Member
Posts: 127
Registered: ‎18-03-2014

Re: Anyone due to start chemo April 14??

[ Edited ]
Hi Ladies,

Yes Louise we are the same age, I noticed that too x

This is such a lovely forum and so nice I hear from other people who can reassure us before our first session thanks Penny and Amber.

Rach, I didn't get onto to the dentist today so I'll call tomorrow hope you were better than me ;0)

Rosie sending lots of good vibes your way for Thursday.

I am feeling much better today after seeing McMillan and my chemo nurse, she went through lots of things and despite being really nervous this morning I felt much better about things before I left. I am waiting for a call tomorrow to confirm the date for my ECG and picc line to be put in.
Member
Posts: 169
Registered: ‎09-01-2014

Re: Anyone due to start chemo April 14??

Good luck Rosie

 

You will be the first one of us to get the chemo, which type are you having? Xx

Community Champion
Posts: 4,403
Registered: ‎02-02-2014

Re: Anyone due to start chemo April 14??

I am due to start this Thursday which is only just March so I thought it made more sense to join this group as the March group are on their second round!

 

Went to the hairdresser today and had my hair couloured and then cut short, also puchased two sun hats, I live in Cyprus, and a head scarf. Am beginning to feel rather anxious now!!!!!

Member
Posts: 20
Registered: ‎19-02-2014

Re: Anyone due to start chemo April 14??

Thanks for the Dentist and flu jab tips ladies, I will get on to that now Smiley Happy

 

xxxxxxx

 

 

Member
Posts: 731
Registered: ‎20-04-2013

Re: Anyone due to start chemo April 14??

Just popping in from May Moonbeams (started chemo May 2013)- Best wishes to you all.  Chemo is doable but it does eat up a chunk of your life.  I don't know where I'd be without sharing with my fellow moonbeams.   Now I am looking forward to going back to work with "different" but interesting hair!  This time last year I was not feeling quite so confident!  Good luck all!

Member
Posts: 169
Registered: ‎09-01-2014

Re: Anyone due to start chemo April 14??

Hi Kirstie

 

Just noticed we are the same age. When I visit the breast care unit everyone seems to be older, I find myself scanning the room for someone of a similar age. Just shows this blighter can get anyone !!

 

Louise xxx

Member
Posts: 127
Registered: ‎18-03-2014

Re: Anyone due to start chemo April 14??

[ Edited ]
Hi loulou,

Yes I need to do that, I have been putting it off so thanks for the nudge, I will call them tomorrow I get dodgy gums as it is.

I did go and have my flu jab though as instructed :0)
Member
Posts: 169
Registered: ‎09-01-2014

Re: Anyone due to start chemo April 14??

Thankyou Amber D for posting. It is so helpful to hear from ladies who have been through it. Hope I can manage the water to flush the chemo through,  3 litres a day I think ?? Xx

Member
Posts: 169
Registered: ‎09-01-2014

Re: Anyone due to start chemo April 14??

Hi ladies

 

Forgot to mention that I visited the dentist this week and got full check up with X rays as we will not be allowed to have work done through treatment.  When I rang the receptionist said I would be waiting three weeks for a check up but when I explained she got me in within a couple of days.  Also the mouthwash incase of ulcers through treatment was prescribed by dentist (nice as a freebie, got 3 bottles!!) xxxx

Member
Posts: 127
Registered: ‎18-03-2014

Re: Anyone due to start chemo April 14??

Hi Amber,

Thanks for the tips I will take them all on board and invest heavily in antibacterial gel !

Suzie,

I'm off to see McMillan in the morning to go through my options so that will be good, and I have requested a meeting with my boss to see if they will let me do anything from home so we will see, I figure 6 is an easy number to tick off even when it feels like its taking ages, I feel like in the grand scheme of things this year has flown by until now, lets home the next few months do the same we are on the right road and I'm sure with the lovely bunch we have on here so far we can push each other up any hills we may or may not encounter xxx. I read on one thread that chemo is our friend and its right, we just need to get to know it ;0) x

We are all stronger than we think ;0)
Member
Posts: 64
Registered: ‎02-03-2014

Re: Anyone due to start chemo April 14??

I am starting to think that I am being a bit optimistic about working full time but I am just going to try and keep an open mind and see how it goes. That's a real shame about your sick pay, s if you don't have enough to worry about, I think MacmIllian can help with money worries. I get full pay for about 12 weeks so will have a bit of a buffer if I do need to be off. My Consultant didn't really comment when I said I want to work fulltime, he just said see how it goes. I just Googled cannulas and PICC lines in between replies, I don't think that was the best idea; I just envisioned it going in the back of my hand at least there will be no surprises now !

Be strong, we can do this xx
Member
Posts: 372
Registered: ‎02-03-2013

Re: Anyone due to start chemo April 14??

