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Member
BeauBeau
Posts: 16
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

Thanks for the inspiration - I'll get out running soon... and see if I have any ability left. Finish rads next week but want to do the half marathon in Oct.
BB

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Member
KatieP
Posts: 288
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

I have just found this thread and am reading enviously! I ran all the way through all of my treatments until December when the pleural effusion caused by my lung mets meant that I was too breathless. I continued walking and it was drained but my lung has only partially re expanded and is trapped by what my oncologist describes as scar tissue. I simply cannot breathe well enough to run though I still walk briskly and for reasonably long distances. i'm really frustrated by the lack of running, it was my stress relief from work and social life as well. I'm on Xeloda now so I hope that it will do something for my breathing.
I get cross with my oncologist as he seems to think that if I can climb stairs I am doing well but this time last year I was running an off road half marathon.
I have been skiing as wel which was fine except for getting up to the lifts!
Well done to those doing the race for life ,I will probably enter with my daughter and walk/ run
Best Wishes Kathryn

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Member
Carolina
Posts: 53
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

Well done RoadRunner! That's a very respectable time.
I have just been taken off Taxotere and Cyclophosphamide. I am staying on Herceptin and my onc is starting me on Xeloda. I have been having a very hard time on Taxotere and my muscles are gone so I cannot even run 50 yds. I am so encouraged to read how you have come back. Makes me feel that I can work at it and get back in my stride too. Thanks for the inspiration!

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Member
greenpea
Posts: 94
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

Well done RoadRunner
That is such a feat. I did the race for life last year in 28.32 and that was being fit without any nasty drugs so you did exceptionally well. Well done to you!

Thankyou for your comments about fitness. Perhaps I'm too impatient and expecting too much. I have had 6 x TAC chemo. I just hate seeing my ever expanding waistline and feeling like s**t because of the lack of fitness.
I usually have a long walk 3 - 6 miles with the dog most days but it takes so long. Not like putting on your trainers and running 3 - 6 miles.And I'm knacked for hours afterwards. At 48 I suppose it will take longer to get the fitness back too especially going through the menopause because of the Tamox.

Moan over. Will look on this thread for inspiration to keep going with the exercise.

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Member
RoadRunner
Posts: 1,321
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

Well my 18 year old beat me in the Race for Life today in Loughborough. But her presence made me run faster. She passed the finishing line about 30yds ahead of me. I did it in 28:03, so was really pleased.

Greanpea - I don't know what chemo you had, but taxotere really made things difficult for me. By the end of it I could barely run 1/2 a mile, and it has taken me a long time to feel anything like normal again. I finished chemo last september, and it has been a long struggle to get my fitness back. I'm still not as fit as I was before, but I am still on herceptin, and the tamoxifen hot flushes mean I don't sleep well, so I'm not doing too badly.

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Member
greenpea
Posts: 94
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

I use to run to keep fit - not for competition, but since finishing chemo 3 weeks ago,I can't seem to run more than 2 mins and have to stop.
I've returned to the gym to try to get fitness back on the treadmill but again can only do a brisk walk with an incline. Surely I couldn't have lost all my fitness so quickly?
I've also tried the static bike and the cross trainer but the cross trainer makes the arm on the affected side feel really stiff and bulky. I'm worried about creating lymphoedema from the repetitive movement and pressure.
I would really like to get back to running again but feel it's not possible.

Thought I might add that I have just started Tamoxifen and have rads starting next week - so more fatigue on the way!!

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Member
eal69eal
Posts: 205
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

Hi Guys
Me again from back in April. Just to let you know Portacath is in and am running fine. Have just finished 3 FEC and have managed to run 7K regularly on my 2 good weeks off (feel rubbish week of treatment so no sport at all). Am an avid climber and have recently returned to the climbing wall and am really enjoying a few 'normal' activities during all this crappy business (also the climbing has totally got rid of my cording). Am about to start Tax so whether or not I remain this active remains to be seen but I'll just go with the flow!
Good luck everyone

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Member
Carolina
Posts: 53
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

I have run for over 10 years now. Nothing fantastically fast and my limit was a half marathon but I always felt good afterwards. I swam too, usually 1-2 kms 3 times a week. Now I cannot do that as I am on chemo and I cannot run anymore as my muslcles seem very weak. I go out and walk a couple of miles each evening when I feel good and come home feeling very energized.
I had a portacath inserted today and now I, too, am wondering about running once I am off the chemo. Any advice from runners/ swimmers with portacaths would be great.
I find my feet and joints ache more and wonder if it is the Taxotere. Roadrunner, when you say tax, do you mean Taxotere?
I know this is all just temporary and I hope to get stronger when chemo ends in July. I feel I must keep the exercise going as I am over 50 and I know it is harder to get back the fitness with age. I just know from experience that this works for me and makes me feel good. As you say, you feel more in control and that is good when things have got out of control cellwise inside you.
Good luck for Sunday, Roadrunner. Have a great run!
Carolina

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Member
RoadRunner
Posts: 1,321
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

Good on you Speedie! I'm finally finding it getting easier. Lots of hard work, but it seems to be paying off. I am doing the Race for Life in Loughborough this Sunday, with my daughters. I shall be running with my 18 yr old - now there's some competition! My 13 yr old will be doing it with two friends (I think they will do a lot of walking).

