29-01-2014 03:49 AM
01-11-2013 06:10 PM
13 months after stopping chemo, my hair started to thin again. It had grown in evenly and nicely and was just getting to a point that it didn't look like chemo-grow back. My head began to hurt, as it did with the original chemo fallout, and then withing 2 weeks I probably lost about 25 to 30 percent of my hair--mostly on the top and crown of my head, although it has thinned all over. It's still shedding, though not at such an alarming rate.
My oncologist said it wasn't from chemo. The pcp said it probably wasn't from chemo. The dermatoligist said that he was 95 percent sure it had something to do with chemo, giving about 5 scenarios, before telling the oncologist that he thought it was from stress--like after pregnancy. After 5 kids, I know what the stress-related shedding feels like. This felt like chemo loss.
Seeing that there are others who are asking this same question makes me think that it is more common than one might think. When someone talks about a symptom and doctors and everyone else tells them it's not happening, they usually give up and don't talk anymore. One thing I've learned from my experience is that just because it's not common or the doctor hasn't heard about it, doesn't mean it's not happening. So, if you've suffered from this or are still suffering, please let us know. You're not alone and you're not crazy.
To the people who have posted that it's probably not from chemo, please don't say that unless you have actually gone through this. We need support, not doubts.
22-06-2010 11:23 AM
when my hair fell out with the chemo it was gone totally within 48hrs, including every other hair on my body!!
This time its only head hair that seems to be going, not as quickly as before but quick enough for my liking! lol
I'm trying not to fiddle with it, its become a bit of a paranoia thing now and i feel as iff i have to test it to see if its still falling out - and yep, it is!
21-06-2010 09:00 PM
maybe it is alopecia, which can be caused by stressful events, and it certaibly sounds like you have had a stressful time. Have other hairs on your body fallen out? Have they followed the same pattern as when you lost hair after chemo?
21-06-2010 07:05 PM
Hi, they have referred me to Toni & Guy lady, they did ask the Dr to see me at the hospital but his conceren was that as i was coming to the end of my treatment i might get left out the loop and he wanted me seen/ followed up regularly so have to go back to my GP.
I wasnt too worried when my hair fell out cos of the chemo but now it's a different matter!!! we'll have to see what happens!
21-06-2010 05:15 PM
Hi again Lou... ah yes, it's the "E" in FEC (epirubicin) that is so tough on hair. I finished 6xEC (without the "F") in Feb.
I would guess that your recent hair loss is not related to your course of chemo, but this is just a guess... posssibly the strong antibiotics?? I hope you get a helpful answer, I would suggest onc. and/or GP who might be able to refer you to a hair-loss specialist??
21-06-2010 04:53 PM
Hi... seems strange (to me) to have further hair loss so long after chemo. There can be other reasons for losing hair...
Which type of chemotherapy treatment did you have?
21-06-2010 04:13 PM
just wondering if anyone can help please?
I finished my chemotherapy May 2009, and have just 1 dose of Herceptin left to have. My hair grew back August 2009, curly and much thicker than it ever was before. I had reconstruction using skin from my tummy in March this year, things didnt go exactly according to plan and over a period of a few weeks I ended up having in total 4 operations - the last due to massive infections which also resulted in huge doses of antibiotics-at one point 1000mg of Fluclox and 1000mg penicillin 4 times a day!!! (which still didnt work and ended up having an op to drain a mammoth absess)
Anyway, my hair became very dry which i sort of expected as i had been so ill, but about 3 weeks ago it started falling out - there was so much in the bath after a shower it stopped the water draining away!!! It's thinned a lot on the sides ( I can see scalp) and everytime i put my fingers through it out comes more, its also on my pillow in the morning, so i'm guessing this is more than just a natural hair loss, has anyone any ideas?? the oncology unit thinks it may be stress related but has referred me to a lady from Toni&Guy for a consultation, they also mentioned things i shouldnt be using on my hair but didnt exactly say what!!!! Help!!
ps; hope i've posted on the right section(?)