Hi Girls, Iam one of the Awsome April Angels who started chemo 2/4 last year. Chemo is definately doable, listen to your bodies and yes drink plenty water in the first few days. Take all your anti sick meds whether you feel sick or not as if you leave it till you do then it's too late, ginger biscuits help too. Don't suffer in silence ask for more meds if you feel unwell, hopefully most of you will get through it without too much side effects. Just ask any of the ladies on hear and someone will have an answer. Pineapple is good for a sore mouth if you get one also ask doc for mouthwash. For low immunity days just don't put yourself at risk, I had anti bac gel all over the house! And nobody got over the doorstep until they had anti baced for risk of infection. I was on FEC-T x 6 and it wasn't nearly as bad as I thought it would be. The not knowing is the worst but was number 1 is over keep counting down. Good luck Ladies xx
Member
Posts: 7,967
Registered: ‎01-05-2012

Re: Anyone due to start chemo April 14??

Hi Kirstie, welcome to the BCC forums

Along with the support you have found here our helpliners are on hand with practical and emotional support for you, lines open weekdays 9-5 and Saturdays 10-2 on 0808 800 6000

Here's a link to the BCC undergoing treatments area of the site where you will find lots more information and support ideas:

http://www.breastcancercare.org.uk/treatment

Best wishes
Lucy BCC
Member
Posts: 127
Registered: ‎18-03-2014

Re: Anyone due to start chemo April 14??

Hi Suzie,
Yes I found that they are really good at just giving you enough information very clever really, I don't have to have the radiation part, I originally told I was going to but because I had to have the mastectomy they said I don't need that now.

I read that too about the injections but i don't know what they are really.

I have been advised not to work I'm a project manager but its a really busy time and we have 200+ temps in over the next few weeks so my doc said he would only be happy for me to work if I worked from home or in an office with one other person?!
Has anyone else been told this ?
I'm only getting statuary sick pay and my husband doesn't earn enough to pay the bills so money is a worry so if I can work I'd like too.....

Onwards and upwards ladies xxx
Member
Posts: 64
Registered: ‎02-03-2014

Re: Anyone due to start chemo April 14??

Hi Kirstie

Nobody has given me any options with regard to cannula's etc as yet. I I have a bone scan on Thursday as I have had a sore shoulder and hip for around 6 months so they are just going to check it out (I also have arthritis in my lower back so I am not particularly (concerned). I have a bloods and consultant appointment on the 1st so I assume they will talk to me about that then. I have pretty prominent veins so don't know if that will be a factor. The hospital have been amazing and I think they give as much information as is needed at a particular time rather than overload me but I will definitely ask about this. Yes I too am having 6 sessions of FEC (every 3 weeks) and will also have radiotherapy and Tamoxifen after chemo. I have read that some ladies have needed to inject themselves for a few days after chemo, I think to help with immunity but I am not sure if that is only for certain types of chemo??? There is so much to remember and take on board
Member
Posts: 127
Registered: ‎18-03-2014

Re: Anyone due to start chemo April 14??

Hi Suzie,

That's good we will be able to compare how we are getting on ;0), my sessions will generally be on a Wednesday I've been told.
Are you on FEC too? I'm going to meet the chemo nurse tomorrow to go through all the bits and bobs, I still don't know which line to have, I wanted to go down the cannula route just in my hand so that when I'm out of there I'm gone and dont have anything to look after, but people have said the other way is better.
Have you got all this stuff sorted? I think after I have been through things with the nurse things will be clearer about which way ill go.
They have said I will be on tamoxifen afterwards is that the same for you ?
Member
Posts: 64
Registered: ‎02-03-2014

Re: Anyone due to start chemo April 14??

Hi Kirsty mine is also Positive 8/8,we'll be starting the same day sxx
Member
Posts: 127
Registered: ‎18-03-2014

Re: Anyone due to start chemo April 14??

Hi everyone,

I just typed a reply but this hasn't seemed to work so I will try again lol!

Having read lists of threads over the last couple of months I thought I would now join in.

I was diagnosed on 29th Jan with grade 3 oestrogen pos 8/8 - Her2 neg, I initially had a lumpectomy on 10th Feb but my results showed lots more in situ and I needed to have a mastectomy, had a double mastectomy on 3rd March (double was my choice due to risk) and I am starting chemo on the 2nd April, mine will also be in 3 week cycles of FEC on Wednesdays.

I have been offered the paxman cold cap which is the one that stays on and you don't have to swap but they haven't used that type before so I will be the guinea pig.

I was 36 when diagnosed, I turned 37 in hospital and I have 2 children a 16yr old girl who has moved out to live with her father at the end of last year (she knows it all) and a 7 year old boy.

I'm near Buckingham.
Member
Posts: 127
Registered: ‎18-03-2014

Error - no post

[ Edited ]
 
Member
Posts: 64
Registered: ‎02-03-2014

Re: Anyone due to start chemo April 14??

I am also on a 3 week cycle. My chemo will be on Wednesdays and I am hoping that after being off sick for the Thursday and Friday and having the weekend I will be ok again by Monday. I am also lucky enough to be able to work from home. My role is mega busy and really quite stressful at the moment due to some critical projects so not sure if I am being too optimistic but only time will tell. Focusing on work has kept me sane the last couple of months and I just cannot imagine being off sick for 5 months. I've read lots of info about eating while on chemo but wondered if anyone had read any recommendations for before you start like detox etc? Lou I saw you mentioned the no carbs anyone else seen stuff for this? sx