Gill xx

Community Champion
Posts: 3,306
Registered: ‎07-03-2014

Re: Anyone due to start their chemo July 2014

Hi Cath , I am one of the ladies from the April 2014 thread , so have followed your July thread at times .
It seems the April and July ladies from that year are still very active on the forum !
We met up for the 4th year last week and it was lovely to see the other ladies again .
Take care and once again it is so nice to hear good news ! X
Community Champion
Posts: 3,306
Registered: ‎07-03-2014

Re: Anyone due to start their chemo July 2014

 
Member
Posts: 117
Registered: ‎29-06-2014

Re: Anyone due to start their chemo July 2014

Great news Cath!! Whoo hoo indeed! So pleased for you - you should defo celebrate tonight xxx