21-08-2015 11:31 AM
I wanted to try the Cole cap but my oncologist said if you are having EC you will loose almost all your hair. She advised me against it because of my COPD. Do not think I could sit for 4 hours on my head but as a lot of ladies say small price to pay if you keep your hair.
14-08-2015 03:50 PM
Looking ahead, due to have 2nd chemo next Thurs. How soon after finishing chemo do you start Radiology? Just wondering about booking a winter holiday once I finish chemo at beginning of December but wont bother if i start Rads straight away. Should be having Rads for 4 weeks so will take me into January.
Thanks for advice.
02-08-2015 03:37 PM
After my third chemo I came home and two days later I was brushing my hair which was long and healthy and it completely all came out. I had a big garbage bag full of hair. At the hospital there is a group that make caps for cancer. Really nice ones for summer and winter. Never had to worry just put it on and go. Now 2 yrs. later my hair grew back thin in some spots, curly when it was straight before and I think the worse gray! I was told not to shave my head just left it fall out on its own. Apparantly when you shave it your scalp gets really itchy.
29-07-2015 07:47 AM
14-07-2015 08:43 PM
Hi, just completed my first chemo/herceptin cycle. I had severe leg muscle and back pain after the first session. My oncologist prescribed one Clarityn tablet a day to alleviate the problem. It worked, not sure why or how, but I can now get by on a couple of paracetamol a day.
13-07-2015 03:37 PM
13-07-2015 12:42 PM
12-07-2015 07:52 PM
This is my first post. I don't really have ant tips as such (sorry) but I do have a question re the cold cap. I had my first chemo FEC-T (I have stage 3 HER2 positive and 3 of 15 lymphs were affected) 4 weeks ago tomorrow. I should have had the second dose last week but after travelling all the way there (they have suddenly closed the local unit and I now have an hours journey) they said they would have to defer for a week as I had a tooth abcess and had phoned the dentist earlier to get anti B's left out.
Anyway I had a terrible headache the first time, which I'm not sure was the cold cap or the chemo but within 40 minutes after the drip came out I had to use the loo and was violently sick, they had taken the cap off so I could use the loo and when I came out I could not bear it to go back on. I carried on being sick for an hour
Just before I was due to have my second chemo, my hair started coming out - it's not thick anyway (as I have an under active thyroid) but every day I have maybe 3 handfuls of hair on my pillow and I can see a few bald patches on the top - though the back is less affected.
My question is am I likely to have wasted my time because I took it off early last time?
Is it worth proceeding? I had my longish hair cut short to make the capping easier but I read that the capping is more painful the thinner the hair is?
Hard to know what to do for the best really!
Thankyou in advance
15-05-2015 04:54 PM
Sorry but i'm afraid the Tax does seem to cause aching. Mine was muscles joints etc. I took Codeine Phosphate 30mg at night which was great for getting a better sleep. Of course the steroids given with Chemo will also be preventing you from sleeping. Only two more to go then you're done....I would definately ask for some stronger painkillers.
Good luck with the rest of your treatment. Gilly x
15-05-2015 11:56 AM
15-05-2015 09:26 AM
14-05-2015 07:43 PM
14-05-2015 07:37 PM
14-05-2015 06:27 PM
11-05-2015 03:48 PM
Hi everyone - I finished chemo 6 weeks ago, although still have herceptin/pertuzamab every 3 weeks. I used the cold cap throughout (6 x Taxotere) and have kept the majority of hair although it is a lot thinner than before. It is really worth persevering , I felt 6 weeks of discomfort were worth it instead of 6 months without hair.
On the subject of specs I bought some cheap folding ones from Wilko, about £5 I think, and only opened half of arms and this worked for me. Good luck with the cold cap ladies. Marli xx
09-05-2015 06:01 PM
Hi Lulu, I had my first chemo treatment yesterday and used cold cap. Tips: take paracetamol beforehand (and during if the 4hrs runs out). Nurse should spray hair lightly with water+conditioner, makes it easier to take it off. Take a cotton Alice band got protect your ears and your forehead at the touching point. It takes a couple of attempts to get a tight fit, it's really important as any gaps or bubbles will encourage hair loss. I didnt wear my glasses, but nurse suggested bringing an old, bashed pair so I guess it's possible. Might try ear buds and music next time too. Keep warm, extra blanket was avail, and drink warm drinks. Keep the injection arm warm, I forgot and wondered why my hand was hurting! It was cold...I did get a headache during first 10 mins but paracetamol was effective. It extended the time by 1.5hrs. And I looked like I was about to be shot from a cannon according to my 19yr old son beside me. When I got home I washed my hair with Simple shampoo and conditioner, gently towelled dry and left it to dry naturally. Put a silky nightdress over my pillow last night, and woke up 8 hrs later. So far, so good. Hope this helps xx
09-05-2015 04:17 PM