I was diagnosed with Grade 3C last October and had 13 out of 15 lymph nodes infected. I had had a mammogram in July which was clear, so as you can imagine the news was a huge shock to me and my family. I had mastectomy with implant reconstruction in October 2013, followed by chemo (FEC-T). 6 weeks after the chemo finished in April, and just as I was due to start the radiotherapy, I felt a minute lump in my neck above the collarbone. The biopsy confirmed that the cancer was back after only 6 weeks. I then had a CT scan which showed that I had further enlarged lymph nodes in other armpit and left groin, these were also biopsied and confirmed as Secondary cancer. I have now finished the radiotherapy for the original area and neck together with one single blast to the groin but nothing to the other armpit. Has anyone else been through similar with the secondary lymph node involvement and could you let me know what course of treatment was suggested. My Oncologist now just looks really serious when we meet and says the cancer cannot be cured and I can only have a limited number chemo cycles. I am strong, determined and wlll fight this not just for me but for my 4 amazing kids and my wonderfully kind, patient and supportive partner. Thank you I would really love to hear from you x
My mum was diagnosed in 2002, with stage III, and 14 positive nodes, with other co-existing health issues...now fully discharged and, touchwood, all well.
I am so glad to hear these stories.
My daughter, age 36 was diagnosed with BC grade 3c. She has had a lumpectomy last Wednesdy and now has a 2 week wait for results. She has 4 children aged 10, 6, 3, and 2. She is also in the middle of a divorce so her husband is not very supportive.
It all seemd doom and gloom and although she has managed to stay hopeful for the children, the waiting is having it's toll. It all started at the end of September, so it has been a while.
To read your stories has been so encouraging. It has brought me to tears, with hope.
Thank you all.
I shall stay in touch.
Hi Positive thinker and Sascha,
When I was diagnosed the surgeon was concerned because I had a tumour confirmed in my lymph nodes as well as the one in my breast. I was given chemo first to try and 'calm down'the cancer under the arm and give her a better chance of getting it all out. I don't know how many nodes were affected originally because the chemo worked so well that no cancer was found following the surgery. I just had scarring in three lymph nodes.
I well remember the fear I had on hearing my diagnosis (just under a year ago)and I wouldn't have believed that less than a year later I'd be back at work, looking after my children, feeling reasonably normal (albeit tired, still on herceptin, and with more surgery to come, and living life again.
Wishing you the very best
Hi Positive thinker..
I was diagnosed july 06, so nearly 6 years ago,i had all my lymph nodes out and all of them were possitive, also spread to clavicle nodes....as far as i know(dont like to temp fate!) im ok....i was discharged from my hospital at the beginning of this year..
I am also triple negative...
I would like to hear more too - I was diagnosed with lymph node involvement 5 weeks ago and have surgery this week, the lymph node involvement worries me sick, I I had 4 with grade 3 cancer one month ago, there could be loads more......
hello, i dont know if this will help, my colleagues wifes prognosis was so poor, they would not even give her one this was 1999 and she is fine and has never had a reacurrance.she was 40 at dx
Thanks for posting! So pleased for you .... x
If others have any testimony around survival despite a high number of positive lymph results that would be WONDERFUL to hear....
I'm a four years misdiagnosed lady who is still fighting the system for some sort of acknowledgement. But that's another story! For tonight I just wanted to say I was diagnosed in 2005 (put myself into the system at age 50 because my GPs would not refer) and was diagnosed with a stage 3b breast cancer. My world fell apart. Despite a poor prognosis I'm still here 7 years later.I try to have a positive mental attitude, good diet, do yoga and meditation, enjoy life and do the best I can not to think about the lymph node involvement. Not easy but time is a great healer.
Look after yourself and try not to let the stage get you down.
My sister was diagnosed 6 years ago with stage 3, with very high number of positive nodes as she had been misdiagnosed for 3 years. I think she was 33/34 years old when diagnosed.
She was not given a good prognosis. She is alive and well, no evidence of disease and in Jan 2011 gave birth to her third child.
Would love to hear from survivors of stage IIIC breast cancer who've had 19+ positive lymph nodes removed.
Have a lovely lovely friend in need of positive stories and a network with others who've been in this situation and lived to tell their tale....
Love to hear from you and thank you