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All the fears back again.

5 REPLIES 5
Community Champion

Re: All the fears back again.

Frances

 

Wow he is a great friend.  I know when I was going through all the investigations with regard to my bleed and I had an MRI my friend said to me if it was anything serious they would have not hesitated to get me in immediately , the fact that the consultant said she was happy to book me in for my hysterectomy 2/3 months later meant it is was nothing ominous and she was absolutely right, but we get ourselves in a mess because of what we have been through already,

 

You could try her or your oncologist again tomorrow and if that does not get results then contact the PALS team at the hospital, you can do this through the main switchboard, and they will investigate for you why you have not had a return call.  It may be that they are very busy, however, as you say you wonder what someone else is going through and not getting help xxxx

Member

Re: All the fears back again.

Hi Helena,

 

Sadly I haven’t. I’m actually feeling lots better today. Talked it over with my closest friend last night and he said the way he looks at it is you know what you haven’t got but not what you have got (fully). That made such a lot of sense and could feel the stress begin to subside. He went on to add if there had been anything worrying or of concern found they wouldn’t have let you go and would have done further tests. Just gotta love the man!!

I am more annoyed with my nurse now than anything. It’s been 2 days. How many other patients is she doing it to? It’s actually quite sad when I think about it and what someone else might be going through and not getting the help.

 

Frances xxx

 

 

Community Champion

Re: All the fears back again.

Frances

 

Have you heard back from your BCN yet?

 

Helena xxx

Member

Re: All the fears back again.

Thanks Tili. Used her a fair bit in the early days as I live on my own and don’t have family. Think she just saw me a a worrier  Have only ever told a very few close friends about breast cancer as wanted to be treated normally. I adn’t called her in 5 months until last Thursday. She wasn’t so bad this time as she could feel lump although she did say “ I don’t know how you find these things!”

i just want clarification of what lump is.

 

Hugs

Frances xxx

Member

Re: All the fears back again.

Dear Francis so sorry you are feeling so worried, however BC nurse need to give you more time and attention DONT WORRY IS NOT GOOD ENOUGH we all need answers right away 

 

good luck and take care Tili 🤔

Member

All the fears back again.

Hi everyone 

 

Diagnosed August 2017 and WLE and SNB September 2017. No nodes affected. 8mm lump IDC Es 8/8 and HER2 +. First year mammogram (July as going on holiday) clear. 

Found small lump just below scar nearly 2 weeks ago. Had ultrasound last Thursday and sonographer said nothing suspicions or to worry about. Checked for cyst but it isn’t. She suggested a hair follicle. Later reading report It just says:

 

:Corresponding to the palpable lump there is a 7mm cutaneous lesion: 

 

BC nurse said she wondered about hair follicle and to keep eye in case of infection.

Was a happy bunny but then Sunday I felt very low, achy, hot feeling in breast etc. I’ve now scared myself silly because I  realise report doesn’t say what the lump actually is. Cutaneous Lesion just means skin injury/trauma. No mention of hair follicle. What does that mean anyway? We all have hair follicles.  It isn’t infected, can’t see it,  or is ingrowing. Because of previous breast cancer I’ve now got myself in a state and can’t accept it’s nothing because of what I feel is an ambiguous diagnosis.

 

I emailed my BC nurse early hours of this morning and asked her to call me but so far she hasn’t. I don’t have lots of confidence in her as she says things like “don’t worry about it” if I ask something or “it’s normal” when had lots of pain months post surgery. Tone was you should have known and fancy asking. When I was scared about recurrence in early days she told me “This is why we are giving you all this expensive treatment. Felt like writing cheque I was that guilty. That’s just some of what she has said.

 

Has anyone else had ultrasound diagnosis like that. Am I overreacting ? Stress levels never use to be like this until menopause.  Now realise the low achy feeling etc Sunday was most probably stress. Hormones have a hell of a lot to answer for !!! I’m 66 in just over 2 weeks. 

 

Many thanks all

Hugs

Frances xxx