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Moderator
Jo_BCC
Posts: 6,588
Registered: ‎01-05-2012

Re: Top tips to help get you through Chemotherapy

Hi Lynda

 

If you go to the first page of this thread ( I think there's about 34 pages!) people have put their hints and tips throughout the thread - it's been running for a few years now but users still find the information helpful.  If there's anything you need to ask and you can't find an answer then please don't be afraid to ask, there's always someone here to help.

 

Take care

Jo, Moderator

Member
LyndaMarie
Posts: 4
Registered: ‎14-10-2014

Re: Top tips to help get you through Chemotherapy

Hi Everyone

 

Please excuse me but I am new to the forum. I start my first chemo session next Wednesday 17th December and would be interested in the Top Tips for Chemo, but where do I find them?

Kind Regards

Lynda x

Member
Suzie68
Posts: 64
Registered: ‎02-03-2014

Re: Top tips to help get you through Chemotherapy

[ Edited ]

Hi Flossie my new site has gift packages containing natural products especially selected for each area of treatment. This idea came from my own experience. For more information please send me a private message

 

Member
flossie101
Posts: 12
Registered: ‎16-11-2014

Re: Top tips to help get you through Chemotherapy

What a fantastic list! Thank you to all the contributors :smileyhappy:

Something practical to share with family and friends who want to help - I'm going to ask them to help source items and put bag/packs/caddy together in readiness for when the time comes.

Thank you again xx

Member
Marleyann
Posts: 25
Registered: ‎28-05-2014

Re: Top tips to help get you through Chemotherapy

 
Member
Marleyann
Posts: 25
Registered: ‎28-05-2014

Re: Top tips to help get you through Chemotherapy

Last chemo next week hope to start to feel normal again frightened to go out on my own caseI flake out again where's that come from ?mri scan clear.muat be just me !
Member
Sarahjane71
Posts: 71
Registered: ‎17-10-2014

Re: Top tips to help get you through Chemotherapy

 
Member
Homer
Posts: 358
Registered: ‎01-05-2012

Re: Top tips to help get you through Chemotherapy

sorry if this has been covered in this thread already

 

can anyone help with a vinegar taste?

i am 9yrs down the line since 1st DX & have had many different chemos over the years

and i remember this happening before but i cant remember what i did to help myself?

 

my food tastes fine when i am eating it, everything tastes as it should,

but around half n hour after i get a horrible vinegar taste.

 

the chemo i am on this time is kadcyla

 

kimi x

Member
Samntha
Posts: 42
Registered: ‎22-08-2014

Re: Top tips to help get you through Chemotherapy

Spirulina? I seem to feel sicker on wheatgrass.
I am also drinking aloe Vera juice, ( to calm the gut) but quite frankly it smells vile.
Member
Chaise
Posts: 13
Registered: ‎05-06-2014

Re: Top tips to help get you through Chemotherapy

Hi - I also had a leak in the chemo drugs & also a swelling in the arm. When I saw my oncologist he said it was 2 different things going on. The swelling in my arm was caused by the veins getting a bit fed up and it should go down in a month (fingers crossed), however still sore and I cant keep my arm straight. The leak went red then blisters but is going down - this has taken 3 weeks. I hope this will be the same for you - I had chemo yesterday and they put the cannular near my little finger and this seemed to work ok - I only have 2 left now and I said at No 1 that I wouldnt have anymore - keep going girl - we will get there! xx
Member
hbunny
Posts: 223
Registered: ‎30-04-2014

Re: Top tips to help get you through Chemotherapy

Hi team.  I'm just wondering if anyone has any suggestions on foods to help Increase white blood count.  I've just bought some wheat grass powder, has anyone got any suggestions or advice?  Thanks hbunny

Member
sugar8
Posts: 174
Registered: ‎22-05-2014

Re: Top tips to help get you through Chemotherapy

Hi hbunny
Hope your lymphodema has resolved and the swelling in your forearm has sorted itself out. Hope you are having a relaxing day today
Hugs
Sugar8
Member
hbunny
Posts: 223
Registered: ‎30-04-2014

Re: Top tips to help get you through Chemotherapy

Hi sugar, contacted the help line yesterday and saw an oncologist within an hour.  They weren't worried about the lymphodema in the ankle, and that is definitely better this am, however were concerned about swelling in forearm, which was caused by a leak of chemo drugs into the surrounding tissue which could cause problems and will need to keep an eye on it for ulceration.  It does however look a little better this am (she says holding her breath), but will see what happens over the next few days, hopefully got away with it!  Now day 5 cycle 2 fec100 + tax (3x each) and one third there!