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Member
speedie
Posts: 1
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

Hi everyone,
Sitting here with my coffee day 2 after quadrentectomy and snlb I feel so far behind you all - I was feeling so fed up about possibly not running through my treatment (and I don't know what that's going to be yet) but having read all your messages I am now convinced that I'm going to. Not sure I'll manage another marathon (think I said that before I found out i had bc) but I'm going to run and try and keep fitter and by the sounds of it try and keep the weight off. Big thanks to you all.

Speedie

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Member
fozzie
Posts: 9
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

pollym,
thankyou for your reply, and I'm running with my sister , who has a place with breast cancer campaign, so I am raising money via her wepage. And there is a picture of me on the web page after finishing the Race For Life last July!!...Sneaky sister, as she put the photo on then told me about it!!! That's little sisters for you!!

For the other ladies on here, keep on going with what exercise you can do at the moment. I was given really good advice last year, and that was to be good to myself. All the effort you usually put into looking after other people, working, hobbies etc, well put all that effort into looking after yourself. Listen to your body and be gentle with it. It really is going through some hard work to try and get better. And not only that but you've got to get your head round the horrid bit of having cancer.
After my rads last year i was tired out walking for 10 minutes, and look at me now. So don't be disheartened, and take things gradually.

Also a great inspirational book I've just finished may interest others. Its one by Jane and Mike Tomlinson called "You can't take it with you". Jane did some amazing things when she was going through her treatment, and unfortunately died last year. But the book is an interesting read..... Don't get me wrong I've no doubt that other people in the same position as Jane may not be able to do the same. But it is certainly an inspirational book, Certainly helped me when I did my 20 miler the other week.

Lyn,
I got cording under my left arm, with phsyio and some hard work it has completely gone. So keep your chin up
:-)

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Member
RoadRunner
Posts: 1,321
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

Sorry, can't help you with the port-a-cath as I've never had one.

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Member
eal69eal
Posts: 205
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

Thanks guys that has helped. Have you got port-a-caths in? and you still run ok? Am a bit scared of the thought of a 'thing' in a main vessel and then raising my heart rate and blood pressure??
Pip

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Member
RoadRunner
Posts: 1,321
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

Hi Pip,

I, too was bloody-minded about it all and ignored all those who said I should be resting. I'm just not that sort. I always felt better for doing some exercise.

I was dx in Feb 07, had mast Mar 07, then 4 x FEC & 4 x Tax, 20 rads and am now on Tamoxifen and have Herceptin no 7 tomorrow. I have never stopped running. I had three weeks off after my mastectomy (but walked every day once home) and took a few days off after each chemo, just when I felt really tired. I found tax to be the worst - it gets to your muscles and makes them weak, and it got progressively worse with each one. I did the Race for Life last year. It was originally due to be a weekend in between FEC & Tax, so I booked to do it. Due to all the rain we had last year it got postponed a few weeks and I ended up doing it between tax no 2 & tax no 3. Before tax started I could still run 5k in less than 30 mins but by the time I'd done two tax I was slower and had to walk for a way half way through, and it took me 31:30. By the end of tax I could no longer run a mile without stopping, but I carried on running/walking as best I could.

I don't think herceptin is having any effect, although maybe it is slowing my progress back to full fitness. I can finally do 5k in less than 30 mins again, but that is very recent (I finished chemo in September).

I also swim, tho' I wasn't allowed to during chemo. I was back in the pool when I started rads.

We too went skiing - we went Feb half term last year, in between having the tests at the breast care centre & getting the results, so the holiday was rather over-shadowed. So we went again this year in Feb - my hair was just long enough to go without a scarf. I found I got really tired, and could no longer keep up with the kids (three teenagers) but I skied morning & afternoon most days. Felt like I needed a holiday to get over it when I got back!

My advice? As Pauline said, do what feels right for you. That's all I've ever done. And for me it felt right to carry on regardless. That way I had some control over my life.

