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Member
Posts: 393
Registered: ‎04-10-2013

Re: Top tips to help get you through Chemotherapy

Afternoon Gemma

 

Sorry but i'm afraid the Tax does seem to cause aching.  Mine was muscles joints etc. I took Codeine Phosphate 30mg at night which was great for getting a better sleep.  Of course the steroids given with Chemo will also be preventing you from sleeping.  Only two more to go then you're done....I would definately ask for some stronger painkillers.

 

Good luck with the rest of your treatment.  Gilly x   

Member
Posts: 62
Registered: ‎27-03-2015

Re: Top tips to help get you through Chemotherapy

Gemma, I only just started treatment a week ago, Tax plus herceptin plus pertumusab. Also suffering with aching muscles, joints. I spoke with a GP on Tuesday and he confirmed I could take stronger painkillers (had cocodomel anyway) without worrying about overdosing. It worked. Get in touch with whomever can give you more effective painkillers. x Sheila
Member
Posts: 6
Registered: ‎02-05-2015

Re: Top tips to help get you through Chemotherapy

Thank you to all u ladies very proud of u all u really keep me positive good luck to all through ur chemo n I will seriously think about the cold cap thank you so much for posting xx
Member
Posts: 11
Registered: ‎11-01-2015

Re: Top tips to help get you through Chemotherapy

Hi ladies. I have just finished my chemo I had 6 fec. I used the cold cap throughout and kept my hair just some thinning on top but I've even been to the hairdressers during my treatment. The key is lots of layers, pain relief, hit water bottle and something good on tv. It's horrible but I got through it. I had no sickness but was given lots of sickness drugs to help. I start my radiotherapy next Tuesday which I have been told is easy in comparison. I wish you all the best of luck lovely brave ladies xxx
Member
Posts: 212
Registered: ‎22-05-2014

Re: Top tips to help get you through Chemotherapy

I tried the cold cap which was fine. Had a hot drink to start with which I kept in my mouth to warm me up. After the first 5 mins I didn't feel the coldness :-).
The cold cap wasn't so successful for me as I developed a large friar's patch but I was glad I tried it as it gave me the chance to come to terms with my gradual hair loss.
Member
Posts: 5
Registered: ‎17-01-2015

Re: Top tips to help get you through Chemotherapy

Hi, looking for some advice to deal with pain. I'm having Fec-t. Had my 4th out of 6 chemo sessions last Friday and my first herceptin last Thursday. No sickness this time unlike my first 3 but my whole body is aching and in pain, I've been taking paracetamol and ibuprofen as suggested by the chemo unit but it doesn't seem to touch the sides. I can't get comfortable anywhere so not getting any sleep which I think is making me feel worse. Is this normal? Also any tips gratefully received.x Gemma
Member
Posts: 477
Registered: ‎01-05-2012

Re: Top tips to help get you through Chemotherapy

Hi everyone - I finished chemo 6 weeks ago, although still have herceptin/pertuzamab every 3 weeks. I used the cold cap throughout (6 x Taxotere) and have kept the majority of hair although it is a lot thinner than before. It is really worth persevering , I felt 6 weeks of discomfort were worth it instead of 6 months without hair.

On the subject of specs I bought some cheap folding ones from Wilko, about £5 I think, and only opened half of arms and this worked for me. Good luck with the cold cap ladies. Marli xx

Member
Posts: 62
Registered: ‎27-03-2015

Re: Top tips to help get you through Chemotherapy

Hi Lulu, I had my first chemo treatment yesterday and used cold cap. Tips: take paracetamol beforehand (and during if the 4hrs runs out).  Nurse should spray hair lightly with water+conditioner, makes it easier to take it off.  Take a cotton Alice band got protect your ears and your forehead at the touching point.  It takes a couple of attempts to get a tight fit, it's really important as any gaps or bubbles will encourage hair loss.  I didnt wear my glasses, but nurse suggested bringing an old, bashed pair so I guess it's possible.  Might try ear buds and music next time too.  Keep warm, extra blanket was avail, and drink warm drinks.  Keep the injection arm warm, I forgot and wondered why my hand was hurting! It was cold...I did get a headache during first 10 mins but paracetamol was effective.  It extended the time by 1.5hrs. And I looked like I was about to be shot from a cannon according to my 19yr old son beside me.  When I got home I washed my hair with Simple shampoo and conditioner, gently towelled dry and left it to dry naturally. Put a silky nightdress over my pillow last night, and woke up 8 hrs later.  So far, so good.  Hope this helps xx

Member
Posts: 1
Registered: ‎05-02-2015

Re: Top tips to help get you through Chemotherapy

hi i have just got through my 4th chemo session and have 2 to go, i have had the cold cap all the way through 1st 2 were ok 3&4th were very very unpleasant due to the thinning of my hair, i have lost alot but only in place mainly top and back but disguise this by just tying it back loosely, i am persevering with it but it does get colder, good luck with your chemo xxx
Member
Posts: 6
Registered: ‎02-05-2015

