13-12-2006 09:51 AM
Herceptin Hi Ladies
I was on Herceptin for 18 months before it was discovered that it had stopped working for me as liver mets and bone mets were discovered. I was then taken off it, so I presume it stopped working for me long before mets were discovered.
12-12-2006 10:58 PM
Herceptin Hi Carolm,
I\'m new to the secondaries club, after being diagnosed with liver mets a few weeks ago.
I\'d been on Herceptin (for early bc) for 7 months when the liver mets were found (one of which was 10cm), so now Taxotere\'s been added to the mix Just had my first dose last week.
It would seem herceptin didn\'t work at all for me, though they\'ve kept me on it, incase the mets would have grown faster without it.
I have spoken to people who have been on herceptin for well over 2 years though, and it seems to be working well for them. It seems to be luck of the draw!
11-12-2006 07:20 PM
Hi carolM I have liver mets and am on herceptin. Been on it since August 2005 but I know of other ladies who have been on it for over 2 years and it;\'s still working. My cancer is hardly detectable in the liver.
The way I look at it is that if it fails there is tykerb (hope I\'ve spelled it right!) plus several chemo options. Plus the longer we survive the more options that will become available.What we all need to understand is that breast cancer is not a single disease - there are many versions of it, hence the differences in all our treatment.
I know it is hard but after a bad day I say to myself, \'well that was a day wasted - pick yourself up girl and make tomorrow count\'.
11-12-2006 05:40 PM
I dont know how helpful it is to say this, but I have been on Herceptin since March 2004. I have extensive bone mets, and also had a lot of lumps in my neck and shoulder area which have now gone completely. My bone mets are a lot better than when I was dx with them 4 years ago - so the Herceptin apparently seems to be working. I do not have any spread to other organs though.
11-12-2006 04:29 PM
hi carol m this is a tuff time of year for us all , i have been on herceptin 12 months and has stoppped working , i am now fighting for tykerb but getting no were fast !! i will have to sell my home go into rented to pay for treatment this seems to be the only way , i also keep looking at my children and could just cry , my specialist told me i have 2 years , so i have to deal with it , i feel so depressed and am trying so hard to pull myself up .
11-12-2006 10:03 AM
How long does Herceptin work for Hi everyone
Its me again, have any of you been on Herceptin for any longer then 2 years ?I have liver mets and wondering if it works well on liver , i still see ladies with it coming back after a year , is that it , my oncologist said its like stopping a runaway train, will different mets come up else where whilst still on it . Have you had that problem? i keep thinking i may only be here for 12 to 24 months and will that be having different drugs pumped into me to keep me going. Feeling a bit low today some much what ifs going around in my head.
Take care love carolm x