 

Just a bit anxious now about what happens for cycle 3-6 to prevent a recurrance.

 

Hope you are doing well sugar. Positive hugs.  Hbunny

Member
sugar8
Posts: 174
Registered: ‎22-05-2014

Re: Top tips to help get you through Chemotherapy

hbunny
Have you contacted your Bc nurse re your lymphodema? Did they give you a contact number to call if you develop it because the earlier they see you the better. x x
Member
hbunny
Posts: 223
Registered: ‎30-04-2014

Re: Top tips to help get you through Chemotherapy

Hi all, sorry to butt I to your thread, I've just popped over from the July thread to see if anyone has any tips.  I'm doing fec100 + tax (3of each) and now day 3 of fec 2.  I have suffered with phalbitis since day 1 cycle 1 but last night saw lymphodema pop up in my arm and ankle (r). Anyone know what causes this side effect or any tips to help.  Currently walking around in a compression sock and tuby grip and massaging regularly.

 

Ps, will have to get the smoothly maker out I bought a couple of years ago and never used, thanks for reminding me.  Love to all going through crap right now, happy to say I haven't been sick yet but the side effects are different this time round, probably due to changes to anti sick meds.

 

Thanks for any suggestions offered.  Hbunny xx

Member
Chaise
Posts: 13
Registered: ‎05-06-2014

Re: Top tips to help get you through Chemotherapy

Hi Julie. Thanks for your reply with such great tips - I never thought of smoothies and bought blender today! Trusting you are going through this bit of a blip in our health as best as you can - as with all the ladies and gents on this website, think positively,and together we will get through this (Im ok writing this in week 2 and 3 after treatment !!! xxx
Member
Julie286
Posts: 49
Registered: ‎08-06-2014

Re: Top tips to help get you through Chemotherapy

Hi Chaise. I find that I can't get enough fizzy water - I squeeze a bit of lemon or lime in it - nothing else seems to satisfy my thirst in that 1st week or so. But drinking lots definitely seems so help me feel a bit better. The packs of frozen fruit are really good too - mostly use them to make a smoothie - literally just chop a bit of fresh fruit (usually include a banana for sweetness) with a handful of frozen fruit, a bit of milk and whizz - much easier than eating fruit with no taste (because of the lovely side effects!!). And - the frozen pineapple is nice on it's own to eat - weird but true!! Good luck with everything xxxxxxx
Member
Chaise
Posts: 13
Registered: ‎05-06-2014

Re: Top tips to help get you through Chemotherapy

Hi Louise, Thank you for taking the time to reply, it is most appreciated. Yes, I am on FEC too.I will take your advice on the fruit - probably not doing this as much as I should but Im definately drinking - one day soon Im sure Rose Wine will be back on the agenda! But for now fruit juices and water!!

 

Well done on only having 2 more to go, go for it girl and as for everyone sending you my good wishes and happy healthy life from now on, for the future.

 

I do enjoy this website, but probably I shouldnt write on it when feeling down and would prefer to spirit other friends on this website with joys of encouragement. xx

Member
Jeremiah29
Posts: 4
Registered: ‎15-07-2014

Re: Top tips to help get you through Chemotherapy

I know I too thought the 1st dose was awful but now am thinking that maybe with each dose it gets worst.  2nd dose was 6 days ago with 1st dose of Herceptin and only  just feeling human.  I couldnt quite believe I could feel that ill and still be alive!  I had to give myself a stern telling off each time! Hang on in as I am trying to do, when we hit rock bottom the only way is up!

Member
Louise3721
Posts: 97
Registered: ‎25-02-2014

Re: Top tips to help get you through Chemotherapy

Hi chaise it is very demoralising when the s/es are bad I too am very ill after chemotherapy it takes me a week before i start to feel like normal. What chemotherapy are you having I am on Fec and that about sums it up!

The best advice I can give is drink plenty eat lots of fresh fruit and fibre. I find it washes the damned stuff out of you .

I have been put on tranquilisers because my body rejects the chemotherapy so I start throwing up as it's being administered. Fabulous eh?

I have 2 more to go then I am done. I also eat a lot of steaks before getting blood done to make sure my iron count is high.

Good luck and just keep going. Get support from here and your Macmillan centre and get a break planned to give you something to look forward to x