Re: Top tips to help get you through Chemotherapy

Hi all I have been told that I can have the cold cap but my macmillian told me I will lose my hair so I'm unsure of whether to try it or not also wot will I need to take for my 1st chemo session did the metallic taste happen on ur 1st chemo as I'm not to sure thank you all x
Member
Posts: 3
Registered: ‎07-05-2015

Re: Top tips to help get you through Chemotherapy

Hi everyone, I've finished my chemo ( sorry to sound smug). The first seemed like a nightmare but lots can be done to help and to be honest the rest weren't so bad. I wanted to say try not to think too far ahead, enjoy your well weeks and there is life after chemo. I could use some tips on radiotherapy though?
Member
Posts: 4
Registered: ‎12-03-2015

Re: Top tips to help get you through Chemotherapy

Hello Lulubell1. I decided that I would at least give the cold cap a go, if it turned out to be too uncomfortable then I would ask the nurse if it could be taken off.
I was pleasantly surprised by both the cold cap and the chemotherapy. It was a warm day and the ward was quite hot so the cold of the cap, the initial 15 minutes it is really quite cold, was not unpleasant and was generally nicely cooling. The chemo was also much less traumatic than I had expected and the drug introduction only lasted about 45 mins for the FEC regime. To be effective the cold cap is on for 30 mins before the chemo then 2 hours after. The only downside was the time and the fact that I could not wear my glasses so couldn't read. Next time (2 weeks from now) I will ask if there is any way that I can keep my glasses on. I hope this helps. The very best of wishes to you for your treatment and recovery. Stay well, don't overdo it, rest and drink aplenty and watch your temperature carefully. Elaine56 xx
Moderator
Posts: 7,742
Registered: ‎01-05-2012

Re: Top tips to help get you through Chemotherapy

Hi Lulubell1 and welcome to the BCC forums

In addition to the shared experiences and support here, please feel free to call our helpliners to talk any concerns or queries through, lines open 9-5 during the week and 10-2 Saturdays on 0808 800 6000

I am posting a link to further information about treatments and further support ideas from BCC which I hope you will find helpful:

https://www.breastcancercare.org.uk/treatment

Take care
Lucy BCC
Member
Posts: 7
Registered: ‎29-04-2015

Re: Top tips to help get you through Chemotherapy

I've got stage 3, 6 cm lump and five nodes infected.  I seem to be having the same treatment as yourself and start my first chemo in two weeks time.  Good luck with all your treatment and stay in touch x

Member
Posts: 7
Registered: ‎29-04-2015

Re: Top tips to help get you through Chemotherapy

Please let me know how the cold cap was as I am thinking of having one as start chemo in two weeks time.

 

Thank you everyone for the tips I've picked up by reading this.  I am terrified but knowing you are all out there undergoing the same does give me strength xx

Member
Posts: 7
Registered: ‎29-04-2015

Re: Top tips to help get you through Chemotherapy

Ive read to just keep eating plenty of fresh fruit and veg and wheatgrass is good for white blood count and Aloe vera to settle the stomach.  Best wishes x

Member
Posts: 7
Registered: ‎29-04-2015

Re: Top tips to help get you through Chemotherapy

Hi there.  I start my chemo in two weeks time and I would love any help or advice.  Thank you x

Member
Posts: 7
Registered: ‎29-04-2015

Re: Top tips to help get you through Chemotherapy

Hi I also start my chemo in a few weeks time and other's have suggested lemon and honey for the metallic taste, also pineapple lollies to help with sickness.

Member
Posts: 7
Registered: ‎29-04-2015

Re: Top tips to help get you through Chemotherapy

I'm due my chemotherapy in two weeks time.  I didn't know whether to try the cold cap or not but I think I may try it now.  Was your body temperature cold or due to cold cap or did you wrap up?

Member
Posts: 29
Registered: ‎01-03-2015

Re: Top tips to help get you through Chemotherapy

Hi, sorry to hear about the sickness. I had my first chemo on 23rd Feb and too bad. I have only had a little reflux but I am on 75% chemo only because of my age. I think u can get stronger anti sick pills, I seem to remember someone mentioning this in a post. I got a massive bottle of Gaviscon from my doctor for the reflux . Telephoned surgery just mentioned breast cancer and I was put through immediately and the prescription was done plus more anti sick pills in case I needed them. My God never had such good service normally have to wait at least 3/4 days for an appointment -- has some benefit being a cancer patient. My next session is 15th April so will look in again to see how you are perhaps by then I will be honking too. Love Eileen xx👍👇🙋