Best wishes
xx

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Member
pollym
Posts: 349
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

Hi Pip,

Very quickly as its Monday night and Ive drunk too much red wine! What Id like to say is Im running as "normal" whatever that is whilst on Herceptin and Tamoxifen. However, I feel Im so much more unfit than I was and finding it very hard to reach the fitness levels I had before, I used to think I was unfit now I think I was like Paula Radcliffe! But I love running. Whilst on FEC and Taxotere I didnt do any exercise, not that I couldnt just that I was very lazy, Taxotere gave me joint pains for a few days after and also made me very tired. I conserved my energy I liked to think! I like to think that running whilst on Herceptin is helping my heart strength, my onc is certainly happy that Im exercising regularly and am getting fitter. Just do what is right for you, everybody feels different and everybody has a different experience of chemo, just because some people never exercise doesnt mean that you cant and vice versa, dont beat yourself up if you just dont feel like it. Take care,

Pauline

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Member
palomino98
Posts: 1,115
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

Hi Pip

I'm nearly at the same point as you, had mast/axillary clearance and immediate DIEP recon four weeks ago. I used to run, not competitively or very seriously though, swim a bit, and ride most days. At the moment it's all I can do to walk the dog out for 40 minutes, it's hard to imagine running again! I too am having a portacath inserted on Wednesday and start 4 x Epi then 4 months CMF on 11 April, followed by radiotherapy and tamoxifen (I'm not having Herceptin). Told not to go abroad during chemo and no swimming but I haven't asked about other activities, see physio on Tues about what seems to be cording in my left arm and will get some more advice. All the best, Lyn x

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Member
eal69eal
Posts: 205
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

Hi Guys
I have just stumbled on this thread and would love some advice about running/sports. I am a treatmenrt newbie only diagnosed end of jan and currently recovering from mastecomy/DIEP recon 3 weeks ago. I am a really active person running regularly and climbing. The thought of giving all this up has been nearly as upsetting as the diagnosis!. I am having a portacath put in on Wed and am starting 3FEC/3TAX then Herceptin. I accept that I may not have the energy or the inclination to run during the chemo but woud love to hear inspiring stories from anyone who did manage it. Also is it realistic to think I could be running regularly once I am on Herceptin? Is it ok to run with a portacath? what about all these cardiac side effects (especially with Herceptin) that I am reading about?
All these questions - soory! but I get the impression you guys are all monts ahead of me in treatment and would love your advice
Many tanks
Pip
PS: am in the process of booking a ski trip next xmas because I am bloody minded and stubborn and this is not going to rule my life! - am I being irresponsible?

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Member
joannafinch
Posts: 681
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

hi all
i've enjoyed this thread a lot. i am in a different league to all you (think Barnet (me!) as opposed to Chelsea for instance) but am just getting back to the gym after about nine months of treatment. reading all this has been inspirational. i've walked and done yoga all the way through treatment and it feels good to be doing something more now.
pinkdove, is yoga an option for you? i was completely indulgent through treatment and hired someone to come in once a week for an hour and a half and do a session with me. it was wonderful and sometimes was the only thing that really lifted my spirits.
jo

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Member
pollym
Posts: 349
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

Fozzie,

What a great message! Thanks very much, you give me hope that one day I might be running "normally" again, whatever that is. At the moment Im still struggling to run for 30 minutes without stopping! I dont seem to be moving past this point at all but must admit to not getting out often enough. Its really great that your times are getting faster, and like you say the psychological benefits of that are fantastic, even coming as far as I have, which isnt far, feels like an achievement now. I cant believe how I used to stress about times!

Im hoping to run Great North Run for breast cancer care in October, I think Ive got a place as BCC have cashed my cheque! I ran the London Marathon 3 years ago, it seems unbelievable now, like that was a different person in a different time, I ran for a childrens cancer charity as my friends daughter had a brain tumour. Are you running for a charity this year, if you are give me a link so I can sponsor you!

Take care and enjoy your running,

Polly xxx

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Member
fozzie
Posts: 9
Registered: ‎01-05-2012

Re: sports, running and tamoxifen

Hi everyone,
really enjoy coming on here and reading about all those other girls out there, who are in the same boat as me. Its good to hear about the tamoxifen hips and belly, I've never been overweight in my life, perhaps even slightly under weight. I'm now a good stone heavier than 18 months ago!!!! but everyone keeps teeling me i look really healthy, and my marathon training is going well, so i'm not worrying too much!

In fact I ran a 20 mile race 2 weeks ago. Ran with my breast cancer vest on, and it was amazing the amount of support I got. The 20 miler went as planned, and I even did it 4 minutes faster than I have previously. Now I know I'm in the right frame of mind for the London Marathon, and am actually looking forward to it. I know that must sound strange, but its kind of in my head type of thing. This is my psychological last piece of the return to "normal" jigsaw for me. I know I will never be the same as I was pre B.C, but overall that is for the better.

Sorry to hear of some ladies suffering from aches and pains in their joints whilst on tamoxifen. I must say I'm fortunate and do not suffer from them. The night sweats are really hardwork, and quite unbearable sometimes, but hey, its better than being dead..... funny how I think this now 15 months on from my DX. when i was initially diagnosed i thought my world had ended. when in fact once i'd got my head round everything, I've actually come out of it with a lot of a better attitude on life, family, work, opportunities etc,.

well thats enough of the lecturing..... keep up the running ladies. I've just enrolled for 2 trial races in the lake district later this year, and my other half wants to go and do the amsterdam marathon in october!! so I'm gonna do the half!!!!
Keep smiling girls
fozzie xx :-)

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